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Recurrent Buns - MC Testing and Beyond... Part 4...!!!

966 replies

Julezboo · 01/02/2011 13:12

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

OP posts:
Ladybee · 01/03/2011 15:34

hi all,

Had a reasonably good appt on Monday, Dr Cochrane is very sympathetic as well as being very efficient and friendly. She went through all the arrangements for the ERPC which she'll be doing for me tomorrow evening, and then talked through my history and treatment.
She was of the opinion that the treatment I'd been given was the right one for the things we'd found at my testing, with the question of whether I should have been at the higher dose of clexane remaining. She said she wasn't sure about progesterone but as it was unlikely to do harm, she would agree with that as a possibility. But was more dubious about the steroids and nk cells theory. None of which was very surprising.
She also said that there was no guarantee that this MC had been caused by any of my risk factors and could still have been down to a genetic issue in the embryo, but unfortunately because of the time since it stopped growing til now, she thought the lab would be unable to do any testing on it so didn't recommend that.

I'm just getting through the days, trying to get a few bits of organisation done and lots of reading. ERPC will be tomorrow and I expect that will be a rough day. Still finding it hard to accept that it didn't work out for me on the treatment, had a lovely email from a friend telling me all about her sister who had three, found to have factor V, had to inject herself, now has a daughter, and all I could think was "That was supposed to be me, why didn't it work for me?"

lovelybunch so sorry to hear you have hyperemesis, Julez had it too - wow, you would have thought after all the recurrent buns go through, they might be spared that? Good luck for Thursday.

milkyway my immediate reaction this time around was to take a break, but I can already feel myself leaning into the need to try to get pregnant again. Think I will stick to having a break through, this is such a hard road to go down, I think a little detour to a 'safe' place might be just what I need.

LunaticFringe · 01/03/2011 17:27

This reply has been deleted

Message withdrawn at poster's request.

milkyway2007 · 01/03/2011 17:45

Came back from the hospital with another hole in my arm, actually right on top of last week's hole :( They are going to do some more tests - stupid me didn't make a note, but they're antibody tests of some sort. I think antiphospholipid ones.

We talked about getting pregnant again, and she told me to try as soon as I feel psychologically better, and that there's no need to wait. It seems we always plan a baby around our life, but I think things are getting desperate for me now, so will discuss trying again with DH tonight.

She prescribed me 75mg aspirin and told me to start taking it from my BFP - so naturally bought it from Boots instead - wasn't going to pay £7.20 for aspirin, when I can buy it for £1.62! So we decided that I will try one more time with aspirin, and if I miscarry again, then be referred to St Mary's. She also said if I do get a positive in any of the antibody tests, then she may add heparin to the daily aspirin. Also discussed progesterone, but she said she wouldn't recommend it for me, as my mc's have been so early, and they normally recommend it to women who mc later in pregnancy...don't really know about that. So really, there is nothing stopping me from TTC again.

My thyroid blood tests all came back normal, and they didn't do a prolactin! Which is annoying, and they didn't do Vitamin D either! So they're both being tested today aswell.

coconuts I am sure there are hypnotherapists out there who can help pregnant women who have had miscarriages cope better; but like mummyabroad said, you could try counselling, acupuncture or cognitive hypnotherapy to cope with anxiety.

ladybee After my third mc, I gave myself 4 months to get myself together and heal - I just feel desperate after this one. I am having high hopes set on this aspirin treatment. Just need to talk DH around.

brokenbarrenbrook · 01/03/2011 17:52

Hello all,

Apologies for my prolonged absence, been a bit distracted with the anticipation of upcoming results. Had the appointment at St Mary's today and saw Raj Rai who was lovely, very eccentric and amusing but very knowledgeable all the same. Essentially all the tests they've done have come back clear and there's nothing wrong! I'm glad, but I'm not if you see what I mean?! Anyway, I've got to go in for hsg next Tues and then back to see Raj again the following Tues for the results and a plan.

