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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
Startoftheyear2017 · 22/03/2017 23:16

RIP John. Love and hugs you Chasing.

MirandaWest · 22/03/2017 23:23

I'm so sorry to hear that John has died. Sending love to you and your family x

WhatWouldLeslieKnopeDo · 22/03/2017 23:30

I am so sorry for your loss. Sending love to you all Flowers

thesunwillout · 22/03/2017 23:30

Just wanted to say I am so sorry for the loss of your husband John. X

MrTCakes · 22/03/2017 23:32

My condolences Chasing

TheFairyCaravan · 22/03/2017 23:52

I'm so sorry Squirrels

RIP John 💐

TheFormidableMrsC · 23/03/2017 00:01

Chasing, I extend my deepest condolences for the loss of John. I only recently came across your thread and it caught my eye because I lost my Mum to the same cancer. She was 60 years old. Like John did with you, she died at home in my Dad's arms. I know that as the years have passed that gave him a huge amount of comfort, I do hope the same for you in time.

Rest in Peace John Flowers

pinkbraces · 23/03/2017 00:13

So sorry for your loss. RIP John Flowers

Lynnm63 · 23/03/2017 00:24

So sorry for your loss Chasing. RIP John 💐

kohl · 23/03/2017 00:25

I'm so very sorry, Chasing. You have been amazingly courageous & loving.

AcrossthePond55 · 23/03/2017 00:46

DH and I lost a very dear friend to eosophageal cancer. My condolences to you and your family in the loss of your John. May he RIP.

Tequilamockinbird · 23/03/2017 07:05

So, so sorry for your loss Chasing

RIP John.

You're all in my thoughts Flowers

AuntieStella · 23/03/2017 07:08
Flowers
LIZS · 23/03/2017 07:10

So sorry for your loss. Cancer is desperately unfair and undiscriminating. Take care of yourself and your dc.

paintingandfilling · 23/03/2017 07:12

So sorry for your loss. 🌺

AFawnDawn · 23/03/2017 07:17

Oh squirrels, I am so very sorry that John has died. You did your very best for him and he died at home surrounded by love. Remember that. You sound like you have a great support network around you. Let your family and friends take care of you. xx

samsonthecat · 23/03/2017 07:26

I'm so sorry for your loss xx

Frazzled2207 · 23/03/2017 07:38

I'm so sorry for your loss. Thinking of you and your family xx
It sounds like you have raised some fabulous sons who will be some comfort to you I hope x

wineapotamus · 23/03/2017 08:07

I'm so so sorry for your loss.

ChippingInLovesWoollyHugs · 23/03/2017 10:08

I hope you managed to get some sleep. Try to keep drinking and eat a little something, you might not want it, but it will help a bit, though I'm not sure you need my nagging as I'm sure your Mum & Dad are there saying the same thing. Big hugs xx

Chasingsquirrels · 23/03/2017 12:11

Thank you all for posting.

When John was in hospital last spring, then when we were able to go ahead with our wedding as planned on 1st June, there were so many lovely messages posted to me on mumsnet. And now so many more.
Unfortunately I think I posted the wedding thread in Chat so it is long gone.

My boys came home after school and my mum and dad stayed the night. Mum sent dad to the chippy and I ate well - I'd been overeating last week with making puddings as John loved sweet things and he was so so thin at the end and I just wanted to make him things he'd eat, so I'd had a mini-fast day on Friday but since then with everything I've eaten very little. Definitely will have made up for the puddings last week, and more.

I slept well. Both boys came to bed with me and cuddled and cried, then both went to their own rooms. Ds2 gave me one of his teddies to cuddle. Then came and cuddled with me this morning.

I've got John's wedding ring on my thumb - but it's too big. We didn't get it in time for the wedding (nor mine). We'd decided to marry Christmas 2015, told our families Easter 2016 and set the date for 1 June. But then early April he started feeling unwell and everything spiraled out of control. He was in hospital from 13 - 25 May, he was unable to swallow and they failed to fit a feeding tube, put a line in to feed him and eventually fitted a throat stent then did the first round of chemo. I didn't know until we were actually on our way to the registrar office on 1 June whether he'd be well enough to go through with it. So while the ceremony itself was what we'd wanted and planned before hand, none of the extras were sorted.

We had a very private relationship and it was always enough for both of us just to be together, but there are so so many people from his life before me, and colleagues, and clients - who were friends as much as clients, who knew and liked and loved him.

I don't have enough pictures of him. This was on our wedding day.

DH's cancer progression - DH has died [title edited at request of OP]
OP posts:
Sidge · 23/03/2017 12:18

Thank you for sharing that beautiful picture Chasing - so much love and tenderness shines out to me. I can see how you look at each other how much love you shared. That is precious and I'm hoping that through your heartache you can hold on to that memory.

Universitychallenging · 23/03/2017 12:20

I am so so sorry for the loss of John chasing much love to you and your dc. Flowers

WhatWouldLeslieKnopeDo · 23/03/2017 12:21

What an absolutely beautiful photo. It must have been a bittersweet day with his diagnosis, but you both look so very happy and in love Flowers

bookbook · 23/03/2017 12:22

a gorgeous picture Chasing Flowers