Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

frazzled no passive suggestions sorry. they would get a simple 'get fucked' from me. i'm sur finn will catch up in no time at all. my cousin had 3 dc all born between 30-35 weeks all three are just under normal height/weight ranges.

Hello everyone! I have some theory on NK cells from a friend of mine in final year at med school. Apparently the best way to ensure that your body does not attack your fetus and treat it as a virus is to get your body used to your partners DNA and apparently the best way is to swallow his love juice (apologies probably TMI)! She reckons that there has been research into this and swallowers are less likely to miscarry! Told DP needless to say he was chuffed! Has anyone ever heard this? I thought she was kidding but apparently not!

Digi great news about the treatment seems like you are making progress.

Glittery - so sorry you are having such a hard time of it x
My fertility department referred me on and despite having spoken to someone at this EPU place I have still not received an appointment or any paperwork, at this rate I will get my appointment at the fertility clinic first and that isnt due until the end of May. I have 3 months supply of CLomid but don't think I can hack taking that again at the mo as it makes me so miserable and I actually feel pretty hormonally balanced at the moment. Got second af today so everything is back to normal, 27 day cycle back on track. Just not sure whether to start TTC again or not scary stuff, maybe I should take my friends advice first?!!!

Hmmm, confused, I don't think I will let my OH read your latest revelation and will hold out for the steroids instead! I'm no prude, but I just can't do that particular thing without wanting to throw up!

Glittery, sorry to hear about the bleeding. Are you taking asprin? Sometimes that can cause bleeding I think. I hope things have settled down and you are feeling calmer.

It's shitty for us that we have to always assume the worst after all our experiences and that the BFP doesn't have that magical feeling of excitement and planning as it does for most. Every time I get pregnant my grandma keeps using the term "expecting a baby". I always have to remind her that I am just pregnant, but "hoping for a baby". She won't have any of that, she is a retired psychotherapist and thinks that remaining optimistic and having a positive attitude may make a difference to the outcome. Bless her, I wish I could believe that.

Is it just me, when I read those threads that people start about whether they should take a promotion or new job that they really want knowing they have just found out they are pregnant, I feel like saying "Just take it. You don't know that the pregnancy will work out and then you'll be doubly miserable if you miss out on both." But then I realise that even though that would be sensible practical advice I would be robbing them of their own innocence that I am sad to have lost myself.

Anyway, not much going on here. Just waiting for them to get back to me with an appointment for my telephone consultation.

Wishing the best of luck to Mattsmama for your scan tomorrow.

mattsmama just a quick msg to let you know I'm thinking about you and sending all positive thoughts. More later. X

Oh, Mattsmama I meant today. Whoops! When I posted that I thought today was Tuesday... d'oh!

Hello ladies - just to say a big thank you for your well wishes and to let you know that the scan was great! Measuring well for dates and good strong heartbeat. Can't tell you how nervous I was and then the feeling of relief.

Thanks again xx

Havingkittens I am the same so maybe there is some truth in it?!

Congratulations on the scan Mattsmama, great news :)

Confu3ed - hope you've had your daily pregnacare and semen drink, then!
Just watching Grey's Anatomy - doc with early pregnancy and bleeding told she will be fine. Yes of course she will be. On the other hand, main character had an instant miscarriage in the middle of surgery once. Not sure why I'm expecting it to be life-like!

Great news mattsmama!

Congratulations mattsmama That relief is the best feeling ever isn't it :)

mattsmama that's great news!

Yay for mattsmama's scan news!

Sorry I have been so quiet for so long. Computer at home has died and I never get any time at work to write. Coupled with feeling pretty low the last month.

Have got all my bloods back and chromosome karotyping for both me and my husband. Absolutely nothing wrong so absolutely no treatment - and I can see the point because what can they treat? Happily though I am now in a RMC programme at Guys & St Thomas's where I think I will get moral support (though I don't see them until June...).

I am going to take progesterone when I next get pregnant though (as per my post in the progesterone testing thread).

I pushed the consultant to speculate on what's next if i m/c again (the last two in the last six months where chormosome abnormalities in the fetus (the previous two I have no idea)). And he said "donor eggs" or preimplantation genetic screening. That kind of blew me away. I think I saw someone else was thinking of IVF as a long shot last option?

I am absolutely genuinely delighted for everyone on this board who is pregnant or who has a new baby, but can someone please refer me to tips for how to cope with friends announcing 2nd, 3rd or even 4th effortlessly conceived healthy babies? I am now at the stage when people are starting to assume that we only want one child and making comments to that effect...I am really not coping well at the moment. I think disengaging from Facebook might be a start but I appreciate that I cannot withdraw from society completely (as I have been doing!).

Hi pureequeen great that your results came back clear but like me you are then left thinking what now! I am also going to take Progesterone and Aspirin next time but kinda feel like whats the point. With regard to FB and seeing people I don't have much advice. I took myself off FB last September, it sounds selfish but just seeing someone else parading their baby makes my mind go crazy and puts me way back. I have also withdrawn from society ALOT, still trying to do things with the children I have but seeing people I know showing off their bumps like they have no worries makes me feel disgustingly jealous, I just avoid it as much as possible. I think at this time you should do what is right for you if been on FB is upsetting and makes you feel worse just turn it off until you're in a better place, same with seeing people, just do what you need to do and don't put any more pressure on yourself than you have to. I don't think anyone realises how bad it makes you feel unless it has happenned to them.

Mattsmama Fab news about your scan.

Confu3ed have thought seriously about your suggestion but I've been advised that my problem cannot be NK cells so hopefully I'm off the hook !

