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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
MollyHuaCha · 23/03/2017 12:23

Beautiful photograph.

Rest In Peace John.


daisychain01 · 23/03/2017 12:27

So very sad for your loss Squirrels nothing can possibly take away the seering pain but you will come to a point when that will mellow and all the memories will sustain you from your beautiful love with John You clearly made each other extremely happy.

iklboo · 23/03/2017 12:27

So sorry for your loss Chasing. Love to you & yours.

RIP John.

VintagePerfumista · 23/03/2017 12:31

Much love Squirrels. Flowers

BumWad · 23/03/2017 12:48

What a lovely photo Smile

RIP John 💐

LarkDescending · 23/03/2017 12:55

I am so sorry that you have lost your beloved John. Thank you for sharing your beautiful wedding photograph. Thinking of you all Flowers

Chasingsquirrels · 23/03/2017 13:00

I used to worry about posting on bereavement threads, not knowing what to say and thinking nothing I could say would help, and that others said it so much better than me.
Now I know better - every single post, from the shortest to the longest, matters to me.
I've just read back through the whole thread with tears pouring down my face as I've gone through the last month or so. I'm glad I've got this and I'll definitely be saving it.
I was going to post a picture of our wedding party but haven't got one on my phone. I'll find one and post it later.

Thank you to everyone who has posted, or even just had us in your thoughts and not posted.

Xx

OP posts:
HeyRoly · 23/03/2017 13:02

So sorry Chasing. It's been so sad to read your story these past few weeks, but your words are so full of love.

ajandjjmum · 23/03/2017 13:05

Beautiful photograph Squirrels - you can see the love between yourself and John.

Take care of yourself.

hellsbells99 · 23/03/2017 13:07

Sorry for your loss Squirrels. Look after yourself Flowers

ChristopherWren · 23/03/2017 13:08

Am so sorry to hear that you have lost John. Thinking of you x

Note3 · 23/03/2017 13:10

That is such a beautiful photo. He looked like a lovely man and you both look very happy and in love. I'm so sorry for your loss Flowers

MrsMozart · 23/03/2017 13:15

A beautiful picture. Such love in both faces xxx

Polyanthus · 23/03/2017 13:16

That is such a beautiful, beautiful picture, you can see the love you shared.

I'm so very sorry for your loss and am thinking of you, John and your family.

SorrelForbes · 23/03/2017 13:20

What a beautiful photographs. Such happiness and love.
x

DramaAlpaca · 23/03/2017 13:53

Thank you for sharing your beautiful wedding photo. It's clear how happy you were & how much you loved each other.

Sending much love to you x

Boygirlmummy · 23/03/2017 13:56

I am so sorry squirrels Thank you for sharing your story with us, that photo is beautiful. You are the most amazing wife, and John would have found great comfort being in your arms.

Rest in peace John.

Heartfelt hugs for you and yours x

Willowkins · 23/03/2017 14:00

I'm so sorry for your loss. I have learned a lot from your posts so thank you for having the courage to share. You both look happy in that photo and I think you made the right decision to make the most of your time together. Flowers

allwornout0 · 23/03/2017 14:05

I'm so sorry, I just saw your thread.
What a beautiful wedding photograph. Always remember that the love you both share will never end.

Groovester · 23/03/2017 14:07

Very sorry for your loss chasing - love pours out of that photograph. Life is cruel at times. Take comfort in the fact that John is no longer suffering and be kind to yourself xxx

ChippingInLovesWoollyHugs · 23/03/2017 14:07

That's a lovely photo of you & John, so much love 🌹

I remember your wedding thread too, it's a shame it was in chat, but it's inside you - the strength & love you were sent from MNers then, and now.

With John's ring, you could get a chain & wear it around your neck, it'll be a bit safer there and close to your heart xx.

I'm glad you ate well last night, keep drinking & nibbling.

FiveGoMadInDorset · 23/03/2017 14:22

Such a lovely photo of you and John xx

Lucienandjean · 23/03/2017 14:34

What a lovely photo! I'm so sorry you have lost him, but also glad for you that you found him, and loved him, and that he loved you.

Ehsamy · 23/03/2017 14:36

Gorgeous couple. Thanks, squirrels, for sharing that photo of you and John with us.

2017SoFarSoGood · 23/03/2017 14:38

That picture. It's like there's a river of love flowing from and to each of you. It was there in every one of your posts. I feel so honored to have been a tiny (stranger) speck in the story, and shall stay here for you to lean on, as you need me.

Your boys are so fortunate they have the model of what a true love looks like. What a gift you and John have given them.