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Miscarriage/pregnancy loss

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Recurrent Buns - Miscarriage Testing and Beyond! Part three..!

953 replies

Julezboo · 23/11/2010 12:52

Not so imaginative as lunatic !

Part One HERE

Part Two HERE

There are a mixture of Pg ladies, new BFP's (YAY) and new ladies who have sadly had to join us and are going through testing. Lots of OMW's and hand holding here!

Sit down, grab a cushion and a hot choc and get comfortable.

OP posts:
milkyway2007 · 27/01/2011 20:04

Thank You lunatic!! My cycle is also very regular and normal flow for about 5-7 days. I have also heard that the blood clotting may not sometimes show up in the tests - does this hold any truth?

Also, do uterine lesions for asherman's show up in a normal transvaginal scan? or do you need special tests for that? I am worried about getting another ERPC as it will be my second within a year - scared about it doing more harm.

LunaticFringe · 27/01/2011 20:18

This reply has been deleted

Message withdrawn at poster's request.

LunaticFringe · 27/01/2011 20:23

This reply has been deleted

Message withdrawn at poster's request.

Ladybee · 27/01/2011 21:33

milkyway2007 - I had DS without problems (although did have an early MC before him), also had a c-section delivery and no problems with clotting post surgery etc. My consultant said exactly the same thing before I had the tests: "you've had a healthy child, so that's a good indication that we probably won't find anything, it's probably just the PCOS and bad luck". Well that may well be the case, but turns out there is another element too.

Ladybee · 27/01/2011 21:37

coconuts - "tired, achy, crampy, nauseous and a splitting headache" hooray!! Grin

MummyAbroad · 27/01/2011 21:37

hi milky

5-7 days flow is really good. AS sufferers typically have no periods or 1-2 days of spotting/very light flow, so that is good news.

Its true that you can get AS from ERPC's but it is much more common when done after having given birth because the uterus is all stretched and sensitive. I have seen HUNDREDS of women on MN get over ERPC's after mc just fine. (Makes me very Envy)

If you are really worried, you can ask for the procedure to be done under ultrasound guidance so that the surgeon can "see" what they are scraping/suctioning. Its a sad fact that ERPC is the only surgery on the human body that is done "blind"Confused

I would also encourage you to ask for a course of antibiotics starting one day before the procedure. This reduces the risk of interuterine infection (another cause of AS and blocked fallopian tubes). Not all doctors routinely prescribe this, but they should because its an easy way to eliminate risk.

Unfortunately you cant see scar tissue on an ultrasound. The uterus needs to be filled with liquid so that it can be seen in a 3D state. There are several tests that do this, the least invasive is sonohysterogram (sHG) where they put saline solution via a catheter in your uterus and take 3D ultrasound pics. HOWEVER with all these tests you need to send the pics for review by an AS expert as someone who has not seen scar tissue before (and as it is rare, so that is most gynecologists) will not spot it. I get all my tests done locally and then email/post results for scrutiny elsewhere.

I dont blame you being scared, its a horrible thing to go through. If the ERPC feels right for you and helps you get through this tough time quicker, then that is the right choice. Remember that there are risks involved with natural and medical management too. Hope it all goes well, will be thinking of you xxx

lovemysleep · 28/01/2011 09:23

Hi ladies - just thought I'd pick up this thread....think I may need some support and advice.

I'm currently undergoing treatment with Dr.Shehata for very high natural killer cells.Have just started my ttc, with my first course of steroids.Am now symptom spotting like bloody crazy, and it's driving me nuts!!! My period is due on Wed, so about 5 days away, and I have started spotting today - I'm desperately hoping that this is implantation bleeding, as I had some twinges in the past few days, but it could just be that my period has decided to come very, unsually early.

Have any of you ladies experienced disruptions in your cycles when on prenisolone? It's just weird for me to be getting spotting this early - day 23 - as I'm pretty regular really.

My background is 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHs came back clear.

Have been referred to St.Marys, and sods law, my appointment came through just as I'd started the steroids and was ttc. Have left lots of messages to cancel appointment and see about re-arranging, but it appears that they are bloody useless at returning calls/answering the phone.I don't think that I can go and see them anyway - as I understand, they don't believe in NK cells anyway. Also, they don't want you to be trying to get pg when you are seeing them. I've now committed to Dr.S treatment, so I'm gonna have to stick with that.

My gut instinct is that it is NK cells for me - I have asthma, allergies and psoriasis, so my immune system is a feisty bugger, which I guess fits in with NK cell theory.

Any words of wisdom to help me stay relatively sane throughout this process? This time last year I was never going to have another child - I'd given up hope - and life was a little less complicated.....There's no fighting that broodiness when it kicks in though, is there? That's what happened with my 4th mc - only had sex on day 5 of my cycle, wasn't trying to get pg, and lo and behold, get up the duff.

