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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
Tequilamockinbird · 18/03/2017 20:56

Thinking of you and your DH tonight chasing Flowers

Howlandbreathe · 18/03/2017 21:04

Chasing, what a wonderful mother, lover, partner, friend you have been Flowers

Look after yourself and those you love and No regrets....

DramaAlpaca · 18/03/2017 21:08

Thinking of you Chasing

Imaginingdragonsagain · 18/03/2017 21:17

So sorry chasing. Thinking of you Flowers

ColdAsIceCubes · 18/03/2017 21:19

Thinking of you and your family Flowers.

MyGastIsFlabbered · 18/03/2017 21:21

How awful for you OP. I can't imagine how you are feeling. Thinking of you and your DH.

fanniboz · 18/03/2017 21:59

Thinking of you and your husband. I hope he's settled and as pain free and comfortable as possible Flowers

DrowningSeas · 18/03/2017 22:06

Chasing.

I just wanted to send you a internet hug

We went through this with fil and it is desperately sad to deal with. Especially when noone knows what to say.

Hugs xx

Chasingsquirrels · 18/03/2017 22:39

Thank you all.

Having not slept all day, being exhausted but uncomfortable, DH has slept more settled this evening now the syringe pump had kicked in. He woke up about an hour ago and said he felt better than he had all day (which isn't saying much). Had some ice cream, cleaned his teeth etc and we had a bit of a chat - well I did, his voice has gone so he is just whispering - and a gentle hug.
The hospice @ home lady is here and we've all just gone to bed - my wonderful mum is staying over.
The hospital bed was moved today, & DH managed to get himself downstairs. I don't suppose he will ever be in our bedroom again.
I can't even begin to think about after.
Day by day, hour by hour, minute by minute.

OP posts:
AFawnDawn · 18/03/2017 22:46

Oh chasing you poor soul. You are doing so, so well. Your DH must know you love him very much. Much love to you and yours xx

myrtleWilson · 18/03/2017 22:50

Am thinking of you chasing - the Macmillan sitters we had with my mother were amazing and I (and other family members on their shifts) felt able to sleep knowing that someone was there alert and would wake me if needed but also let me sleep as I/you do need it.. Much love x

CiderwithBuda · 18/03/2017 22:58

I'm so sad for you Chasing. Thinking of you and your DH. Flowers

SuperMoonIsKeepingMeUpToo · 18/03/2017 22:58

Thinking of you both. I'm so, so sorry.

notapizzaeater · 18/03/2017 23:04

Nothing I can say will help, but I'm thinking of you both x

mineofuselessinformation · 18/03/2017 23:05

I've lurked for so long on your thread.
My experience doesn't come close to yours, but might help.
My dad died a few months ago (from
cancer, but it was an unstoppable bleed in his gut that caused the end).

In my personal opinion, a syringe driver is a wonderful thing. It allows someone to slip peacefully and calmly away.
That is what happened for my dad.
Say what you want to say to him - the time may be near, or further away, but know this - he will be peaceful now.
Sending you strength in this terrible time. My thoughts are truly with you.
No-one wants to let go of someone they love. Flowers

Blossomdeary · 18/03/2017 23:07

I can only say that my thoughts are with you. Flowers

Sidge · 18/03/2017 23:20

Thinking of you Chasing.

Wishing you peace, love and strength as you share these final precious moments. 🌷🌷🌸🌸💐💐 xx

Chasingsquirrels · 19/03/2017 07:48

Bugger - the electricity has gone off. I couldn't connect to the WiFi and then got a text to say unscheduled power outage.
Arrgghh

OP posts:
Chasingsquirrels · 19/03/2017 07:48

And as I posted that it came back on!

OP posts:
SuperMoonIsKeepingMeUpToo · 19/03/2017 08:20

Glad that it came back on - that's the last thing you need!

How were your nights?

Polyanthus · 19/03/2017 08:49

Flowers Flowers Flowers Holding you and your dh in my thoughts.

angeldiver · 19/03/2017 08:52

Flowers thinking of you at this sad time.
Life can be truly shit at times Sad

smartiecake · 19/03/2017 09:46

Your words are so moving and the love you have for your DH is so strong and clear.
Sending hugs and handholding. Thinking of you all. Flowers

2boytrouble · 19/03/2017 11:34

I am so very sorry for all this! My heart aches for you all! Xxx

Chasingsquirrels · 19/03/2017 16:38

I slept okay, woke up about 5am then dozed for an hour or so and got up to relive Hospice@Home lady at 6.30.

Dh slept reasonably well, woke up on and off for sips of water etc. Then woke @11am with dreadful headache. Had some oramorph which did nothing so I called district nurse team and GP, GP came out and gave a diamorphine shot and wrote up an increase in the syringe meds, DN has just been and replaced that. DH pretty much zonked out after the diamorphine shot.

My mum stayed the night, took the boys over to hers around 11am and is bringing them back later with my dad and making tea here. Then she'll stay the night again. Have I mentioned my mum is wonderful.

A year ago we were just telling out families that we'd decided to get married. Now he's bloody dying. Fuck Fuck Fuck.

OP posts: