Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Sorry biscuits. I didn't realise you had thyroid issues too. I agree there absolutely is a reason after 4. Our luck cannot be that bad. I just don't buy it.

I'm so sorry for those who got the results back but felt they still don't have an explanation. I think it did help me to get the reason behind MC no.3. Although I now feel thoroughly defective, it is a reason. Obviously no idea about numbers 1 and 2 but there you.

Try and remember that Tanny had five MCs I believe, had no issues raised as a result of her Coventry tests but still carried to term as a result if their protocol. So all is not lost.

Absolutely! Five early MCs and all tests "normal". On the Coventry protocol and lovely sprog to show for it, and it's the same for just and tiny.

Personally, I just think they haven't found out exactly what causes RMC in cases like ours, but the treatment definitely improves odds...

Sasha, sorry to hear this. It is so heartbreaking to go through it again.

March, I am agog at your work colleague.

Sorry, I am trying, and failing, to keep up with everything! We're getting in as many outdoor activities as possible while the sun is out, which is great for DS, but I'm knackered!

We have our six week check tomorrow, and I will be in the strange position of discussing contraception for the first time in four years. Weirdly, I feel a bit sad about it! Silly fucker...

Sasha I'm sorry to hear your news.

I have spent today trying to take it easy after overdoing it yesterday and gaining a v sore tum. Also, during my two mile walk yesterday, I saw (in this order):

An empty clearbliue digi wrapper

A clearblue digi test (screen blank... Rats!)

A copy of "What to Expect".

Is the universe trying to whack me in the face?

I hope everyone is ok. I am dreading going back to work next week, but I can only wallow and eat cake for so long, I guess.

I have been a bit pants about taking thyroxine regularly in the past, I used to forget and then take two days' at once, then forget and miss one. Although my levels were still ok. Have got into a proper routine over last six months.
Tanny, Just and Tiny, you give us all hope!

Spartacus you take as long as you need to. I was off 4 weeks for mc 3.

I feel you on the baby bombs. Monday - our local breakfast DJ announced his wife was expecting, and so talked about it on their show AND their fb page (is nothing sacred or just fodder for djs?) so I hid that. Then up popped a friends scan pic announcing her news....

Then....

Criminal Minds on Sky Living - character announces she's also pregnant...

Monday, I could not escape it. Was like whack-a-mole. Another baby bomb pops up with no warning

Sorry to the ladies with results that have frustrated, i completely empathise. I know it would be bad news, but it would be a fixable solution too, instead of all this stumbling around in darkness.
Well, i think you lot must be right about the ov tests not picking stuff up. I can'y be certain i wsited 4 hours to pee either. I always use tesco's packs of 7 tests for around £9. Can anyone else recomend a more relyable ov test please. (I've always been lucky enough to get pregnant without tracking temp, and mainly without ov tests too). Maybe I'm just getting old! God, i feel so conflicted and scared about my life just now. Such a horrible chapter to be living, but i thank God every moment of my life for ds...

Yep, I was normal as well but now have a 3 week old after following Coventry. And reading the lucky book :-)

Biscuits, I'm on thyroxine as well. 125mcg a day...
I bought one of those granny pill boxes with days of the week and take it as soon as I wake up...

Sebs, you're not defective, you're a living breathing person, whose existence depends on about a billion different simultaneous processes. So you're actually kind of a miracle. Occasionally some of these might go slighly out of sync - only robots escape this. (For examples of robotic perfection check out the AIBU threads although I think most of them are liars.)

Biscuits that made me laugh

Tiny, I was on 100mcg before first son, now on 75mcg, although I thought you usually go up rather than down.
When second son was born (and thyroxine was not increased for entire pregnancy due to mix up), midwife commented on what a small placenta it was. Which I read can be due to thyroid antibodies?
Who knows, it is the not knowing which is doing my head in!!

Good Sebs!

sasha no advice really, I'm afraid, but my therapist said I needed to give myself time to get though/over/come to terms with things. That doesn't sound very revelatory but I think it's important for us all to allow ourselves the space to comprehend what a horrible thing we've been through.

flen and biscuits as others have said sorry your results drew a blank. There is a reason but science just hasn't caught up with you yet. But I also hope it's helped you get ready for whatever you decide to do next.

freckle I have always found the boots own are quite good and usually give me a positive/dark line even when my clearblue digital doesn't register my 'surge'.

