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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

999 replies

Justonemoretime · 08/04/2015 08:39

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

OP posts:
girliesaints · 20/04/2015 07:06

Littlebear, don't give up hope yet. Mine didn't appear until AF was due (I was testing everyday the week before as part of Response trial) and its got very gradually darker each day and much darker in the evenings. Are you having any other symptoms?

Flen · 20/04/2015 07:17

brummie hope it goes well today.

littlebear as someone said to me a couple of months ago, it's not over until AF!

pop I'm not surprised you feel angry, that seems like a totally appropriate response! Hugs to you, I simply can't imagine what you are going through.

Thanks for all the kindness yesterday. I wrote about it here: thingsaboutmiscarriage.wordpress.com/2015/04/19/things-about-miscarriage-no-32-goodbyes/

mrsdiddly hope it goes really well today.

alex welcome and sorry to hear of what you've been through. I don't know about the medication I'm afraid, but I know other ladies know more than I do...

Minnie74 · 20/04/2015 07:19

Good luck brummie barking and diddly.

littlebear as others have said it's not over till you get af so keeping fingers crossed for you.

mrsdiddlydoo · 20/04/2015 07:21

little bear mine was a squinter this month. Only tested on day period was due and it was a squinter. Left it a couple of days convinced it would be a chemical and the line was stronger then. I'm actually too much of a chicken to keep poas and watch it get darker. Tried to test on Saturday when I should be 5wk but could I find my spare test. Hell no! Have you used a first response? Or leave it a couple of days and test again. Hugs. It's a horrible feeling the worry.

I've just announced to my dh I don't feel pregnant and it doesn't feel right.

brummie pleased you feel a little more human. And definitely backdoor.

seb hope the bleeding has settled a little since Saturday night.

mrsdiddlydoo · 20/04/2015 07:24

Beautiful words flen. And photographs. Resonates so much with me.

girliesaints · 20/04/2015 07:42

Beautiful words Flen. I welled up reading them x

Mrsdiddly, hope it's just you're self preservation kicking in and you'll have a good scan x

CheesyMash · 20/04/2015 07:48

alex I'm so sorry for your losses, especially after all the meds you were taking on the last one. I'm sorry I can't advice but the only thing I wondered was if you'd had progesterone like march said?
Hope you find lots of support on here Flowers

Good luck again to brummie, barking and diddly

diddly I hope you're wrong but I'm sure it's more than normal to feel like that after everything. Remember how positive prof q was...she's the expert! Smile

bear I echo that it's not over til af shows and a test tomorrow or the day after will be a better indicator. thank you for the laugh Grin I'll be doing the same in a couple of weeks and was just going to go in the front door, now I'm not sure...anyone else?? Grin

Lovemylittlebear · 20/04/2015 07:48

Thanks guys :) sorry mrs d that your symptoms aren't strong...I know that would help all of us a bit if we had a good bout of morning sickness lol. I felt pregnant in the sense of same as last two pregnancies that I lost. I get like a full dull feeling down below like I'm more conscious of that space lol and a bit spottier around my chin and moustache area lol and the Teeny tiniest bit queezy...defo not proper preg symptoms just changes in my body that aren't normally there. I'm just nervous as to whether I am or not to go and get the preds, herp, asp and prog. I started prog last night as had some left over but not sure whether to get the rest although consultant said to start right the way even if before AF due as all my MCs have been quite early so she said she thinks I need it quite early on. Good luck to everyone else I'm of to by a first response before busy work day xxx

CheesyMash · 20/04/2015 07:55

Flen beautifully put, as always xSadFlowersSmile

CheesyMash · 20/04/2015 07:57

Yes bear, I'd go and get all the meds asap. X

bootles · 20/04/2015 08:01

flen beautiful blog as ever. Brought a lump to my throat. I hope the cairn process brought you some healing.

littlebear it is just too early to make much of the lines, but I totally understand the worry. One day at a time.

brummie hoping they go ahead today

pop huge hugs, you have been through hell. Thinking of you.

tanny 6 weeks old already!

Brummiegirl15 · 20/04/2015 08:57

It's been cancelled. Anaesthetist refused to do it. Basically there was a risk of pneumonia as my tubes would be all inflamed.

So pissed off. I now need to wait for a letter for next appointment which could be god knows when.

