Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

sebs fingers crossed for testing later. You never know!

barking so sorry you're having to be in such a crap place. Due dates are so horrible (mc2 for me is on mon) and made worse by Everything else going on too. Glad you've been out on your bike though!

pop boo to working. I've still got till Monday thankfully- though if mc2 had not happened I'd be on mat leave now.

So been dieting for two weeks and have put on two pounds!!! Wtf is that about!!!

Morning all!

Sebs that cycle drove me crazy!!! It was my 2nd cycle post mc and I ovulated as normal on day 10 - cycles are normally 24/25 days and then AF didn't turn up until day 37....

Totally freaked me out. However following cycle (my most recent one) was 26 days so lengthened very slightly.

Today is day 10 for me and I still had a negative opk this morning but EWCM last night so I suspect if I tested again later on today I might be positive

I'm not ttc'ing this month but still tracking ovulation anyway.

So Sebs yes my cycle was totally knackered. I did 4 pregnancy tests!!!!

That said my WTF cycle straight after my ERPC was dead 28 days. So late for me but pretty normal by all accounts

Counting glad you got signed off for a decent amount of time. Stay in your bubble until you're ready and the fo starts to lift.

Sorry it was a bfn Monten. I hope the wedding plans are keeping you busy. Fx for honeymoon baby though

Minnie glad your appointment has come through. Agree on the dream of a place to go with answers. I think there's enough data on these threads to put something useful together. Like the NHS general assessment and always seems to end up with advice to call 111.

Diddly glad consultation went well, but sorry you're feeling so worried. I'd echo March who by the way really is a fountain of knowledge! I've been learning all this stuff, but still not enough that I can regurgitate so well. We could do with a sticky post for this really useful info especially for newcomers. I digress, but Diddly I'm right there with you alternating between being excited then just plain scared. But like prof q said, this is the one! Can I ask, who the scan you're arranging I'd with? Coventry or local hospital? I ask because it sounds like everyone does get prescribed hessian from what peeps said yesterday, I didn't think I would be due to losses at 6 weeks and clotting tests being clear. If I am prescribed it I'm not sure how I'd get it. Have made GP appointment to discuss, but just wondered where you were getting scan.

So I've been using The CBDH since CD7, been getting O every day until today when I got solid smiley! First time I've had any kind of positive result on opk so very excited (and scared) . Now CD12. So I'm planning to take progesterone from day 19. Then test day 26. Does that sound about right?

Apologies for long post (again) and no doubt loads of x posts by now.

Thank you. I'm so bloody stressed at the moment. Need to test before acupuncture appnt but no idea how I'm going to get the time or how it's logistically possible. I'll have to try and find a supermarket and just cram DS in the disabled toilet with me in a trolley. Classy

What cycle do we call the WTF cycle? I had ERPC, bled for two weeks, then got my period on cd26 which was normal, no clots, then a week of nothing then four days of spotting then loads of fertile mucus for a few days followed by non fertile cm and now cd27 with no signs of AF arriving. I did not test that OV happened, just went by CM. I always thought the WTF cycle was the one when you were waiting for your first AF post MC but is it actually the first cycle after AF?

My head hurts trying to read that back !!

Minnie that sucks. If I've put on weight when I weigh in Sat I'll be gutted!!! What diet are you doing?

Barking huge hugs from me, sorry we crossed posts. I know nothing makes this any better but you have friends here and we are all here to support you xxx

spartacus sorry for your losses and that you have to join us but I hope you will find plenty of support and help here

barking been thinking of you and wondering how you are. Sorry you're in a bad place. Must be so hard with thd birthday party this wkdnd too. It's good to hear you got out on your bike. I hope you can start to do the old things you enjoy for a while before you start to think about next steps.

diddly glad your phone call with prof q went well. It's great she is so excited too, she's the expert, there's obviously reason to be, so i would take great comfort in her saying 'this is the one'.

sebs I really admire your restraint. Still hopeful for your retest! And sorry to hear your ds's nursery are horrible. I also agree with march, kids all develop at diff stages and my friend who worked in a nursery was always saying this. so what if they're 'behind' using the toilet, knife and fork, speaking, writing etc, they'll get there eventually.

Have a quick q for you coventry ladies, did you start your period early after the biopsy? (I recall a few of you spotting and period being a couple of days early...) Also, if you were early, did it cause your whole cycle to move forward, or just a longer period?

Thanks x

Apologies for my auto corrections. Fog, heparin. Hope it makes sense otherwise.

