So let me see if I understand this.
There are 2 groups of people
1 - the normal people
2 - the disabled people
The normal people have the right to go about their lives freely. The disabled people have the right to go about their lives freely - AS LONG - as in doing so they do not adversely affect the normal people. If there is a conflict then it is the disabled people who must withdraw because to not do so is offensive and upsetting to the normal people.
So non-disabled has priority. If you have a disability you have a duty to ensure that nobody is upset/inconvenienced/insulted/offended/disgusted by you.
Any disabled person who needs help to do normal things and expects the right to fully participate in life actually expects the world to revolve around them and should stop being so selfish and go away if they are causing offence.
GRS - Of all the posts on here, yours stands out the most as needing a personal reply.
"You want help but "oh not too much because that would be patronising""
Well, yes. Enough support to enable the person to do what they want/like/need, but not taking over their lives and making decisions for them or doing things they are capable of doing themselves.
"And we're supposed to tip toe around trying to work out what to do and say to keep you happy."
not tiptoe, but not be offensive! And it's not your responsibility to make another person happy but it IS your responsibility to not go out of your way to make another person unhappy.
"You come on here demanding that we memorise lists of words (which change according to fashion) to refer to your different disabilities as though we were your carers or servants."
Shall I list all the words that have been used to describe black people over the years? N. C. W. G....not acceptable now. Fashion? How about words for chinese people? Asian people? What about the charming word that used to be used for people with DS? Or CP? Use them now. I dare you. Fashion? Are you the carer of a person with DS because you cannot call them a M? Are you the servant of my (black) husband because you cannot call him a N?
"We have lives that don't revolve around you. Get used to it and get over it."
Well, who asked that of you? By not revolving you mean what? Not being troubled by? Not having to be involved with? Not being forced to look at?
Disabled people have the right to exist and to have full and active lives. They have the right to any support that is required in order to achieve this. They should NOT have to hide away because non-disabled people do not wish to be forced to co-exist with them or accept that they have needs that must be met in order to level the playing field.