Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Sebsmum, i was just wondering, we had our last mc at the same time, are you tracking to see if you ovulate this month? Are you still bleeding?

It will be three weeks for me tomorrow that i started spotting and though i am not bleeding there is still some brown sludge. I had my usual scull splitting headache that i get just before ovulation today, but i'm testing and no ovulation. Im wondering if not everyone ovulates after a mc, does this mean my period will be really late? After my first mc it rook 10 weeks (!!!!!) to get my period. I'll go nutts if that happens again.

I think a mans age idea have an affect but it's in combination with the woman's.

The main thing for me is that I get upset worrying that we won't see our child get married or have children (obviously age dependent) but it really really bothers me.

Going to do opk tonight - probably waste of time but will see

AF where the fuck are you????

flower sorry you got no useful info from the testing. How annoying. At least the normal tests were all OK. Hope you get your solid smiley soon for Coventry. The biopsy lasts seconds. My whole appointment took around 30 minutes. I don't like hanging around though!
Hi biscuit Coventry usually respond quickly. Maybe phone them to chase a response.
Longest I'm sorry you're concerned about the gd. We'll all be here on scan day... And everyday before then. Hope you are managing to relax a little tonight.
loopy did you hear back from the consultant? I'm sorry you think its game over. Hope they can check you soon.

It's the weekend!!! Thank god! Got to meet dh's bf's 2 week old baby tomorrow. Sigh. It just never stops.

Done my opk - Sod's law though even if I was ovulating tonight it won't show it due to algorithm thingy.

So empty circle for now - will try for a few more days. But if hasn't arrived by consultant appt on Monday I'll be nearly 2 weeks late so will add to list!!!

Evening All,
Here's my stats:
3x mmcs, #1 and #2 at 6 and a half weeks, both discovered on scans following spotting. This was Nov '11 and May '12. Then some local tests, all clear. Prescribed 400mg progesterone from bfp and baby aspirin 'just in case', investigations for thin lining following repeat ERPCs and complications from MMC#2, which needed a course of HRT to 're-set' my cycle, which had pretty much shut down.
Then conceived #3 and got past danger point, saw a good scan at 9.1 weeks only to discover mmc#3 at routine 13 week scan. Turned out baby had Turner Syndrome after genetic testing. That was June '13.
RMC testing at St Mary's, London all clear, but uterine septum removed October '13.
After no joy for 3 months, went for NK testing at Coventry, all normal there, too, well, thin lining and 'lower end of normal', but normal NK cells.
Took another 7 months to conceive again and was prescribed the protocol I'm on 400mg progesterone twice daily (from bfp - was originally 200mg twice daily, but increased due to some light spotting) and daily heparin injections which I started at 5.5 weeks after 'location' scan.
Now 24 weeks. I'm off both the heparin (stopped at 13 weeks) and progesterone (weaned down and finally stopped at the beginning of 15 weeks).
Had 2 tries at the 20 week scan due to stubborn (but, thank goodness, perfectly healthy) baby. The latest issue is that the pregnancy has been classified 'high rick' because the placenta has totally grown over my cervix. Now have the diagnosis of Placenta Praevia. So we're looking at a re-scan at 32 weeks and, if it hasn't moved - its a complete case so they think this is quite unlikely - I'll need a planned c-section at 36 weeks. In the mean time, if I have any spotting I'm straight on to the labour ward for 48 hours (at least) until it settled and bed rest if that should keep happening. Really want to avoid an emergency c-section before 36 weeks!!! So taking it as easy as possible now (which is not easy because I am normally quite active and I keep forgetting).
I'm 38 and DH is 37. We have no DC, and have been trying to start a family for 3.5 years.

Waves to everyone.

MrsDiddly I completely read that as you husbands boyfriends baby...

Think it's time I went to sleep...

boozle yup, me too! I was thinking that was one hell of a complicated situation

Freckle - my surgery was one week, three days ago. I had no spotting at all so I suspect my HCG hadn't come down at all before my op. I had brown/punk watery discarge for about a week that panty liners took care of. Then quite heavy dark ref/black blood that needed night pads. From this afternoon onwards I've had pretty much nothing and back to liners. Wondering if it might stop soon.

A saner person would probably be tracking with hpts until neg and then opks but I have never ovulated before in the WTF cycle so I'm going to save myself the heart break of seeing positive hpts and just test once 6 weeks have passed. If I get EWCM I will DTD but otherwise I'm just going to be a good girl and wait it out.

Just to add Freckle with my MC last year at 6 weeks I bled for two weeks, then nothing for about two weeks, then got my period, got BFN after and ovulated that cycle. They talk about having to wait a certain amount of day between bleeds to call it AF but mine was much shorter and was definitely a period.

Hi everyone would you mind if I join? brummiegirl15 sebsmummy1 mentioned this as a lovely thread on my original post.