I'm hoping it's going to be easy to get pg, but I'm 39 now and it may be a little trickier.

Good luck to everyone else.....keeping my fingers crossed for all of you.

luckyfor2 · 28/01/2011 10:55

I've added myself on the list. I hope this is right...

STARTING TESTING
LAF77, Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.

UNDERGOING TREATMENT
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC
MUMMYABROAD Age 35, 1DS, 1MMC (14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus, currently TTC
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.

PREGNANT
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, currently 32+1
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

LAF77 · 28/01/2011 10:56

I don't think that I can possibly keep up with everything that is going on here!

congratulations to coconuts on the pg. It will be one day at a time to get through the next nail biting 9 months.

Glad to hear that finn is home now frazzled

Pleased that you had a good letter from the specialist mummy and you can go forward with confidence.

Good news on the scans glittery and lady

milky mrsmcq I don't understand the hormone issues comments because I thought that hormone problems meant that you struggle to conceive. Lesley Regan says in her book that no amount of progesterone is going to save a doomed pregnancy.

I'm not an expert, but I would have thought that if you had clotting problems, it prevents the placenta from growing properly and therefore may affect the pregnancy hormone development. I too have never had any pregnancy symptoms in my three other than swelling boobs. It caused me no end of worry and of course, they didn't end happily.

An update from me before I am offline for 2 weeks, I spoke to St Mary's this morning, thanks to help from Lunatic , and I have been advised that because I am out of the catchment area, I will have to get a referral from a hospital consultant which is what others have told me all along. I have an appointment with a consultant on 15th Feb at ESH to review the karotyping from 3rd mc and will pull out all of the stops to ensure that they write the referral without any delay or rubbish about further tests because I have no faith in anything that they would test for at all. My GP has already done bloods on me a few months ago and nothing obvious came up.

So, best case scenario would have me at STM at the end of March, beginning of April. Which leads me to the conclusion that I won't be able to try again until mid-June at the earliest.

I'm in a lonely place here on the sidelines. I have to accept that I can't try again for at least 6 months, I don't know what is wrong with me and I don't know if I will ever have a baby. I feel like I am trapped in a nightmare. I thought that by the time my birthday rolled around this year, I'd have a baby or be close to having one. I am not trying again until someone tries to find out what is wrong with me. I could not cope with another pregnancy loss in my immediate future. I'd be a basket case.

Life is going on, but there isn't much joy inside.

luckyfor2 · 28/01/2011 11:31

LAFF I just wanted you to know that I know your sorrow and frustration. Have you had all the tests done already on the NHS? What is their prognosis. I'm sick of being told that it could just be luck but on the other hand I keep wishing that it is luck and if I try again I might be lucky this time. We're awaiting tests following our last (third) mc and I'm dying to try again even though after this one I was and am a basket case. Its a no win situation the thought of having to wait any amount of months is soul destroying. I can understand why you want to get all the tests done first but I also know the sorrow of having to wait. Every month seems to bring back some memory of having a baby there or being pregnant.

Ladybee I was told that because I have children that the blood clotting problems could pretty much be ruled out. Is that not true then, they seemed to rule most things out when going through the test list! Its so confusing!

Does anyone know whether you get any more testing if you go private and whether the NHS cover everything. I just want to get as much done as possible (as we all do) and as quick as possible.

LAF77 · 28/01/2011 12:11

lucky I'm not sure what you mean by NHS tests. My GP has done tests for thyroid, antiphospholipids, lupus, and other things that I forgot. All came back clear. St Mary's is part of the NHS. They have quite an extensive list for testing which goes beyond the ones that my GP did.

The frustrating thing is that I could be told that they still can't find anything after going to STM. I am preparing myself for all eventualities. I find it hard to believe that it is "bad luck" that I have had 3 in a row. All of mine have ended at various stages although the bean has never been correspondent with the size of the length of the pg.

We are in this together. IKWYM about the reminders about pg. I had a thank you card come through this morning from the friend I visited at the weekend for the gift that I gave with a picture of their baby and saying that they couldn't wait for me to meet him. (I didn't actually see her and the baby, just her partner at their shop.) I'm not in the mood for meeting newborns.

milkyway2007 · 28/01/2011 13:21

Thanks lunatic. ladybee, mummyabroad and LAF77 and everyone else - every piece of information I am getting from here is invaluable. I will defintely be pushing for the blood clotting tests again. I have never thought of clotting problem stopping hormones from being released - so thanks for that.

I am ruling out Asher's for now, as my periods are always regular and on time - even after my ERPC last March. I have no period pains, just the odd cramp before I start. I used to get very bad pains and very irregular periods before my daughter, but became very regular and painless after having my daughter.

