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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

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IVF at Guy's & St. Thomas' & general process/timeline part 2

996 replies

HereToLearnAndShare · 28/06/2021 14:16

This is a continuation from IVF at Guy's & St. Thomas' & general process/timeline discussion

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morganablue · 29/06/2021 14:12

@Etonmess20 sorry, that sucks. I also had big misunderstanding in communication all along. It's not us.
A tip if your periods are regular, is to reply by email with your predicted periods dates for July, August (and September just in case). If you saw them on 7/5, what they really mean is cycle not month, so 2-3 cycles. It sounds like July is gone and you will start as soon as August, do you have any chance to take a little weekend staycation? I was going completely crazy in the wait, as I had in mind my predicted periods and really getting so frustrated they were missing them, so I took 2 days In Tenby and it was lush.
Also, I have been followed by an amazing nutritionist who is expert in fertility, and she gave me load of tips to boost eggs health (and sperm too), I am happy to share here if it can keep you distracted.
So sorry today is so difficult.

Etonmess20 · 29/06/2021 14:17

@morganablue I get that they don't want to give people dates & then have to change them but my issue is don't say a couple of weeks if it isn't going to be a couple of weeks. Next week it will have been 2 months so can't be too much longer you wouldn't have thought, I just feel so frustrated with it all. Not helped when they use misleading language in their emails then have the cheeky to be stroppy with you!
We're actually going away to Edinburgh on Friday for a long weekend so that'll take my mind off things hopefully.

HereToLearnAndShare · 29/06/2021 14:29

@Etonmess20 @Vparisi I have just received similar response. What is +/- 2 weeks mean?
-2 weeks means now doesnt it 😂

IVF at Guy's & St. Thomas' & general process/timeline part 2
OP posts:
morganablue · 29/06/2021 14:30

@Etonmess20 they don't seem to understand that for us is absolutely everything. Our all lives are put on hold, so it's heartbreaking when getting misleading information. Very sorry this happened to you.
I remember reading on the reviews on line that someone had a BFP and called in to schedule a scan, and she reported staff telling her "wow, it's so early, you are keen!". I mean, we literally need the help of strangers and science to do something that other can do (in a much more pleasant way and without needles) behind closed doors! Thanks Tuck we are bloody keen.
They really should understand.
Sending you loads of positive thoughts

Etonmess20 · 29/06/2021 14:30

@HereToLearnAndShare I mean +/- 2 weeks means absolutely nothing realistically! Any timeframe could be covered by that 🤦🏼‍♀️

morganablue · 29/06/2021 14:32

@HereToLearnAndShare literally means nothing. +- 2 weeks what?

becarefuloutthere · 29/06/2021 14:39

@Etonmess20 omg how bloody infuriating! I would defo respond and say you were chasing up as you were told 2 weeks, 3 weeks ago and now it's changed to months...see what they respond to that!
I'm glad you have a nice weekend planned!
@Vparisi thank you hun, still feels weird but you're 4 weeks when you find out which feels mad considering it's really 2 weeks!
@HereToLearnAndShare erm that makes no sense, they've lost it today! 🙄 🤦🏾‍♀️

Vparisi · 29/06/2021 14:44

@Etonmess20 yes it does basically say eff off! So disappointing. It is a crazy response given they just told you a couple weeks. Hope you are at least in for August. I am jealous you and @HereToLearnAndShare got responses at all, I must really be on the annoying patient list cos I have sent 2 now with no response haha. Also what on earth does +/- 2 weeks mean?! Like could be in 2 weeks could be 2 weeks ago? Lol.

@morganablue that is truly one of the most insensitive things I have heard! "Wow you are keen?!" Yes we are keen as we spend months and months waiting by the phone and changing our life to do something others can do whatever. Caught up with a family friend on the weekend who postponed their wedding til July...they just announced their pregnancy and she said to me we wanted to wait til we were married but now the wedding is postponed we thought we may as well do it now. What a foreign concept it is just being able to decide now is the right time, have sex and it's done. No one including the staff has any idea of the heartbreak we go through. So yeah pretty bloody keen!

Vparisi · 29/06/2021 14:56

and @morganablue yes any nutritional tips would be great! My natural diet is already pretty Mediterranean as I grew up in an Italian family so haven't really changed anything so any tips would be welcome.

@becarefuloutthere wow you are 4 weeks when you find out?! Gosh I had no idea about that at all

becarefuloutthere · 29/06/2021 16:13

@Vparisi yeah it's mad right! They basically add two weeks on to take into account your last month's period. You can't actually count the first day of your last months period when it comes to ivf tho due to the way your cycles are being manipulated, so they just whack two weeks on from EC day. 🤷🏾‍♀️
And the ppl who can just "plan" a pregnancy, bravo to them, smug gits 😂 I have a couple friends like that, one has no idea about our struggle and is constantly asking the other girls when am I having a baby 😡 don't want to tell her we've been ttc for nearly two years and have infertility and have had to do ivf, as it's clearly never occurred to her that we're all not all fertile mertiles like her. Just annoys me. 😒

Vparisi · 29/06/2021 16:54

@becarefuloutthere I definitely learned something new today then! Have you told anyone yet? You must be so excited. It is super annoying when people are thoughtless like that but at least you'll know to be sensitive to anyone you meet whose circumstances you're unaware of!