If I'm honest I'm a bit deflated, I don't know why, I think I was expecting a solution but as yet there isn't one. I know that's a good thing that there's nothing wrong so I'm a little bemused by me feeling deflated.

I'm now thinking, if the hsg doesn't show anything, that I need to get tested for NK cells as I can't see how 4 mc, all around 6 weeks can be just shitty luck.

bee glad you had a good appointment hun. Hope you're doing ok x

Hope everyone's doing ok today, sorry for not name checking, bit confuddled at the mo.

Big hugs and waves to all. Promise I'll try and catch up in morning x

hairylights · 01/03/2011 18:07

Hi - sorry I haven't been around but haven't felt like I have much to contribute.

Hope you are all well - I'm starting to feel better and am now on a mission to get my BMI below 25 (it's currently 27) and taking a break from TTC until tests are done.

I did see my GP today and they won't do AMH or LH/FSH tests on the NHS Confused. I realise I'm not technically 'infertile' but I am old, and I have kept on miscarrying.

Anyhow, I have now booked a private AMH test and the GP is happy to interpret it for me. BarrenB the lady I spoke to today (at the private hospital) said that if I don't get any answers from the chromosome and clotting tests, NK cell testing will be an option, and it's £400 at the local place to me.

I'm adding info into my stats.

hairylights · 01/03/2011 18:12

STARTING TESTING

HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.

TTC

BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

PREGNANT

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Iggi2011 · 01/03/2011 20:20

Hello. Just thinking how much it helps me to have your stories (happy and sad) to read on here. (Thanks Smile )
I am still waiting (4 weeks now) for any results from my NHS tests. This month's ttc hasn't worked, trying to psyche myself up for yet another shot. Wish I had a plan of action.

LAF77 · 01/03/2011 21:32

iggi and brook I am with you all the way on the lack of clarity around the reason for the miscarriages. I can't believe in your case brook that 4 mc at 6 weeks have no identifiable cause.

hello hairy nice to see you again. I empathise with you as well and relate on the postponement of TTC until you have more information on possible causes.

I'm ovulating at present, but it will be another cycle come and gone without any hope of a baby. It is always at the forefront or back of my mind. When will I get pregnant again? Will they find anything wrong with me that will help me to carry to term? What happens if they don't find anything?

Hopefully, my appointment letter with the magical date at St Mary's will come at the end of the week or by early next week.

Ladybee · 01/03/2011 22:17

oof bbb I can completely understand the ambivalent feelings about tests coming back clear. I'll compare notes with you about the NK cells testing if it comes to that.
Where would you go? I'm waiting until after tomorrow to think about it any more detail.

milkyway sounds like your consultant is going through the right stuff

hairy will you wait to get the results of your AMH back before deciding about NK cells?

lunatic your comment re age was so well-timed for me tonight. Just had a huge howl at DH about seeing the year stretch out in front of me, now with no happy birth to look forward to, just another birthday and another Christmas without the baby I so desperately want to join our family. The idea of the break is now panicking me, but in my more rational moments I think this is possibly the hormone crash - that there is a good chance I will at least be pregnant again by those milestones and if I'm not, well, that's just life.

Shitty life, right now. But life.
Off to bed now, crying is tiring.

confu3ed · 01/03/2011 22:23

Hello everyone been a while, contemplating my future and whether to start ttc ever again, totally gone off the idea as I just cannot see me being able to carry a baby past 8 weeks at the mo.

Scary test results today, doc checked for all sorts and everything came back normal except the pregnancy test which I am assuming is the hcg? Basically it gave a positive result when I asked why she said either you are pregnant or I don't know, she repeated tge bloods and if the levels go up I am pg and if not, and I am sure that they won't I reckon I may once more have retained products. Praying that this is not tge case as I just cannot have another erpc and take another week off work :(
Has anyone had any experience of this? My erpc was towards tge end of jan and I miscarried a couple of weeks before that so should I still be testing positive or not?