I have found that my consultant is currently doing research and trials in NK cells and recurrent miscarriage, so I will definitely bring this up with him, and perhaps ask to be included in his trials - if you can do this.

I have been thinking, if I ask for a referral for St Mary's ASAP, but get as many other tests done as possible at my hospital - as the waiting list isnt that long here - could I do that? I havent had a lupus test - and I am sure they havent checked my cervix either - things I keep thinking back on - like when I gave birth to my daughter, I felt something "go" inside that area - although I did tear so maybe it was that?

I am totally in the same boat as you LAF77 Time is not on my side...I can't imagine not trying again for a year -but that's how its looking for me right now - I'm already thinking about what I could do differently next time. Just so frustrating :(

I can't believe its Friday already - I have my second scan this Monday, then they will have that dreaded talk to me about the ERPC...I just keep thinking of a miracle and when they scan, the baby is there with heart beat and everything - but I know that's not going to happen :( I am so depressed.

Also, can anyone give me information - They found in the scan that there was no amniotic sac - why would it rupture? Do you think I wasnt drinking enough water - or are there any reasons behind why the sac would rupture?

mumatron · 28/01/2011 13:38

really quick reply to milky. blood tests especially clottng ones need to be done more than once, as the results can vary so much. my protein s levels varied from as low as 7 to as high as 135. there is also a test that should be done and sent to the lab within one hour.

sorry i dont have time to catch up properly. will try properly this evening.

MummyAbroad · 28/01/2011 13:45

LAF77 I'm so sorry that the system is slowing you down. I know how it feels to put everything on hold, after so much hope and trying. I was devastated when I was first put on the pill for a month (waste of time!) and then 2 months after that I got my diagnosis and knew that it would be months and a question mark at the end before we could even try, it was just awful. It made me very depressed and seriously affected my relationship too. I had some counselling around the time of my mc (march) but in hindsight I should have kept going because that "enforced infertility" was a different kind of blow and very very upsetting. Have you got someone you can talk to, or have you ever thought about using the services of the miscarriage association? I hope you come out the other side like I did, and get the green light soon. Very best of luck getting that consultant referral, be as pushy as you possibly can be and dont rest till its in your hands!

lucky I have had all my testing/treatment done privately, mostly abroad but some in the UK. I believe with tests for structural issues (not bloods) i.e. scans, HSG etc, its not so much what test but who looks at the results. Doctors with more experience will spot things that others may miss. I ask for all images to be burned on CD so I can show them to other specialists, its amazing the differences of opinion you get!

Hi lovemysleep welcome to the thread. I am at about the same point in my cycle as you (10PDO) first time TTC for 7 months and I am already doing all those crazy things I promised I wouldnt (POAS since 7DPO, starting at my unchanging chart all day, and excessive boob prodding Blush ) I'm afraid there is no wisdom from this corner but I will keep you company! Sorry I dont know anything about prenisolone.

big waves to everyone, especially our ladies in hospital! Much love, hope you are as well as can be xxxxxxxx

LAF77 · 28/01/2011 13:49

milky this thread has been invaluable to me as I had no idea about miscarriages, recurrent miscarriages, and what hope there was. My GP didn't seem to know about St Mary's until I said I wanted a referral there.

In order to go to St Mary's, you have to have a referral from a hospital consultant if you live outside London, so your GP can't do it.

From what I gather, St Mary's doesn't hold much faith in the NK cells for cause of recurrent miscarriage, so you won't get this from STM as far as I know.

I'll be thinking of you on Monday during your scan. There is no sugar coating it, it is a difficult time.

MummyAbroad · 28/01/2011 14:18

lovemysleep I've added you in, hope thats OK.

STARTING TESTING
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.

UNDERGOING TREATMENT
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC
MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus, currently TTC
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, currently 32+1
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

luckyfor2 · 28/01/2011 15:17

LAF
Sorry I wasn't very clear and all these tests just confuse me. The GP tests however are exactly the same as what they did in the hospital for me. I have just heard from the hospital to say that the results from me are all clear (the chromosome tests re me and DH take another couple of weeks).

St Marys sounds like the place to go. I've read the Lesley Regan book but everything I've read seems to count me out, I guess there are lots of tests they can't go into though. I hope they refer you promptly its such a long time to wait and time is one of the most painful things.

I am very lucky having my two children and thats why I guess I keep coming back to the luck scenario and though I often think you can't have that much bad luck I hope things will change in the future.

everyone
Is it my paranoia or are there a ridiculous amount of celebs pregnant and news stories about pregnant women at the moment. Every time I turn the telly over someone is either pregnant or they're talking about it. Same with the newspaper! Ridiculous!

luckyfor2 · 28/01/2011 15:24

Milky
I just wanted to say I'll be thinking of you on Monday and I'm so sorry.

