Recurrent Buns - Miscarriage Testing and Beyond! Part three..!

[Julezboo]

Not so imaginative as lunatic !

Part One HERE

Part Two HERE

There are a mixture of Pg ladies, new BFP's (YAY) and new ladies who have sadly had to join us and are going through testing. Lots of OMW's and hand holding here!

Sit down, grab a cushion and a hot choc and get comfortable.

Feck Feck Feck. The test is positive. What does that mean?? I am 100% positive it is retained tissue. Now what? Can't wait until morning to call my consultant. Does this mean I have to have another ERPC? OMG...I do not want another ERPC. I am in a panic.

:( banana doesnt neccessarily mean another ERPC but it could take a while to come out.

You need to be scanned ASAP, just to double check it is not a new pg and because there is a risk of infection.

I had a similar situation dec/jan last/this year, i mc'd on the 17th but the retained tissue didnt come away until 21st jan (my birthday!)

Will be thinking of you.

lunatic what a mess at your hospital! I am surprised they didnt tell you that you need 2 injections though. Hope you managed to get sick note and iron tablets sorted.

digital sounds like a good plan. I am sorry you are feeling down though :( Will be thinking of you over the next few days

deep breaths banana

you will need to be scanned to see what is going on. i had this after mc3 and was offered to let nature take its course or have the erpc.

call them in the morning and see what they say.

Oh cripes lf you didn't pitch anything wrong. I didn't realise my reply was so sharp I didn't mean it the way it sounded. I'm pretty rubbish with words. I know you were only offered helpful advice, I was just agreeing with what you were saying. Sorry. Also sorry for your higgledy piggledy appointment. It always works out that when you're working to a schedule, one thing gets messed up to mess the rest of it around. I'm sure your pain turns out to be nothing sinister but it must be hard not to worry.

LAF hope your return journey is safe :)

mumatron waves, and hope your poor dog is ok.

broken 13th December is really not far at all :)

My friend has just given birth today. Mixed emotions. She was meant to go in Friday, for planned C-section but the stupid hospital double booked her so had to go today instead. She is planning to come to see me when she is up to it... brave face but I'll probably just crack up in front of her! I worked out today that my BMI is 24. Apparently that is healthy... I don't look healthy! So hopefully my weight isn't impacting on the PCOS too much. That's one less thing to worry about I've always been so rubbish at losing weight effectively.

It has been 6 weeks Friday since my mc and ERPC. Surely it would have come away by now? Do they do ERPC by ultrasound if you ask? I am so scared, if I have to have another it will be the 5th. Are they likely to give drugs to help the rest come away instead??

Hi banana sorry you are going through this, the same thing happened to me, I had a positive test (no sex) 2 and half months after the mc. You need to be given antibiotics asap to prevent infection. whatever else happens, this is the most important thing of all, dont delay. Start taking them immediately.

I had an internal ultrasound as soon as I told my gyne about the positive test, in my case there was a lot of tissue left and I did have to have an ERPC but it is not always the case.

You can request the ERPC to be done under ultrasound guidance and also to have HRT given afterwards (these are both precautions against developing scar tissue)

Have a read through this, it should reassure you that even small amount of tissue can cause a rise in HCG and positive test

Are you still under BUPA cover? I can really recommend Dr Adrian Lower in London if you want to see really good doctor 02074874488. He will be able to see you fast if you explain and say its urgent. Sometimes just putting yourself in the hands of the experts is reassurance enough.

I know you are really scared and worried and you want it all to be over, but we are all here to help you. PM me anytime if you like. xxxx

banana Crossed posts last night by the looks of it. Sorry this is happening to you. I have no experience of this but I hope the doctors can help you quickly and you get all the help and advice you need. xx

Lunatic I'm of the mind that the little bit of bleeding I experienced, although a bit heavier than last time, was implantation. It seems to correlate with everything else. Let's hope so, because the thought of an extra baby seems quite stressful right now. DS is going through a particularly trying stage. He refuses to sleep in his own bed and wails if we make him stay out of our room. Anyway, largely insignificant given your recent experience.

I am sending you a huge hug. Any incompetence on the part of medical staff right now has to be of great concern to you and mighty stressful I imagine. It's vital that you feel that you're in safe hands and the cock up on the appt front sounds ever so slightly crap. How hard can it be to think these things through? Would your GP be willing to sort out the iron tablet saga if you explain your situation, especially given the added stress of your current physical discomfort? I know you won't mind paying for them, but that's not really the point is it?

