Ectopic pregnancy support thread

[tasmaniandevilchaser]

Hi everyone, this is a place for anyone who's had an ectopic pregnancy - whether you want to moan, cry, fret or just have a chat with other people who understand. I know there's lots of other good websites on ectopic pregnancies but after hijackingchatting with sunshine on another thread, I thought I'd start one here.

Well I'll get the ball rolling with my story - after a MMC in November (found out at the 12 wk scan that the baby had died at 10 wks) I was just getting myself sorted, having counselling, when I had the ectopic. I know I am lucky in that I have a lovely DD. Having had a normal pregnancy, I knew from the beginning this one was not good and as soon as I got a BFP I was down at the hospital.

After 10 days of mental torture, waiting around, scans, rescans, blood tests, it got too late for the methotrexate (they finally saw the ectopic in a scan on a Friday early evening and the methotrexate wasn't in stock )

I finally had the surgery to remove one tube on the Tuesday. This was the end of February, at first I wasn't sure how I would cope, but I am just plodding on. I know I am lucky that it didn't rupture, but honestly I can't think of having an ectopic as being lucky. Especially after a MMC .

Anyway, come join me if you want to share your story, I have , and

---------------------

Hi there - this thread is a little old. If you'd like to know more about ectopic pregnancies, we've got more information here. MNHQ

[Fizzyfluff]

Just want to say that I went on to have 2 more babies and I'm pregnant again, so even tho it was shit at the time there can be a happy ending.

They monitored my bloods coming down post op to make sure they got everything. Think I went every couple of days for 3 weeks before it hit zero

[Fizzyfluff]

@Jane0510

Can I join this thread please?

I'm currently undergoing expectant management of a cornual ectopic pregnancy which is apparently pretty rare!

I got my BFP early February and went for a private early scan in March. They couldn't really see much and whatever they did see didn't match with my dates so I was referred to my EPAU. Had a TVUS there and was diagnosed with a cornual ectopic.

I'd had no pain and no bleeding so they were happy for me not to have surgery. I was told that in my case they'd usually prescribe Methotrexate but given the current Covid situation, they wouldn't be doing that as it would immunocompromise me.

I've been having serial beta Hcg blood tests and my levels have gone from 5000 to 257 in about 3 weeks. I've had to attend hospital alone through it all (fully understand why).

Does anyone have any similar experiences? I'm wondering how long it will take to get to zero and when I can start trying again. Im 34 and this was my first attempt so I'm keen to start again.

I've had two ectopics. First one was in the tube, and second one was on the same side in the remaining stump of the operation. It was cornual. What is their treatment plan if not giving you the mex shot?

I was given the mex shot but then it ruptured and I also had to have surgery.

[Jane0510]

Can I join this thread please?

I'm currently undergoing expectant management of a cornual ectopic pregnancy which is apparently pretty rare!

I got my BFP early February and went for a private early scan in March. They couldn't really see much and whatever they did see didn't match with my dates so I was referred to my EPAU. Had a TVUS there and was diagnosed with a cornual ectopic.

I'd had no pain and no bleeding so they were happy for me not to have surgery. I was told that in my case they'd usually prescribe Methotrexate but given the current Covid situation, they wouldn't be doing that as it would immunocompromise me.

I've been having serial beta Hcg blood tests and my levels have gone from 5000 to 257 in about 3 weeks. I've had to attend hospital alone through it all (fully understand why).

Does anyone have any similar experiences? I'm wondering how long it will take to get to zero and when I can start trying again. Im 34 and this was my first attempt so I'm keen to start again.

[Beth186]

Sorry to hear this, I am currently going through an ectopic pregnancy now and cant help you with that as I dont know yet but would be interested to find out other peoples experiences too x

[AD1986]

Hi All!

I had an ectopic pregnancy beginning of January which resulted in surgery and losing my left tube.

It was my first pregnancy and really want to try again soon.

Do you think it's too soon, or there anything I should do different..I am just so scared!

