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Miscarriage/pregnancy loss

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Diary of an optomistic pesamist...

99 replies

faintpositive · 14/06/2011 16:23

Just wnat to write a few words each day to help me through. Feel free to ignore as it will be mostly ramblings, but i feel it will help me.

Worked out that on Saturday, i will be 6 weeks.
Luckily at this moment in time, i do not know anyone else who is pregnant too.
This is always torturous as when i miscarry, and they continue blissfully with their pregnancies, it is painful to see them grow bigger and to then give birth.

There are allot of reminders within my circle of what i could have had.

Every night, i get into bed and think, "thank God, another day with no bleeding"
Every time i go to the loo, i try to force myslef not to look......just in case, i just cant bear it.
Mostly i dont, occasionally i do, and its like i have stopped breathing and suddenly taken a huge great breath of fresh cool air when the loo roll is clear of blood.
I feel ok, not strong symptoms this together with the faint positive leads me to think that this is not a strong and viable pregnancy. Waiting for it all to start again.

Appoitnment at the end of the week at Liverpool, see what they say. I started the 5mg folic acid, and asprin, but not sure about the injections, im not convinced about them, but what if they increase my chances??????
So every day is a bonus.
Refuse to post on any of the preg bourds, not told a soul, except dh obv. I am completely ignoring and putting it to the back of my mind as if it isnt happening.
every day, is a good day...i spose.

OP posts:
shirazplease · 01/07/2011 19:45

Lovely news FP! Glad you're smiling x

Purplebuns · 01/07/2011 19:53

Wow, I went from tearful to really pleased for you reading this, I have everything crossed for you. I would love to hear a positive story myself so I will follow your progress keenly! All the best :)

fothergill · 01/07/2011 20:11

My friend gave birth to a little girl today. One long, sanguine journey with many miscarriages, some early, some later. They didn't know why she miscarried. I held my breath for her. It can happen.

HorseyGirl1 · 01/07/2011 22:33

:-) Another day done! xx

faintpositive · 01/07/2011 23:00

Indeedy Smile

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faintpositive · 01/07/2011 23:01

This is going to be the looongest pregnancy in the history of the world isnt it......im getting on MY OWN nerves never mind any of yours Grin

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faintpositive · 04/07/2011 12:30

Strangely...and it IS strange for me....i am NOT hungry, i dont fancy anything to eat at all.
Now then, i am a big bird, always have been, LOVE my food so this is an odd feeling for me.

Sore boobs, no bleeding and feel tired!

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HorseyGirl1 · 04/07/2011 13:26

All as it should be! xx

faintpositive · 04/07/2011 21:32

6 weeks tomorow.

Got so many milestones to meet. (not fucking mountains as previously negatively stated)
One week till holiday
3 weeks till next scan to tell me if there is a little baked bean there or not.
12 week proper normal person scan (please please please please everything crossed)
16 week nuchal fold test
20 week normal person scan (please please please please everything crossed)
then i can breath and enjoy and be a normal pregnant woman.

BRING IT ON Grin

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willitbe · 05/07/2011 16:45

Faintpositive - wow, I have just read your diary here and my jaw is dropped open. It is almost exactly what I could have written..... I am currently 7+5 by dates, on the 1st July, same day as you had your scan, I had a scan which showed me to measure 5+1..... I had bleeding starting on saturday, although in my case it is currently continuing. I have been grasping onto hope that maybe a miracle is occuring and that I have still got a pregnancy to hold onto here. And to read your diary has been a great comfort to know that I am not crazy to hope that all might be well. That you too are hoping to get through the next milestones too. I am on asprin, heperin injections and progesterone, due to recurrent miscarriages (10 so far,but I have 3 children).

Anyway, I truely hope that we both have little miracles. Thank you for posting your diary.

faintpositive · 05/07/2011 19:51

Hi willi, thanks for your lovely post....

Brown discharge has red blood in it today.

SO

Im again waiting for the pain to start. I knew/know that this is all over.
Feel a bit numb really. Think its a protective thing.