What does the pain feel like? I don't suppose there is any possible way you can think about it subjectively, so I think you do right to monitor your BP and hotfoot it into hospital as soon as you feel remotely more than slightly concerned. Better to be safe than sorry. It must be a horrible feeling. It makes me feel very helpless being on a keyboard miles away. Not that I could do anything if I were there, but I have sympathy and concern overload!

mumatron Thanks for the congrats! You can't stay away for too long on this thread without something happening! What a horrible shock for you. I hope your dog is okay. Did you get to the vet? You really can do without that on top of xp. Hugs to you too.

digi I'm so sorry you feel so down, but give yourself a break. It's still very early days and it's hardly surprising you feel this way, given the date that is looming is it? I think your decision to go private is excellent and it must feel like a positive step in the right direction. Sending a hug your way too. Sounds like everyone needs a lot of them right now.

banana Your poor love. What a hideous thing to have to deal with. I can't offer any more advice than has already been offered, but I'd suggest that you get scanned asap. Your EPU should whip you in straightaway to eliminate the risk of infection. It could be that the tissue HAS come away but that your hormone levels are still rather all over the place and confused. It hasn't been THAT long in the great scheme of things, although it must seem like forever to you. I'm hoping against hope that this is good news rather than bad, but I had positive test results after my mc for weeks on end. Mind you, it did go on for 3 months, so it wasn't exactly a surprise. It's desperately frustrating and distressing though. Bypass your GP and get the EPU called immediately. I hope you get seen very quickly. Extra big hugs.

Coconuts Mixed emotions would be the understatement of the year for me. I think you're being very brave. If you crack up, then so be it. You have just as much right to feel sad about what's happened to you as your friend deserves to be happy about her new baby. Hugs to you too. I am the cyber hug fairy today!

A BMI of 24 is fine. Anything under 25 is considered to be normal and tbh it's about where mine is now. I had just decided to be spectacularly healthy and lose a few lbs 2 weeks before I found out I was pg.

LAF Glad all is still well and thanks for the congrats. Loving your analogy of my (hopefully) sticky bean!

Julez So sorry to hear you're still in so much discomfort. 10 weeks isn't long, but I appreciate that it must seen like an age to you right now. Mind you, it's not altogether surprising given the size of that bump! Keep your chin up. You're doing really well.

Waves to Mummy and frazzled. Hope any lurkers are okay too.

Nothing much to report at this end, except I have one ridiculously boob! It's a new one on me. Managed not to pee on any sticks yesterday and I feel quite positive so far, with only the very occasional wobbly moment. Just wish the next two weeks could go by a little bit quicker.

*ridiculously sore boob!

Coconuts, am really shocked by your awful appt, second everyone who says bend the truth a bit and keep making a fuss till someone starts listening. Glad that at least the bathroom is sorted.

MummyinEngland hope the recovery's going well! How much longer are you MummyinEngland for?

Broken, still grinning all over the place at your news. If you follow the pattern of this thread, you have an interesting few months of paranoia, mad imaginings and not-wanting-to-jinx-things ahead of you. I did such a good job of not talking about it so as not to jinx that friends we don't see so much came round for lunch three weeks ago and looked VERY surprised when I opened the door...

digital agree entirely with Mummy - it can be a good thing to bring up your insecurities and bad feelings. I have a rotten habit of just deciding that I'm going to be OK and then refusing to think about things, which invariably leaves me in a right state further down the line. Better to have a look at them with a pro, if they're good and you can trust them. Does feel lousy while it's happening, though, so totally sympathise.

Hi LAF77, am still that you get to see Japan. Don't think I'll be doing that for a few years to come, but is def on my life ambitions list.

banana Eeeeek - have you managed to speak to anyone? FX for not having to have another ERPC.

mumatron, sorry about your ex-p, and the dog. What was in the sol letter? And I still have pant liners tucked into every bag in case I start bleeding, too, so you're not alone...

Julez, sympathy sympathy, ten weeks under the circs sounds like an eternity. Hope DH is delivering sufficient TLC!

Lunatic was just typing out something cheery about handsome dentists being all wrong when I saw about the pain. How are you feeling now? Hope is something utterly innocuous and in fact over by now. Hugs.

We had GM's funeral y'day - went surprisingly well, my bro did a wonderful job giving the eulogy we'd written together (left out all the toxic bits so sounded warm and affectionate). Lots of extended family came and to my surprise I quite liked them all. Only bum note was Mum's self-centred, stupid, tactless neighbour who spent the ENTIRE TIME moaning on about her son and DIL only having let her see her baby GS a few times since he was born (don't blame them, she smokes 60 a day and never listens to a word anyone says). She told me that 'everyone' says you're edged out when your son has children because DIL only wants her mum. I said I hope that's not true, I'm expecting my second boy. She said 'what?' and carried on repeating herself.

As you may know, this is my one great fear about the otherwise fabulous prospect of two lovely sons so I ended the funeral really really upset for reasons that had bog all to do with the deceased. Gaaaaah.

Also my kitchen has been delivered, minus oven. No-one can tell me when oven is coming. Kitchen is being installed next weekend and I have yet to order worktops, either. Cursed bloody pregnancy nesting hormones, why did I ever start mutter grumble glare...