Thanks in advance :)

[khaii]

I have some questions regarding of an ectopic pregnancy. I was first injected methotrexate Last MAY 24 my HCG level is 346 then, i came back to my doctor on June 1 my HCG level get down to 103 then the next and last check up was on june 7 then It get down to 3 . And the doctor said to me im now ok. Then, she wants me to have a TVS (transvaginal ultrasound) but i didn't follow it. Now, im worried . Is it possible to have an ectopic again?? But im using contraceptive pill. Thank you, Hope there's an answer to my question. Please help.

[Mali2]

I had an ectopic in march last year. After repeated blood tests and scans, doc confirmed it in 7th week. I was not feeling pregnant or in any sort of pain. After a second doctor's confirmation, took methotraxate injection and hcg went down. Doctor was very supportive. She suggested hysterosalpinogram test when I asked whether there is any problem with my tubes. Fnding that tubes were perfectly normal was a relief. We have been trying again for the past 6 months. I did a home pregnancy test yesterday at 5 weeks and it was a strong positive, instead of the very faint line I got during ectopic last year. But, I am feeling very worried that its ectopic again and getting up courage to see the doctor before too late. Hope its good news this time.

[user1493416129]

Me and my husband found out I was pregnant on the 10th April (around a month gone). As you can imagine very excited to have a second child, but very quickly I began to feel ill, and felt completely different this pregnancy. I felt faint/dizzy and just run down (we joked it was a girl this time), then by 15th I started to bleed lightly, and on the 16th I woke up in agony with rib pain and went to a and e. From then on I was sent on to early pregnancy unit where they conformed I was pregnant. It was ectopic but by the time they confirmed it will blood tests and multiple scans lucky I naturally lost it, but my HGG level carried on going up. So on the 21st I had key hole surgery where the cleaned out my tubes of the remaining blood and had a look inside (luckily no removal of my tubes) and also nothing there. I went back yesterday for a scan and blood test, the scan shows nothing, but my bloods are still going up six days after they done the surgery. I don't know weather to feel joy or cry that I'm going to go through it again. I don't know if there's hope I can have the baby, or even if there's a baby. We haven't slept together since I started bleeding so it can't be a new baby. Has anyone else experience it? I'm still on so much pain meds from the surgery I can't think straight or even carry my 6 month son. Me and my husband can't make sense of what the doctors are saying one minute I'm pregnant, then I've naturally lost it, then I'm not and now I maybe. Has anyone else experienced this positive or negative outcome. I just don't know what to prepare myself for

[chloejo]

Hello all,
This is my first time using this site. I had an ectopic pregnancy last week and I am finding it difficult to get over. I was terrified of having the operation and I actually didn't have to have it in the end because I naturally miscarried. The miscarriage lasted for 5 days and I am really not feeling myself. I feel angry that this happened to me and I am worried about having a baby in the future. I am also wondering when I should be going back to work. As I didn't have the operation I'm not sure what time I will need?

[sprite25]

Hi I guess just marking my place. Me and DH were TTC for no 2 for about 5 or 6 months when I got three BFPs. We couldn't of been happier but looking back now I think I knew something wasn't right. At first midwife appointment I asked about the light cramps I was getting which she told me were just stretching pains. Got a letter through for our 12 week scan and it started to feel abit more real and exciting
exciting. We were due to go on our 1st family holiday on Monday. Saturday night and Sunday morning the pain was awful so just to be on the safe side I called the EPU at the hospital who told me to go in. I was given examination's and asked loads of questions and given a scan which they couldn't see properly so had to stay in to have another scan in the morning. By this point I was still hoping they would say everything is fine and send me home. Second scan showed a large ectopic in the left fallopian tube. They did keyhole surgery to take the tube and pregnancy away but said that I had a healthy right tube and as I had DD with no problems then no reason I can't have more. I'm home now and struggling to figure out how I feel. Sad obviously and maybe in shock but it wasn't even a 'baby' yet, just a group of cells really. I know the doctor said that providing I'm healed and we're ready then we can start trying again in 3 months. Sorry for the long post I'm just trying to get some of it out of my head to make sense of it all.

