Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

She's brought the baby back in again. And she's just off to get lunch while it cries in the office

Welcome erica and congrats on your BFP! Fingers crossed you'll have a boring and uneventful pregnancy, which ends in a Christmas/New Year baby.

March Blimey, does your colleague not have anything else to do?! Surely coming to your workplace twice within a short time is not really necessary... I feel for you - can you go out for a walk maybe until she's gone again?
The colleague next to me had her baby 3 weeks ago, and I am not really looking forward to her bringing him in. Having said that, I am going to visit a friend with a new baby on Sunday...

I am so scatterbrained today. Left home this morning without taking my progesterone or the folic acid, duh, had to turn around and go back, as I did not want to miss a dose. Goes to show that I am really in denial about it all.

Welcome back Erica and congrats on bfp! Good luck for a non-eventful pregnancy! Different hospitals do seem to have differing protocols for early scans. One near me has a self referral where you get there for 8am, fill in a form and wait to be triaged. They'll only scan if 6weeks + and they feel it appropriate e.g. you've had a bleed. Another hospital near me you have to be referred from GP, not tried that hospital so far, but assume they can do this quite quickly when necessary. Good that they said you can contact them directly.

Progesterone update. Tried back door without the ky and was fine.

March you poor thing! Is there any way you could work from home at all?? Bit late in the day now to arrange I guess. Since when did it become the done thing to bring your child into work with you? Sorry you're having to go through the emotions of this.

Thanks for all your lovely messages, another four week wait then until the scan if I can manage it...

Yes Jady it's a shame all the services are different. Our pregnancy service is actually split across two hospitals, so I've had the joys of attending one for the scan, and the other 25 miles away for the management options when I've MC. Fortunately the closer hospital is way more friendly and the EPU were amazing, so I'll be making that phone call in a few weeks if this little bean stays sticky!

Oh March who really takes their newborn into work that often? And then leaves it crying with colleagues?! For heavens sake... Hugs x

Phew. She's just left. She's so lovely and i feel bad being so angry and upset about this but i just can't cope. Other colleagues kept bringing him over and asking if i wanted a hold. No. I want to hold my baby. But i can't because it died

So sorry to hear that sasha . It's just so unfair that this happens so many times for some people.

I know it's hard to think of practicalities at the moment, but you should push them to get the embryo tested which might give you a clue as to what happened.
I think Coventry is definitely an option for you. You'll need to be 2 months post mc so it makes sense to do it while you have to wait anyway for the other testing.
Take care of yourself. I hope you have some support irl too x

I second that erica! March**, really, if that woman wants to be at work so much, why did she have a baby?! I didn't take my ds into work until he was 4 months - and he got a virus 4 days later. Enough said, i've not taken him in since. Work is not a place for babies. I can't believe she left her baby to get lunch - my ds is 21 months and i still don't want to leave him to go to work!

Just got my results back from Coventry (brummie have you had your email?) and they are all normal. Got my phone consultation next week. Can't help but wonder what the blimmin' hell was going on then, especially in MC3 where the baby was also tested and was chromosomally normal. And my other blood tests were normal. What else could go wrong?!

Flen, I was 'normal' too, but I think I couldn't get the placenta going so the heparin was the magic bullet. They won't fob you off, even with normal results.

Thank you just, that is good to know. You are my hope!

Sasha, so sorry to read your news. Glad you're able to get testing done. I can highly recommend Coventry. Look after yourself. x

March, sorry you're having to face a baby at work. Its awful; you just want to get on with life as best you can and then it invades the one area of your life you ought to be able to keep separate. Babies in the workplace piss me right off. A flying visit is fine, but not all all day stay. on your behalf.

March, I feel for you, glad she's gone now. On a practical level it's not great for workplace efficiency for people to spend so long distracting everyone.

Sasha, sorry it's bad news. After my third I was sent for blood tests, pelvic scan and I saw someone about genetic link to clotting disorder. I would recommend going to Coventry just so you don't wish you had if you get pregnant again if that makes sense. They say sometimes the thing that makes a difference is just persistence, if you feel strong enough to keep trying.

Well I got the Coventry results back today. And actually feel really disappointed that everything is normal. I'm glad I won't have to take steroids. But gutted because apart from starting progesterone at CD21 instead of BFP, the protocol will be the same as I was on last time and it didn't work... So all seems a bit hopeless.

I have same issue as a couple of others in that DH would be quite happy to stop trying, it's me who has this obsessive urge to 'fix' things. So not sure how long he'll agree to keep going.

Suppose I can try to focus on being as healthy as possible. I'm just within recommended
BMI range (top end) but don't have a great diet. The username is a clue!

Flen, cross posts.... Bloody ditto!!!!

biscuits frustrating isn't it! I've done diet stuff and also having acupuncture, and next BFP will be first time taking any drugs at all so I'm hoping... I can imagine I would feel the same if it already hadn't worked though. Have you been prescribed heparin too?

I was prescribed Dalteparin last time (bet I've spelled that wrong) because I had a gene for some kind of clotting disorder, however the doc said both link with miscarriage, and link with blood thinners reducing miscarriage, were weak.
Hopefully if you've not used them before though they could be beneficial.
And, as they say, new egg, new lining etc.

Hmm. It's another one of those situations where you don't know if it's good or bad news to be 'normal' biscuits and flen, so congratulations/commiserations on the normal results. Fingers crossed the scratch and cd21 progesterone /heparin will help. I do think from what prof b said that the progesterone is the important one for lining preparation. Have either of you thought about any of the trials? Tablet or response? Not sure if either of you qualify or not but i think sometimes it's nice to have a backup plan in your head. Keeping fingers crossed for your bfps soon x

Thanks March, although now even more terrified of BFP!

I don't think Response is in my area, and was Tablet to do with thyroid? Thought one of them was and I've had hypothyroidism for years. Not been great at taking tablets but started military-precision routine a few months back.

What's this?! Oh, St George?

Ooh no email for me!!! And I chased Kerri on Tuesday. Hope it comes soon.

Again congrats and commiserations it's not told you much but hopefully scratch and progesterone will help.

I'm another one that has a copy of Prof Regans book if anyone would like it. I think it's done all it can for me now so time to look ahead to TTC - but it was a valuable book and did help.

If anyone wants my copy - just pm me. Happy for someone to have it, just pass it on to someone else when you don't need it anymore. Hopefully we all get to a stage where we don't

Where is my Cov email!!!!!

Congrats Erica. Plenty of hand holding on here.

Sasha, sorry to hear your sad news, as you know we're here for you.

For those that are considering the Response trial, on another thread, it's been mentioned that recruitment may be freezed shortly. So if you are considering you may want to enrol.

There MUST be a reason why I've had four consecutive miscarriages. There must be. Now can only think of H-Y antigen theory but I don't know if anywhere will test for it. Think Prof Quenby has been involved in some research though so will definitely ask in next week's telephone call.

Think I'd self-implode without being able to ask further questions.

I don't know London hospitals Sasha sorry. As for next few days, just take it easy on yourself. In every way possible.