Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

sasha sorry your scan wasn't positive and that you're having to wait again for another. I can only hope the time passes quickly for you. x

counting glad you have been signed off for a decent amount of time. I hope that means you can forget about work for a while now to concentrate on you. Gardening sounds like a good distraction. I'm glad to hear you're being looked after. I think coventry is a good idea for you when you're ready. x

Hello all

Counting glad you've got some time to heal. I really do think it's the best thing

Sasha so sorry about the results of your scan, we are here to hand hold

It's so great hearing about everyone else's experience at Cov, and Prof B said I will have a baby as well and that the best way to have one is to simply keep trying.

Re heparin, I've actually had an email from Mr Watts secretary telling me that as soon as I get a BFP I have to contact the EPAU for a scan so I can get the prescription.

Sebs please don't beat yourself up, my sister, who was one of Mr Watts registrars - has always told me that making a baby is a million step process and if just one of those steps fails, the whole process falls down. That also fits with Prof B's explanations about the lining etc.

If it is going to stick, it WILL stick. There is nothing you could've done to prevent it. So please don't beat yourself up.

I guess this is why trying to change the lining is key.

I've got EWCM today so clearly about to ovulate. It's a bit exciting to think that next time that happens I will be TTC!! Waited so long to get to this point

Just get next Monday out of the way and we are ready to rock and roll

Hi ladies. Haven't been posting as super busy but have been reading. Welcome newbies. You have found a good place.

sebs I think you are being admirably calm! I have a good feeling for you.

countjng hugs. As others have so eloquently said, it can feel so overwhelming when the grief hits. But it will pass. And you'll start to see the end of the tunnel. It's one thing you can be sure of. Gardening sounds like a very therapeutic, nurturing thing to do. Xx

Af arrived here today. I knew it was coming as had bfn on Sunday.. So that's cycle nine post MC. I'm just trying to hold down the panic that somehow something's changed and I'll never get pregnant again. Is that even possible?? I don't know.

We won't be trying this month, as our wedding is in May and don't want to be disappointed with AF arriving right before. So that leaves the very distinct possibility I may not be pregnant by loss number 1's second birthday due date. And that's fucking depressing.

I GOT MY RMC APPOINTMENT!!! At last something is moving forward. 27th April- can't wait!

And Wow! Tonnes of great information on here today! Thank you everyone. You're a fountain of knowledge! freckle I get the impression that leeds rmc might be quite open to different ideas which is good.

It's interesting how all the major players in the MC research area have such different ideas about what works. Wouldn't it be good if there was somewhere you could go where instantly they knew what the problem was and all the options were on the table to help, which it obviously would in my little dream scenario!

counting glad you've been signed off and that your gp sounds supportive too. Take all the time you need to get your head together. X

monten sorry it was a bfn this month. Concentrate on your wedding, it will be wonderful and (don't take this the wrong way) at least you can now have a few . Are you going in honeymoon? You never know, you might end up with a honeymoon baby!

minnie yey for your app!

monten sorry missed your post. Sorry you've got a bfn this month. I totally understand the fear of never getting pg again. I'm sure it will happen and like cheesy said maybe it'll be a honeymoon baby. Think about your lovely wedding now. So exciting!

YAY Minnie well done!! Oh that's great you have your appointment now and can move on, fab news.

Monten. I'm so sorry to hear AF is on it's way. I too remember months and months of negative tests and I know how soul destroying it is. Yay for your wedding though, how exciting!

I have just picked DS up from his first day back of pre school. Gah the staff always manage to make me feel like such a dickhead and as though DS is abnormal. It's rarely a positive experience for me although he has a great time. They are only allowed to be babies for such a short time and then it's all reports and assessments and whether he is reaching his milestones (he isn't). Honestly I don't even care as he is likely to be my only child and to me he is perfect. So they can take their forms and perfect children and fuck right off to Cuntsville quite honestly. Fuck off you fuckers (them not you). Grrrrrrr. Oh and take your functioning uterus' with you you arseholes.

Hi. Literally just stopping to post stats but will read back later. Been out the loop a bit and completely behind, and this thread is zooming by.

Me 41, DP 47
2011 DS born

1. mmc 2012 died 7.5 wks
2. tfmr 2013 at 13 wks, high chance of dying in utero, she had normal chromosomes.
3. mmc 2014 at 10 wks, T22

• My tests came back normal from RMC c!inic

4) mc 2014 at 8-9 wks, HB seen but slow and behind for dates from start. Normal chromosomes

• Went to Coventry, high uNK cells diagnosed

5) mc 2014 at 9 wks, after a scan a few days before looked great. No chromosome results available.

Now ttc.

