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Alfie Evans 6

999 replies

CamomileTeaShotofVodka · 26/04/2018 01:49

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight Star

Such an important and sensitive topic.

OP posts:
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Daftquestion1 · 26/04/2018 08:08

When this story first surfaced I thought Ah were right and of course Alfie should be allowed to die. However, as time has gone on it has made me think about our current health care system. A German doctor was on the radio yesterday saying a child such as Alfie would have been sent home long ago and placed on a ventilator at home and implied withdrawing treatment just wouldn't be an option. It has raised important questions about what constitutes life and who gets to decided who lives and why. Given we don't allow euthanasia, why are we in the position of doctors deciding someone's doesn't live? I can't say I have an answer, but I am just questioning what I would previously have accepted.

As for the parents, whilst I don't agree with their techniques I have an admiration for the support and fight they have put up. I don't support AA in anyway but acknowledge what those parents have done and ask myself what I would do.

Rhodiolia · 26/04/2018 08:08

Thank you for the new thread. Hope wee Alfie is still peaceful this morning.

ShatnersWig · 26/04/2018 08:09

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gingergenius · 26/04/2018 08:09

Just heard on the radio that TE is in talks with the hospital to allow Alfie to go home with them.

storminabuttercup · 26/04/2018 08:09

As much as I feel for the father I think some intervention needs to happen, I'm not calling for him to be sectioned and I suppose he wouldn't willingly see a counsellor but he's now really so far from the realms of reality it's damaging. I don't even know the answer but there must be something?

bananasandwicheseveryday · 26/04/2018 08:10

Oh dear! Just listened to TE interviewed
on lbc radio. He insisted that Alfie has been 'misdiagnosed ' and that if they can get him to Italy, they'll be able to find a way to wake him up. Apparently A H 'must ' have something to hide. He also claimed the staff there hate them and that they either hide when they see the family in the corridors, or have smug looks on their faces when they look at them. Not sure if the interview is available anywhere - might be on lbc website later, but worth a listen if only to recognise the level of sheer denial TE is demonstrating.
So sad for them all.

GnotherGnu · 26/04/2018 08:10

I would say it's seriously unethical for a doctor who has not examined a patient to pronounce any sort of opinion. Apart from anything else, giving false hope in that way is unbelievably unkind to the parents.

bananasandwicheseveryday · 26/04/2018 08:12

Oh yes, he also claimed the AH doctor lied in court yesterday.

Slartybartfast · 26/04/2018 08:12

Has the NHS got the funds for home care, as advocated by the German doctor?

user1457017537 · 26/04/2018 08:13

The little boy taken to the Czech Republic by his family for proton beam therapy is thriving. The NHS planned to treat him with radiotherapy which would have left him brain damaged. Proton beam therapy targets the tumor not the surrounding area. It is still extremely rare to have this treatment here.

ShatnersWig · 26/04/2018 08:13

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GnotherGnu · 26/04/2018 08:14

I was deeply unimpressed by the German doctor on the radio yesterday. Apart from repeatedly referring to children as "it", he never once addressed the question of the child's best interests; he seemed to be advocating a standard protocol in which those interests simply did not feature.

We don't of course leave it to doctors to decide on treatment: that is why consent is normally required, and why we need court intervention if there is a dispute as to where the child's best interests lie.

ShatnersWig · 26/04/2018 08:14

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MarvelleGazelle · 26/04/2018 08:15

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Rhodiolia · 26/04/2018 08:16

A photo posted overnight shows that Tom got his sofa back. Same photo shows Alfie lying on his front with a pillow and a hard toy on his back - what would this be for?

NewDOOFUSfor18 · 26/04/2018 08:17

user145 please stop comparing the AK case with this one, they are not comparable. It has been explained MANY times over these threads that how you explain it is absolutely different from the truth.

TheOriginalEmu · 26/04/2018 08:17

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GnotherGnu · 26/04/2018 08:17

user, that isn't a correct description of the Ashya King case. His parents refused the chemotherapy and radiotherapy the UK hospital advocated; the hospital was willing to consider proton beam therapy but were not in favour because it would have had to be extensive and therefore in essence no different in terms of its effects from radiotherapy. In the event the Prague hospital insisted on chemotherapy and did indeed have to administer extensive proton beam therapy. An independent review concluded all the parents had achieved was to delay treatment and reduce their child's chances of recovery by 30%.

numptynuts · 26/04/2018 08:19

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Calledyoulastnightfromglasgow · 26/04/2018 08:19

daft question I agree with you.

I watched my FIL die an excruciating death from cancer. Here we have an option for treatment for this little boy being denied.

I can’t stand the bloody medical profession in this country

MarvelleGazelle · 26/04/2018 08:19

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Andijustknew · 26/04/2018 08:20

I've been reading all the threads and am in agreement with the majority here.
It's clear TE is in denial. The post below is one of his, shared by a family member and I think is actually quite moving. He can't give up on him which is why it's important that in these cases the law steps in and says it's time to let him go peacefully and with dignity.