Argh. Am none the wiser.

Called consultant first thing, he was at a conference all day but managed to get me an appointment at 3:30. So I got there, got scanned (by same person who did my last scan :( ). She did not tell me anything, she just printed LOADS of pics and said someone will explain whats going on. I did question her but she said she was just double checking. My consultant apparently told them no one is allowed to see me except him so they said they were going to call him. Still waiting for my phone to ring. I did manage to see the report though but it made no sense other than "fluid filled" and "blood clots". :( Does not sound good to me. Explains the severe pains I have been having on and off since Friday though I guess.

Sorry for me me me post. Will catch up later properly.

lf just popped on to see how you are. if your concerned get yourself checked. and get on the iron asap! i have been on 2 iron tabs and 2 spatone a day for a while now and i can't get my levels above 8.6

i am going into hospital for the day on monday to have a cosmofer transfusion. not happy about that but i am desperate to get the levels up so i can transfer to midwife led care.

dog is ok btw, thanks for asking everyone.

No worries, Lunatic I would have tested sooner rather than later in the end anyway. Hope you are ok, and that the steroids do their stuff, if needed!

Consultant just phoned. Apparently the sonographer was vague about what she saw and doesn't know if its products of conceptions or a blood clot. So he wants me to see a more experienced sonographer privately asap. However, it is only 1cm whatever it is, and my uterine lining is 10cm (mm?) thick so he thinks AF is just around the corner and it would all likely come away then anyway, so thats good. He said I don't have to worry about Asherman's because the lining is so thick (so glad he said that without me having to ask...again!!).

No, no he knows I have BUPA as I had the ERPC privately through him so its all covered anyway!

Hi all- I posted some time ago, but have been a bit off line. I am now hoping some of you ladies could give me a bit of insight... I have had 3 miscarriages- one pre DD (13 weeks) which was a MMC, then it took me 18 months to conceive DD and had loads of tests etc, but got pregnant naturally. I then had 2 miscarriages this year one at 7 weeks and one discvoered at 10 weeks and I miscarried at 12 weeks. So... I am not in the UK and was referred to a recurrent miscarriage clinic here. I just got my tests back and am not entirely sure how to make sense of them. My Lh and FSH were reversed- LH 8 and FSH 6. I also had a borderline anti cardiolipid antibodies result- IGM 15.3. I understand it is supposed to be less than 12.5 My Protein C chromogenic was 140.2 and the doc said this was just outside the normal range.

So... he said the results weren't straightforward- neither pointing to a problem or saying that all was OK, but he also didn't seem overly concerned. He said that the only treatment would be low dose aspirin and he had already put me on that at my initial appointment.

The thing is, I am now 7 weeks pregnant (3rd time pregnant this month). I had a bad bleed a few days ago and I thought it was all over, but I had a scan yesterday which saw a heartbeat and everything seemd OK (but then I have been here befor)e.

Do any of you have any insights? He also offered to put me on progesterone, but said he felt it was not necessary. I agreed...

broken at your one ridiculous boob, what a funny typo!

Yes I was quite surprised when I worked it out that it was within normal range. It has taken me most of this year to lose a stone and I can't seem to get any further than that. I've hit the brick wall, as it were. I've never had a very positive body image so it would do me good to lose a bit more but my body obv wants to keep hold of it!

I doubt I will crack up, I'm the queen of a brave face, even if it doesn't do me any favours.

stillfrazzled Glad the funeral went quite well, and Grr! regarding the oven. Home improvement are always stressful at the best of times. After my bathroom saga it makes me wonder why people do these things voluntarily

lunatic lets call it crossed wires :) Glad to hear the iron is kicking in. I was anaemic throughout my pregnancy, couldn't get my levels any higher than about 7 or 8 so I know how rubbishy it makes you feel. I'm always deathly pale (not cool and hip pale) and everyone says to me "ooh you look anaemic" gee thanks!

banana your consultant sounds very on the ball. Glad that he's ruled out Ashermans. Lets hope it all comes away with AF, that would certainly be the least stressful scenario for you. Unless you'd rather have the ultrasound ERPC to be sure?

Hi to lulu I can't be of any help regarding the blood results but grab yourself a cushion, someone more helpful will be along soon :) Welcome back.

to anyone i have missed.

So... I got a letter from GP yesterday. She has done the referral to gynae. Where I live we have a choose and book service from the NHS (don't know if that's a national thing) so have to sort my own appointment out. All available appointments are booked and my hospital has a wait of 41 days. I have 'registered my interest' and they must call me by 9th December to book so we're looking at the end of January beginning of February.