Julezboo · 28/01/2011 15:27

Milky - I was diagnosed with a clotting disorder, hence my need for clexane. My first pg ended in mc. My DS1 was born at 31 weeks after I developed pre-eclampsia, which led to a scary eclamptic fit hours after he was born which put me into a coma with a mild stroke. Fully recovered now, second and third born i was treated with clexane and aspirin (And progesterone with third) and no problems whatsoever related to clotting problem. Hyperemesis and DS3 born at 35 weeks!

Just popped home, they are keep us until monday, he only weighs a diddy 6lb 7 :( and is not gaining weight quick enough, all bloods hav come back normal so we are all baffled! They are monitering his feeds, weighing his nappies and checking his poop!

I have to run, i can read and post from phone, just takes an age...

Love to all xxx

OP posts:
milkyway2007 · 28/01/2011 19:11

thanks for the information mumatron and julezboo and thank you for the kind words LAF77 and luckyfor2

julezboo Hope everything is going ok with your little one :)

I have just ordered two books off amazon - the one by lesley regan that has been mentioned by a few women on here. Also a book by Alan E Beer, called Is Your Body Baby-Friendly - I think that was mentioned by someone aswell and its informative about NK cells. Hopefully they'll be here by tomorrow afternoon so I can do a good read before Monday and know exactly what to say to the doctors about my treatment.

lovemysleep · 28/01/2011 20:24

luckyfor2 - yes, I have noticed the ridiculous amount of celebs who are pg.....makes me go ggggrrrrrrr.

milkyway2007 - Alan Beers book was really useful to me, and that's what put me on my NK cell journey. Whether it's going to work or not, who can say? I am trying to be quietly optimistic..

LAF77 · 29/01/2011 12:51

hello lucky my personal belief is that our bodies can change over time, so even though something may not have been an issue for you when you had your earlier pregnancies, things can change.

I was reading about the V Leiden factor and it says that it affects 5% of the caucasian population, but for some people who have it, they would not know it, as they have no issues. Something may change in your biochemistry for it to cause problems in pregnancy. I'm not saying that you have this clotting issue or I have it either, but there are so many factors at work that it seems like a miracle that people can get pregnant at all.

I wrote to my cousin yesterday to find out more about her miscarriage experience. I knew that she had at least one mc. I thought that maybe she had testing done and perhaps there was something that explained her mcs. Maybe it would apply to me as we could have some genetic similarities. She had 3 miscarriages and then had a daughter, had one more, and then had the second. She advised me that I should use OPK kits and only go for it then as that is how she managed to carry both girls to term.

I don't get it. There are plenty of people who get their dates wrong and have "accidents" and carry pregnancies to term. In theory, if the egg is starting to deteriorate by the time it reaches the uterus, pregnancy shouldn't happen. That is what the biology books say. 2 of my 3 miscarriages (7 WKs and 9wks) have been embryonic. I don't see how a deteriorating egg would develop into a pregnancy and keep going for that long.

Her recommendation to me is that I use an OPK and try again. I'm going to ignore that advice. I would rather stay on the sidelines and have tests done and see what treatment is available to me than go through the heartbreak of a 4th miscarriage. Maybe I'll change my mind in a couple months, but I'm determined to go down the testing route.

mummy thanks for your words. I am arming myself for the hospital visit. I went to my GPs surgery today and asked for a copy of his referral to be posted to me. I will take it to the appointment and tell them they can copy it word for word if they want, but I won't leave their office without the recommendation to St Mary's. If I have to turn on the water works, I will do so. I'm a Taurus and when I've got my mind set on something, there is no chance of anyone stopping me. I am expecting that the consultant will want to be less than helpful to me (as per all of my other experiences at ESH) so I will make it very difficult for them to be unhelpful.

LunaticFringe · 29/01/2011 13:21

This reply has been deleted

Message withdrawn at poster's request.

MummyAbroad · 29/01/2011 14:05

Lunatic that is one rough anniversary, glad you made it through. I'll update the stats for you.

LAF that is the spirit!! With that attitude you will have no problem getting that referralSmile

I am 11DPO, fell into the trap of early testing (why fight it? ) and its still BFN. I went to see a new counsellor yesterday, have been having so many problems in my relationship with DH and feeling overwhelmed and sad so often, I thought it best to just feel overwhelmed and sad once a week for an hour rather than let it spill into my life all the time. Went well, but its exhausting going to those dark places.

MummyAbroad · 29/01/2011 14:09

STARTING TESTING
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.

UNDERGOING TREATMENT
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC
MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus, currently TTC
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.