I KNOW i know what i need to do, but i just dont know what to do now.
Pissed off just doesnt even come close.

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faintpositive · 05/07/2011 20:05

Willi, what did your scan show at 5+1?

Is your bleeding heavy and very red? Sorry for personal questions but i need to bounce off some one...desperately.
x

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willitbe · 05/07/2011 20:06

Sorry to hear you are bleeding too. Do what I did yesterday and search all the wonderful posts that talk about heavy bleeding, pain and huge clots and still the pregnancy was ok.... It helped me go back to my comfy denial. Logically I am 98 or 99% certain that I must have lost/be losing it, but I am fighting with all my effort, to hope for a miracle that when I go for my scan on monday, that all will be well.

On sunday I bawled my eyes out, but someone told me to hold onto hope, so that is what I am doing. If on monday they tell me that it is all over, I will deal with the grief then, but until that point, I will hold on to the fact that miracles do happen and just sometimes pain and red bleeding and clots do not mean the inevitable.

Please stay with me in the crazy place of denial and lets keep hoping together that despite it all and the idiocy of the idea, that maybe, just maybe we might be on the right 50% chance this time.

LAF77 · 05/07/2011 20:08

faintpositive I am so sorry to read this. Wishing you the strength to get through this.

willitbe · 05/07/2011 20:11

My bleeding has got heavier over the last two days. It was brown spotting on saturday, red spotting on sunday, very light red/brown flow on monday, and today, it has been red with small clots and light flow.

I have had intermittent cramps and backache, but not bad.

Yes my scan on last friday said 5+1 when I should have been 7+0. But with my dd I had a scan at 7+3 and they said small empty sac at 5w, but she is fine and caught up to proper dates at a later scan. The m/c's where I have had a scan have all measured 2 weeks behind too, and more recently it came to light that I have a tilted uterus and that is why I always measure behind in dates on early scans. But I have my dd to prove that early scans are not reliable! So take encouragement that scans are not a good predictor of viability!

Next the red bleeding is not always a bad thing, can just be irritated cervix etc.

Keep hoping for the best.

willitbe · 05/07/2011 20:12

I have to go to a meeting now, but will try to pop back later, keep positive.

faintpositive · 05/07/2011 20:14

Oh i know waht you are saying, but thing is, i never hold out any hope, i jsut have to hear about 2 other people anouncing thier pregancies and i KNOW without any further information form any where, that i will miscarry within the next 2-3 weeks.
Stats when i had my 1st mc, was 1 in 3 pregnancies end in iscarriage.

The moment i get a bfp i just think..."here we go again".
Every time i go to the toilet i expect to see blood.

With miscarriages one after the other after the other, i dont even tell any one i am pregnant any more, becuase frankly i am embarrased.

So because i dont expect anything but loss, i never class myself as continually miscarrying rather than pregnant.
There is no luck in any of this, it is all for a reason.
I had hoped that they could monitor me to find answers while it was happening...not for me, for all of those poor buggers in the future who will go through this horror.
I know i said that i have a 50:50 chance, but who the hell was i kidding. I have no chance in reality.

OP posts:
willitbe · 05/07/2011 20:15

Sorry meant to say that scan measured at 5+1, but they could only see the sac, too small to see anything in it.

faintpositive · 05/07/2011 20:17

Sorry, " i class myself as continuously miscarrying rather than pregnant"

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LAF77 · 05/07/2011 20:24

have you had all of the thrombophilia screening and NK cells tested faintpositive ?

faintpositive · 05/07/2011 20:29

No, funnily enough they tested everything but NK cells, not sure why tbh.

They just dont know, they have mentioned clotting issues, apparently these can peak and trough in a cyclical motion, so it was during a trough that i concieved and carried ds. However due to pre eclampsia and the state of my placenta, they feel this is clotting.

The blighted ovums are probable egg quality OR chromosomal insufficiency/abnormailities.
This means my problems are multiple.

