Morning everyone, just catching up on messages so apologies if I miss anything.
@Swirls346 I’m really sorry this has happened, it’s really tough to have a glimpse of hope and then have it snatched away from you. When you talk about being referred, would it be through the NHS? I’m not completely sure of all the rules surrounding it as I was too old to be able to access treatment that way so we went private from the start. Plus I know it’s a postcode lottery anyway. If you can be referred through them, I wouldn’t see the harm in starting the ball rolling with that alongside trying naturally. Then at least you’ll feel like you’re doing something about it, which I always find helps me.
Thanks @Eggling that’s helpful. My vague plan is to ask my doctor about the pros and cons of a hysteroscopy and maybe risk some Googling! I sometimes think I don’t ask enough questions but I’m getting to the stage where I don’t care about being an awkward patient, after all, we’re paying enough money for all this 🤦♀️ Hope you’re ok, I know this is the really tough bit with symptom spotting etc, but you’ve got this and we’re all really rooting for you.
Yes definitely @TTC6, I always cope better if I feel that we’ve got a plan and we’re moving forward. It turns out that my clinic will let me do back to back transfers, I wasn’t sure as I only started with them in the last few months. I’ve asked to go back to the protocol that worked with my son which is 3 x 2mg Progynova, 5mg Prednisolone, 1 Clexane from CD1 and then adding 2 x 400mg Cyclogest and 1 Lubion 5 days before transfer. Plus the Prednisolone ups to 10mg for a week on transfer day.
This is actually more progesterone than my successful transfer but I can’t bring myself to lower it as my levels were 48nmol with that dosage and I know some people have it much higher.
Plus I had that ERA test in July and it said I was pre receptive so we moved the progesterone timing forward a day last time. I’ve had a niggling worry about that as obvs I had a successful transfer (plus a second positive beta hcg last year but then started bleeding at 5/6 weeks) with the original timing. Doctors seem to disagree with the validity of the test so I feel happier going back to the original timing. Who knows?!
I’m not sure if we’re doing the right thing or not but I’ve read a lot of positive things about sticking to a successful protocol and I suppose it all ties in with the numbers game theory.
I know what you mean about all the different names! Progynova and Cyclogest are just estradiol and progesterone so those are all the same I think. The Prednisolone is a steroid and Clexane a blood thinner. My first clinic in Prague prescribed those to me empirically (the Pred is a v low dose) and another clinic that I spoke to in Greece questioned whether I needed them as I’ve never been tested for immune issues or blood clotting issues. Another case of all the doctors disagreeing! When I went to see the consultant in London about my c section scar, he said he would be throwing the kitchen sink at it, given my age, so I’m just choosing to follow his advice, and my doctor in Barcelona at the new clinic is happy to go along with that. She just wants me to have a hysteroscopy whereas he said I didn’t need one, so they don’t agree completely 🤦♀️😂
I’m not sure if you know that we’re using donor eggs (so many posts on this thread and a lot of us to keep up with) so that means my treatment has been slightly different. I’ve never had an egg collection as I was advised against it when we started (I was 45 and my AMH was 2.32), so it has always been a case of FETs plus one fresh transfer. I do sometimes wonder if we could have pushed back and tried with my own eggs, but we love our little boy so much, I wouldn’t want to change anything that would mean we didn’t have him, if that makes sense. I suppose I’m fortunate in that since we started IVF, I haven’t had to worry about my own eggs - although I spent many years worrying about that before I met my fiancé! I just have the worries about there being a time limit on treatment, I’m 49 now so I hit the age limit for the Czech Republic earlier in the year, hence moving to a Spanish clinic. I haven’t come across any negativity from doctors, it’s just that I know my Mum, who is very supportive and loving, wants us to stop and ‘enjoy our one little miracle’ in the words of your consultant! She thinks I’m too old and worries what it’s doing to my body. I feel absolutely fine and had a trouble free pregnancy with my son, but it’s an added stress to cope with as I don’t want to worry my parents. I’m just the same as the rest of us, we want our son to have a sibling and that desire is so strong, I think the only things that would stop us trying would be money, age limits or health problems. So for now we’re ploughing on!
@loulamay we have 2 frosties left. My vague plan is to hopefully transfer another one at the end of this month and then if that doesn’t work, have this hysteroscopy hopefully Nov/Dec time and then we’ve still got one left for early next year, obviously depending on results. You just never know what the next bump in the road will be, do you?! It’s hard to juggle it all with work, but I think it’ll fit in that way - I’m just trying not to worry about what could go wrong and scupper it all, and just take one day at a time! My period started on Saturday morning so I’ve started the meds, not great timing in terms of clinic communications but I’ve booked two scans at Ultrasound Direct for Sun and Mon so I can cancel one of them with 48 hours notice. The weekend team said I should have a scan on the Mon so I can send the results to my doctor but that’ll be day 10 in the afternoon (all I can get), so I thought surely it would be better to do it on day 9 Sunday as they say day 7-9, and I’m fully prepared to have to wait a day to find out the verdict from my doctor. Anyway they’ll be there today so hopefully I’ll find out soon and I can cancel one. I feel another email coming on 😂 x