As if by magic, I've just been to the toilet and af has arrived!! 3 days early!

Cheesy brought my AF on the next day. Guess that means cycle is brought forward as AF is always CD1. Was 24 days compared to 27 last month.

Barking sorry you're in such a dark place right now. Well done though for getting out on bike and doing something for you. There's absolutely no need for you to snap out of it though.

sebs I think wtf is any cycle post mc which is a bit wtf. Mostly tgis is the first but as brummie says it can be the second. I do have everything crossed for you though. Each if my pregnancies has been different, symptom wise.

Sorry nursery are stressing you out. I was so stressed last Autumn when dd started pre school. She had just turned 3 and was still having toilet accidents which went haywire for a while and they kept going on about how she didn't listen or follow instructions. 6 months on and she is their pet student. She has "matured" apparently (no shit) and almost (touch wood) grown out of the accidents. She still can't really draw but her speech and imaginative play is quite advanced. They all have their own strengths and weaknesses.

I find out about her school tomorrow!Bit nernervous as the whwhole borough is oversubscribed and 60 people didn't get a place at all last year.

barking sweetie, huge hugs. It must still be so raw and just waiting is hard. I hope this lovely weather helps a bit and you're able to get into the outdoors somewhere.

Sorry to hear you Are feeling low barking.
Anniversaries are so upsetting, esp when others are having happier ones. Hope you are able to do something nice x

Thanks jady. I feel like I've been monopolising this thread with all my excitement about Coventry (sorry to those that I've been boring shitless with it all! ) but I find that only by writing it down and finding a way to explain it do I start to understand it myself. My brain hasn't worked this hard in years!

barking sorry to hear you're feeling down but it's no surprise so just be kind to yourself and get on that bike :)

counting glad to see you've been signed off work (well its not good you need to be but you know what I mean), hope the gardening and good weather is helping in some way

march cheesy glad you got on well at coventry

Sorry to see so many newbies but this is a great place to be if you have to be here!

I've got a quick question for coventry ladies, did you start taking progesterone before your telephone consultation? Ill be 7dpo tomorrow but I wasn't given a prescription for progesterone when I went to coventry (possibly because I'm in wales so we get free prescriptions) I have some from previous iuis but don't know how much to take. I emailed kerri yesterday to ask but she sent an email later in the day not as a reply but a new message which had my results which all came back normal. So I don't know if I should chase again or just take one cyclogest a day - I have the 400mg ones.

Monopolise away March, it's all reply good info

Flower I've not started taking yet, but it will be before consultation yes. I would phone Kerri I think for the dose.

Welcome spartacus and sorry for your losses. I would second the suggestion to get genetic testing if at all possible this time. You can pay for it if you can't talk the NHS into it and it costs about £200. You should qualify for standard RMC testing after 5 losses even if you don't meet the 3-in-a-row criteria, I'd try to get that on NHS and save pennies for immune/implantation testing. Mostly Coventry Pom pom wavers on here but there is the 'pred thread' on the conception board with more patients of Drs Shehata and Gorgy in London. Deeper pockets and more willingness to try controversial treatments required though.
All my 4 losses were at 9-10 weeks and had seen HB in 3 (no early scan in the other but died at the 8-9 week stage so presumably did develop one) I was told they were chromosomal losses but when last one was actually tested it was normal. All NHS tests normal, Coventry diagnosed me with high uNK cells and I had a successful pregnancy on their protocol of progesterone, heparin and steroids. 8-9 weeks is when placenta starts to take over so if there is an immune issue affecting implantation can cause loss at this point.

mrsD sending you a reassuring hug. I like Prof B's philosophy - new lining, new embryo, new plan = new everything crossed outcome! We appreciate how hard it can be to be positive, though. One day at a time.

Hugs also for barking , counting and anyone else having a bad day today.

Eventually managed to test and BFN. It's good news but bittersweet at the same time. I'm just going to have to wait it out for AF and hope she shows her bloody face soon!!

Sorry it's bfn sebs. Hope af arrives soon so you can get back on it.

cheesy, great news about af arriving. Exciting times! I'm due Saturday so hoping I won't be too far behind

Thank you for the positive and reassuring comments ladies. I'm feeling so bloody emotional. 1 minute its I can do this then the next it's oh my god I can't why am I putting myself through this.