@Etonmess20 @HereToLearnAndShare I spoke too soon on them not responding as I just got one. Have attached it. I know it is silly to have hope I could still start for my cycle on 12th but I do have a little bit of hope it may be possible now given it is 8 weeks today and will be 10 then. I'm going to be annoying next week and attempt to ask if there is any chance it could happen, even though I know realistically it is unlikely. Seems like good news for you @heretolearnandshare

IVF at Guy's & St. Thomas' & general process/timeline part 2
becarefuloutthere · 29/06/2021 17:04

@Vparisi yeah my family and Dh immediate family know. It's hard to get excited so early on, it's just more anxiety tbh. I'm sure I'll get excited after the 12wk scan. Oh for sure! I'd never dare ask that question again, I'm sure I've done it in the past and never ever again! Makes me cringe thinking bk now. Shows how little infertility is spoken about tho...
It's good to have hope hun, fingers crossed it all works out the way you want! 🤞🏾

Etonmess20 · 29/06/2021 17:23

@Vparisi @HereToLearnAndShare why did I get the rude one reply to me & you both seemed to have far more polite responses. 8-10 weeks also wasn't mentioned in my email🤦🏼‍♀️ I've not even bothered to respond to them because what is the point 🤷🏼‍♀️

GJW2018 · 29/06/2021 17:48

Ladies I feel your frustration! Our time from referral to starting treatment was 2 years … and I still haven’t had an embryo transferred! The only thing that got me anywhere was cc’ing the complaints department and they jumped to it! Could be an idea? They can’t keep giving you all different dates and false hope there should be a clear timetable!
Also congratulations @becarefuloutthere on 6 weeks! So exciting! Grin

HereToLearnAndShare · 29/06/2021 17:59

@becarefuloutthere I think I will be the same - trying not to get too excited until the 12 week scan. This whole process put us in so musch stress and we end up learning about all the riks that may exists, which I assume is not the case with natural conception.
I was telling my partner the other day that he shouldn't get too excited when its time to start the treatment as there are still so many things that could fo wrong with the stim, EC and fertilization. Afterwords I felt I shouldnt have explained that to him as is food to have one of thinking positively 😂

@Vparisi not if this is good news as you can see how unclear the info is. '2 weeks ago?' lol 😂
My period is also due 11th so unless they call me by Mon, there is no chance to start in July 😟

@morganablue I am also interested in the nutrition plan. I had no idea you can help fertility with food.

OP posts:
HereToLearnAndShare · 29/06/2021 18:05

@Etonmess20 we were also planning a long weekend in Edinburgh! 🙃 It was supposed to be this week but we postpone it potentially for next.

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Etonmess20 · 29/06/2021 18:08

@HereToLearnAndShare we were supposed to be going Vegas but with Covid & potentially looming IVF we decided to amend for Edinburgh a couple of months ago. Turns out it was the right decision with US not wanting to let us in anyway! We fly up Friday & fly back Monday - super excited for a break (even if it's only a UK break!)

morganablue · 29/06/2021 19:26

Hi girls, no problem.

Here are the two protocol she gave me to support IVF (we have been working together even before I was on the list):

1st - Preparing for IVF:
Nutrition for egg and sperm health

Egg health:

Foods that need to be included in your diet: -
Omega 3 fatty acids - fish, nuts and seeds and plant oils B Vitamins can be found in the following: -
● Whole grains (brown rice, barley, millet)
● Meat (red meat, poultry, fish)
● Eggs and dairy products (milk, cheese)
● Legumes (beans, lentils)
● Seeds and nuts (sunflower seeds, almonds)
● Dark, leafy vegetables (broccoli, spinach)
● Fruits (citrus fruits, avocados, bananas)

We also want to ensure you are eating a wide variety of brightly coloured vegetables - particularly focussing on Vitamin C.

Vitamin C rich foods are:
● citrus fruit, such as oranges and orange juice. ● peppers.
strawberries.
● blackcurrants.
● broccoli.
● brussels sprouts.
● potatoes.

