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Original poster

Alfie Evans 7

926 replies

StayingAtTamaras · 26/04/2018 23:25

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FluffyPineapple · 30/04/2018 01:18

*Thanks FluffyPineapple signed.

Well that's interesting FlyingBird I wasn't aware of that. I know that one of the relatives started a JustGiving page which apparently has reached £130k out of the £150k target. I thought maybe it was for legal fees but in a Daily Mail article it's suggested it be used for the funeral. I'm not sure what sort of funeral would cost £130k but it would be nice if there was some left over which could be donated to help other sick children at AH.*

Thank you for signing Silvery.

There has been a Justgiving page for medical costs which were not needed plus another Justgiving page for funeral costs. Something doesn't add up here.....A funeral costs less than £5k. Where is the reminder of the money gong? It seems people who have donated are now asking for a refund. Who can blame them?

BuntyII · 30/04/2018 06:21

I suppose the parents haven't been able to work for a long time and won't be fit to ages, maybe they've been using the money to keep themselves afloat.

fragrancedirect · 30/04/2018 06:47

The money donated will certainly be a tricky subject on-going. Stunned at all that legal aid, sorry but that is downright wrong to chomp your way through 7 different teams. Shocking.

MynameisJune · 30/04/2018 07:11

There were a lot of people asking for refunds from CG’s parents too and if I remember I don’t think they refunded anyone. Although they are now claiming that the money will be used for a foundation in CG’s name.

mrssmith79 · 30/04/2018 07:16

I don't know if this has been discussed but i've been following the threads from the start, quietly despairing at the circus surrounding this little boy - I was, I'll admit, relieved and comforted when I woke up to find that he'd passed peacefully. Except I've just read a story on the Fail which states that he was given 10 minutes of frantic mouth to mouth by TE in a "battle" to revive him when he died.
I know it's neither here nor there and they were probably acting on instinct and in desperation but it doesn't sound as though it was a peaceful passing which is sad.

mydogisthebest · 30/04/2018 07:42

Are funerals for children free? A lot of posters on another forum say they are. I have no idea whether this is true or not

reallyanotherone · 30/04/2018 07:50

Hopefully people will learn that monies donated to causes like this are entirely down to the fundraiser to use as they wish.

There is no obligation for te to do anything with the money. They can go on holiday with it. Same with cg, several million raised there. Even setting up their own foundation isn’t a good use of the funds, without continuous fundraising they’ll burn through 2m in admin without achieving much.

I am sure there is a fundraising site where any unused money raised- generally “for treatment abroad” is donated to a central pot which is then used charitably. Sounds like a much better idea.

fenneltea · 30/04/2018 07:53

Yes, burials and cremations are funded by the government for children under 18.

I can only imagine that they are wanting a huge public funeral with so much funding.

DeadButDelicious · 30/04/2018 08:10

Me and my husband were talking about this last night. I think it very much depends on what you want. We didn't pay for our DD's funeral and cremation (very different situation to AE). The hospital arranged the funeral director (who we would of chosen anyway, they are an excellent local directors) and our LA doesn't charge for cremations for children. I was and am immensely grateful for all the help we received, you can say a lot about our local hospital but their bereavement care was really good. The chaplain involved us in the service, we had a lot of input but for the most part it was all just taken care of. If you wanted a burial you would have to pay however. There is a charge for burial for children here I think it was around £500 ish, under 1 is less around the £80 mark.

I really wish I didn't know that information.

Puzzledandpissedoff · 30/04/2018 08:19

burials and cremations are funded by the government for children under 18

Is this something new, as I'm aware there's some kind of hardship fund, but thought it was means tested?

Round here it's always been the case that funeral directors would waive their own fees for children's funerals and charge only what can't be avoided ... doctors' reports, the local authority's cremation/burial cost and so on

DeadButDelicious · 30/04/2018 09:02

There is something coming in but I don't think it's coming into effect till after the autumn budget.

The Co-op funeral services offer free children's funerals but it doesn't cover the cost of burial etc.

derxa · 30/04/2018 09:08

Poor Alfie. Now people bickering about his funeral costs. Shame on you

fenneltea · 30/04/2018 09:09

I came across this page, it is a new thing but I didn't realise it wasn't coming in until the Autumn? www.gov.uk/government/news/childrens-funeral-fund-for-england

derxa · 30/04/2018 09:13

Except I've just read a story on the Fail which states that he was given 10 minutes of frantic mouth to mouth by TE in a "battle" to revive him when he died. Can you imagine yourself in that position? Imagine if it was your child. I've given a lamb mouth to mouth recently I was so frantic in trying to keep it alive.

fenneltea · 30/04/2018 09:13

I can't see any bickering on here Derxa, if people are asking for their donations to be refunded (wrongly I believe, once you've donated it's their money and up to them) then it will be discussed more widely.

Puzzledandpissedoff · 30/04/2018 09:19

Now people bickering about his funeral costs. Shame on you

You might at least try to stick to the facts, Derxa; so far posters have merely asked if child funerals are free and shared anything they know about this

And I'm sorry to bring this up again, but isn't "shame on you" a little rich coming from someone who posted about the hideously abused staff at AH and said they "don't feel sorry for them at all"?

fenneltea · 30/04/2018 09:22

Derxa, we all know that the father was desperate to keep his son alive, but it would have been cruel to do so, there are times when you really need to just do the hardest thing for the sake of the child or animal. I see it frequently with animals where people see it as a declaration of their love how long they can keep an animal alive; that isn't what I view it as I'm afraid.

When my daughter was seriously ill with leukaemia as a two year old I had two greatest fears; one was that I would lose her, but the second just as great fear was that the treatment wouldn't work and would need to be repeated, and the treatment was far worse than the disease and it would have broken me to put her through that. I daresay I would have been classed as lacking in compassion or heartless by some for not wanting to fight if that had been the case.

I do feel for TE, he is going through hell, but I think if he could have just accepted the sad truth that his son would never be well things could have been so much different for everybody.

derxa · 30/04/2018 09:23

You've rehashed a post I put up which was rightly deleted.

DeadButDelicious · 30/04/2018 09:24

I don't see any bickering. Just an exchange of information.

SoupyNorman · 30/04/2018 09:26

So sorry for your loss DeadbutDelicious Flowers

That’s interesting about children’s funeral costs, I didn’t know that. Sympathies to anyone who has found that out for themselves.

fragrancedirect · 30/04/2018 09:26

Dexra why can't you ever say anything positive? No-one was bickering over funeral costs fgs.

derxa · 30/04/2018 09:26

When my daughter was seriously ill with leukaemia as a two year old I had two greatest fears; one was that I would lose her, but the second just as great fear was that the treatment wouldn't work and would need to be repeated, and the treatment was far worse than the disease and it would have broken me to put her through that. I daresay I would have been classed as lacking in compassion or heartless by some for not wanting to fight if that had been the case. No I have the deepest sympathy for you. That must have been horrific. No one could possibly judge you.

derxa · 30/04/2018 09:28

I don't see any bickering. Just an exchange of information. But I don't understand why you're talking about it at all.

DeadButDelicious · 30/04/2018 09:30

Thank you soupy.

fragrancedirect · 30/04/2018 09:31

I don't understand why you come on every single thread and criticise them Dexra but there you go.