[TeaAddict235]

Hello, I am reluctantly joining this thread, as I was told this morning that what the doctors thought was a dermoid cyst, is actually an ectopic pregnancy. We already have DS who is under 2, and we wanted a close age gap, but alas, that may not be the case. I still have to decide what we want to do concerning the management of the tube, and until this weekend it looks like monitoring until more blood tests have been analysed. I really don't want surgery as I am a wimp, but am scared about the high subsequent risks of not removing the offending tube.

[Sophia1984]

Hi everyone, I'm wondering if I could be having an ectopic pregnancy if the technician saw something in the womb? She just said there was a dark spot, but otherwise I had uterine lining and everything looked fine. I'm expecting that it's a pregnancy that hasn't developed and hoping that I will naturally miscarry, but I'm worried it might be ectopic. If it was, would there have been anything in the womb (which is retroverted in case that matters)?

[notAdaddyYet]

Hi folks, it has been really eye opening to read through a lot of your posts here. My love and I got married last May and have been really trying to conceive since a few months ago.

We were excited to have her missed period at the end of July and positive pregnancy test last week via home test.

She's had spotting and a little discomfort since though so we decided to make an appt asap and today we found out it's an ectopic pregnancy just below one of her ovaries.

She's pretty broken up about this right now and I'm just trying to be as supportive as I can. We were already having thoughts of what to get, if it was going to be a boy or a girl, etc, so it's pretty hard to now hear that we have to put that aside.

I'm sharing because I need to talk to someone and she doesn't want us to share just yet with anyone publicly. I'll let her decide where and when but I feel I can't hold it in.

I've now diverted my worry from the potential baby to her. I've had some medical training so I know Methotrexate is a cancer drug and what it is supposed to do. Makes sense to target rapidly dividing cells but surprised there's nothing better yet.

Can someone share more about how you had Metho tx and why it is you feel pain now? (I've read that in quite a few posts) As the ectopic pregnancy is being resolved, if it never started in the Fallopian tube, can it leave scars in the tube (and is that what is causing the pain?)?

If it turns out she needs surgery, we are told because of it's position, she will keep both tubes and no damage should occur with the ovary if nothing changes and we move fast. That I'm thankful for, but then I'm told we should not try to conceive for another 6 months because of the drug level in her body. How long did you gals wait before trying again after metho and how long before you conceived? And what was the outcome?

I'm thankful that the EP did not end up in the tube where a lot of them do end up, I'm sad we won't have our first yet though. When that does happen, you know I'll be posting that here to encourage you all.

As an aside, during her bleeding episodes, this site was a very big help in support and information as well, thanks to you all.

[toobreathless]

Also sending love to everyone going through this now/recently.

I am 28 weeks pregnant with my third baby conceived after an ectopic pregnancy - I lost my left tube in 2010.

There is hope.

[Lovemylittlebear]

Somethingfromnothing - there definitely is hope and although it's horrific the pain does get easier with time I promise. I'm 18 weeks pregnant now and baby in the right spot this time ...I hope this helps you through a tough time and you have lots of love and support xxx

[somethingfromnothing]

I know this thread isn't very active anymore but I've just read it start to finish and it has given me a huge amount of support.

I am being managed expectantly for my ep and after two weeks it has fallen from 980 to 40. Emotionally it's been awful but at least I know there is hope

[tasmaniandevilchaser]

to anyone else that is still around, hope that you come through the dark times and have good news sometime soon. I had my left tube removed in Feb 2012 and conceived DS 6 months later. Hope that this gives you hope.

[tasmaniandevilchaser]

Iloveberries!!! I was thinking about you and wondering if you ever popped back here and have just seen that you posted a few months ago. Sorry to hear that you split from your H and hope that the next scan gave you good news. Big hugs, tas xxx

[Shazhelt]

Helpinghusband, I am so sorry for your losses. I'm sure just being there for your wife is a great help. There's a lot of good information on the ectopic trust website, it tells you about different treatments, recovery and emotions.
I know the hardest thing for my husband was seeing me in so much pain and helpless to do anything. It meant everything to me that he was by my side.