I'll have a proper read through and catch up later.

jady I'm going back to Coventry because I can't self refer to my epu locally. Need a gp referral and mine has been away a few weeks on leave and usn't due back til next week. Prof Q originally suggested I try other more rmc friendly hospitals in the area but then we kind of agreed that it would be less stressful just going back to see them. Booked in for next Monday. Making dh come this time. Originally balls up and booked Friday but we're heading north to see my folks on Thursday. The letter you get after your consultation explains what you need and why. Your gp should be able to arrange everything. The heparin isn't for clotting but to promote placental growth. I'd recommend speaking to your gp and then given them the letter once you get it. There will be a way to get round all the problems so don't stress out about it yet.

barking huge hugs. It sucks feeling the deep sadness you are experiencing. And makes my eyes leak a bit. We're all here x

Will catch up later after work.

Aw, sorry to hear that sebs, though as you say good to get the testing done first really (I had a bit of a "scare" in my first month and had mixed feelings on the eventual BFN so know how you feel - I think it was probably good overall - it would have been so stressful to go through early pregnancy with no results).

Thanks Diddly that's really helpful. Hope you enjoy your visit to your folks.

Sorry it was bfn Sebs, I could see that line too. Hope AF comes soon so you know where you're at.

I have another question for anyone who took agnus castus (Tanny if you're about), just wondering when you stopped taking it. From ovulation, bfp or first trimester? So many differing views out there. Bottle says not to take if trying to get or are pregnant which doesn't help.

Barking** you are in my thoughts and i think you are doing really well not to have uncontrolable rage and just be hitting random strangers full in the face with a fryingpan. So well done for channeling your pain into something infinitely more positive than i probably would (rage/purchasing pink sofa/rage/consuming various forms of sugar and generally being self destructive). I think you are BLOODY FANTASTIC. Yah boo universe!

Monten** i agree with others on here, indulge totally in your wedding and one day when your looking through your wedding album you'll probably say to dc "that was just before we had you darling!" x

Spartacus** I'm sorry you are here, fab name though, reminds me of one of my favourite cyclists.

Pop - work, yuck. I grow more excited every day at the idea of doing a different job than teaching. I feel a part of me inside coming alive again at the prospect!

Diddily** i know just what you mean. I noticed a pack of super absorbent night pads in my draw, left over from mc 3, last week and my first thought was "i'll just keep hold of those incase of mc 4". Wtf ??!!

Ds came out this morning in spots - he has chicken-pox. What with him and me being ill it's been an amazing 'holiday'!

Thanks jady I've emailed kerri again to ask so hopefully ill here back. I took agnus castus and got pregnant second month on it, after a year of trying it really sorted my cycles out. I just took it until ov. I haven't taken it since as my cycles have been more regular.

freckle sorry to hear about your son!

Sorry ladies, posted that rather depressing post then immediately went back into world of work. Had a big pitch this morning but it went so yay. Thanks for your comments, you're all right as ever. Focus on the good things. What you just said made me well up freckle really hope that's true.

I've also been thinking about you barking. I'm sorry things are hard right now. Do you have to go to that birthday party? That sounds like a really tough one.

Sorry it was bfn sebs. But as others have said good to get testing done first. Will you get results from genetic testing tomorrow?

Thank you all so much, thanks to your posts I don't feel quite so bad about feeling bad, if that makes sense?! I'm crying now in a good way .

monten hell no, I'm not going to the party, not in a million years. I'd spend the entire time hiding from everyone and sobbing uncontrollably. We haven't been invited anyway, only those with children...

freckle rest assured I am mainlining sugar and wine whenever possible... And my version of being self destructive is to break myself. Went mountain biking last night and now my back hurts. I'm still going swimming tonight and road biking tomorrow night though...
I would have been back in the classroom this week just returned from maternity leave. I think that realisation as well as the upcoming would-be-1st-birthday is what is setting me off at the moment on top of the ivf failure (and my dad deteriorating further).

Sebs it sounds wrong, but I'm glad you've got a bfn and can now feel confident it's all complete. Best to get all your ducks in a row first, as it were...

floweroct did you have a short lp? I was going to try Angus cactus but never did as we started on the clomid the following month. I've started tracking my cycle again to see what's happening with it now (had 2 mc, 2 x iui and ivf since I last tracked it, so have no idea what it's doing now!) but yesterday's temp was 36.48 and this morning it was 35.88?! It was always 36. something, under 36.5 pre ov and over 36.5 post ov. It'll be interesting to see how the month plots out! Possibly it's a bit of a wtf cycle anyway given it's the first post ivf.