Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Hugs for today flen. A cairn is what i did after my 3rd one and I've kept a little picture. Hope you find some peace.

Hugs for you too minnie for tomorrow.

Hope you're feeling better by tomorrow brummie. I would just chance it as well. It's amazing what a good night's sleep can do so hopefully you're at that turning point where things are getting better from now.

Lovely words tanny. I really hope you're right about the run on bfps. I missed it last time it happened and it all went a bit wrong but hoping to catch the wave this time.

Hand holding for tomorrow and beyond mrsd. Such a difficult time at the start. But new egg and extra special new lining for you this time, along with a good treatment plan and as much support from us as you need. Everything is in your favour.

flen hope your day passes peacefully and you find comfort in building your cairn.

mrsd we are rooting for good news tomorrow.

cloud!!!! Like bootles I couldn't help welling up when I read your news. I am feeling really positive thatwe are entering a new phase. Heart is in mouth, mind. Come on wave, keep going!

brummie.oh no! Sending get well wishes your way. Fx it's one of those short lived things and you feel lots better tomorrow. I would go in too and then worst case scenario is they postpone it for a few days, rather than registering it as a cancellation on your part.

flen your wild place and cairn sound lovely. I hope it's soothing.

Cloud and girlie congrats on BFP's.

Very light AF started today, so this is cd1 and I can ttc this cycle, so roll on the next 3 1/2 weeks as that's when I suspect I might ovulate.

Brummie, fwiw, they didn't exactly inspect me when I had mine done. I may get this slightly muddled in order, but I think they called me in and took my blood pressure and checked a couple of details. They asked if I was taking any medication and had any allergies. And checked the info from the pre op. Then they called me in to speak to Mr watts and he asked if I had any questions. They also asked me to give a urine sample. They never listened to my chest or interrogated me on health so if you can hide any symptoms then you should sail through the stuff they did. The final time they called me, I was told to say bye to DH, and go to a cubicle and change into a gown and dvt socks and dressing gown and slippers, and then put all your clothes and possessions into a big plastic box which they seal. If you want you can give any valuables to the matron person. You then go in a waiting area, women all on the right of the screen, and wait, then they take you in. When in recovery, they bring your box to you, and when you wake it is there for you and they bring you drinks and food, and were so kind, nothing was too much trouble, and I wanted to know if they'd found anything so Mr watts came to talk to me afterwards. Once I'd come round, ate and drank, and got dressed and had a wee I was allowed to go. Worst bit was the feeling tired and spaced out afterwards, I just went to bed, and dh looked after the boys that night.

The cairn does sound lovely Flen

Thanks for info Tanny. I do worry how I'll get the location scan and any prescriptions, but seeing GP to discuss Tue and is good to know Coventry are there as backup.

So much going on this week, good luck those with appointments, scans, hopefully ops (hope you're feeling better Brummie).

2ww already feeling tortuous. What's the earliest anyone's had a positive result from poas?

Here's my stats:

4x mmcs, #1 and #2 at 9 weeks, both discovered on scans following spotting. This was Nov '11 and May '12. Visited specialist in recurrent miscarriages and had intense and expensive tests and found I had high NK's and also rare blood condition called Essential Thrombocythemia which means high platelets potential blood clotting.
As a result for our third & fourth pregnancy that we did via IVF I was on the following;
Aspirin
Clexane
Interferon
IVIG
20mg Prednisolone
Preg Vits
Vit D

Sadly although I was on all these medications that have proven to help other women maintain a successful pregnancy I miscarried again at 8 weeks.

We are now really scared as after each of the last 4 miscarriages we had an ERPC and sent things off for analysis to test if this is happening due to the most common cause of miscarriage (random genetic abnormalities). However each time the babies were genetically normal.

We don't know what else to try and would really like to hear from anyone else that is having a similar experience or even a story about how you have been where we are and kept on trying and got there in the end. We really thought this last time was our time having been on all the medication that has worked for others.

It sounds like the next thing now for us is surrogacy but I really want to carry my own baby and give birth more than anything else.

Thanks in advance for anything you can share

xx

So... Ok... the hospital pharmacy closes at 5.30pm and my appointment's just before 5pm tomorrow so I'm now thinking knowing my dreadful luck I'm destined to not get the heparin tomorrow. Can't stop laughing nervously. Why does mc mess our heads up so much? I swear if I get through the next 24 hours ok I'm going to make myself be more pragmatic and positive about this one.

bootles I'm not sure what the injections were but they were anti clotting. She's in her 60's now.

I felt like myself again this weekend for the first time in a long time .