And while we're on the subject... A quick Coventry question, please! I am getting ovulation pains (started yesterday, have become strong today), my clearblue digital is showing 2 bars and my boots poas test is getting darker, but not as dark as the test line. So all the signs are showing I'm about to ovulate. Shall I ring Coventry and get booked in (worried about bank holiday so really want to go next Friday) or do I have to wait til I've actually ovulated (which will probably be over the weekend and then I might be too late to get an appointment and might miss going this month blah blah blah). Apologies for the detailed description of my egg status but I've waited so long for this I don't want to fuck it up!

Thanks ladies! X

PS am loving the !

Pop even if you ovulate over weekend, Kerri will work out when your appt should be in relation to that day.

So don't worry about ovulating over weekend

Pop, there's a good chance you'll get a positive tomorrow (as dark as test), so I'd phone. They went from the date I got a positive (and assumed I ovulated next day I think?) but there's also a few days leeway in the other direction I think but Bank Holiday probably does rule that out.

Pop, phone them tomorrow. I wasn't bang on ov when I called as I knew it would fall on the weekend too. It wasn't a problem, and they usually have space when you need it.

Having said that if you go too early it might affect womb lining measurements. Worth a call to ask their advice.

Thanks my lovelies. You are keeping me sane!

sasha Hugs.

To everyone frustrated by a lack of results, I know just how you feel, but I think different people mean different things by "bad luck". To me it doesn't necessarily mean they were unconnected random events. That seems far fetched once you reach three or four in a row and especially if you have had normal.chromosome results, but I think there could be a factor making it more difficult to stay pregnant - either relating to.implantation or placenta formation, say, that isn't necessarily going to occur in every pregnancy, so keeping on trying and hoping for the right combination of.egg, sperm, lining, placenta etc is a valid strategy, with or without treatment (or following the same treatment plan) is a valid strategy and not the fool's errand I once felt. I hope that idea gives you strength to try again. Thinking that way helped me face another pregnancy without treatment anyway and here I am at almost 35 weeks. Good luck!

sasha so sorry . One day/hour/minute at a time, just keep putting one foot in front of the other until life feels a little easier, because it will.

Apparently you know when it's time to give up. I've been having this conversation a lot recently. Other women I know who have also got infertility problems have moved on to adoption and are at peace with that decision. I'm not there yet, not ready to give up on the dream of carrying and giving birth to a child that is part me, part dh.

biscuits/Flen It's weird how suddenly a clear result becomes a bad thing. But as Sebs pointed out, we have success stories on here from women in similar situations .

A bit of a 'life in perspective' moment here today. A friend of DH's died. Totally out of the blue. Felt ill, went to the doctor, told there was nothing that could be done and two days later she passed away. Everyone is in total shock .

I second longest, but also think that there are things that are within 'normal' which are less than optimal. Prof Quenby said that there was clearly something going on as 3 MCs in a row was not 'normal'. I think getting the placenta started was my 'pattern' problem and the turner's diagnosis with mc 3 was genuine 'bad luck', although I think I both upset my uterine lining balance with low dose aspirin, allowing it to implant and also coincidentally solved the placenta issue to an extent with the aspirin. Pre-conception aspirin is now a big no-no for me. Heparin seems to have done what I needed without the risks of aspirin. Progesterone probably also helped to support it. This is my hypothesis, and I might be wrong.

Sasha, thinking of you today.

Sasha, it's very much your thread too. People dip in and out as they need, lurk, or post a lot, all are equally valued...

About trying again during testing... advice here is generally not to. For some tests you need to not be upduffed, such as the anti phospholipid syndrome repeat blood test, and if you want to do Coventry, you need to be 2 months post mc and definitely not pg for the biopsy.

Personally, I also thing a break was good for me emotionally. I had five in a relatively short space of time and desperation was setting in. Having an enforced break meant that I had time to heal a bit, gather my energy and resources, and make a plan. As barking says, I knew that it was positively my last shot at it, and that whatever the outcome I was done, which spurred me on to make sure I had all my ducks in a row.

Good luck today. I haven't had an erpc but women here describe it positively. Remember, we're all there with you x

jady sorry you are feeling so low. Along with everything else, it's such a shame we have to negotiate our way through the system. I hope today is a little better for you.

Erica good news on the bfp! We are here to listen.

sebs good plan on asking nursery to get involved with the SALT. I really hope they reply to your e-mail, would be really unprofessional if they didn't.