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LAF77 · 05/07/2011 20:38

I'm a recurrent miscarrier as well, but with no children. To me, it would seem like NK cells would come into play when you have already had a child, Somehow your immune system is triggered to attack another pg. It is hard to imagine having a clotting problem if you have already had a successful pg. But I'm definitely not an expert, just an amateur researcher. The NHS doesn't tend to test for NK cells though. It is likely to be a private treatment test.

For me, blood means the end of the pg. This is how all of my pgs have played out, so I understand how you feel. For some people, this is not the case, but it has been for me, so I won't offer you platitudes of "it could be OK" because I can imagine what is going through your head as it would have been nearly identical to my thoughts over 6 months ago. Thinking of you.

faintpositive · 05/07/2011 20:42

Well as my placenta was in a very very poor state and ds was only 5lbs at birth, they say that this could be due to the placenta becoming sludged up with sludgy clotted blood. Hence the asprin this time.

Yup blood = miscarriage innevitably and absolutely.
Thanks for understanding how it IS and not trying to persuade me how it may be. I appreciate that very much.

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LAF77 · 05/07/2011 20:55

which hospital/clinic are you under the care of? From Lesley Regan's book, poor quality placenta could be an indicator of antiphospholipid antibodies. In order to get the accurate results for APA, the test has to be taken without using a cuff, free flowing, and processed within one hour of being taken. (p 182) If you don't have the book, I'll scan you the pages and e-mail them to you.

I'm not a doctor, but I feel like there are so few answers out there, and I'm always reading up, trying to know more so I can ask better/more questions at my appointments. It helps me to be pro-active, like I have some measure of control over something completely out of control.

Deep down you know what is happening with your body. We all want to hope, but we can't ignore what is happening, no matter how much we wish it would stop and be a happy ending.

willitbe · 05/07/2011 22:34

Sorry you are going through this. I have normally felt the way you describe, and I did on sunday when my bleeding turned red. But after 10 miscarriages, I just need to do this differently this time for myself. Normally if I had the bleeding I have now I would automatically know it was the end, but this time, I am fighting it to the bitter end.

I had all the recurrent miscarriage tests and they came back normal. I did get a positive ANA test, but this is positive in 5% of caucasians, so considered normal. I attended Lesley Regans clinic and was tested there, but went while pregnant and had the TEG test, this showed increased clotting.

Having had three children already, only one early miscarriage before the last, followed by a further 9 (10 if you count this one) in succession, this is a clotting issue that has appeared with age.

I am only telling you this, as if you had clotting issues previously, it might be that a TEG test might be significant for you to have.

And if (and right now might not really the time for thinking about it) you get pregnant again, a TEG test while pregnant might be an idea to see if you need to increase the asprin / heprin.

I have not had the NKC test either. And if it wasn't for the fact that after so many miscarriages, I think this may well be my last pregnancy as I can't go through this again, I would have considered requesting the test or at least trying prednisolone treatment regardless at a subsequent pregnancy.

I can fully understand that seeing the red bleeding tonight has broken your heart, and that to go through another miscarriage with no answer or reason is so painful.

I want to apologise if my previous comments seemed insensitive. Sorry for not appearing to understanding how it is and for appearing to try to persuade you how it may be. I am just trying to cope with my own miscarriage and the realisation that I may never have another child is something that I am not really ready to face yet.

Sad, I am sorry that you are miscarrying again, all I can hope for you is that it passes quickly and physically is not too painful. I hope that you have all the support you need around you right now, with people who understand what you are going though.

LAF77 - I hope you get a successful pregnancy soon.

When I read "Deep down you know what is happening with your body. We all want to hope, but we can't ignore what is happening, no matter how much we wish it would stop and be a happy ending.", it made me sad, it is a dose of reality I am trying to avoid. I know I have lost this pregnancy (having been here 10 times before, I definitely should do!), but I was ignoring what was happening and able to just carry on til I read that, now I feel sad again. I still have to go through the horrible scan next monday to confirm it all. I wish I could have held some hope til then, as I will have to deal with the grief on monday no matter what. I was hoping to have the last few days, of my last pregnancy, with hope in my heart, but now I feel like hope is foolish, and reality as always is what I should be dealing with.

Sad