Mrsd thinking of you for tomorrow, what time is the scan?

brummie hope get well very, very soon! I'd be the same, I'd turn up for it and see what they say.

Flen hope your day went well.

Alex so sorry to hear your story . I have had iui twice and ivf, but I haven't been on medication during a pg other than progesterone, I was due to start heparin from bfp onwards but the last two cycles failed. I hope someone else can give you some useful information.

Hi alex and welcome. I had a successful pregnancy after 4 MC with a high NK cells diagnosis on progesterone from CD21, heparin and pred, but it sounds like you are already well beyond that in terms of treatment you have tried. There is another thread on the conception board (called something like TTC and pregnant on pred) where there are lots of patients of Dr Shehata or Gorgy who know a lot about immune causes of miscarriage. It would be worthwhile posting there also.

Great to hear you are feeling more like yourself barking, hope it continues as it can only be a good thing.

mrsd, hope your time works out ok tomorrow. Hand holding.

Welcome alex and sorry you find yourself here. Gosh, sounds like you've thrown everything at it. How heartbreaking . I take it your treatment plan included progesterone? The Coventry protocol is progesterone from cd21/7dpo which they theorise helps with preparing the lining for implantation. I'm guessing you've probably already tried it but I know others prescribe from bfp so thought I'd mention it just in case. I'm also 4mc down and it really hurts. I feel like I died a little bit more with each one. Lots of people on here with positive stories though and I'm hoping next time is the one. Fingers crossed it is for you too.

Barely visible faint line...could be an evap! Fingers crossed though I'm adding to the wave will update tomo x

Sorry to see newbies here :( xxx

www.mumsnet.com/Talk/conception/2302014-Immune-natural-killer-cell-treatment-when-ttc-or-pregnant-aka-the-15th-pred-thread?pg=19&order= I think this is the thread Alex

That's really rubbish Diddly, I hope they can give you a way around it once you're there. Can imagine how worried you must be. Maybe it would be worth giving Kerri a call in the morning?

Hi everyone. Work has kept me busy so I’ve not posted but I’ve been reading as much as I can. So much has happened!

Congrats for the bfps girlie cloud and, by the time I post this there will probably be more, so sorry if I’ve missed anybody!

brummie I really hope everything goes well for you tomorrow.

diddly really looking forward to reading that the scan has gone well tomorrow. All my fingers are crossed for you

flen that sounds like a lovely thing to do. I hope it has been helpful.

alex sorry you find yourself here. Coventry sounds like it may be an option.

It is now 10 weeks since I lost dd and I think I’ve started to enter the very, very angry phase. Am fed up with all memories of the last year and a half being about one loss or the other. It’s just torture. Am hoping ov will happen in the next few days so I can get that Coventry appt. And I’m back at Liverpool to see the consultant a week tomorrow so maybe I'll start getting some answers. Still no news from Leeds, though. Just want to know why I've had to go through this when almost everybody else I know just get pregnant and has a baby.

Littlebear how exciting! And a little bit frustrating too! How many dpo are you?

Good lord, it's all going on here! Wonderful BPF news Cloud and hopefully littlebear as well as previous people.
Sorry you find yourself here Alex, all I can add is that Prof Brosens at Coventry said sometimes the best way to have a baby is persistance, if you can keep going. There is a new egg and new lining each time and eventually it might work (I've probably not summed that up well).
I'm also in 2WW and going a bit nuts with anxiety. Have some leftover progesterone so might use that as must be CD23 now and Coventry results not due for another week.
I also have an ongoing twinge in left hand side today that's worrying me, had it a couple of months ago and convinced myself it was an ectopic pregnancy until Google told me it was way too early to feel that.
MrsD and Brummie, hope appointments/ops go ok tomorrow.

Littlebear, fingers crossed you'll get a definitive result tomorrow.

Brummie, hope cold has vanished (or at least got better) so tomorrow can go ahead.

Diddly, good luck for tomorrow x

Welcome to the Newbies & sorry for your losses. Certainly mixed news on here over the weekend.!

Period due around 22nd/23rd April. Maxed out credit card and went on holiday so first month in well over a year with no OPKs so not sure when ovulated I just felt pregnant again so did a test and there was something there but possible evap. Will fill you all in tomo. For shits and giggles me and DP had a right laugh trying to find my bum hole to shove the just in case progesterone up LOL I kept laughing it back out :) hope that has given some joy to those needing it ATM. For those that find that crude...apologies xxxx

flen for getting through the day. Hope your visit to your favourite place was helpful. It sounds like a perfect way to mark the day.

brummie hope you are feeling a bit better. We're all rooting for your cold to sod off. Fx for tomorrow

little bear !!!! Oh my goodness can't wait for an update tomorrow.

biscuits forgive my memory but did Coventry not give you progesterone?

pop I feel your anger. You've been through so much. I hope you get some of the answers you need soon. Won't be long til you are calling Coventry.

