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28 and dying, struggling with anger.

218 replies

nobetterplace · 12/02/2024 10:53

Hello,

I’m a mum of two little boys, I have a four year old and a one year old.

I’m 28 years old and I was diagnosed during my pregnancy with stage 3 ampullary cancer. I had surgery to remove the tumour but unfortunately the cancer had spread to my lymph nodes and to my liver and it is terminal.

I have wonderful people around me, who are trying to make everyday special for me and support my boys but I am just so angry. I can’t find any acceptance or calm, I am so angry that this is happening and that I am completely powerless and cannot stay for my boys. No one can say once I’m gone that I’m finally at peace, peace is at home with my boys and I don’t want to die. It’s not a situation you think about until you’re in it but I feel like you expect sadness, grief, perhaps eventually acceptance but I feel this blind rage and desperation to fix something I can’t fix.

I don’t want to burden the people around me, at the end of the day soon I will be gone and they will be the ones picking up the pieces. It will make it a lot harder for them to move on from if they know how angry I am and not that I “am in a better place” like people say.

I want to soak up my children for every second I can but I find every second with them gut wrenching. I have so many things I need to do, I want to write them letters, I want to film videos for important occasions, I need to wean my littlest off the boob so he doesn’t just suddenly have to go cold turkey because I’m no longer alive. I just don’t know how because when I go to do these things I just feel this blind rage that I am having to do these things.

It’s a situation where I imagine the best people to give me advice are the ones who have been through it and who aren’t here anymore to share it. I don’t know if there are words of wisdom that can be given, but if anyone on this sub can somewhat relate even on behalf of a no longer here family member, I’m desperate for something.

OP posts:
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6
Butterflyrainbow12 · 12/02/2024 20:26

It’s absolutely shite, unfair, horrible, heartbreaking and a whole lot more. U have every right to be angry and maybe having an outburst would be helpful to u, to get it out that rage u must be feeling. I’m so sorry that this is happening to u, I don’t have any experience of someone as young as u with cancer though I have lost some friends and family at a young age suddenly. Sometimes I think suddenly is easier, people say no time to say goodbye but really the alternative means lots of time to think of the could have and would haves.

We lost an elderly relative to terminal cancer just before Christmas and I highly recommend the book ‘The Invisible String’ particularly for your older boy.

sharond101 · 12/02/2024 20:30

Life is a gift we all so much take for granted. Your story is one of immense courage and strength to have come this far. Noone can imagine the pain you must feel however I do understand how difficult being around your children must be and how you want to inhale their smell, digest their love and time and how you feel overwhelmed with all you want to achieve. due to ill health of my own. I have no word of advice other than to live one hour at a time. On difficult days I breakdown tasks into tiny pieces and work through it one segment at a time, in my own time which makes it more achievable. Set a small goal for each day to get through the lists of things you want to complete and praise yourself for completing that one thing because in your position most people would have given up. You cannot control this situation, nor are you managing to find acceptance therefore perhaps you can find a middle ground and live the best life you can for now. Mindfulness is a wonderful tool and can be applied to every situation. Spend 5 minutes mindfully with each child every day, twice per day, three times per day if you can. Just be with them, talk to them, hug them, tickle their toes or ask them silly questions. Sing songs or walk on the wet grass, make a play doh animal or Lego house. Ask your family to photograph you doing just that. Being in the moment with them, reading a story, finger painting, feeding your one year old, as these are the times you want them to look back on and although they may not remember they will have the photographs of precious one on one, calm time with Mummy. Enjoy time alone too when needed to recharge. Young children are all consuming and hard work even when you aren't unwell. You will be a better Mum with rest in between spending time with them.

victoriasponge1 · 12/02/2024 20:30

I didn’t want to read and leave. I’m so angry and upset for you, life is cruel.
I don’t understand what you’re going through as I haven’t gone through it, but please know you have every right to feel angry and let it out in some way you can.

take lots of photos, do videos so they can hear your voice, soak up every minute with your precious boys. Whatever you want to do. Even though it’s hard.