These are my stats
Me 40 Dh 42
Ttc 18 months MC 1 dec 2010 @6 weeks natural
Ds born dec 2011
Ttc 18 months MC 2 aug 2014 @6weeks
MC 3 March 2015 @12 weeks medical management, scan at 11+4 showed no heartbeat baby stopped growing at 10+3 the day after we saw it waving and wriggling on a scan.

So just had my medical management this wed. Had gone in for ERPC but was genuinely terrified of GA. Then we saw a doctor we knew from the IVF clinic who basically hates older mums and thinks they deserve what they get. He scared me more by saying how easy it is to damage the womb (with actions!) and I'd need a hysterectomy that I changed my mind to medical management. To be fair I'm really glad I did as I saw the baby and came to some sort of peace with it.
Anyway the EPU nurse has referred us to the RCM clinic (St James in Leeds) and the tissues were taken for testing. I'm worried they will kick us out as my mcs are not consecutive. The doctor this week was adamant it will be chromosomal due to my age. He had told me in the summer that I would never get pregnant at my age and if we didn't try IVF instantly it would fail. (Even though all our fertility tests came back fine- mine actually younger than my age) We decided to try ourselves and have been pregnant twice since.
I've also been having acupuncture for a year which has totally sorted out my irregular post baby cycles.
I'm not really sure what happens next. I'm so desperately sad this hasn't worked out. The strain of ttc for 18 months was really getting to us and this felt we might have made it. I had only the very faintest spotting once so the scan was such a shock. The nurses have all been fantastic but I'm just in a pretty shitty place at the moment. My ds told me he didn't love me tonight because I'm too sad which just adds to the crapness I already feel!

Ps sorry for that ridiculously long post!

boozle he might as well be. Their bond from knowing each other forever, since being bumps, is sickeningly beautiful. And crazy.

Minnie glad you found us, but so sorry you are here.

The actions of that doctor make me so angry

I'm 39 this year and have no dcs yet because I've lost 3 and I waited until this age because I wanted my children to be a result of a loving, wonderful and happy relationship.

I would be so angry. I'm sorry he was like that to you

Blimey this thread moves fast.

Me 37, DP45. DP has D S4, I have no DC.
TTC since September 14
MC1@ 6+1 Oct 14
MC 2 measured 6+1 and saw heartbeat, but too slow and too low down. Confirmed mc 1 week later, ERPC Jan 15

Waiting for 2nd AF, then Ov before making Coventry appointment. Referred to rmc, await result for blood tests on blood clotting. Consultant said we'd have Karyotyping after 3rd, but won't test feotus.

Taking agnus castus and extra vitamin D and on low gI diet due to weight and light short cycles.

Just quit job and actually laughed quite a lot today. First time in a while and I'm sure my acne has gone down already.

Diddly glad today went well. Did you know you'd ovulated or was it you that said they'd make appointment anyway based on cycle day?

Barking would love copy of meditation so will pm you once I've worked out how on this thing.

Pop sorry if I've missed something, but why will you be joining me? Problems at work too? I'm going to have to still do some work to leave on good terms, handover stuff, but at least I'll get paid for that.

There was loads of other stuff I was going to respond to, but my memories gone sorry. I do feel better for resigning though, a real weight off my shoulders and DP too. He no longer has to travel with me for 2 hrs a day when I get angsty on the way in, then rant on the way home.

Happy birthday for yesterday Twilight

Hope AF hurries up Brummie

Minnie so sorry you're having to go through this again and that doc is an arsehole. DS does love you, he just doesn't like seeing mummy so sad. But its good to show sadness and I think for him to learn it's okay to be sad. My last counselling session was really interesting, was about anger, but think any emotion applies, but most of us are brought up to feel it's wrong to feel anger, but it's not and more about learning how to deal with those emotions. Hope I'm making sense. What I took from it is that if I ever have a dc I want to teach it how to express emotions without harming others and without shame.

Why don't I seem to be able to do short posts...Sorry!

That should read DP has DS 14, not 4.

What? I don't log in since lunchtime and suddenly there is not only a new thread but 67 posts in it?!

me 35, dh 34
TTC #1 since Dec 2011
clomid bfp July 2013, mc September
iui bfp May 2014, mc July.
iui January 2015 bfn

Starting ivf (last chance round) whenever AF shows up. Currently cd29 and no sign as yet...

brummie I always hate mother's day with a passion. Will I ever be a mother? Will anyone ever wish me happy mother's day?