Alex sorry you find yourself here. I've nothing useful to add to the comments already posted. It sounds like you have been through so much.

Appointment's 4.45pm...

Welcome to the newbies.

Pop massive hugs to you. I can only imagine how awful it's been losing her. Life is so cruel and it makes no sense

Good luck for tomorrow Brummie. Let us know how you get on.

Glad you're feeling a little better Barking. Just take it one day at a time. XXXX

Sorry the anger had hit you pop. The only positive is that you are moving through the stages of your grief. It's horrible. So unfair that you've gone through this. Hope the time until Coventry goes quickly so you can take another positive step x

little yay! Sounds very hopefully. Feeling like this might be a tsunami of bfps. You let your dh go near there to fiddle about?! You're a braver woman than me. Mine want allowed anywhere near!

Keeping everything crossed for the 2ww ladies (flen, biscuits, jady,anyone else?), and hoping time passes quickly for everyone waiting, waiting, waiting...

Littlebear trying not to laugh out loud here with curious teenager sat next to me! Will be doing the same Wed Think you're about a week ahead of me then.

Sounds like you're symptom spotting Biscuits? If so, I am too a bit, even though I know it's way too early!

Pop sorry you're angry right now. You've been through so much. I hope you get some answers soon or can at least can look forward to Coventry.

Hope you're resting up Brummie

Waves to everyone else

Another bfp?! YAY YAY YAY littlebear**!!!!

Pop** you are well and trully entitled my love, i will add my fist and rage against the universe with you. Too much pain for one person to bear...sending you a gigantic hug and hand squeeze.

I was hoping my ov would turn up this week to coincide with school holidays, but it hasn't which means ttc in the most stressful term, when it's like walking over landmines. Half thinking it might be better to postpone ttc until after this term, focus on loosing weight and wait til the summer. Its sunday eve before term, and again i am racked by fear and dispair at the thought of the next six weeks. Maybe i should just hand my notice in and postpone ttc to the autumn. But i bloody resent that my life and my family is hanging on for this bloody job! If only i wasn't so bloody old. Time is just not on my side

Alex** welcome to the thread nobody wants to join! I am so trully sorry for your losses, yours is a sad and complex journey, i hope the wonderful women on this site can provide you with some information, comfort and comradeship.

pop Who can blame you for being angry? You've had the worst experience and you have every right to be furious. I'm angry for you. It's just so bloody unfair!

littlebear yay for another BFP! Whats in the water in this thread over the last few days?! Soooo want to throw caution to the wind and try joining this wave!

freckle this term is shit isn't it. Know exactly how you feel about forgetting ttc till the hols. Doesnt work for us in term time- ever. Only 12 weeks till the summer- definitely feel like I'm going to miss this lucky wave of bfps. And with you on the bloody crapness of age too!

alex sorry you're in the club no one wants to join. It sounds like you've had a really hard time and I hope this thread helps a little. No advice to share but big hug welcome.

brummie hope your cold is on its way out! Good luck tomorrow!

diddly good luck and hand holding for tomorrow. Looking forward to hearing your lovely scan news.

Good luck 2wwaiters and waves to everyone else.

Right the general "I have flu and feel like I am dying feeling" is subsiding.

Still bunged up with sore throat and cough but feel less like I'm going to die. Hopefully I should be ok!!!!

Loopy thanks for heads up. We've got to leave in about 30 mins to be in Kiddy for 7.30 (you were right, it wasn't 7am!)

Pop big hugs xx

Littlebear yay and Christ that made me laugh. Which makes me ponder the question for my turn next month. Progesterone. - front door or back door??????

Alex I'm so sorry for your losses and that you find yourself here. These ladies are fantastic. We have our sad moments and our bonkers moments but we are all here to hold your hand.

Right, I'm off to show Mr W my fanjo - that's if I don't get turfed out first for being ill! Bonus is at least I can't cough when I'm under a GA

See you on the other side!!! xx

Oh bummer...still the faintest of lines same as yesterday morning (my partner can see it so not imagining it) but you need to like squint and look in a certain light lol so I think it will end up being a chemical probably because surely two days before period due it should be a bit darker. Anyways keep you updated and good luck to everyone else xxx