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Original poster

Ectopic pregnancy support thread

913 replies

tasmaniandevilchaser · 18/03/2012 18:15

Hi everyone, this is a place for anyone who's had an ectopic pregnancy - whether you want to moan, cry, fret or just have a chat with other people who understand. I know there's lots of other good websites on ectopic pregnancies but after hijackingchatting with sunshine on another thread, I thought I'd start one here.

Well I'll get the ball rolling with my story - after a MMC in November (found out at the 12 wk scan that the baby had died at 10 wks) I was just getting myself sorted, having counselling, when I had the ectopic. I know I am lucky in that I have a lovely DD. Having had a normal pregnancy, I knew from the beginning this one was not good and as soon as I got a BFP I was down at the hospital.

After 10 days of mental torture, waiting around, scans, rescans, blood tests, it got too late for the methotrexate (they finally saw the ectopic in a scan on a Friday early evening and the methotrexate wasn't in stock Hmm)

I finally had the surgery to remove one tube on the Tuesday. This was the end of February, at first I wasn't sure how I would cope, but I am just plodding on. I know I am lucky that it didn't rupture, but honestly I can't think of having an ectopic as being lucky. Especially after a MMC Sad.

Anyway, come join me if you want to share your story, I have Wine, Brew and Thanks

---------------------

Hi there - this thread is a little old. If you'd like to know more about ectopic pregnancies, we've got more information here. MNHQ

OP posts:
Original poster
tasmaniandevilchaser · 06/09/2012 21:04

lol northey with hcg top trumps! I'm amazed they couldn't see anything with 19,500, was it hiding or were they just useless?

It never ceases to amaze me how incompetent and insensitive health care people can be. Trying to give you a sick note for 1 wk after a laparotomy. The mind boggles. Oops no offense to all the health care people on this thread (I'm one of them!! Grin)

tired hoping it's a good scan day for both of us. I know someone else from another thread having a scan tomorrow, hopefully it'll be a triplet of good news!
How is the counselling going? Is it working out having it in the morning after a night shift? I still haven't sorted anything out, if I could get a babysitter, then I'd book something right now. How do other people manage?!

berries how are you?

OP posts:
Northey · 06/09/2012 21:08

Think it was hiding. Though they eventually thought they saw it in the stump of the right tube, when they got in there they actually found it in the middle of the left tube. Hey ho.

Good luck for all scannees tomorrow!

Original poster
tasmaniandevilchaser · 07/09/2012 11:55

YES! it's ok, the bean is in the right place!! Grin Smile Grin

Measuring exactly as they'd expect for 5 wks, just a sac with a yolk sac.

I am a one-tubed wonder!!! Grin

tired hope it went ok for you today

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Northey · 07/09/2012 12:57

Yay!! Well done tas, that must be such a relief.

Am waiting at hospital for next blood test today. Fingers crossed for a better drop this time...

SideshowBoob · 07/09/2012 18:07

Hi all

Can't read the whole thread now (although congrats to tas on her good news above!) but just thought I'd stick my head in.

Found out this morning I'd had EP (thought it was a miscarriage 3 weeks ago but hcg levels continued to rise) and have been given Methotrexate this afternoon. All a bit freaky really! Hoping for no side effects and good future fertility...

fuzzycat84 · 07/09/2012 21:06

Hi Sideshow sorry to hear what happened. Hope it all goes well with methotrexate

tas congrats!!! So happy for you! Hearing good news make me happy
tired how did yours go?

vickypicky · 07/09/2012 21:27

I am so sorry for your loss. Sad

I found out I was pregnant a month ago after over a year of trying and then two weeks ago after going into hospital for an internal scan because I was suffering abdominal pain, I was told I had lost the baby and it was ectopic, not only was I rushed into surgery but I also had a fallopian tube removed. I am still in a state of shock and grieving and cannot believe how things changed so quickly from being happy to being totally lost.

I am glad that I am still here as I was told it was close to rupturing, but losing a baby which we were so desperate to have makes me feel so down, some days I just want to hide away, but put on a brave face for everyone around me.