Hi hello all. Like you I'm a 'put everyone else first' kinda gal, but tbh, my husband hasn't let me. It's been strange and rather unpleasant at times to take a step back and just concentrate on myself, but I think it's helped. I tried to downplay what had happened for a little while (think I was in denial), but when I actually started acknowledging how shitty it was, and how serious it had been, seemed to make me feel a bit better somehow. I still have bad days and still have flashbacks and bad dreams, but the dr said after an emergency experience like that it can take months and months to be yourself again. So whilst I truly empathise with you, eight weeks after your loss is still early - give yourself time and be good to yourself. Xx

[Helpinghusband]

Hey I'm looking for some help. My wife and I have been TTC for 2 years. We had our first MC Christmas day 2013, second MMC Oct 14, third MC Feb 2015 and now we've just been told that we have a non viable pregnancy in an unknown location. HCG levels are still rising but only about 10% every 48hrs.

My poor wife is in bits. What can I do to help my wife get through this difficult time? Is there anything I need to do or not do to make it any easier for her?

Any help or advise would be greatly appreciated.

[Helloall1]

Hi Shazhelt, I'm sorry to read your situation. It's a horrific thing to go through and to be honest I've spent so much time downplaying it it is making it worse as every now and again I think of it and it breaks my heart.

I'm not the type of person to take time for myself, I worry and support everyone else...in and out of work.

Our experience of internal bleeding and rushed surgery sounds similar, as does our feeling of exhaustion. I was supposed to take three iron tablets each day but I am a bit rubbish at remembering.

How are you feeling now? I'm so sorry you have had infections x
I'm not sure where my periods are, I bled for a week in hospital and the next was regular.

Hoping you feel on track soon and have lots of support around you xx

[Shazhelt]

Helloall1, you are not butting in, and are most welcome to the thread. I'm just sorry you had to find it.
It sounds like you had a terrible time, I too had to be rushed down to theatre, very scary times. I'm not surprised you still feel shocked as it all happened so quickly to you.
After 5 weeks, my energy levels have just started to improve now I'm no longer anaemic, but I'm still getting pain from the tubeless side and my belly button incision seems to have developed an infection - so back on the antibiotics. Have an u/s scan next week to check everything's ok.
After dreading the arrival of my period, now it's actually here I feel quite relieved, feel like I can start to move forward a little.

Dcmw - hope littlebear has given you some reassurance.

Take care all x

[Helloall1]

Hey, hope you don't mind me butting in. Been reading through experiences and realise mine was unusual, which is why I probably still feel a bit numb and shocked...even though it happened eight weeks ago.

I'm so sorry that so many people have suffered losses and pain too x

My story is, we had been TTC since Oct 14; I had the implant removed. We found out were pregnant in April, only early days of around six weeks but was very excited.
I was perfectly well, no bleeding at all. But suddenly got a strange woozy feeling all of a sudden, when I was driving home from work. Then I started feeling like I had trapped wind and it all went a bit hazy from there, I was sick and kept going in and out of consciousness. Luckily I had managed to pull over and call DH.
I refused to go to hospital as felt it was a stomach bug, but then got a horrific pain in my shoulder and was rushed to hospital in an ambulance.
Long story but had to have surgery straight away as the 'trapped wind' feeling was actually blood loss into my stomach. Few blood transfusions later, I've survived but I feel crap! And still shocked at how quickly it all happened.

I'm doing OK now, but still exhausted, bit sore and down. But I'm trying to be positive. I just wanted to share my experience because I didn't get any support and when I try to Google advice, it mainly says bleeding, pain and medication. I hope this makes sense.

These things are awful and no one deserves it. I wish you all good luck, stay with it, the emotional and physical pain will ease x