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Recurrent Buns - MC Testing and Beyond... Part 4...!!!

966 replies

Julezboo · 01/02/2011 13:12

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

OP posts:
iggi999 · 14/04/2011 21:27

LAF good luck for tomorrow, you won't get answers tomorrow (I assume) but you're on the road to finding a reason. And I now don't care how often I'm told "it's bad luck", everything has a cause and if it has a cause maybe there's something we can do to fix it.
Regarding my vits, I'm basically taking what I have heard others on here suggesting/told to take by consultants. My consultant agreed to the high dose folic acid (5mg) but I haven't got the prescription yet hence the 12 400ucg tabs!
I was told I could go to St.Mary's, but would have to pay (maybe it's an outside of England issue, as I'm in Scotland). Hey Hairylights, am on holiday in Wales at the month - we both love it and I think DH would move if not for small issue of knowing no Welsh!

hairylights · 14/04/2011 22:21

Good luck Laf

Thanks Lunatic I've PM'd her.

If I can't get an NHS referral, I'll probably go privately.

hairylights · 14/04/2011 22:21

What does high does folic acid help with?

digitalgirl · 14/04/2011 22:54

hairy are you already 43 because I remember reading this thread a few weeks ago.

Good luck tomorrow laf do report back on what happens. Would love to know if they've recently changed their views towards nk cells and steroid treatment.

Havingkittens · 14/04/2011 23:46

Just popping my head in quickly from hols in Devon. Not much time for a proper catch up or personals but just wanted to mention a couple of things;

Hairylights I know it's not exactly local but I'd heard they do NK Cell testing at the Liverpool women's hospital if that's any help. It's a bit closer than St Mary's.

LAF I'm confused about your information that they don't do RMC testing at ESH. That's where I'm seeing Dr Shehata on the NHS.

For those that are interested, and haven't read my earlier comments about my NHS referral. I was referred by my GP and my appointment was 3 months later. I then got a follow up telephone consultation last week, which was less than 4 weeks later which I think is pretty impressive. They seem to have a new system in place whereby they follow up the test results with a phonecall rather than getting people in, which saves time. If treatment is needed then his midwife calls, and if not then you get a call back from his secretary. I am not local to ESH so I can have my follow up scans etc when I get pregnant at my own local hospital under their instruction and they posted the prescription for the Prednisone and Progesterone to me and after that prescription runs out I just have to get my GP to issue a new one.

I get home tomorrow night and hopefully my prescription will be waiting for me which is great timing as I'm due to lay an egg over the following few days!

Will try to catch up properly when I'm back. It's been pretty busy round here! Great news from MummyAbroad.

MummyAbroad · 14/04/2011 23:56

scooterchaser re: literally taking notes (Grin) I asked for a copy of ALL my results and my doctors notes from my GP and kept them in a big ring binder which I took to all my appointments. I am actually just starting the third ring binder now (!) but it has been a really useful way for me to keep track, double check things on the internet afterwards and I always had my hands on information faster than the doctors could get it when needed.

LAF77 · 15/04/2011 07:23

kittens you are probably referring to Epsom and ST. Helier hospital whilst I am talking about East Surrey Hospital.

Thanks everyone for your wishes. I'll let you know how I get on.

hairylights · 15/04/2011 08:09

digi the Nhs won't do recurrent mc testing over 43 or St marys won't see you on Nhs over 43? I turned 43 on weds.

hairylights · 15/04/2011 08:11

The spire Cardiff does nk testing. What I'm after us Nhs referral ifni can get it. Does Liverpool do it on Nhs?

Wales does not have patient choice like England does . I think that's why we can't get referred.

luckyfor2 · 15/04/2011 09:13

LAF good luck on your appointment today, let us know how you got on.
Kittens and iggi hope you're having a lovely stress free holiday.
hairylights, kittens re. Liverpool Women's Hospital, Prof Quenby did her NK cells testing there originally before moving to Birmingham, she hasn't got any funding at the moment to follow on the trial but apparently is looking to start the trial again soon. Unfortunately the age limit for the trial is 39 but I do know a friend of mine who is over 40 went to see her on the NHS about NK cels and her opinion of her case. Prof Quenby only sees people on the NHS. I don't know whether Liverpool Women's Hospital still do NK cell testing or whether it was just when Quenby was there?

Know what everyone means about it been more relaxing when not pregnant I'm constantly poking boobs and willing any type of sickness on. Still not many symptoms Sad just thirsty, bloated and ocasionally dizzy oh and my tea tasts very milky/sour. Please let me feel sick!

iggi999 · 15/04/2011 09:47

Luckyfor2 sounds to me like symptoms, well done! Is Quenby going to try another NK cells trial? I love that my obs referred to the funding being "cut" as her trial was "discredited" - not that I know the full story of course.
Havingkittens can I ask you something - you mention getting the GP to give you a new steroid prescription when the private one runs out (which is great financially). What I'm wondering is, could GP refuse to do that? I mean if they didn't agree you needed it.

iggi999 · 15/04/2011 09:48

Luckyfor2 sounds to me like symptoms, well done! Is Quenby going to try another NK cells trial? I love that my obs referred to the funding being "cut" as her trial was "discredited" - not that I know the full story of course.
Havingkittens can I ask you something - you mention getting the GP to give you a new steroid prescription when the private one runs out (which is great financially). What I'm wondering is, could GP refuse to do that? I mean if they didn't agree you needed it.

luckyfor2 · 15/04/2011 10:28

iggi thank you, I guess I do have symptoms but don't feel like I normally do when I am pregnant which is why I'm v.worried but I guess I'd be worried whatever, think you always think the worse when the worse is what you're used to!