I’m so sorry x

watermelonsugar56 · 12/02/2024 20:37

I’m so terribly sorry ❤️you sound like a very strong person and I truly hope you are somehow able to find some form of solace very soon. Equally, it’s totally understandable if you don’t, as it is a fucking horrific situation you are in and you have every right to be angry. Can’t imagine what you’re going through and how hard things are for you especially with young children, like you have said you have to be in this situation to understand it. Sorry not to be more helpful just wanted to send love to you and your family who will be in my thoughts. As PP said you will always be with them and have that irreplaceable bond. Lots of love to you ❤️ x

CarterBeatsTheDevil · 12/02/2024 20:46

There are all sorts of things we would want to do for our kids if we had enough time, but OP, you need to do what's doable for you. I second therapy. You really deserve that space for yourself, now more than ever. Every moment with your kids can't be memorable. It's ok to use some of the time you have left for you. And doing that will be good for them too.

kathmacc · 12/02/2024 20:49

I know I will be shot down for this but after having my disabled son I returned back to the C of E religion I was brought up in. The support I have received for the last 20+ years has been so good for my whole family -I maybe have a good church! My absolute greatest fear has been knowing I will die before my child who still relies on me for everything- but I know now that the church community is going to be there for him after I have gone and help support his siblings. It might not suit your family but maybe try a few churches-especially those with active young church members x

Livelovebehappy · 12/02/2024 20:49

A heart breaking read. I don’t have experience of going through anything you’re experiencing. All I can offer is love and strength, and I hope you find your own way of dealing with this which brings you a little bit of comfort and piece.

Livelovebehappy · 12/02/2024 20:50

peace

semideponent · 12/02/2024 20:50

Dear OP, I'm posting on behalf of my BIL. Let's call him T. He died some time ago, and his children were really young when this happened.

T wrote letters to his children, and tried to actively think about the future they and his partner (my sister) might have. He was a psychiatrist and brought his professional expertise to this personal situation. He encouraged my sister to keep doing things that enlarged her own life. As I remember, the hard part for him was the in between bit, when he wasn't actively dying and it was known that the cancer was likely to be terminal, but there was still life to live. He also knew that change is difficult and he tried to prepare himself and those he loved for it. I think what he would recognise is the incredible tension you're feeling between wanting to feed your baby and wanting - as a Mum - to ease your children's pain at your death

I don't have answers, just descriptions, but I hope they are helpful to you. Thank you for rousing the memory of T and I do hope that in some way you'll feel his presence.

waddlemyway · 12/02/2024 20:51

My DP lost his mum before he turned 4. He had an older sister and a younger brother. Things he wishes he had were pictures of just the two of them/pictures of her with him and his siblings/pictures of all the family. So often the mum takes the photos and isn’t in them. And he wishes he had her voice. Record your voice - record bedtime stories of all age groups, and if you don’t have the time or energy then maybe you can just manage “Guess how much I love you” or similar, just the one classic story that they can still listen to age 20 at the end of a shit day. Or play to their kids when the time comes. Technology is much more on your side than it was in DP mum’s day. Use it as treasure. (Just make sure any recordings can be found). DP’s sister concurs. Their mum kept a (sporadic) diary which was at times difficult to read but at the same time it was key to understanding who she was, especially as they grew older.

Wishing you much strength to enjoy the remaining moments of joy. Soak, soak, soak them up and let them be your tonic.

TheDefiant · 12/02/2024 20:54

My Mums died suddenly when I was 8 and she was 28.

I'm sorry my next words will probably make you desperately sad.

I barely remember her.

This is because no one made any effort to help her DC remember.

Please record lots of video of you speaking to them. Write letters. Birthday cards for years and years. Make a memory box with your favourite clothes, perfume, make up, shoes, music, books, movies, theatre shows etc, etc.

Make a memory box full of items that touch every sense. Cook/bake for them and if too unwell to do that make sure your recipes are written down.

All I have are photographs and these aren't really enough.

There's no where for me and my sis to go to remember so perhaps think about that too.

I'm so sorry that you are going through this. Please seize the day and rage, rage.

Veggie1965 · 12/02/2024 20:57

victoriasponge1 · 12/02/2024 20:30

I didn’t want to read and leave. I’m so angry and upset for you, life is cruel.
I don’t understand what you’re going through as I haven’t gone through it, but please know you have every right to feel angry and let it out in some way you can.

take lots of photos, do videos so they can hear your voice, soak up every minute with your precious boys. Whatever you want to do. Even though it’s hard.

