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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Assisted conception after recurrent miscarriage

1000 replies

duggs1976 · 22/05/2013 19:49

Hey super ovulators and those struggling with infertility after miscarriage this is where we are! Come on over ...

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Arianrhod · 10/07/2013 09:19

I can't read that article brown, it says I have to subscribe to read it? Excellent news about your son, does that mean he's all ok now?

pebbles I have to say, I would get out there and enjoy yourself, 2ww or no 2ww, scratch or no scratch. I'm doubting very much it would have any effect on a fledgling embryo!

Arianrhod · 10/07/2013 11:10

Got it, thanks. I deleted my subscription to the Times ages ago, I didn't feel it was worth the money (highly miffed when they brought in the subscription model, I always read the Times!!).

brownstag · 10/07/2013 11:45

I don't get it either; I was round my grandparents-in-law yesterday where I read it in their paper, looked it up online but didn't scroll down to see the bit asking for subscription.
And yes, thanks, my son has been given the all-clear.
He was never actually ill; in fact healthier than his peers in general, I would say; it was just these enormous visible glands in his neck. I was really worried about lymphoma, which often has swollen glands as the only symptom in the beginning, but the ultrasound showed they were all normal. Hoorah!

Pebbles73 · 11/07/2013 14:18

Thanks ladies, with ivf they always advise not to drink while having treatment and a big no no in the 2ww. I never worry about it when trying naturally as like a glass of vino or two but totally avoid it during ivf.

Have found out my Dad has vascular dementia which means there are lots of little strokes happening all the time which wouldn't necessarily be noticed. It seems he won't be going home and will need to go to a care home. He is worse at the moment due to chest infection so we have to see how he is when it's calmed down. Went to see him yesterday and he was having a good day, he does come out with some random stuff. It's heart breaking particularly when he asks when he can go home.

Want to start ivf end of month but not sure I can cope with that and what's happening with my Dad. You are meant to avoid stress as much as you can, not quite sure how anyone does that though!!

Brown so glad all is ok with your son, you must be so relieved.

Sue to be honest I have always been happy there and Mr Gafar seems to be highly rated. That and the fact he was at ARGC, he seems to do a lot of monitoring in the same way they do. I asked him why he thought they had such high sucsess rates and he said it us down to the monitoring and the laboratory and conditions which a lot of places dont look at closely enough. I have moved around clinics and didn't want to start from scratch again elsewhere.

duggs1976 · 14/07/2013 19:59

Hey pebbles- how has your weekend been ? What beautiful weather if you are relaxing and not working in it. Have you had any more thoughts about when to start IVF?

Did anyone see the pull out in today's observer? About age and fertility and how the stats are based on women from over 150 yrs ago. Anyway, it isn't as doom and gloom as people make out re fertility declining. I'll look to see if it is online.

Hope folk are doing ok?

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lemonsherbet · 15/07/2013 19:00

Sorry not been on here lately. Having lots of Breast feeding issues and was admitted for weight loss and when in hospital my DS stopped breathing. He is doing much better now other than the challenge of breast feeding. I remember that someone asked if he was early on this thread. No he was late. Just they were trying for an inducement and changed their minds at the last stage. I have not caught up on the thread but will try to later. Just wanted to let you know had not forgotten/ abandoned you.

Buzzybee123 · 15/07/2013 19:11

pebbles sorry to hear about your dad, are you and him being supported by your local community services??

lemon that must have been frightening, the worry never ends, glad he is doing better now

ari still thinking of you

brownstag · 16/07/2013 09:31

Lemon, sorry to hear about your son but glad to hear he's better now. As Buzzy says, the worry never ends. Even now at 4 and a half, if I wake in the night, I go to listen to my son's breathing. In my experience breastfeeding is one of the hardest things ever so I sympathise fully. I only really got to grips with it at the point I was about to give up. And it mentally takes over your life. Just don't put pressure on yourself: I certainly did.
Interesting link Duggs. I suppose it varies from individual to individual. I'm quite sure crap eggs are my issue now.

duggs1976 · 16/07/2013 17:57

Lemon sorry I posted on wrong place! Just said so lucky you were in hospital and glad he is all ok now. Best of luck to you x

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brownstag · 17/07/2013 12:25

Mmmm, I've taken letrozole this month and am on day 13 but have discovered to my horror that I still have a faint line on a pregnancy test! I have a doc's appointment tomorrow but am going away on Saturday so probably won't be able to do much before we get back.
What is the longest anyone has had a positive test after a miscarriage? I'm even starting to wonder whether I never was pregnant last month, but that it this has all been left-over hCG from my 'big' miscarriage in April. I thought tests had gone negative after it, but I wasn't scrutinising the tests in the same way as I am now.
I haven't got a scan booked with Mr S even though I've taken letrozole as I can't afford it, but I'm almost regretting that...

ChoccyPud · 17/07/2013 12:32

Brown how horribly confusing for you. If it's of any help, I know my hcg was still 235 or so five weeks after I'd mc'd. A week later it was still high 100s. So on the basis that eg FRER picks up hcg at ?25 or something I guess it's possible that could explain why you're still getting positive test.

brownstag · 17/07/2013 13:17

Thanks Choccy, maybe it is that. It's 2 months since my ERPC, and I definitely ovulated last month - I thought hCG was meant to inhibit ovulation until down to normal levels. I've read that hCG levels can be higher, even double, in Down's pregnancies.
It would explain why I got such an early positive last month, but on the other hand, it was quite a strong line for the first two days which makes me think it was real.
I just hope the hCG won't interfere with letrozole. I am now on my eighth go of superovulation treatment (4 of clomid and 4 letrozole) and they say no more than 12: I don't want to waste it!
How is everyone? It's quiet on here lately; too much sunshine to enjoy :)

suemays · 17/07/2013 19:33

brown that is confusing. I hope the scan with mr s will help to see what is happening.

I am due to start letrozole tomorrow. As its been over a year since I've been on it, can anyone tell me what time of day is best to take it as I can't remember?!

lemon glad your ds is ok now, I had major probs breast feeding my dd but went to a clinic where they showed me what to do and I then did it for 8 months.

suemays · 17/07/2013 19:35

Sorry brown just reread your message and saw you haven't got a scan. Could you go to a local private sonographer as they normally charge around £80?

brownstag · 17/07/2013 19:45

sue, I always take it in the morning but it never seems to say on the instructions so I think it probably wouldn't matter. I suppose with some drugs it matters because of side effects, like insomnia with pred, or absorption if you take them with a meal, but there are no real side effects with letrozole.
I've managed to get a GP's appointment tomorrow so we'll see what they say.

duggs1976 · 17/07/2013 23:18

Sue yes morning!

sites.google.com/site/miscarriageresearch/home

Thought I'd read every site out there..quite an interesting read

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brownstag · 18/07/2013 07:57

Wonderful site, Duggs! Sad, isn't it, that I should get excited by a well-organised smorgasbord of research articles?

duggs1976 · 18/07/2013 08:04

I'm surprised I've not found it before - very comprehensive !!

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brownstag · 18/07/2013 10:22

I believe I've stumbled on bits of it when doing searches - the DHEA section for instance, but I've not looked at the index.

Pebbles73 · 18/07/2013 13:19

When I had my miscarriage at 7wks Brown I was still getting faint positives about 2mths later but I didn't have an erpc so there was still tissue left. If you had an erpc surely that would have got rid if everything?
Hope you get some answers today, must be very confusing!!

brownstag · 18/07/2013 20:29

Thanks pebbles. I also had retained tissue 7 years ago after my first ERPC and ended up having it done again, still had retained tissue and eventually it came out by itself. But in that case it was obvious that there was something wrong as I had continual bleeding, which I haven't had this time.
I have a scan tomorrow at EPAU and a blood test. It will be day 15 and I've just had a positive ovulation stick after taking letrozole this month so it will be interesting to see what's going on in there (for free!).

suemays · 19/07/2013 12:39

Brown let us know how you get on.

Had my appt at ZW yesterday and it went well even though I was in with Dr N for about an hour and a half! He told me not to bother with IVF but keep on with ovulation induction using letrozole as thinks I will conceive that way. Interestingly, he said that they are now stopping the AMH test as it has proved to be inconsistent and unreliable for fertility. A lot of the clinics will follow suite as the labs are not offering the test. That was a relief as it was my AMH result that sent me in to a sense of panic. They are looking at all of the blood results and antral follicle scans to see the whole picture.

I am being taken off the steroids which I am pleased about as they never agreed with me and then having intrallipids in 2 weeks instead. He said that if you have it around ovulation it will last for 3 months at which point I will have it repeated. Good news is that the cost is £165 so a lot cheaper than NLC so I don't mind having them every 3 months at that price!
I asked him about DHEA and he said to have another testosterone test in 6 weeks time to see how my levels are. If they havent changed he said I dont need to take it as its not having an effect on me. He said that it doesnt work for everyone. I was told to stop taking agnus castus on letrozole as it can effect it. I had a blood test for another thrombillia that I cant remember the name but he will then know how much clexane to give me once pregnant and then stop aspirin. If not preg by December he will then look into IVF using a different protocol to the one I was on before. He said that poor responders like me usually do better on fostimon which was was Belly was using. I really felt like he was trying not to fleece me for every penny I had as kept saying that they are trying to keep the costs down which is why they reduced the price of their intrallipids. I feel much more positive now!

duggs1976 · 19/07/2013 16:24

Blindly sue what fabulous news on so many fronts... I have to re read Grin

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