When I spoke to her midwife she said that they were hoping funding would be available again in the summer but she couldn't go into too much detail. It will be very intesting to see the results of the initial trial which should be available soon. I know the consultants at the LGI (Leeds Generl Infirmary) think very highly of Quenby and her research but I have found that all GP's/Consultants have such different ideas/attitudes to other consultants and especially specialised treatment.

hairylights · 15/04/2011 11:34

My GP has told me today that the NHS does not offer NK cells testing any more.

Had a long chat with her.

She is going to see if she can refer me to the RMC clinic in Heath Hospital Cardiff (but wasn't sure it existed outside of 'IVF Wales' which I'm too old to be referred to). I said to her that I am concerned that I am being seen by an Obs/Gynae consultant, not a miscarriage specialist and that I am confused about what the nhs will or won't do for me, with my age factored in.

Looks like I am going to have to bite the bullett and start spending my 'maternity leave' fund on private healthcare and testing, after having paid Tax and NI for twenty three years, and never needing anything from the NHS until my miscarriages. Meh.

mumatron · 15/04/2011 12:32

hairy the rmc runs seperately from ivf wales. it's Dr Bahl that runs the clinic i think. i'm not sure if she is a 'specialist' in mc. I've only met her once and tbh, found her a bit dismissive.

Dr Beattie is the only rmc specialist i know of in Cardiff but he no longer see's patients on the NHS for this. he only deals with foetal medicine at uhw. If you wanted to see him you would have to go to spire. I really cannot recommend him highly enough. He has a real interest in why women miscarry, especially recurrently. I think that makes a massive difference.

And afaik you can be seen in St Mary's. it was a very long time ago 15years+ but my mum was seen there for rmc. definately push for it.

scooterchaser · 15/04/2011 12:34

Thanks mummya for the tip, I am going to collect up all the notes I can, I will know to ask for my own copies now. Congrats to you and lucky on the pregnancies, I am totally rooting for all the pgs, may you be blessed with all the reassuring symptoms you need!

Just a quick thank you. I went armed with questions to EPU today,managed to get a sympathetic sonographer who was surprised by our knowledge and printed me out a list of the bloods I need. Lo and behold they tried to refer me back to my GP but we pushed and she said she'd see if she could speed things up by sorting a consultant appointment directly from the unit. Seemed to think this very unlikely tho...
She just called and has managed to get me a consultant, 27th May but it's a good start.
Goes to show, things don't come to those who wait but to those prepared to be persistent and take up their cause with a placard. This is alien to my personality but a good lesson so far!
Good luck with the referrals hairylights, looks like you have your GP on side. Keep up the pressure on the NHS, people within it can always cut more corners/override more rules and red tape than we think.

Lola78 · 15/04/2011 12:37

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Dr Shehata on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), awaiting follow up telephone consultation appointment.
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.7 - 4MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. MC4 8 weeks. All natural, except MC4 managed with ERPC for karyotyping purposes. Hormone levels fine, but taking Metformin for mild PCOS. Clotting tests all normal. DH & my karyotyping normal. Awaiting results from ERPC karyotyping, plus test results for NK Cells, anti-nuclear anti-bodies and anti-thyroid antibodes. Will be under Dr Shehata's treatment program if high nk cells are found. Waiting to TTC.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

hairylights · 15/04/2011 12:39

Thanks Mumatron

Yes, I have a great GP scooter I just feel a bit silly constantly going to see her - since my MC in january I've seen her four times, and I don't want her to think I'm a hypocondriac. The worry is driving me batty, and I feel so bloody stuck, and so confused about what tests I can get on nhs and what tests I can't.

I am having chromosome and blood clotting tetst, but the consultant has said there's no point in me having another scan, as my anatomy looks normal.

Lola78 · 15/04/2011 12:56

Thank you so much ladies for welcoming me to your thread, I have a good feeling about being amongst ladies who are going through or have been through the same situations as myself. It is a relief.
Scooterchaser We experienced a similar response from the hospital where I was admitted to after excessive bleeding during my last mc. I kept on at them about this being my 3rd mc in a row and that I was expecting to be referred for invesigation to which they replied that as I had a problem free pregnancy and birth with my DD that I am probably just having a run of 'bad luck' - yep that old chestnut - and to discuss further with my GP. Well I was having none of it and said that I have had the 'required' 3 consecutive mc and that I would not be fobbed off. When I was discharged from their care after the last HCG blood test showed levels were right down I was told that they had emailed the consultant at the fertility clinic. Anyway my GP (who is just brilliant) said she would send a letter for referral as well just in case that email didn't make it.