Glad you've been signed off for a reasonable amount of time counting. It will give you time for hormones to normalise and for you to just concentrate on you for a while. Take things easy and maybe plan some nice things for yourself x

Sebs, sorry your ds nursery are being funny with you. Kids all develop at different paces but they catch up eventually. Try not to take to much notice. Love is the most important thing he needs and i think he had that in bucket loads. Don't give up on no2 just yet. Still lots of things to try.

monten, sorry the witch got you. So glad you have your lovely wedding to think about though. switch off from the ttc and enjoy the wonderful feeling of a day just about you two. Fx for your honeymoon baby. My dd was one!

Brilliant news on the appt minnie!!! And that's also really soon so your GP must have made the difference in the end.great to get the ball rolling.

Waves bootles, hope you're doing ok lovely x

Well today I managed to go out its not quite a week.since my miscarrige started and haven't wanted to do anything outside but my oldest had a event on at school and I couldn't miss it! Weather has been beautiful here in Derbyshire! hope everyone else Is ok. Xx

Glad you got out becca and went to the school thing, a bit of sunshine always makes me feel better and it's a good start to help you emerge from the fog of mc. I just drove up from my sisters in Derbyshire this morning, and it was gorgeous down there. Bit more miserable up here in Edinburgh!

Hello, another newbie here.

i've had a pretty tiring gyne history, with two ectopics (on the same side), 2 healthy daughters, a chemical pregnancy and now, 2.5 years apart 2 consecutive miscarriages at 8.5 weeks , in each case after seeing the hb a couple of weeks before. Currently waiting for this one to come out, hopefully before Monday when I am scheduled for a D&C.

Really not sure what to do now. The hospital said the MCs were probably due to chromosomal problems, but I can't help feeling there might be other issues. This recent one was perfect on previous scans, exactly the right size with a stong hb. I am starting to wonder if there is maybe some sort of autoimmune issue that comes into play in the 8th week. Diagnosis by google...

We had given up ttc last year. This recent pregnancy was a shock, but one we were really excited about. I don't know if we will ttc again, but if we're going to I'd need I think to know whether there was anything I could do to encourage it to stick.

Does anyone have any advice on where I shpuld go from here? I could probably afford some tests and am in London. Any recommendations gratefully received.

freckle from my experience 7 weeks is far too late. In the main progesterone is useful from cd21 to 8 weeks past bfp. Hope you can get it sooner next time. Maybe get some in advance and stock up?

becca you live in a pretty part of the world then. I love the peak district and around! Well done on getting out today, sunshine helps.

XxX

Hi Spartacus another newbie. Welcome to the club no one wants to be part of. I'm so sorry for your losses :-(

This thread is great. Incredibly supportive, ranging from 2 mc's to sadly 6 mc's and everything in between.

But we have our thread babies that keep us going - Baking has Faith, Tanny has Bertie and Tiny has baby Alice plus a we've got a few more imminently on the way so please don't give up hope.

As you are in London, potentially Mary's but we are all advocates of Coventry so can definitely recommend it.

But we are here to hand hold

Just a quickie to say my phone consultation went well. Got my letter outlining a treatment plan (standard Coventry one, progesterone from before bfp and heparin from viability scan). Prof Q sounded very excited about my bfp (not that it feels that big or fat atm) and after discussing practical issues about getting the heparin, I'm going to make an appt in the morning to go see them again for the scan next week. I forgot to ask when's the latest to start the heparin. I usually suffer from later first trimester losses so I'm assuming as long as I start it by 6 weeks it will have the desired effect for me. Or I'm hoping it will.

Today has been the first day being pregnant again has worried me. I'm amazed it's taken this long. I feel lost, and scared. It took going to a toddler group surrounded by families with more than one child and remembering how many groups I've sat through hiding ms, avoiding bumps, seeing bumps turn into babies, avoiding questions about babies, actually miscarrying sitting there pretending everything is normal to actually realise this is it... again. Prof Q said this would be the one. Can it really be so? I hope so.

Sorry for the me post. Just need to get it off my chest. I'm going to focus on not stressing, carry on like normal (but maybe not continue with my recent running attempts!) and give this one a chance.

Hope everyone gets some sun over the next few days x

That wasn't so quick in the end. Oops.

And hello Spartacus sorry you find yourself here. Lots of knowledgeable ladies on here

minnie sooooo glad you've sorted it. I think I'm at Liverpool that day so let's hope it's a good one, eh?

diddly my heart goes out to you and I'm sorry I have no words to take away your worry. But things are different this time and you have the support from Coventry as well which will help enormously I'm sure. With you all the way. X

Thanks for all the Coventry chat, ladies. Very interesting and informative as ever. Can't believe I'm actually 'looking forward' to going. What a ridiculous position to be in! Will be interesting to hear their insights into what may have caused my 2nd trimester loss and how it fits on with their approach etc etc.

Waves to everyone else. Sorry for short post. Knackered as I'm back at school. Full time. Boo!

