Alfie Evans 6

[CamomileTeaShotofVodka]

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight

Such an important and sensitive topic.

user1471 - I am so pleased that the HCPs treated you and your family with such dignity and space during those difficult discussions. I've not commented on your posts previously but I have read them all and I was quite touched by your post earlier saying you'd thought more about your brother in the last 24 hours than you had in 27 years. I understand that will have been bittersweet for you but thank you for sharing your story.

user1471

My brother died over 40 years ago. It was a motorcycle accident, he died straight away so nobody had to make the same decision as your family.
I think about him most days and his name was Philip too.

💐💐for you

Here is the statement he read out, in case people cant listen to it. Ignore the blackmail written on it!

Sorry, Rhodelia *rhodiolia

user1471450935 Thank You so much for sharing your story, I can only imagine how hard it has been.

Thank You to everyone else who shared too, it's made me think about my DM a lot. As mentioned by lots of posters, it is the hardest decision you ever have to make, and some of the comments by AA have made me doubt myself, then I come on here and know I made the right decision for her.

I have nothing by sympathy for Alfies family, and especially for Alfie, but I do hope they retreat to privacy now, and spend their remaining time together peacefully.

Drinks I got deleted for the same suggestion ('jibbing') .

Oh, how random MN are being! Do they have work experience in?

That is a good letter, let's hope they can spend quality time with Alfie

Looks as if they're getting sensible advice, and are listening to it. Hope that state of affairs continues, for everyone's sake.

I've been trying to keep up with media between work etc. I only actually pay attention to actual quotes from TE or statements from hospital (and read judgements from appeals etc)

Posted 10 hours ago ish TE quoted they are working with AH to allow Alfie go home because he no longer needs intensive care and TE states again he knew he didn't have a neurological condition.
I assume if he's to return home they need a specialist bed, oxygen, training for nj tube feeds (or they'll feed him via tpn which requires even more extensive training) , drugs prescribed and training in seizures at the very least? And also somewhere suitable to return to with access for wheelchair - and it's likely he'll need specialist seating. This won't happen overnight and I'm sure there must be some policy that states even though they don't expect him to live for a long time he is entitled to these things?

This is such a tough case.

Not all of AA think he's being blackmailed I think some do get it some are talking about the page coming down and I hope they do all get to spend some time together peacefully however much that time is .

I really hope people listen to him he is obviously trying to work with the hospital to get Alfie home and I hope everyone can respect that and give them peace and space to do that. I think a big step towards that would ideally stoping the page but if not at least stoping comments and just posting updates from trusted admins that have been approved to me that would be a big step towards actually building bridges.

@camelliasinensis
What do you mean?

I wonder how much his latest behaviour has actually been fuelled by trying to please those on SM? It cannot be easy to make a decision to say enough is enough with millions of people saying the hospital are trying to murder your child and people are putting up balloons and protesting outside the hospital on your behalf.

Like I said - a tough case. And hopefully one which will initiate a review and new policies.

Well, that post (the image with Blackmail written across it)- speaks of someone who has been reached.

Deep, deep grief is a horrible place to be, of course it is, but that paper suggests he is finally recognising some hard truths.

The " Blackmail " across it does not speak well.

However, I suspect most of AA are opportunists who will drift home and find another 'cause' to get fired up about, sadly. One, again, of which they have no investment, no understanding, no real interest- just the need to PROTEST.

Sky news -

The parents of sick toddler Alfie Evans say they will work with doctors to ensure Alfie has "the dignity and comfort he needs".

Father Tom Evans said the family intend to "form a relationship, build and bridge and walk across it" with the hospital where their son has been treated.

"Our lives have been turned upside down by the intense focus on Alfie and his situation, he told reporters outside of Alder Hey Hospital in Liverpool.

Making a plea for privacy, Mr Evans said: "We are very grateful and we appreciate all the support we have received from around the world, including from our Italian and Polish supporters, who have dedicated their time and support to our incredible fight.

"We would now ask you to return back to your everyday lives and allow myself, Kate and Alder Hey to form a relationship, build and bridge and walk across it."

Mr Evans continued to say: "In Alfie's interests we will work with his treating team on a plan that provides our boy with the dignity and comfort he needs."

Sky News Correspondent Gerard Tubb said the parents are preparing themselves for their son's death.

He said: "Alfie's mother and father want to get him off the ICU (Intensive Care Unit)... they have turned around 180 degrees and are now saying that's it, we want privacy and they are accepting now that Alfie will die.

"The end of life plan is in place and the hospital will now be managing it."

It was said earlier on that the family had a scheduled meeting with doctors to discuss taking Alfie home.

Mr Evans told reporters on Thursday that his son no longer needs to be in intensive care.

Judges on Wednesday rejected appeals made by Alfie's parents to allow him to be taken to Italy for treatment.

Mr Evans and Kate James made applications to the Court of Appeal after a High Court judge ruled they could take their son home from the hospital, but not abroad.

Doctors say the toddler has a rare degenerative neurological condition and is considered to be in a semi-vegetative state.

Speaking on Thursday evening, Mr Evans publicly thanked hospital staff for their efforts.

"We also wish to thank Alder Hey staff at every level for their dignity and professionalism during what must be an incredibly difficult time for them too.

"Together we recognise the strains recent events have put upon us all, and we now wish for privacy for everyone concerned."

I suspect the next target of the AA's wrath will be TE.

The truth about mob mentality is that they are like a flock if starlings - All flying along merrily in one direction one minute, then going the opposite the next. You never know when they are going to turn and.l come straight back at you.

If they turn against the family or will be awful as there appears to be no filter.

Tansie I hope not. What ever has happened that man has had enough to deal with. Right now he needs empathy whether you agree with his approach or not.

Well thank fuck for that. I wonder if it’s Kates QC who got involved yesterday. Much more balanced advice, it’s given him a way to come down off his mountain. AA will blame the hospital and say he said because it’s the only way he’ll get Alfie home. And maybe that’s true but at least TE listened to sense this time.

Thank goodness. I hope they all find peace and comfort in each other in the days ahead.

Well that statement certainly looks like the start of a 'sea change'. I truly hope this awful situation can end peacefully for all and that his parents are able to gain some comfort spending precious time with their precious boy.

All this stuff.
Many, many parent do it, go through it.
Lots of them are angry and blame the medics
Lots of them rant and rail and appear aggressive.
Lots of families say they are going to do this and that.
The time frame is just shorter and less public.
AE's case is like a normal situation magnified.

Lots of parents talk of hating/distrusting x hospital and y medic whilst maintaining good relationships with W & P hospital and medics u, c & z.

A family should not be judged on their behaviour when they are facing the death of their child.

I' really hope not @Tansie1 in hope they let them have this time together and realise this is about Alfie and his parents and not them.

@tansie I’d be first in line to defend him if they did. They are going through hell. Every parents worst nightmare and they are living it. Whatever has been done and said, this remains another Alfie and giving him his final days/weeks here with his parents as peacefully as possible.

That's quite a turnaround but thank goodness, now Tom and Kate can focus on spending as much time with Alfie as possible. I so hope the army back the fuck off now and leave them be.