I am so nervous when we start trying again and at the moment this is far from what I even want to do as I cant cope with going through this again and putting my husband through it again as I have read that it can happen again.

I am trying to stay postive and I hope you can too.

Thanks
fuzzycat84 · 08/09/2012 01:43

Hi vicky, I'm so sorry this has happened to you. This is a horrible experience.....
The only thing that keeps me staying positive is all the stories of one tube mothers I read in here. They really give me much needed hope.......

tiredandiwanttogotobed · 09/09/2012 20:26

Sorry to hear your sad news sideshow and Vicky. I hope that us one-tubed-wonders can be inspirational for you both. Be kind to yourselves xx

Tas Grin Congratulations xxx The counselling's finished now, I had 4 sessions. It really helped but so did a 2 wk holiday, catching up on sleep and a BFP. No offence taken, I'm also a healthcare person and am amazed how insensitive some of us can be Angry...

Thanks for all the good luck messages, sorry I've not replied sooner but I've been away for the weekend. The scan showed all's well Grin it's heart and kidney's are in the right place, and the nuchal translucency test was normal too-just gotta wait for blood results now to assess for Downs risk...

Fuzzy I think I had one AF then started TTC again, however I was advised to wait 2 cycles but was too impatient! However did have to wait approx 6 AF before I got PG again.

SideshowBoob · 10/09/2012 14:37

So sorry for your loss Vicky. And I completely relate to the fear of it happening again.

Are there lots of one tube wonder stories?

Original poster
tasmaniandevilchaser · 10/09/2012 19:40

sideshowboob yes yes! there are loads of one tube wonders, 90% of future pg are in the right place, the odds are good! You've probably already been to the EPT website, I've found it a godsend for very positive stats and stories.

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joby21 · 11/09/2012 07:37

Fab news tas and tired!

We were told we could ttc after my first AF. I had my ep in december, started to ttc after my AF in feb and conceived in march, bfp in april. I did, and actually still do, have lots of twinges and niggles on my right side where the tube was removed so do wonder if we should have left it longer to allow everything to heal but we weren't expecting it to happen quite so quickly!

Sorry to hear your news bob and vicky. Hope you are being looked after and are healing physically and emotionally.

Countmyblessings · 11/09/2012 14:19

Hi all - welcome Vicky & Sideshowbob - sorry that you have had an ectopic like us, but as its been said some of us have fallen pregnant quite quickly and all is progressing well!
We are here to share and offer support. We all deal with Things differently as some with other children and some with none but grief, pain and all the hurt are all part of the process! Be good and kind to yourself and hopefully in time and when your ready to TTC or just move on we
Can support!
Sorry if I missed any other newbies my brain is mush right now!

Northey · 11/09/2012 14:30

Hi everyone. Sorry I've been absent for a bit. HCG started rising again. We tracked it over the weekend, in case it was a new pregnancy (very embarrassing to admit to hospital that I had had sex straight after surgery), but the conclusion was that it was a bit of placental tissue that had been missed in surgery, and was now growing again. I had methotrexate yesterday. Feel ok, though a bit emotionally shaky by being plunged back into it all again. And my arse hurts from the injection :o

vicky and sideshow, how are you both doing?

Original poster
tasmaniandevilchaser · 11/09/2012 20:19

oh northey sorry it's still not all over, hope that the metho does the trick. Good excuse to eat loads of unhealthy junk food until your HCG is back down to zero! And if your arse is sore, then lie down immediately and demand to be waited on hand and foot!

hope everyone else is ok

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Northey · 11/09/2012 20:40

Alas, tas, when they did my BMI for the dose calculations, I was rather horrified to see my "oh I'm pregnant, whatever" eating had nudged me back into the overweight category... I am not dieting yet, but the troughing needs to be reined in a bit!

Original poster
tasmaniandevilchaser · 12/09/2012 20:06

Now I'm feeling guilty, have just sent DH down the shop for sticky toffee pudding!! How are you feeling today?

OP posts:
Original poster
tasmaniandevilchaser · 12/09/2012 20:07

and how is everyone else (sorry got distracted by arrival of sticky toffee pudding!)

OP posts:
Northey · 12/09/2012 20:36

Am fine thanks. Slightly wondering what s meant to happen with methotrexate. Should I be bleeding or anything?

In the meantime, I am eating Crunchies in bed :)

fuzzycat84 · 12/09/2012 22:00

Northey I'm sorry to hear it's not all over :( That's not very nice to be reminded about what happened...

I'm back to work now, yesterday was my first day back. Could not believe how quickly rumours spread.... I almost felt like printing a big flyer and putting up for everyone to see 'I had an EP'. Other than that everything is ok. Waiting for AF to come though it probably won't for another couple of weeks, since I'm only 2 weeks postop

Original poster
tasmaniandevilchaser · 13/09/2012 09:23

fuzzy, glad to hear it's going ok back at work. Why are rumours spreading at work?! Are you not allowed to have time off?!

Did you tell people? I was too upset after my EP to really talk about it, but I did end up telling a couple of people. I think the news spread a little more than I had intended but it's done now.

OP posts:
lorsa · 14/09/2012 16:27

Hi everyone! i have read all your experiences and wondered if i coukd join please?

I had my left fallopian tube removed yesterday with a 5cm pregnancy after going to A and E 16 days ago! initially got told it was viable pregnancy after HGC levels rose. Refused a scan until Monday 10th which showed nothing in my womb, blood in my pelvis and a 2.5cm mass outside the womb. Had HGC levels checked and told i was miscarrying. i knew I wasn't (had natural miscarriage in Feb and MMC in June). sent home after consultant said she was 90% sure it was a natural miscarriage. Had to go back for HGC levels on Wed. Told all was fine. Then got a call on Wed night saying my scan from Monday had been reviewed and they were more than 90% sure it was ectopic. which it was.

Sorry for the essay. i have a two year old which is a blessing but just feel so weary right now. When they thought it was a natural miscarriage they said i was eligable for tests as i had had 3 in a row but apparently an ectopic doesn't count as a miscarriage, which is just adding insult to injury!

Hope everyone else is doing ok.

x

tiredandiwanttogotobed · 14/09/2012 22:11

Hi lorsa
Welcome to our club and sorry to hear your story. It's not surprising you feel weary, only 4 days post-op and with a two yr old. Is there anyone at home to help you?

Take it easy for a few weeks, put yourself first Brew

fuzzycat84 · 14/09/2012 23:42

Hi lorsa sorry to hear about what happened. I hope someone is there to take good care of you.

tas when I called in initially I was asked what I wanted people at my work to be told to explain my absense, why it has to be explained to others is a whole different story, just very curious people not willing to mind their own business... Anyway now pretty much everyone at work knows and they did not hear it from me!! I'm ok to talk about it now, but it is so annoying how they all know and most of them sit there with somber faces not knowing how to face me or what to say because they don't know whether I know that they are aware... since I never told them! That is how stupid it is where I work. Should I mention that I work in the hospital? (not the one where I had my surgery)

lorsa · 15/09/2012 08:04

Hi tired and fuzzy
I have my husband at my beck and call which is good. Just finding it difficult to take a step back from ttc which has been my focus in 2012. I thought a MC and MMC were bad enough but am finding the 10% chance of this happening again and the reduced fertility difficult to deal with.

We are both unhappy at the hospital's treatment and how we were repeatedly told it was a natural miscarriage despite a scan showing otherwise,

It's been nice to read about people getting pregnant with one tube though.

With regards to work, I think everyone in my dept has been told. Until this year I'd never had a day off and all my days off now have been pregnancy-loss related. I really like everyone in my dept, a lot are older than me and mothering (even though I'm 32) so I am happy to let them know.

The next random to ask me when I'm planning number 2 will get short shrift though.

Another essay, sorry. I have never really used Internet forums before but it is nice to share experiences with people who are sadly in the same boat.