^^He used to look into our eyes everyday every night and no who we are, and feel safe😥
He used to sleep in our bed most nights and comfort us, and feel safe 😥
He used to get in showers with his daddy 😥 he used to get baths of mummy, and feel safe 😥
He used to go out in his pram to the park and experience the world with mummy and daddy, and feel safe 😥
He used to enjoy his milk out of a bottle and food out of a packet without infection risks, and feel safe
He used to lie on his play mat and listen to the sounds and experience colours, and feel safe 😥
He use to have his nappy changed at home by mummy and daddy, and feel safe 😥
He used to fall asleep in his mummy and daddy's arms and dream, and feel safe 😥
He used to sit out in his paddling pool in the summer with his mummy and daddy, and feel safe 😥
He used to travel to Scotland to see his nanny,grandad,aunti,uncles, and cousins, and feel safe 😥
He used to shout "AY" at his mummy and daddy, he used to cry to his mummy and daddy, and feel safe 😥
He used to laugh at his mummy and daddy, he used to smile at his mummy and daddy, and feel safe 😥
He used have a home surrounded by people and family who love him and cherish him, He used to have a bedroom with his mummy and addy, and feel safe 😥
He used to enjoy his life and enjoy his mummy and daddy, and feel safe 😥
HE USED TO BE AWAKE 😥😥

He come into alder hey and WELL:

HE NEVER USED TO SEIZURE?😡
HE NEVER USED TO HAVE "NO BRAIN FUNCTION"?😡
HE NEVER USED TAKE HIMSELF INTO A COMA?😡
HE NEVER USED TO HAVE LIFE THREATENING INFECTIONS?😡
HE NEVER USED TO HAVE DAMAGE ON HIS BRAIN?😡
HE NEVER USED TO HAVE DOCTORS PREDICTING HIS LIFE?😡
HE NEVER USED TO HAVE PEOPLE (nurses/doctors) WRITE HIM OFF?😡
HE NEVER USED TO HAVE DOCTORS TRY AND HAVE HIS PARENT TO KILL HIM?😡
HE NEVER USED TO HAVE DOCTORS STICKING TUBES DOWN HIS NOSE OR THROAT? 😡
HE NEVER USED TO EXPECT TO HAVE HIS LIFE/RIGHTS TAKING FROM HIM?😡

WE USED TO LOOK INTO OUR BEAUTIFUL BOYS EYES AND NO HE KNEW WHO WE WAS ☹️
WE USED TO SLEEP IN BED WITH HIM ☹️
WE USED TO FEED HIM WITH A BOTTLE ☹️
WE USED TO LOOK FORWARD TO WAKING UP WITH HIM ☹️
WE USED TO TAKE HIM OUT IN HIS PRAM ☹️
WE USED TO GET SHOUTED AT BY HIM ☹️
WE USED TO LOOK FORWARD TO OUR BOY GROWING UP ☹️
WE USED TO MAKE OUR BIY LAUGH ☹️
WE USED TO MAKE OUR BOY SMILE ☹️
WE USED TO HAVE OUR BOY AT HOME WHERE HE BELONGS ☹️

We don't no if our boy will have a life
We don't no if our boy will grow old
We don't no if our boy will laugh again
We don't no if our boy will shout again
We don't no if our boy will cry again
We don't no if our boy will drink out of a bottle again
We don't no if our boy will recognise us again
We don't no what lies ahead for our boy
We don't no if he will live or die
We don't no if he will get to America
We don't no what's up with him

And now because our local hospital don't no what's up with him they think he should have a dignified death in his "best interest" where the f**k is that best interest isn't it patients care, just because you can't find the answer does not mean my son has to die.
We could possibly have our rights and Our boy snatched away from us and I CAN NOT LET THAT HAPPEN please everybody take a minute share his petition, share his page, share his links, share his videos,share everything of his, we need him out this hospital and in a PROFESSIONALS hands to get the chances he deserves

I need this hospital to no WE ARE DETERMINED, POSETIVE,STRONG,POWERFULL, AND KNOW WHATS BEST FOR ALFIE

user1457017537 · 26/04/2018 08:20

Even my local GP are being difficult and obstructive lately I have no difficulty believing the hospital are not and have not acted in Alfie’s best interest

Rhodiolia · 26/04/2018 08:20

Calledyou, what treatment is there for Alfie? Because no doctor has found one.

EB123 · 26/04/2018 08:22

I am not surprised if staff hide, he has repeatedly filmed them and accused them off awful things, they have had their photos ciculated with people suggesting awful things. Perhaps they are trying to protect themselves from that? The family and army need to understand that their actions have consequences, you can't just do what you want.

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