dayinlifeof - that’s certainly how I try and live my faith. It’s hard - really, really hard at times - but yes, I do believe that living a life which is faithful to the God I worship is to not be passive in any way, I believe we are to full and active participants in our lives, but that we push doors and trust God as to whether or not He chooses to open them for us.
In this case, my faith would say that removing the ventilation, at a time when it was court ordered and therefore the choice was removed from the parents, (or even earlier at a time when all the HCPs were saying it was the right thing), was the ultimate act of faith. If God was going to perform a miracle and regenerate Alfie’s brain (and at the risk of being totally vilified and mocked for saying so - I do believe that God is big enough to do this if He should so wish), then He is not constrained by timelines or geography - He could do it right now in AH - He doesn’t need the intervention of the Pope, He doesn’t need more time, He doesn’t need repeated resuscitation - God’s big enough to do it on His own.
If, of course, He chooses not to, then to live a life of faith is to accept that - even when it makes no sense and we can never understand it and when we are overwhelmed with grief and anger. (And yes - it’s ok to be angry with God.)
I do understand that this makes no sense to those who do not share my faith, but this is how I see things.
It IS hard, and my heart goes out to the parents and wider family circles - this trauma is no small thing and will live with them forever.
Like I said, I am more angry with the Christian legal group who are pushing this agenda because this IS NOT God-honouring, nor faithful witness.