What makes you both decide to take progesterone? Have you had this tested? I just wonder as I'm sure I haven't had that tested but my GP (who is very good) could maybe do that if I asked him. Shall go find the thread to which you refer.

purequeen not surprised you were blown away with the IVF suggestion. But if you have both had your chromosonal analysis come back OK then hopefully it will never come to that. I second what luckyfor2 says about taking yourself off facebook if it is upsetting. As to withdrawing from society, no you can't and it sucks (and must be worse when you're a parent already so parent friends are having subsequent children). All you can do is reduce the exposure - avoid situations where people can pry etc. It does really hurt when people are so smug about their pregnancies in your face.

Hi quick question for glittery if you are about lurking :) or anyone else that may be able to help :)

Did you use a doppler when you were about my stage? I think I vaguely recollect you mentioning it but can't remember if you did or not? If you did, explain this to me simply. I am going mad today, convinced I am not even pregnant. I am in limbo between scans, obv can't feel kicks yet so how do I know things are ok in there? Are they reliable or do they make you panic more? Have started a thread in pregnancy also just in case you don't see this.

How are you aswell? Spotting slowed down? Really hope it has, worrying is not a nice place to be. I'm sure she is growing nicely in there. :)

Coconuts never had a doppler but if you're feeling anxious and can afford a scan it wouldn't do any harm having extra ones here and then just to put your mind at rest.

Claire my consultant didn't think I needed progesterone as my mc apart from the second natural mc have always made me feel very sick and up to 12-16 weeks. When I went to see Prof Quenby re NK cells she just mentioned that I could go on the trial if I wanted to try it, it doesn't cause any problems and who knows it might just help (nobody knows whether it helps or not which is why they're doing the trial). I think its used more in early losses ie.not having enough hormones to carry the pregnancy before the placenta is established.

I wouldn't know where to begin to arrange private scans. Do you go to your GP? And generally how much are they?

Sorry Coconuts I just assumed you would know where to go. I'm sure if you spoke to your midwife there will be a screening centre near you. I went for a private scan when I had a downs test and I know that you can have a normal scan anytime, you can normally get in very quickly privately too ie. same day/next day. Not sure of cost for a standard scan as I had downs testig which was £100. Your midwife will know where to go. I guess you could ask your GP but not sure what they would do, but you could ask for nothing.

After a speedy google, the nearest one to me that does private scans is a two hour train ride away as I expected. I am from a tiny market town and have to travel an hour just to my local hospital. On the plus side a gender scan at 16 weeks is only £50 ish. Quite reasonable I thought.

Yeah, I thought a general scan was about £40 but didn't want to say in case I was wrong. Its a long way to go though but probably worth it to put your mind at rest. It might still be worth ringing your midwife in case there is something nearer? Let us know what you decide.

Mattsmama I missed your news - I'm really pleased for you, that's great
Pureequeen I completely get the fb/announcements stuff. I know someone (who is lovely) posting on fb to say basically "I'm off to my scan today" before coming back on to report the good news. I will never be in a position to post that, there will never be a scan I can go into without assuming the worst and picturing that look on their face when they have to tell you your baby's dead . To our faces people would have more compassion, fb is just so generic. Defriend if you need to!

Yeah thanks lucky I will. I'll probably just get the doppler as I know I am being psychotic. There are no reasons for my worrying. I look visibly pregnant and am still sick as a dog, I think I am just in those limbo stages of waiting. I renowned for my impatience! But still £40 - £50 is really reasonable and I would have thought it was so much more than that.

iggi and pure FB is the mother of all evil when it comes to people and their pregnancies. I cannot stand it when people make the generic announcements and put up their scan pictures. Insensitive and boring. I have a fair few friends on there that are pregnant or have recently given birth and I hide them on my news feed so I don't have to read the drivel. Oh and those stupid 'your pregnancy at 16week' info app things they have. Defriend or hide it :)

HI everyone thanks so much for your well wishes. I've a long way to go yet - so still very edgy but that scan obviously really helped A LOT! Iggi feel the same as you - don't think I will ever go to a scan and not be half terrified of the results.

Pure wish I could offer some words of wisdom about people announcing their pregnancies and making their assumptions about your personal life. I've had the same crap for the past couple of years and it really depended on what mood I was in at any particular time. It's just so hard - I know. What I tended to do quite a bit was reverse the question. ie don't you want any more children then are you happy with just one? (yes I was asked this by some dimwit). My reply - how many are you planning on - then walking away disinterested halfway through their response and focusing on something/someone else. Maybe I was ignorant or rude but not as ignorant or rude as them for asking. Also trying to avoid these plonkers in the first place helps a lot but not always easy.

Facebook is brilliant - you can get rid at the push of a button - SIMPLES! [WINK]

mattsmama, belated congrats from me too. really glad for you.

Puree, I wish I'd had the guts to tell people the truth - that we'd love another child but I'd had mcs so we didn't know if it was going to be possible. It certainly made people blink when they 'commiserated' with me after my 20 week scan, which confirmed a second DS, so I reckon it would have worked and possibly stopped them saying anything so farking insensitive ever again. Worth considering?

Coconuts, yy have another scan. You've been through so much, why tough it out? You deserve some peace of mind.

Hi to everyone else.

I have taken the plunge and ordered a doppler managed to get a BNIB off ebay for £8.50. Ha! I'm sure the seller was not impressed with that price Either way it'll be here in a few days. If it reassures me enough then I will just keep to that, if not then I will ask my MW about another scan. Hope this doppler I've got isn't rubbish and actually works.