My new PCOS book has arrived. DD is at nursery this morning so I'm now going to sit down and have a read.

coconut i hope that your book gives you some comfort. Sometimes it is good to have a book to help you try to understand what might be going on although self diagnosis can drive you mad! Perhaps there are certain types of foods that you can eat to help manage PCOS? Are you back in your house now?

banana it sounds dreadful that you had such a mysterious scan. I think I'd go crazy if someone was making vague statements about my uterus! Hopefully, AF is just around the corner as they said, so it can be resolved naturally.

Welcome lulu I hope that you get the support that you need to see the pg through to term.

Lunatic I hope that you are feeling better today.

digital sometimes the emotional pain of mc hits you like a truck. It is traumatic and awful and I don't know if the mental pain ever really goes away. I too have had counselling in the past, but I didn't have any after the miscarriages. I keep a diary and I'd write my feelings down in there. Sometimes it helped just to express what was inside somehow. However, DH bore the brunt of a lot of my mood swings. He suggested that I talk to someone about how I was feeling because he didn't know how to deal with me. Somehow I got through it.

broken how are you doing? I have my first scan in 12 days and I think it is too long to wait as well.

frazzled I love Japan and I am so lucky that our company has an office in Tokyo and I was able to find a reason to visit. I'd love to go back again and see more.

mummy I'm glad that your operation seemed to be successful. It is really remarkable as to how medicine has advanced as perhaps a generation ago, it wouldn't have been possible to have that surgery.

I'm so scared that the bean isn't really alive in there. I haven't had a MMC yet. It is one day at a time. I've had a lot of time to think whilst I've been travelling, and I realise that I can't control what happens to the bean. I can do my best with a good diet, supplements, no alcohol, etc, but I can't grow our little bean. It has to be able to do that itself. We have to grow together, but this wait is really hard. I don't have many symptoms in the way of sickness. My boobs are fairly tender. I have felt mildly queasy at times, but not enough to bring anything up that I've eaten. I definitely notice smells a lot more. I walk dogs for people in our area and the dog poo smell really makes me retch. I know that some people go through pg with hardly any symptoms at all, but I never had many symptoms when I miscarried twice before and I'm trying not to fret that this one won't go well either because of few symptoms.

Sorry for the long post and hello to anyone I missed.

LAF It has given me some comfort already. I'm 6 chapters in. Theres alot to take in but I'm realising i've had many of the symptoms for years and not realised why. Now it all makes sense. It says that PCOS sufferers are born with it, it develops in the mothers womb. Something i hadn't even considered.

It is normal to worry, you'd be strange if you didn't worry. 12 days will go by so fast. You are probs one of life's women that don't get very bad sickness :) Think positive :)

Oh Lulu what a sad story. :( No insight to offer as I am just a 'beginner'.

Good news - I saw the GP today, and she is referring me to the gynae department (probably the one I've just got out of!) for recurrent miscarriage testing.

I went in and got very upset straight away, laboured the point that I've had two drawn out MCs in six months, that i really think it will affect my wellbeing if I don't get tested, and that I am going to try again but am really anxious about it happening again. I also said I'd have two ERPCs in a week, and that I'm nearly 43.

she is going to ring me next week to book me in for tests that can be done at the surger as well :)

lulu still waiting to see a consultant about my recurrent mc test results so not much help right now. But from what I've read if you're on the borderline for apa, then low dose aspirin should help. If your hormones aren't quite balanced then this could explain the bleed you've had. Wouldnt the lh & fsh reading just be an indication of your ovarian reserve and/or whether you have pcos? I can imagine you'll be terribly worried as you've had a mmc, so even when the bleeding stops it doesn't offer any reassurance. Have you had an early scan?

laf not long till your scan . I never had much ms in my pregnancy with ds.

Great news on the referral
hairy!

Digi- thanks for that. Yes, I thought that the lh and fsh was an indication of PCOs which isn't a huge surprise as I was diagnosed with it during my year of infertility- when I had my laproscopy, hysteroscopy etc to figure out why I wasn't conceiving (I didn't get a period for 12 months after my first ERPC) they confirmed mild PCO. Thanks for your insights. And you are absolutely right- terribly worried having had 2 mmc so worried whether I bleed or not! Luckily the bleeding stopped as quickly as it started- just a heavy gush when I stood up from teh couch, but that was it. I hope you get to see the consultant soon- it is the lack of action and moving forward that makes one crazy!

LAF Hopefully the days before your scan will go quickly. Despite your concerns it does sound like you have a fair few reassuring symptoms. I have also experienced the complete anxiety of wondering if symptoms have disappeared (have you been poking your boobs to see if they still hurt???). I hope we can both relax soon!

coconuts I feel for you and your mixed emotions- I'm sure your friend will totaly understand. To reiterate what LAF said, I think some foods help with PCOS. I had a friend who had very severe problems with it and she completely changed her diet. Was very keyed in to what helped and what didn't. I can ask her, if you like, but perhaps your book covers it?

Hope everyone else is doing OK.