I’m so sorry x

Edited

This 10000million times . Have been trying to think of the right words and as a Mum of a 28 year old i just couldn’t help. Sending you so much love and hope that your family are wrapped around you 💕🙏💕

DancyNancy · 12/02/2024 20:57

I don't have advice on the stages through terminal illness, but "Scream therapy".

Scream and swear and f you to everything....

If you drive go somewhere secluded and you can really let loose and scream your head off. Or into a cushion. Just unload every thought going through your head and hate it and just say it all, out loud, screaming, crying whatever.

It may be you then move into another emotion, often tears, as anger is usually sitting on top of another emotion.

Just an outlet for anger in general.
Anger is very understandable. You're out of control, and feel helpless. You want it to be a different way and you can't make it different. So of course you are angry.
It is a stage of grief.

It's really fu*ing unfair and shit OP. It's so so fu*ing unfair on you and your family.
I'm hoping for the best that can be for you. Scream xxx

5YearsLeft · 12/02/2024 21:00

OP, I’m not surprised at all that you’re angry. I was angry when I got my diagnosis and it’s been a while now. I’m going downhill, but it’s slow and painful. And some days I’m still angry. However, the huge difference between us is that I don’t have children, which before now was the biggest regret of my life and now seems like… not exactly a “blessing in disguise,” because it’s still not, BUT I can’t imagine the added pain of going through this illness with very young children or children at all. I’m sure it’s gut wrenching. Maybe others think all dying is equal, and in some ways, yes, of course it is, as every life is important, but I think dying with young children is also uniquely difficult. After all, only fear is for myself and a few friends who rely on me. But I understand your fears, and therefore your anger, are multiplied by how many children are in your heart.

The anger didn’t surprise me at all as, a long while before I got sick, I worked in spiritual advising at a not for profit hospice. When people signed up, they would be asked if they wanted spiritual advising, and if they said yes but didn’t choose any particular denomination, I’d be sent. Many of them didn’t want prayer or the Bible or hymns. They wanted to talk. A common theme was how angry they felt. At life. At God. At what they would miss when they were gone. At how unfair it was. My job was just to listen and tell them that nothing they were feeling was wrong. If there was something they were particularly angry about (like leaving children behind), we might try to help channel it into doing everything possible so at least when the end came, they felt that they had done everything they could (letters, videos, family photos if the person still felt comfortable with them, memory bears, as many recordings of mum or dad’s voice as possible - I remember we had a checklist of things parents might want to leave advice for their children on, i.e. when you feel really alone, when you fall in love, when you move out of the house, when you have a big fight with [surviving parent] and I’m not there, when everyone else seems to have a mum/dad and you don’t, etc.) Sometimes physically tackling the thing you’re angriest about can help. But admittedly, it’s hard not to also just be angry at the unfairness, and it’s difficult to do anything about that.

Acceptance may not be what you think it is. It’s not what I thought it was. I have accepted that I’m going to die. All my rage will not change it. But does that mean I don’t still get angry sometimes? Course it doesn’t; I still scream into my pillow and cry angry tears and think of the things I would like to have done. You might too. A terminal disease doesn’t turn you into a Zen master, and that’s okay. But that feeling of incandescent, blinding rage has lessened for me as the fatigue and pain have increased. I sleep a lot more now than I did a year ago. And I cry a lot less.

I understand with metastatic cancer, you may be on a much shorter timeline, so it may all be happening at once - screaming into your pillow from rage, and then falling asleep from fatigue. I wish I had wonderful advice about how to magically find peace in 24 hours. I don’t. All I can say is that I believe there is hope, in the greatest darkness. I know it will not keep either of us alive; it is not that kind of hope. But it is the kind that means I believe that you WILL see your children again, just like I will be reunited with my parents.

I wish you the very best, OP, and please PM me if you ever need to talk.

TheRealHousewife · 12/02/2024 21:01

nobetterplace · 12/02/2024 10:53

Hello,

I’m a mum of two little boys, I have a four year old and a one year old.