This will push us back yet another month

Absolutely gutted

cloudjumper · 20/04/2015 09:07

Good luck today, brummie I hope that they will go ahead as planned!

pop Your post massively resonated with me - I also was very angry after some of my miscarriages. My advice - throw yourself into something with a physical aspect, like gardening, painting, etc, to help you vent. Or go for a run, swim, bike ride - the anger is there for a reason, and it should be let out Flowers

littlebear I'm also massively stressing - BFP was still there this morning, however, i have a backache, and I am spotting... Not much (wouldn't require a pad) and it's brown, but it's there when I wipe. Wondering if this is going to be over before it even started properly.
Currently waiting for a call back from the GP - they have this stupid system that if you need an emergency same day appointment, you have to call them at 8am, they take your details, and then one of the GPs or nurses will call you back for a phone triage and assess if you need to come in to be seen.
I have every praise for the NHS, but dealing with my GP surgery gives me the rage Angry

cloudjumper · 20/04/2015 09:09

brummie cross post - I am so sorry! That is utterly frustrating! Could you ask them to speed up the appointment process at least? They must know how much you want this. Hugs.

sebsmummy1 · 20/04/2015 09:35

Oh Brummie that really sucks, so sorry Sad. I know you wanted all your ducks in a row before TTC but is it worth trying this cycle just to feel like you are doing something? We don't catch easily at all do I would probably do that knowing it would make no difference but I think you catch easier than i do. Huge hugs darling xx

Cloud and Littlebear - everything crossed for you, hope the lines get stronger and any spotting is implantation xx

I'm going to say something ridiculous so bare with me. Because I now know this last MC was a chromosome issue and not a body one it has made me feel as though the Coventry appointment might just be unnecessary although I still plan on going. BUT I was thinking last night, I know you shouldn't TTC on the Coventry month as the procedure would end the pregnancy BUT I always get a positive test if I'm pregnant 8/9/10 dpo. Could we TTC and cancel if I get a line or go ahead if I don't or is that the most stupid thing anyone has ever said?

Jady77 · 20/04/2015 09:54

Oh no, so sorry to hear that Brummie. Was really hoping for you.

Diddly I hope you're wrong too and the scan is positive today

Littlebear my first ever bfp was CD31 (with regular 26 day cycle) so there is still hope. I agree with getting the meds.

Cloud I hope you get an early call back from GP. My GPs is the same so know how frustrating it is. Usually end up only being offered a telephone appointment and have to then wait half the day!

Realise I didn't give a welcome to Alex yesterday. Am so sorry for your losses, really does sound like you've thrown a lot at it.

Flen great blog again and beautiful photos. I still need to think of something in time for first EDD in June.

tannyLoo · 20/04/2015 10:13

Flen that made me cry. x

Brummie sorry to hear that, but it would have been awful to have ended up really ill. I really hope they reschedule soon.

Sebs personally, I wouldn't TTC in that month. I can imagine how frustrating it is to have to wait another month, when others catch so easily, but it would just be terrible if you did end up upduffed and it didn't show on a test. It might also affect the results... Sorry, others might have a different view but I would want to maximise my chances of a good outcome before trying again xxx

Littlebear whispered congratulations. Line anxiety is horrible. Sit tight if you can...

Cloud you too. I hope you hear back from your GP soon.

MrsD crossing everything for your scan.

Lovemylittlebear · 20/04/2015 10:19

The little lines are there...does everyone agree it's worth taking all the meds I have been offered prog, clexane, aspirin, preds? Just nervous to take meds but nervous not to.

Can't remember who asked about front or back passage? I'm trying back this time as last time front leaked everywhere so worried I lost most of it. Cloud jumper I hope it's just an implantation bleed and stops soon. My friend had that and was worried and she is ten weeks now. Sorry to hear you news brummie. Sebs I wouldn't try and go but I would be tempted to try and not go and then go if I need to in the future...that's what I was thinking with this month but the gynae prescribed me preds anyway on the off chance. Hope everyone ok xxx

Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.
sebsmummy1 · 20/04/2015 10:21

Littlebear I wouldn't call those faint, I would call them definite lines girl!! Congratulations xx

Brummiegirl15 · 20/04/2015 10:33

I'm so pissed off. But I also admit I'm not 100%.

We had to wait 6 weeks for this appt so I will he gutted if I have to wait another 6.

Sebs I did mention that to DP and he wants to wait. I have to say I agree. If I had a 4th mc, I'd be forever blaming myself that I didn't do the op and wonder what night have been.

I'm worried about losing the benefit from Coventry but Mr Watts was going to do another scratch for me.