Argh had a fall out with DP as he said the wrong thing and we are now not talking. It's so exhausting being so sad and hopeless all the time. I just want AF to appear now so I can get tracking OV to book Coventry. It wouldn't surprise me if I suddenly get a weirdly long cycle just to screw with my head a little more.

Hi spartacus, welcome to the thread that nobody should have to join. Hope you can find some support here. This place is amazing. Sorry to hear you are currently going through this again. I really hope you have some good rl support and that you are taking as much time as you need. Xx
I hate to do the practical bit, but you asked so I'm going to do it. I know it's probably the last thing on your mind right now, but if you are able to get the foetus tested, either at the point of your d&c or if you're able to catch it (sorry) and bring it in to the hospital for testing, it may help make things a little clearer for you on whether it was a chromosomal issue. My epu gave me a sterile pot and an emesis basin, but i had to ask about it.
As far as testing goes, there are a set of standard nhs testing for clotting disorders, uterine abnormalities and a few other things. You normally need to be about 6 weeks clear of the mc for the clotting ones. It's difficult to know how the rules will play out in your situation as you've had a difficult history but it sounds like you absolutely qualify for a referral (3 in a row normally). Waiting times vary but I'm not sure what London is like.you could also try your GP for some basic tests to get the ball rolling. Mine did a full blood count, blood glucose, hormone levels, thyroid function and coeliac screen (as my rmc refused to test these), but others have had their clotting bloods taken by the GP, so worth asking.
In terms of fee paying tests, As someone mentioned st marys are specialists in mc (prof regan), and do more detailed clotting tests, i think dr shehata looks at lots of the immune stuff but i hear is quite pricey? and the implantation clinic at Coventry test uterine natural killer cells, which act as an indicator that there are issues with the lining of the uterus/how it responds to pg.
I hope that gives a very small flavour.if you have more questions then there are lots of people on this board who have been through various treatments who may be able to give more info.good luck and stick around for some chat /support

mrsd, glad the phone consult went well and that they were excited for you. We all know how scary it is to throw your hat back in the ring and try again but you have the benefit of the scratch, your treatment plan and lots of support whenever you need it here. You've really maximised your chances and hopefully this is it now x

pop, well done on surviving work. Hope is going ok. You sound very upbeat,which is great to hear x

barking, how are you doing lovely? Hope you've found lots of fun things to keep you busy

Welcome to the feed spartacus. So sorry to read about your losses and the hard times you've been through.

The girls on here are giving great advice. I would certainly recommend getting any tests run that you can on this mc.

St Mary's is supposed to be great in London and if you can face a train ride Coventry's clinic has had a massively positive impact for women on this thread.

I think as Brummie says so well there is always hope and there are happy stories on this thread despite many a tough journey.

Hello everyone. Welcome newbies, so sorry you find yourselves here. I hope you can take support, a listening ear and hope from this thread like I did. I am now 33 weeks pregnant and it's starting to feel like my personal hell might be nearly over. It didn't stop me dreaming about everything that's happened last night though.

Spartacus I saw Mr Rai at St Mary's privately. I had some insurance which covered 1500 quid of tests but that goes quickly and didn't cover karotyping or scans. My bus appointment came through a few weeks later, though having the insurance might have helped my gp refer me as she wanted to refer me to my local RMC first. Having said that the receptionist at St Mary's said that didn't sound right and I should have a choice.

Minnie so glad you got your appointment and it's not too far away now. And really pleased to read the positive Coventry stories.

Hang on in there everyone! Bootles it's good to hear from you. Are you try?

Ttc, that was meant to say.

Ok, AF is still a no show and I'll be doing a test later (couldn't get to the shops yesterday). If I had just one pregnancy symptom I might actually think it was possible, however I have none whatsoever and having been pregnant 4 times now I always have some symptoms. So I think it's a wonky cycle, maybe annovulatory? Don't know, I am cd 27 and the latest I've ever come on is cd28 apart from when I was breast feeding. I'm also aware that I have started a diet so I guess that can make an impact, I'm not starving myself though!

Brummie I know this happened to you too on the brink of going to Coventry, what cycle day did AF appear in the end?

I've been lurking but not posting, feeling very dead inside at the moment and struggling to 'snap out of it'. It would have been my first baby's first birthday next week. DH's best mate is having a first birthday party for his baby this weekend . I really hoped the IVF would mean I was at least pg by now .

bythesea unfortunately it doesn't show near me! I was out on my mountain bike after work last night though.
counting I'm glad you've been signed off for a decent amount of time and you're not having to constantly assess how you're feeling and if you're ready to go back.

sasha so sorry you didn't get a positive scan .

Minnie hooray for an appointment!!!

Monten so close to the wedding now, it seems to have come round so quickly! .

Mrsd I've got everything crossed for you

Hello to the newbies and so sorry you have reason to be here.