I’m 28 years old and I was diagnosed during my pregnancy with stage 3 ampullary cancer. I had surgery to remove the tumour but unfortunately the cancer had spread to my lymph nodes and to my liver and it is terminal.

I have wonderful people around me, who are trying to make everyday special for me and support my boys but I am just so angry. I can’t find any acceptance or calm, I am so angry that this is happening and that I am completely powerless and cannot stay for my boys. No one can say once I’m gone that I’m finally at peace, peace is at home with my boys and I don’t want to die. It’s not a situation you think about until you’re in it but I feel like you expect sadness, grief, perhaps eventually acceptance but I feel this blind rage and desperation to fix something I can’t fix.

I don’t want to burden the people around me, at the end of the day soon I will be gone and they will be the ones picking up the pieces. It will make it a lot harder for them to move on from if they know how angry I am and not that I “am in a better place” like people say.

I want to soak up my children for every second I can but I find every second with them gut wrenching. I have so many things I need to do, I want to write them letters, I want to film videos for important occasions, I need to wean my littlest off the boob so he doesn’t just suddenly have to go cold turkey because I’m no longer alive. I just don’t know how because when I go to do these things I just feel this blind rage that I am having to do these things.

It’s a situation where I imagine the best people to give me advice are the ones who have been through it and who aren’t here anymore to share it. I don’t know if there are words of wisdom that can be given, but if anyone on this sub can somewhat relate even on behalf of a no longer here family member, I’m desperate for something.

What an absolutely bastard cancer is! 👿 So sorry to read about your diagnosis. Sending loving strength your way❤️

FarmtractorJJ · 12/02/2024 21:05

OP, I have no helpful advice and I cannot imagine how stressful and horrendous this time must be for you. You sound like a wonderful Mummy. I just wanted to acknowledge that and to say that I will never forget your story and your wonderful boys! It’s painfully clear how much you love them. Take care of yourself

Illbebythesea · 12/02/2024 21:06

I’d be absolutely blinded with rage too. How fucking unfair life is… but I agree with PP’s it would be a shame to waste your precious time blinded by rage. I just don’t know op, no answer seems… enough. It just seems tripe. I’m really sorry.

Step5678 · 12/02/2024 21:29

Oh my goodness OP, I'm so very sorry you're in this position. Your words are powerful and your feelings very valid. Please don't hide them.
The only thing I would say is (from the point of view of someone who lost their mum as a child) take lots of pictures of you with your boys, and record your thoughts and feelings (maybe write a diary) warts and all. Your boys will have questions one day and it will mean so much if you are personally able to answer them.
Honestly, this is heartbreaking. You have every right to feel angry

LivGo · 12/02/2024 21:30

I didn't want to read and run. I can completely understand why you are angry, and no one can imagine the pain you are feeling right now. I find this world a truly cruel place sometimes, and I am so sorry. My advice would also be to make sure you don't suppress your emotions. It's always okay to feel how you feel, and you don't need to justify that in anyway. Sending lots of love.

6pence · 12/02/2024 21:30

Google Edinburgh casting company and think about making a cast of you holding hands with each of your little ones. I should think that physical reminder of you will bring them great comfort.

BabbleBee · 12/02/2024 21:32

You have every right to be angry. Really, really fucking angry.

Newsenmum · 12/02/2024 21:39

Im so sorry for everything you are going through and I am angry and heartbroken on your behalf.

Newchapterbeckons · 12/02/2024 21:45

I found it strangely reassuring that NONE of us have any true certainty. That Putin or some crazed individual can take us all out. Life is unexpected. My only thoughts are to live in the moment by moment making every second. Embrace the anger but don’t allow it to overtake the time left. Be glad of pain free days if you still have them. Write the letters now 🙏🏻

Aberdeenusername · 12/02/2024 21:54

Firstly, you anger is very valid. I don’t know you but I wish I could take this away from you. There is a book called “For Freddie” by Rachael bland. She died of breast cancer leaving a 3yo boy. Her book is for him. It may help you to listen, but also the chapters in it might help you to write a small/big memoir/letters to your children. Sending you so much love.

Geekylover · 12/02/2024 21:55

I’m so sorry. It’s not fair and you’re too young. Hugs x