Sorry all me me me just worried and terrified of history repeating itself and having to have yet another op!

milkyway2007 · 01/03/2011 22:58

Hi confu3ed, did your doctor give you a figure for the hcg test? Like today my doctor told me that the normal for around 3 weeks after a mc (actual bleeding or ERPC) is 4, and mine was 8 last week. I had my medical miscarriage at the start of Feb. Then she went on to say that it can take upto 6 weeks to go back down so it may just be that? Maybe you could phone the doctor in the morning and ask the exact figure? If it is really high, then there might be retained products, or you could be pregnant again. Hope history doesn't repeat itself for you.

hairylights · 01/03/2011 23:19

ladybee I habent decided yet whether or not to do the nk cells test. Will wait and see what the other tests show before
deciding.

hairylights · 01/03/2011 23:21

Confus3d. What's important about hcg is that it should double every 48 hours(ish) to be a viable pregnancy. Good luck. There really is no "normal" as it varies vastly from person to person.

confu3ed · 02/03/2011 07:26

Thank you milky! I think that she said it was 38 and that it should be below 3, 5 weeks post erpc. Still sounds low to me so I guess it could be that it's taking a while to get back to normal. I think after my last erpc it was 9 or 10 weeks before af.

Thanks hairy I guess that is why tge test is being repeated I get results on Friday. She did say that whatever the results she will refer me back to the hospital.

Back playing the waiting game :(

ClaireDeLoon · 02/03/2011 10:49

I got my follow up appointment today for RMC. 12 July when doctor said she would see me mid to late April. 13 months after my last mc, 13 months of ttc wasted thanks to my local hospital taking 7 months to refer me and this second appointment being 3 months after I should be seen.

And in my private life I have someone bragging non-stop about her bump, what they're going to do before the baby arrives, what they're going to do after the baby arrives. In walking away from her I've had to walk away from a whole group of friends :( but I just can't take it.

hairylights · 02/03/2011 11:28

Claire that stinks. Can you kick up a fuss to get the appointment brought forward?

I must admit to struggling for the first time around a pregnant woman yesterday :( I've been fine up to now, it was just a shock to see someone I know (and didn't know was pregnant) at a meeting yesterday.

ClaireDeLoon · 02/03/2011 11:41

hairy I am trying to speak to someone called Rosa but she is either on the other line, busy and can't take my call or on her break.

for you.

I just find it so hard, we've been trying for our first for 3 years 5 months now and it's not the fact that for some it's just so easy, it's the fact they're so smug about it being so easy. Another friend in the same group is also pregnant but she's much more sensitive.

MummyAbroad · 02/03/2011 13:16

Hi confused If it helps to have some numbers for comparison my HCG was 250 when I had retained products last July (I had an ERPC). Just recently after getting my BFP I had my HCG done and it was 59.1 at 13DPO and 117 at 15DPO. I think when you get your numbers it will be immediately obvious what its going on, if it looks like pregnancy numbers though there is a good HCG calcuator here, with more info about HCG. Obviously I am not a doctor but I would have thought that if this is retained products, it would be very small amount that could be managed medically or may just come away with your next period. I very much hope its a new pregnancy Smile

Hairy good to "see" you again. I'm Shock that the GP wont do basic bloods - I thought 3 mc's entitled you to that? Going private should get you answers much quicker though, so perhaps that is a good thing. If you havent seen this before, have a look when you get your results. I found it a useful starting point.

Clare oh no!Sadthats a really long wait! I second Hairy's suggestion that you try and hassle them a bit more. Do they have such a thing as a cancellation waiting list?

BB just repeating what I said on the other thread... sorry you didnt get the answers you expected. It IS a step forward though, just being able to discount things means they can start narrowing the search and that means you are a bit closer to your goal. Even if the HSG doesnt show anything, you will at least benefit from the "jetwash" affect and get shiney new tubes afterwards. I am pretty convinced that helped me get pregnant so quickly

LadyB thinking of you, hope the ERPC went OK.