Quick posting of stats and what's in my head from a quick read through:

loopy sorry there is confusion, I hope you get answers soon
longest the GD sounds like a total pain. I wish very much tbat you didn't have to contend with it. Is there someone you can talk your concerns through with? (ie a helpful doctor/nurse/mw?). I strongly suspect that all will be well but am aware that me putting my 5 cents in doesn't really help.
Minnie sorry for your losses and tbat you find yourself here. I'm gobsmacked by the attitude of that fuckwit doctor - sorry for the language - but seriously, talk about being in the wrong job. Of course your DS loves you. For one of my losses (for various reasons DS was aware there was a baby - I hadn't told him, but he had ended up in hospital with me for scan ) I told him the baby died so mummy was sad, and its ok to be sad when sad things happen but he made me very happy. He was 2.5 then and it seemed to help. To you and jady - I am tormented by my long posts that I can't seem to shorten.
Tanny I remember when I was overdue with DS (by 14 days) I went into a highly antisocial mode and refused to speak to anyone, and yelled at the phone each time anyone anyone left a well meaning enquiry as to whether I'd had him yet. Sending Zen and contracting vibes your way, with no expectation of any imminent announcements. For your sake I hope things start moving soon though.

Sorry I know I've left loads out, but thinking of everyone.

Stats:

Age 41, DP 47
2011 DS born

1. mmc 2012 died 7.5 wks
2. tfmr 2013 at 13 wks, high chance of dying in utero, she had normal chromosomes.
3. mmc 2014 at 10 wks, T22

• My tests came back normal from RMC c!inic

4. mc 2014 at 8-9 wks, HB seen but slow and behind for dates from start. Normal chromosomes

• Went to Coventry, high uNK cells diagnosed

5) mc 2014 at 9 wks, after a scan a few days before looked great. No chromosome results available.

Now just bloody knackered from it all, thinking how shite my stats look in terms of hope. Having a very grumpy day, indeed.

Wow, don't check in for a day and there's already 70 posts.

My stats;

Me & DH 37
One Dd born Jan 11, first attempt

Ttc sinceJan 14,
Cmc Feb 14,
Epu at 9 MC measured 6- Apr 14
Natural MC at 10 wks, after HB seen at 7 wks - sept 14

6 month inforced break due to delays with referral to RMC clinic and appointments cancelled. Next appointment due 12/3 but Sod's law it will be cancelled again.

Everytime have fallen pregnant within 1/2 cycles, just have a problem with it sticking!

Dh and I have had a massive argument this week about everything and nothing. Think we're both tired about having no answers

Minnie, welcome to the thread & sorry to hear of your losses. Your consultant sounds a right arse. There's lots of ladies on here who are 40+ including the lovely Tanny who's 40wks pregnant, so it is possible x

How are you doing this morning loopy, did you speak to your consultant yesterday? Hope you're doing ok x

minnie, so sorry to hear you've been having such a tough time. Don't give up hope because of that idiot doctor. What a wanker. I agree with the others that it's ok for your ds to see you sad sometimes, but i know it's bloody hard. I had such guilty feelings when my dd ( now 2yrs 7mnths) said to me "what's wrong mummy, why are you sad?". They really pull at the heartstrings. Your ds absolutely does still love you (of course you'll know that, but it doesn't harm for someone to reinforce that sometimes)
Everything is still very raw at the moment so i would say take some time to take care of yourself and recover while you wait for the referral. I have heard that they are often more relaxed on the 3 consecutive mc rule if you are over 35 so hopefully they will see you (i would definitely use the age card if you have to persuade them). hopefully the person you see will be a little more progressive than the doc you saw this time. There are also other clinics like the implantation clinic at Coventry who test for uterine natural killer cells (£360) that will see you even after 1 mc, so that might be an option too (although they don't do the standard nhs tests, so worth still getting those done if you can).
So stick around and chat to us; this bunch of lovely women have been a lifeline to me. Hopefully it will help you too x

Hi everyone, speedy zoom zoom thread...

Me 36, OH 34. We have no children.

My first mc was in 2007 in a previous relationship, so I have been wanting children for EIGHT YEARS! Me and my OH have now been trying for just over a year.

Mc1 - Dec 2007 at 13 week scan, missed miscarriage which was about 7 weeks size. I had a D&C.
Mc2 - April 2014 at 11.5 weeks, a natural miscarriage that was one of the worst experiences of my life.
Mc3 - Oct 2014 at 9.5 week scan, another missed miscarriage 6.5 weeks size. I had another D&C.

All NHS test results came back normal, and the karyotype on the last baby revealed it was chromosomally normal and it was a he.

I have made quite big dietry changes including wheat and dairy free and low GI. I haven't been drinking since January last year. I am taking maca root daily and having acupuncture. We have been trying again since January but I am going slightly mad with it so we are having a break this month and going to Coventry to see what they say.

I write about the whole horrible thing here: thingsaboutmiscarriage.wordpress.com/

minnie that's awful. And that horrible doctor should be placed naked on a float, paraded down the High Street and pelted with anything handy. Perhaps we could arrange a flash mob to get it done? hope you're being taken care of at home x

jady yes. I was booked in based on my cycle length. I struggle with opks. Rarely get a result. Explained this and that I do get ov pains. Booked in on CD 20 of up to 27 day cycle (but having checked my records realise now my cycles are often only 25 days)