Selenium is a powerful antioxidant and along with Vitamin C will help mop up the free radicals in your body and reduce oxidative stress on your cells. Remember that your eggs are cells so need protecting! Selenium can be found in Brazil nuts, lean pork, lean chicken, wholewheat pasta, shiitake mushrooms, eggs, brown rice and sunflower seeds. Brazil nuts are the best source though if you like them.
It is important to build your meals around protein. Proteins are the building blocks of every cell in the body. Good sources of protein are fish, chicken, lean meat and vegetables including nuts and seeds. Try having protein with every meal. This will also help you feel full.
It is also important to maintain relatively stable blood sugar levels if you can. Therefore eating regularly is important and trying to keep off the sugar / crash rollercoaster.

Sperm health
● He wants to include plenty of Vitamin C and Vitamin E in his diet as this has been shown to improve the quality of sperm by reducing the free radicals that can cause oxidative damage within the cells.
● Zinc, Fish oil and Selenium are also very good for supporting sperm health.
● Include Vitamin B12 in the diet as this is crucial for sperm motility, sperm county and reduces sperm DNA damage.
● Exercise - not too excess but a reasonable amount of exercise a few times a week would be beneficial.
● There is some research to suggest that wearing looser underwear may also support sperm
health.
● Foods rich in Vitamin C - oranges, red and green peppers, strawberries, broccoli, Brussel sprouts.
● Foods rich in Vitamin E - sunflower seeds, green leafy veg, almonds, avocados, kiwi, olive oil, trout,broccoli.
● Foods rich in Zinc - Wholegrains, milk, oysters, red meat (occasionally!!), chickpeas, cashew nuts,
almonds.
● Salmon, Mackerel, anchovies, sardines and Herring are good sources of Omega 3 fatty acids.
● Foods rich in Vitamin B12 - meat, salmon, cod, milk, cheese and eggs.

morganablue · 29/06/2021 19:29

That was the most complete one. And then

2- during treatment
Focus on recovery after the egg collection and supporting your immune health.

Including foods that are rich in Vitamin C as these are great for immune health - so berries, red peppers, citrus fruits and broccoli.
Vitamin E (along with Vitamin C) are powerful antioxidants and will help protect your cells from oxidative damage and aid recovery - sunflower seeds, almonds, pine nuts, salmon, trout, red peppers, brazil nuts are good sources.
Make sure you are taking Vitamin D
Magnesium will help with stress levels so including leafy green veg, nuts, dark chocolate, avocado, nuts and seeds will all help.

morganablue · 29/06/2021 19:31

Hope this is helpful. It's a balanced nutrition nevertheless, and as Tesco says "every little helps!" Grin

Welshpea · 29/06/2021 20:30

Girls i honestly don't know how to keep up with your messaging! haha Everytime i get a message there's what feels like a 100 🤣🤣🤣lol You are all much better at this chat than I am. I only just figured out that i can read then start to create my message and exit and what i've typed will still be there 🤦🏻‍♀️🤦🏻‍♀️

@Etonmess20 They put me on the pill because I was close to my cycle day 1. I think it does depend on how busy they are and if they are able to but I have regular cycles it just means they move my next period forward by 2 weeks

@morganablue welcome to the guys group! I have my appointment on 5th July to have my scan and hopefully start stims that evening! all becoming very real now - we may be in on the same day!

thislittlebird · 29/06/2021 20:41

@becarefuloutthere I'm so conflicted about private tbh, but I'll see if I can get an idea of timeline and then go from there. The hard part is the cost of one round, rather than two. Because I might have a lot of eggs I'm hoping I'll have a few embryos and it's the embryo transfers that start to add up if you need to keep trying, and then you may as well have two rounds....so it's hard to choose what to do if the wait is long.

@Etonmess20 I'm definitely on the difficult patient blacklist with you after my complaint lol. Hopefully you'll hear something soon.

@Vparisi how long have you been waiting post appointment now?

I got my blood tests from the GP today, at least I can do something and get all my viral screening done. Need to go on day 3-5 to get a day 3 test done too, hopefully can book that in a few days when AF is due, but not exactly sure when that is. The surgery also confirmed my referral is sent off, I'll follow that up in a few days.

Etonmess20 · 29/06/2021 20:44

@Welshpea I thought you'd mentioned that before - good to know they can do it if necessary! Hope everything's good with you

@thislittlebird oh don't, I'm losing the will 🤦🏼‍♀️ pleased for you finally getting somewhere though! Seems like your new GP actually has a brain which is always good!

thislittlebird · 29/06/2021 20:55

I forgot to say that my CCG allows two private "rounds" but obviously there's a lot of misuse of "round" or "cycle" so I would want to clarify if that means transfers. Either way, I'm hesitant to pay for more than one now I have the referral. They may still tell me to go away with my AMH but I hope not.

@Etonmess20 yeah, it's a relief tbh. It was getting me down feeling like I could never speak to a doctor and get any help. This one is decent.

morganablue · 29/06/2021 21:00

@Vparisi @HereToLearnAndShare nutritions protocols are below. I completely forgot to tag, sorry! :)