LAF Waiting for appointments really is the worst bit of the whole process, it really is the ultimate test of your patience. I spent 8 months waiting for my diagnosis and it was so much worse than everything that came afterwards. I hope that appointment date is very soon!

Iggi sorry that AF got you this month.

I have nothing much to report - just lots of anxiety, doing my best to try and ignore it, but its a hurculean effort.

pureequeen · 02/03/2011 13:32

Hi ladies

May I join you? I have just returned from my first appointment at St Thomas' RMC.

Age 33, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009 - now 2 years old (took low dose aspirin for that pregnancy - self prescribed!) MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc and had ERPCs. I have also just had the chromosome test back on MC4 placenta and she had a genetic abnormality. Also have endo and a septate uterus.

Have to wait another 6 weeks now until I get the test results back, any advice re what to say at my appointment with the consultant would be much appreciated!

Very interested in NK cells and progesterone supplemnts - what is the latest? My GP is pretty scathing about both.

Currently taking a break from TTC at least until we get the karotyping back as with the last test there is a 10% chance that me or my husband have a genetic abnormality which we are passing on and is causing the miscarriages.

I am sorry for everyones losses but also thrilled to see there are some pregnant ladies here.

MummyAbroad · 02/03/2011 13:48

Hi PurreeQueen Welcome to the thread. I'll add you to the list in a bit. Sorry I am not much help on the type of questions to ask, I think its different for everyone. However if you have any reason to suspect you have Ashermans Syndrome (light periods?) then I have a very detailed question list for you. Do make sure you write your questions down and read out or hand over the list in the appointment so nothing gets forgotten. I think Digital Girl posted her question list on here once, I will try and find it for you. If you scroll back a bit there was a lot of NK cells discssion. Look for the names "PinkFondantFancy" and "PrettyVacant" and you should find a lot of stuff about that. xx

MummyAbroad · 02/03/2011 13:50

STARTING TESTING

HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.
PUREEQUEEN Age 33, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009 - now 2 years old (took low dose aspirin for that pregnancy - self prescribed!) MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc and had ERPCs. I have also just had the chromosome test back on MC4 placenta and she had a genetic abnormality. Also have endo and a septate uterus.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.

TTC

BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

PREGNANT

MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

MummyAbroad · 02/03/2011 13:52

PureeQueen There is info about NK cells on page 12 of this thread.

ClaireDeLoon · 02/03/2011 14:08

Welcome purequeen sorry for your losses and hope the genetic tests for you and Dh come back clear.

Finally got to speak to Rosa and she wasn't actually the person I need to speak to but was very helpful and has emailed the manager to request my appointment be brought forward. My hysteroscopy is 5 April so allowing for getting the results back from any tissue tests they do as part of that she said they should see me from end of April onwards which is what the doctor said. Blood test results will be back way before then as the genetic testing which takes longest already done.

pureequeen · 02/03/2011 14:14

Thanks so much for the warm welcome and info, need to duck offline now as am at work and things are going manic.

MummyAbroad · 02/03/2011 15:07

Hi all,

I know this is a bit off topic at the moment but I wanted to share it as it has come up so often in the past. I was just asking on an Ashermans site if anyone had taken low dose aspirin for this problem specifically (not clotting issues) or was prescribed it "just in case". I heard back from a lady who was told not to take aspirin by Raj Raj because of a new April 2010 study which showed that at best, aspirin does not work, and at worst it raises miscarriage rates by 60%!

I am trying to find all of the study but so far have only found this

www.webmd.com/infertility-and-reproduction/news/20100428/study-blood-thinners-dont-prevent-miscarriage

which shows that aspirin and aspirin and heparin combo dont necessarily protect against miscarriage. Please note in this study the women did not test positive for blood clotting issues.

I thought you all might be interested as it seems that this is fairly new info that is taking its time to be fed through the medical establishment.