Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Needles and Neutrophils: The Hobnob Chronicles

999 replies

biscuitsandbandages · 11/05/2014 07:15

Four weeks today I woke in my own bed with my 8 week old daughter in my arms and waited for the inevitable sounds of approaching 4 and 6 year old boys. I had everything I had every dreamed of. Life was difficult and tiring but we were getting there and I had plans for the summer and dreams for our family's future together.

Twelve hours later I was on CCU plugged into a monitor with fluid around my heart secondary to a diagnosis of adult T cell acute lymphoblastic leukaemia. I've not been home since.

Statistically my chances aren't great but statistics don't apply to individuals and leukaemia hasn't met me before. My personal survival statistics calculated by me and based on stubbornness, amazing support from family, friends and my mumsnet backup crew and the healing powers of 3 small children are 100% and I won't accept less.

I have superpowers. I have grown three entire human beings. Piddly little leukaemic cells haven't got a hope.

But.....at times I am very scared. This should not be happening to me. It's was not how I planned to spend my maternity leave. My precious year when I was just going to be their mum and nothing else.

This is my second thread but I'm not going to link back as I'm moving forward. Thank you for moving forward with me.

Biscuits x

OP posts:
Thread gallery
7
Swex · 21/07/2014 20:43

Evening all.

Just a quick message from biscuits to say she's just having a rubbish day with lots of sickness. But tomorrow will be a better day.

I for one hope tomorrow is a million times better for her.

HypodeemicNerdle · 21/07/2014 20:50

Oh no, poor biscuits

Thank you swex for letting us know

Here's hoping it's a very short lived side effect and that tomorrow is much better

biscuitsandbandages · 21/07/2014 20:58

Thanks swex. Antisickness meds are working a bit better now and im keeping fluids down.
Tomorrow will be a day for trying a biscuit with my cuppa ;-)

OP posts:
allisgood1 · 21/07/2014 21:04

Yay for powerful anti-sickness meds!!!

Baddderz · 21/07/2014 21:08

Great news x

Aethelfleda · 21/07/2014 21:58

Yay biscuits! Still rooting for you.

LEMmingaround · 21/07/2014 22:16

Hang on in there biscuits - will it be a chocolate digestive (plain chocolate of course) or a rich tea?

AWombWithoutARoof · 22/07/2014 07:11

Good stuff Biscuits, glad the nausea has subsided. Keep going. Flowers

Legionofboom · 22/07/2014 07:54

Good news biscuits. I hope today is much better for you.

Enjoy your Brew and lots of Biscuit Biscuit Biscuit

Will they be hobnobs?

Mumsfret · 22/07/2014 10:20

Hope Biscuits is feeling UP & the biscuits are going down, today! BrewBiscuit
X

biscuitsandbandages · 22/07/2014 15:13

Eugh... it was a chocolate chip maryland :-) vur that's all that's gone down.

How can the sickness still be here?
I probably am better since ive dropped one of the anti sickness meds (trying to manage without to avoid side effects) but I feel like im 8 weeks pregnant and just lying on the bed not moving...

OP posts:
Legionofboom · 22/07/2014 15:28

Oh poor you Sad It's grim feeling like that especially in the heat.

I hope it's not too hot where you are.

Surely the sickness must subside soon.

StillProcrastinating · 22/07/2014 21:01

To be honest I've never understood the biscuits in hospital. They were the last thing I fancied post ops. In this heat maybe an ice pop? Or just plain buttered toast? Hope you can think of something that you would like / be able to eat, and that someone can find it for you!

Another day nearly about to be ticked off, keep it up, you're doing great.

magimedi · 22/07/2014 22:32

Just popping in to say 'Hi'.

Keep going, biscuits - you are inspirational & we are all here.

catsrus · 23/07/2014 00:31

Lots of us still here biscuits (even though a bit quiet) checking in and cheering you on Smile

FarelyKnuts · 23/07/2014 07:54

Still here. Still cheering you on. You are a champ Biscuits. Thoughts and care and all good things to you.
Stay stale my friend

biscuitsandbandages · 23/07/2014 10:13

Ok its T minus 23 days to baby Rs half birthday and im planning a mini escape.

I figure if my neutrophils are more than 0.5 abd I manage to keep breakfast (cherry juice and homemade chocolate brownie) down im in with a chance of petitioning for a few hours home leave. Yesterday I was too sick. Tomorrow if my neutrophils arent already battered today they will be tomorrow but I reckon today there is a chance of window of opportunity.

Now stay down breakfast!

OP posts:
Mumsfret · 23/07/2014 10:28

Stay down cherry juice! Settle chocolate brownie! Remain stable neutrophils!

Everything crossed, biscuits.

LEMmingaround · 23/07/2014 10:54

Cheering you on to hold on to breakfast xx

saffronwblue · 23/07/2014 10:57

Fingers crossed for home leave!

biscuitsandbandages · 23/07/2014 11:34

Devastated.
Neutrophils are 0.3
I cant go home.
Shouldnt have got my hopes up.
Sad

OP posts:
Mumsfret · 23/07/2014 11:40

Devastated for you biscuits Sad

You'll get there soon

Legionofboom · 23/07/2014 11:56

Oh no biscuits! Sad

So sorry you can't go home for a few hours.

You'll be back there soon. Keep going strong lady x

biscuitsandbandages · 23/07/2014 12:16

I wantednto put the boys to bed after playing and cuddle them and then before I came back I could wrap their eid presents for next week Sad

OP posts:
Mumsfret · 23/07/2014 13:00

They're so lucky to have a mum that contemplates buying eid presents, let alone wrapping them, given what she's going through. Wondermum! I'm sorry it hasn't worked out as you had hoped, this time. Perhaps Mr biscuits can bring gifts & wrapping stuff in for you to do there? And next Eid-al-Fitr (is that right?) I sincerely hope the picture is very different, with you at home on the Mothership Smile