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Original poster

Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
Mumsfret · 07/05/2014 18:54

This has made my day! I am rooting for you to get home Biscuits. Come on bloods! Grin

Theonlyoneiknow · 07/05/2014 19:50

That is amazing news, I feel quite teary. Go biscuits!!!!

pigsinmud · 07/05/2014 19:55

Oh wow! Fingers crossed for you!

IwishIwasmoreorganised · 07/05/2014 20:01

What a great update!

Fingers crossed that your bloods are good enough to get you home sooner rather than later.

Spinaroo · 07/05/2014 20:13

Just checking in and see there has been a storm of activity ??. As Mumsfret has said, it is important for all of us to hear about the reality of what you are going through- Blondepip and deserttrek, thank you. It is hard sometimes to try to say the right words so that they don't seem like simple platitudes. I know and you know that I will post here and then get on with work, kids etc. - but please know that I- and I am sure all us- think of you often through the day and have taken something from this thread that will stay with us long after you are well.

Delighted that there is the possibility of some time at home in the near future- just what you need to set you up well for the next stage. Will check in again before bed xxx

Booboostoo · 07/05/2014 20:37

Wonderful news! Hope you are allowed back home in no time.

TelephoneTree · 07/05/2014 20:58

oh my god that's bloody brilliant news!!!

Mama1980 · 07/05/2014 21:02

Great news! Grin I have everything crossed for you! X

riskit4abiskit · 07/05/2014 22:01

yippee! being home would be great, hope you get there soon. you will soon be reacquainted with baby related wakings in the night but you know what? I don't think you'll mind! (for a few weeks at least!).

Fideline987654321 · 07/05/2014 23:27

Crossing my fingers Smile

onedev · 08/05/2014 01:12

Only just seen your thread - your strength is amazing & your family sound beautiful. Wishing you all the very best & hoping you get to go home soon. You can do this & from reading your words on this thread, I'm in no doubt you will.

Original poster
biscuitsandbandages · 08/05/2014 08:43

I've been lucky to have great friends and a good team of doctors and nurses. DH has been amazing and all my family have pulled round unasked. To have this safe space to rant has kept me sane and your support and the good advice from people who have been where I have been is invaluable.

I'm day 23 of 28 today 28 being the first 4 weeks (phase 1 induction) of chemo. Still feeling well and only another 5 days before I can start reducing the steroids which I am keen to do.

I'm a daunted by the gap between phase 1 and 2. The idea is to let my body and blood counts recover sufficiently to cope with phase 2 and to allow the cell levels in the bone marrow to rise enough for a meaningful test of what percentage are still cancerous.

.......but it still feels worrying to have cancer and not be actively taking medication to kill it even if only for a week or so....

I'm trusting they know what they doing but it feels weird.

Today is going to be a good day though. I have crotchet to do as I promised a friend I would make her a smiley face ball so it's a goal...

OP posts:
Panicmode1 · 08/05/2014 08:55

Fingers crossed for home leave, what a lovely thought to keep you going through the chemo.

Good luck with the crochet today!

ajandjjmum · 08/05/2014 09:51

Enjoy making your smiley ball!

Just checking in - as I do morning and evening - to see how you're doing Biscuits. Like many, many other mumsnetters.

Happy to listen to you vent, even happier when you have a good day!

AWombWithoutARoof · 08/05/2014 09:56

Yes, my good mate whose husband is having chemo also feels like that in the gaps. She too has to just accept that they know what they're doing.

Rather than looking at it as inertia can you think of it as a period of gathering strength and preparation? Would that help you feel more empowered?

Original poster
biscuitsandbandages · 08/05/2014 15:18

Yes I'm hoping to be at home eating good food and resting ready for the next stage........ And it sounds like it won't be a long break.... They are going to do my bone marrow next week! Eek! And then we will know if it's working or not :-)

(Please let me be in remission please let me be in remission, I'm so scared but I'm trying not to be)

And having just had the ward round visit, after next week, if my neutrophils go >0.4 I'm allowed home :-) 0.1 today... Come on neutrophils!

OP posts:
AWombWithoutARoof · 08/05/2014 15:56

So, day 28 is in 5 days, and they're going to test your BM pretty much straight afterwards? That's great, they're motoring along.

Come on neutrophils indeed. Smile

nearlyreadyforstatelyhomes · 08/05/2014 20:46

I can totally see how you'd feel exposed when having a gap - but - those drugs are fairly fierce, and I imagine take a long time to fully leave your system though am thinking back to school drug talks when the local copper told us it was 3 months before cannabis left your hair after even just one puff on a joint, so feel free to ignore and that your body is a wondrous thing (you've produced 3 wonderful little humans!) and needs a bit of time to take in and use the assistance of the chemo. I guess maybe think of it like a power nap - time to recharge.

Am rooting for your neutrophils!!!

onedev · 08/05/2014 21:33

Go neutrophils! You're doing such a fab job - keeping everything crossed for you.

IwishIwasmoreorganised · 08/05/2014 22:09

Wow! Your team must have noticed that you're ready and feeling willing and able to kick this leukaemia into touch. They're pushing on at a fantastic rate.

come on neutrophils!

HypodeemicNerdle · 08/05/2014 22:45

Go neutrophils go!

Why is there no pompom smiley? We need pom-poms to wave

FarelyKnuts · 08/05/2014 22:46

C'mon neutrophils! Great news about shore leave possibility Biscuits. Fingers crossed and continued thoughts and positivity winging it's way across the ocean to you

Spinaroo · 08/05/2014 23:10

Fantastic news, Biscuits! In a week's time you could be home. Sending lots of prayers that you are in remission xxx

Mama1980 · 08/05/2014 23:12

C'mon neutrophils!
Still here cheering you on and Sending more positive thoughts and wishes.
x

Original poster
biscuitsandbandages · 08/05/2014 23:13

The date for the bone marrow is making me nervous.... Partly for the proceed..... 3 kids with gas and air and I would have them all at the same time rather than go through the pain of a BMT. But mainly for the result. I want them to do it... I neeeed to know if I'm the 1/10 who they can't get into remission. I'm too scared of the possibility to let my brain accept a chance of remission. I'm positive if I don't think too deeply but the date is making my brain to there.. In less than 10 days I will know if I'm potential fixable or basically screwedand until then there is no way to get even a clue.

OP posts: