Alfie Evans 6

[CamomileTeaShotofVodka]

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight

Such an important and sensitive topic.

@FlyingBird

"I haven't read a lot of this thread because I've been out, but in terms of sending HCPs into someone's home to care for them:

The Hospital Trust has a duty of care to their HCPs to not put them into certain situations, so regardless of whether the HCP is willing to go into a certain person's home to provide care, the Trust may say no. The Trust would have to have a good reason.

Regardless of any physical safety issue, they won't want to send staff in to care for a patient if the relationship between the staff and the patient's parents is fragile, if not completely broken."

I agree with your post. I guess there are some similarities here (and differences) to ambulance paramedics, who are "under orders" not to go in to a home where there is documented record of violence or intimidation against others in the police/ambulance/social services etc? I'm guessing that the biggest risk in this case might be the crowds/Alfie's Army folks who could well congregate outside the house or directly in the area around it. The papers have said for a few days now that health care providers in Liverpool, in some cases, are being asked not to wear their uniforms outside their working environment/hospital to reduce the likelihood of attacks or abuse, as a result of the heightened tensions.

I haven't posted on this thread before but have been following it. Went on the Facebook group for the first time and it appears in a post by the father he has named a doctor treating Alfie. As an HCP this terrifies me for me and my colleagues - despite legal protections given in court our names could be released to millions of people.

It's made me feel sick and definitely will form part of conversations at work tomorrow.

Oh sorry, my mistake! It was the QC!

This is why I lurk.

Good Evening,
Once again this thread has been for the most part measured and considered. to all who have added their own sad and moving accounts of losing a loved one. I as a poster on from thread 2 and posted about my brother sad passing, have suddenly realised there are probably 1000's of affected families and very few ever get to tell their stories. So much so that someone like myself can go 27 years and never speak to another, and you start to think you are alone.

I am grateful that these threads have taken that taboo away, I appreciate all the kind remarks on previous threads and have had a few lovely PM, and a couple of lovely discussions. I realised this morning that I have spoken more about Phil in the last 48 hours, and in these threads than in 27 years, and that hurts. I have avoid the news today and just spent 12 hours collecting my thoughts on his passing and my dad's suicide. It has been tough been really worthwhile.

I know many posters think these threads shouldn't exist and MNHQ probably wish they would go away too, but I have found them brilliant, so many wise posters from all sides. I read the Gard ones but couldn't post, so glad I plucked up the courage to say hello here.
Thanks to every one, please continue.
Finally I hope Alfie is peaceful and enjoying time with his mum, and his parents can find a way to find peace too

Where is this MLM bullshit?

There is an headline on the DM online where the father claims to be "looked down on" and "hated" by medical staff. He also said

'He's still breathing on his own and going strong. It's not a miracle - it's a misdiagnosis. As I sit next to Alfie's bedside, every second of every day, it encourages me more and more that he will live for 'x' amount of months, possibly years.'

How can AH let them take Alfie out of that building in any way after he's publicly said that?

I can’t help but feel a lot of suffering, both for Alfie and his family, could have been avoided if people better understood that parents don’t own their children.

I see from the bbc article that an MEP is now going to be asking for “Alfie’s Law” to give parents more rights over their children.

I find this terrifying as unfortunately parents don’t always act in their child’s best interests, hence why so many children are in care.

The US does typically have more advanced treatment options, but the reality is these are much more available to the rich than the poor. The possibility of getting on a clinical trial even if you're poor doesn't change that- hence of course the appalling infant mortality stats in the US.

With that in mind, praising the US system when in fact they lose thousands of children more than they should do, simply because it does a good job for ^you*, without mentioning how much worse things are for the less fortunate there, is rather.... problematic, shall we say. They deserve at least a footnote.

User1471..i agree

I suspect that, shortly, all this outrage will be forgotten. British law tries to enshrine people's rights to their own 'agency', as in the ability to make choices about themselves, as the Gillick case proved.

I suspect protesters would a) find it very hard, and b) find they're less bovvered than the feel right now, give it a week, to go through the slow, measured, pains-taking considered process necessary to change a law that basically states 'Parents don't own their children'.

Thankfully. It's one of the few things that protect children.

Ask most people you know now, of the age, about their reaction to Diana's death. Many will actually be a bit embarrassed about how caught up in it they all were; how they were emotionally manipulated into feeling stuff they later realised was hysteria.

I am not suggesting all of AA are thus motivated, but I would wager that, give it 2 years, most would look quizzically skyward with a 'hmm' expression on their faces, if you asked them about Alfie.

Who? Oh, that.

Re: the Facebook group - I looked at it yesterday, but didn't follow etc. Just had a random notification from Facebook telling me that I'd joined the group? I've left immediately, but I do wonder how that happened?

Cuntinuous..excellent post

TE on a message read to the press saying no more interviews from him or press statements, they want privacy, thanked Alder Hey for their help and want everyone to leave and go back to their every day lives. Wow.

They also now want to form a "bridge" with AH and to work together for Alfie.

Although I think home would be the best place for Alfie, I honestly do not think his family or AA would leave him be.
Looking at some of the comments on AA, I can imagine people trying to give him baby formula (which was suggested), and things like that.
I also don't think it would be a nice peaceful place to be. There will be hundreds of people wanting to see him, and pushing crazy ideas on the parents on how to "fix" him.

Fuck the Sun.

Where did you see that @Rhodiolia?

I can only find a link to TE saying all this (was about 10 mins ago) on the Carers want Competence

Thanks to the above poster who explain exactly what palliative care is. I e always associated it with EOL (which I guess it is) but rather it's short term rather than can be a long term care option. This is why more information should be readily advertised. I get the internet exists but I don't think people google these things as a matter of course. It's something I think needs to be fed into society like the risks of obesity etc.

Another question. If he's discharged to home with a care plan would t require 24/7 nurse care? I've sadly watched family at EOL due to cancer and although they had caters and nurses visit they didn't remain bedside.

Please do not say anything about his past as it will get deleted and the thread too.

It sounds as if someone has advised TE that he was beginning to come across badly. Leave before the tide turned so to speak.

Personally I think the media have behaved, as usual, in appalling taste. Like vultures on society’s most vulnerable, on an incredibly sensitive subject. It is emotional vampiring.