Well 3 days later I received a fertility questionnaire and some blood forms for some of the tests. We have to have all the tests completed before we send the fertility questionnaire and forms back and then we will get our first appointment to discuss results. DH is fretting already about doing the semen analysis but hey that's nothing compared to what us ladies have been through already. A small price to pay :)

scooterchaser · 15/04/2011 13:48

Hairylights please never feel like a hypochondriac, people like that fabricate symptoms and in our cases this could not be further from the truth. Your GP knows you have a legitimate reason for going to her regularly and are one of the most deserving patients under her care. Think of all those people she has wade through who are perfectly well but just turn up once a week for a 'chat'!!

Lola well done with the perseverance. Remind dH whether he'd prefer the giant wand like we have to deal with time and again, should keep him quiet! Can I ask are your bloods being done at your local GP surgery by a nurse, there seems so many to do, do you know if it's more than one appointment to take them all?

MummyAbroad · 15/04/2011 14:05

Lovely to see progress being made by so many!

Hairy would you consider paying privately for a scan to look for abnormalities? I am pretty unconvinced that one scan is "enough", so I can see why the NHS would say that.

Lola78 · 15/04/2011 14:56

Scooter The blood forms that were sent by the fertility clinic were just the chromosomal blood test for both DH (2 tubes of blood) and I and then lupus and thrombophilia blood test for me (7 tubes of blood - ouch!! - I had these done at the hospital. The hormonal blood tests are to be done at my doctor's surgery and some must be done days 2-6 of cycle and then progesterone test at day 21 of cycle.

I have been told to wait another week and if I still have no period (still waiting for first one to arrive) then to just have them done any way. The hormonal tests can easily be done again. It's the chromosome (genetics) blood test results that take a while to come back. Still we have to wait till 11th may till DH can have his sample tested - very busy apparently.

All a waiting game - but then us ladies are used to that I guess xx

hairylights · 15/04/2011 15:02

Mummya yes I would. In fact I have. After my first MC (suspected ectopic) the NHS wouldn't give me an HSG so I paid for a Hycosy and was scanned - the consultant (fertility specialist) said I look perfectly normal although there was no movement in one tube at that time.

He said he had a good look around.

I've had about six or seven other scans since (due to MCs) and they've had a 'good look' - but I hear stories of people who have had scan after scan, only to be told later they have some form of physical problem.

I was on the list for laparoscopy but they won't do it now as I have been pregnant twice since. I am so worried that there could be a physical issue in there :(

It just feels like a total minefield. I want every test and scan available, and I want every medication that could possibly help! Does that make me unreasonable?

yes scooter I see what you mean. Today I went to see her about felling depressed and anxious. I spent the entire evening sobbing uncontrollably - I mean really sobbing and wailing, like I have never sobbed and wailed in my life. But the thing is, it's natural grief, not depression. :( My whole life feels like it's on hold. I've stayed home from work today because I can't face people.

Lola78 · 15/04/2011 15:59

Hairylights Going to see your GP is a really good thing. I know that seeing my GP (so many times now I have lost count) has helped me so much as it was and is the only place I feel like I can let all my hurt out. I have often cried my eyes out while there because I have let the tears all build up because I don't want my DD to see me upset. And my GP has been just great, giving me things to do to make me feel better - like going for a good walk or some form of exercise - which at first I really didn't fancy doing but it helped me to feel so much better. Like you say it is not depression, it is grief.

There are so many emotions involved for us ladies who have experienced miscarriage - grief, sadness, anxiety, fear, excitement for those few seconds at a new bfp before the dread and panic sets in, hope, jealousy at others who get pregnant and have their babies with no problems, frustration - anyone wish to add to this list :-)

But we can go through all these emotions as well as all the physical stresses and still have the determination (oh there's another one!) to keep going. We are extremely strong women who will all one day in the future take home the baby we so want and have worked so hard for. Xx

scooterchaser · 15/04/2011 18:15

Feel for you hairyLights some days feel just plain bleak and you are right to take time out. I teach, so have a couple of weeks now but my first day back at school will be my first 'due date'. Noone seems to understand why I want someone else to cover that day!. Go easy on yourself, you need to grieve. Take heart that after the worst days, a good day or even just a feeling positive hour or moment is often around the corner. Hug for you.

lola absolute ditto, lots of nodding heads I expect...

Just home from my GP who has left me an absolute headcase about referrals. She is prepared to try and refer to St Mary's or Shehata but it is quite likely St Mary's will reject the referral from her and take longer. If I wait for consultant referral there, still no guarantees and I have already lost a lot of precious time when I could have been on waiting lists... any advice? I need to tell her on Monday.

Feeling down cos it was such a cold, practical appointment, no time for mentioning how I feel about all this or that I've had permanent headaches since the last mc....does anyone else find this when doctors are running behind schedule? My advice is to always get the first GP appointment of the day if you can. Never 5pm anyway!

LAF how did it go for you today?