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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
HumphreyCobblers · 19/03/2017 16:44

oh Chasing Sad

I am so sorry.

Glad you got a bit of sleep.

FiveGoMadInDorset · 19/03/2017 17:44

Your Mum sounds amazing xxx

mememememememmeem · 19/03/2017 18:26

Thinking of you FlowersFlowers

Hooleywhipper · 19/03/2017 20:04

Flowers I have been reading your thread & thinking of you so much. I just have no words OP

Isadora2007 · 19/03/2017 20:17

Sorry I have no words that can help you or make you feel better or take this pain away for you both.
I'm just so very sorry you (both) are going through this. Flowers

ofudginghell · 19/03/2017 20:59

I just wanted to say that I'm following your thread like all the other posters here and sending all my thoughts your way.
I can't imagine what you and your family are going through and it must be stuff of your worst nightmares but the way you are handling it all simply amazes me.
I'm sure I'm not the only one here that thinks that.
I hope you all get some sleep tonight xx

Findingthissohard · 19/03/2017 22:47

Chasing, thinking of you and your DH so much.

I'm glad he is downstairs and they are keeping him comfortable most of the time. Your mum sounds amazing as do your DS.

I'm answering your question and I'm hoping I'm not being insensitive. But yes they did remove my husband's tumour in a13hr surgery. They did think he also had a secondary but it turned out not to be. We had a month of thinking it was and that was horrendous and exhausting. It really is a horrible cancer

I hope you get some sleep tonight and that DH has a peaceful night too. And that tomorrow you have time together and more gentle hugs. Take care of yourselves x

Chasingsquirrels · 19/03/2017 22:52

Dh has been much more settled & importantly no pain after the shot of diamorphine and then increased dosage in the pump.
He's been choking a bit on sips of water so I've been giving him ice chips, and then frozen some bitter lemon for him and smashed that into chips to suck on.
He was pretty zonked through the afternoon but woke for a short while and a couple of his friends were here and chatted to him.
His sister & husband came over with his mum & son just after my mum left with the boys and brought pizzas for lunch. They stayed most of the day until my parents brought the boys back.
Then his son came back over with his daughter for an hour this evening as she was working today and he was awake for most of that - so that was good.
Hospice@Home here now and we are all to bed (too late for my youngest!).

The GP has been wonderful, it's not the GP he's seen throughout who I can't fault either (she's away for the weekend), but DH saw him a couple of weeks ago as an emergency appointment and regular GP asked him to do a phone check on DH on Fri as she was away. As things had worsened he did a home visit Fri and gave me his mobile no. I called him Sat morning as things had worsened again overnight and he's phoned me to check how things are twice a day, then when the diamorphine needed increasing over what was written in the chart he came round and wrote that up and gave DH the shot as well.
He's not on call, so didn't need to do any of that, and ringing the oncall doctors just takes so long for anything to happen.

Night all.

OP posts:
Chasingsquirrels · 19/03/2017 22:55

@Finding - xposted. Your DH was so lucky (not lucky to get it, but you know what I mean) that they caught it early enough to be able to operate. The 5 year survival rates are horrendous. Must have been very rough for both of you. So good to know there are people getting through it. And hopefully treatment improving all the time. Thanks for posting x.

OP posts:
ImperialBlether · 19/03/2017 22:56

Hiya ChasingSquirrels. I've not posted before on your thread but I just wanted to say how sorry I am that he's so ill. It's so sad. I'm thinking of you and your family and wish him peace in his last days. I'm so glad you've got your mum to help you.

Flowers
DramaAlpaca · 19/03/2017 23:01

Wishing you and your DH a peaceful night Chasing

HeartsTrumpDiamonds · 19/03/2017 23:30

Chasing I'm so sorry.

Flowers for your DH and you. I hope he is not in too much pain.

BusterGonad · 20/03/2017 05:45

Good morning Chasing, I've been reading your thread, half last night and the rest this morning, it's literally made me cry, I happened to come across it as my husbands friend as just been diagnosed with esophageal cancer with secondaries and I was looking for more information about it, goodness, it's a terrible cancer. I hope your DH is feeling comfortable, I know it's probably not very comforting but it has helped me to prepare for when my husband gets to visit his friend. We are not currently in the same country as his dear friend, hence why I was looking for more insight. I hope you and your DH get to make some lovely memories today, you sound like a wonderful wife and he a wonderful husband. 🌷🌸

ChippingInLovesWoollyHugs · 20/03/2017 06:48

Morning, I hope you managed to get some sleep.

The GP's both sound great, it makes such a huge difference to know they're there for you.

Your Mum really does sound so lovely. You're lucky to have each other 💐

I hope DH has a settled day and you can have some gentle hugs xx

AFawnDawn · 20/03/2017 13:19

Hi Squirrels, just stopping by to see how you are. Hope you both managed to rest and you're having a peaceful morning.

Thank goodness for lovely mums Flowers

fanniboz · 21/03/2017 08:12

Thinking of you all Flowers

Chasingsquirrels · 21/03/2017 08:53

He's mainly just sedated now. Waking to move around the bed or for a drop of water.
I put a sofa next to his bed and slept with him last night so that I could help him. There wasn't a hospice@home sitter but I wouldn't have left him anyway.

OP posts:
BusterGonad · 21/03/2017 09:31

I'm so sorry Chasing, I hope you DH isn't suffering too much. My heart bleeds for you.

MoreThanUs · 21/03/2017 09:39

Thinking of you. So desparately sad to read your updates.

DramaAlpaca · 21/03/2017 10:02

Thinking of you Chasing. Look after yourself too x

Oogle · 21/03/2017 10:05

Thinking of you and your family Chasing xx

MyGastIsFlabbered · 21/03/2017 11:15

Oh Squirrels this must be heartbreaking for you. Have a big unMNy hug Flowers

Hooleywhipper · 21/03/2017 11:55

Thoughts are with you Squirrels xx

Findingthissohard · 21/03/2017 13:45

Thinking of you all xx

MrsMozart · 21/03/2017 14:23

Thinking of you all lass xx