Alfie Evans 7

[StayingAtTamaras]

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LetsGo, I had precisely the same with some American who became quite indignant at the thought that he should be even consider reading the judgments. Then he told me how contradictory they were ...

Did anyone see Charlie gards parents on this morning? They did apologise if they upset anyone during their protests.
They didn’t have much to say about Alfie’s case, they seem to be trying to distance themselves from the shit storm.

I didn't see Charlie Gards parents, but how lovely of them to apologise for upsetting anyone. I would imagine that with hindsight they can see a bigger picture, and while I disagree with their campaign I admire them for that apology, at least it shows a consideration and understanding about other people.

I think CG’s parents were slightly different. They did seem to accept Charlie was beyond help in the end.

They are also in the position where currently Alfie is a bigger cause than Charlie. If they want #charlie’s law, they need public support back. They’ve already said that they’ve been campaigning since Charlie died, and it should be named after charlie, not alfie.

Which i hope to god is redundant because it never passes, but it must be hard for them.

Flyingbird, I certainly agree with much of what you say. I too have seen some awful and misguided things written. I definitely agree that these people are not representative of the 600k plus members in Alfie's group. I think there are many that just wanted to offer support to a family in crisis and hoped for a miracle. And, of course these situations are always going to attract people who just want to cause trouble and create hysteria.
I probably didn't explain my point as well as I should have. I think what I was trying to say was that previous NHS scandals/blunders (especially those involving children), along with an existing distrust of authority, feelings of disempowerment, our innate desire to nurture and protect young children and a simplistic view that Alfie was being sentenced to death without giving him the chance for alternative treatment/diagnosis are a recipe for some of the allegations, suspicion and hysteria that have been displayed by some people in the Army. I wasn't trying to justify this, just exploring the reasons behind these views and behaviour.

It must have been strange for the Gards to watch it all again, but from a remote position, I wonder if it changed how they felt about the circumstances of Charlies fight. It must have been terribly difficult for them.

The most chilling aspect of the behaviour of AA, and to a certain extent the family, was the total disregard for the other children at Alder Hey, some of which had operations and died, while the 'army' were protesting. I think it was absolutely wicked.

Have to say find it hard how some people are slating the family after a request went out not to photo shop Alfies picture into photos with wings and heaven and things like that.. Its their child! They have the right to take something back.

Agree with the protests. Anyone who commented about effects on others were shot down as it wasn't their child being 'killed' yet it may been theirs being taken off life support.

Quite right FlyingBird who could blame them from wanting to distance themselves from the more rabid members of the AA.

I couldn't agree more Genderwitched Frankly unforgivable and inexcusable IMO, whoever they were.

Can't believe the mentality of those photoshopping photos of a child they've never met with angel wings halos etc. Disgusting misery vampires.
The worst is a woman with not just one persons child photoshopped with a halo etc but two. Yet proudly states in her bio that social services removed her kids. Shame she didn't think more about her own kids

I gave the AE memes serious side eye.

However, I also saw this tweet from the parent's very pro-life supporter, Caroline Farrow and it gave me pause for thought:

Also, on @Alfiesarmy16 FB page it asks if anyone has an avatar of #AlfieEvans with a halo and wings & RIP, please could they remove it as it’s causing upset to the family. Photos of him are fine. Just no wings, halos or RIP added.

OMG you couldn't make it up Not to mention some of the AA who posted photographs of the balloons being released and circled areas in the sky convinced they can see Alfie's face in the balloons/ clouds Seriously bonkers.

I can completely see where Kate is coming from on the pictures front. I have two photos of my 1st DD. They are amongst my most treasured possessions and I keep them safely tucked away with her ashes. I have never shared them. But had I, I'm afraid I would of hit the roof if anyone had taken it upon themselves to alter them in anyway. It's one thing if the parents request it or give permission but to just do it and start sharing it and using it for profile pictures is just not on.

Exactly and yet the odd person is moaning about it. Must be hard enough to have so much out there in the public eye never mind photos on strangers profile as well.

And as for the people saying 'it's just because we are so heartbroken' and trying to argue 'well Daniel has one so we thought it was okay'
Daniel is a grieving uncle not some absolute oddbod who won't remember his one month anniversary/birthday/one year anniversary
Fuck sakes people

I do feel for Kate, I'm sure she feels her son has been taken from her in more ways than one, I'm sure the more vociferous members on AA see Alfie as 'theirs.'

Can't believe the mentality of those photoshopping photos of a child they've never met with angel wings halos etc. Disgusting misery vampires.

Yep. In such poor taste.

I’ve just seen a story blaming alderhey for another baby’s death.

The child had edwards syndrome. The courts also instructed eol care, the family wanted operations to treat his complications.

The brother is now saying if he’d had the treatment he would now be a “healthy 15 year old”.

These poor people. They must be in hell thinking they didn’t fight hard enough.

www.google.co.uk/amp/s/www.telegraph.co.uk/news/2018/05/01/britains-senior-catholic-odds-pope-alfie-evans-treatment/amp/

This is Britain’s catholic view...for those curious on Catholicism and eol care.

Has anyone seen a the Sun online story about Italian authorities investigating the hospital

I can see where they are coming from on the photos thing too. I did wonder towards the end if they would regret having AA behind them because so many people feel like they have a right to part of him now. Like they all seem to think they are grieving as much as his family are and there's no boundaries. In general AA do seem a bit (to be blunt) thick, which was helpful when they needed them echoing the stuff for support but now the same thick people are expected to understand that Alfie doesn't belong to them and that won't happen. I feel very sad for the parents that they don't get to take back sharing him with everyone if they want to.

Find it brave also there have been posts on there and on articles etc in relation to public grieving and people being ott when they say they're crying etc. These haven't been badly received either so seems some are starting to realise and back away. Probably the more rational ones of the group..

Hopefully over time they can start to feel more ownership? Don't know what the right word is. Know they had public behind in his life but in his death its different and that needs to be completey understood.

Having had posts deleted then seeing the same posts allowed afterwards I'm bowing out of this thread now but will be lurking. Further posts from AA are ludicrous but there we go.. It will all be over with soon...
Fingers crossed

I wonder if members of AA have seen the reports today of Noel Conway's court application for the right to die. It might just bring home to them the fact that sometimes death isn't something to be avoided at all costs.