Need to try and sort another date. So disappointed

Littlebear those are defo lines - it was me who asked front or back door for progesterone

cloudjumper · 20/04/2015 11:06

Littlebear ^Definitely* a line, congrats! If it helps, my FRER yesterday looked just like that Smile
For progesterone, I would definitely recommend the back passage, far less mess. But I'd wear sanitary pads anyway, there is still some leakage. Good luck!

Still no word from the GP Angry Going for some more knicker checking now... Confused

CheesyMash · 20/04/2015 11:07

So sorry brummie! Understandable you're so pissed off. It will all be worth it in the end though.

bear that's a very strong, definate line! Absolutely no squinting involved there! Smile

cloud I hope very much it is just implantation spotting. Hope you get to speak to your gp soon. X

barkingtreefrog · 20/04/2015 11:26

Littlebear Grin

brummie Angry That stinks, I'm sorry Thanks.

Just dropping in to update on my appointment, will reply properly when I get home!

I wish I'd recorded the meeting on my phone now, already struggling to remember...

When looking at the IVF, the consultant said that the scan showed only a couple of potential follicles at the start which was why I was given the maximum dose for stimulation. It also took me longer than expected to get them to the right size, but he was pleased with 8 eggs and said a fertilisation of 7 was excellent. Everything was perfect but sometimes it just doesn't work. Angry

He got an embryologist in to speak to me about the quality of the embryos. She talked me through the three numbers they grade them with, I think one was size, one was the baby bit and the other was the supporting cells bit that forms the placenta but I could have got that muddled. It was all very detailed but basically the two we have frozen are ok but not excellent. If I remember correctly (I should have written it down but didn't) They were 4/5 out of 5, 3 out of 6 and 2 out of 3 on the three grading systems. So it might be that we want to put both in on the frozen cycle. The embryologist explained that freezing them involves dehydrating them, and when they thaw they have to hydrate them again. If the embryo takes on too much water it can burst, if it doesn't take on enough it doesn't thaw properly. 1 in 5 embryos don't survive the thaw. I'm not sure whether putting two in gives us the same chance as putting in one, and then putting in one again another time, as it would be a different month and a different womb lining etc, rather than chancing them both on the same womb lining? I didn't think of this until afterwards but we don't need to make a decision now, we'll see him again before then.  Â

He agrees that with my history of mc as well as failed iui/ivf there is reason to look at the nk cells and have the scratch, they can do both atthe private hospital he also works at but we'd have to pay - I need to call his secretary up there to ask about prices and book in. I thought this might be of interest on here as it sounds the same as Coventry but this is Thornbury hospital in Sheffield.

They will take a bit of the womb lining and test it for nk cells, and also look at progesterone levels and whether it's doing what it's supposed to (something I've always been concerned about with my short lp). Â

If they find nk cells then they still won't prescribe the steroids unless they can prove they will work for me, so they'd give me steroids for a month and then do another biopsy and see if the nk cells had decreased. So if they find nk cells, that's going to put us back a few months.

He was very lovely as usual and asked where dh was. I explained at the beginning. Then at the end of the appointment he said he would be happy to write a letter to his school explaining why these appointments were necessary and why he needed to be there. He also said that we could request a telephone appointment with him if there was anything we wanted to ask Smile.

Need to see if I can get the at lunch to call the private hospital but might have to be tomorrow.

bythesea82 · 20/04/2015 11:57

barking that sounds like a good and helpful appointment where they listened to your concerns and had things to suggest. Also pleased they can support to get your DH there in future. I hope that you found it helpful and not too hard.
brummie I am sorry you have had the op delayed I know you're really frustrated but your health is important and I imagine TTC with pneumonia would be impossible/not fun so just remember a little longer to be patient now instead of ages being ill Flowers
bear congratulations, get those meds in you Grin
cloud hope all ok but know the worry xx
flen lovely & moving blog. Lovely photos.
alex sorry not to be able to offer anything useful but I am sorry to hear what you've been through

Brummiegirl15 · 20/04/2015 11:59

So pissed off doesn't even come close.

But the panicker inside me has just realised we have 2 x bank holidays in May. Plus I've got overseas business trips 18th May, 8th June and 29th June.

I'm worried now I won't get a date until July. I'm not sure I'm prepared to wait that long.

Am so upset about this morning - can't believe I came down with flu and couldn't do it. So gutted

And why do people with with children post stupid links on Facebook about "mummies" - how to be the perfect mummy, what you don't know until you are a mummy. How as a man you can help your wife be a great mummy.

Fuck off!!!!!!

I'm just going to do a mass unfollow. I'm tempted to actually leave fb.

I'm bitter and upset and panicking I won't get a date until god knows when