Alfie Evans 6

[CamomileTeaShotofVodka]

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight

Such an important and sensitive topic.

I've worked for the NHS and have had both good and bad experiences as a patient. I don't think anyone is claiming they are infallible. But there is no evidence of any impropriety in this case- the court judgement stated they have cared for Alfie well and all of the doctors including the parents own acknowledge there is no treatment available. What is occurring is standard eol care which is happening all over the country and possibly for others at AH. The only difference is that we are getting a running commentary in this case along with a one sided version of events.

And there is a difference between not thinking the NHS are perfect and accusing named doctors of murder for doing their job.

I didn't see the post @Zoflorabore but I'm very sorry for your pain.
MNHQ I know you are trying to be careful here but really?

The bouncy castle was abhorrent. However, that happened before Alfie’s life support was withdrawn. Ditto the scramblers. The storming of the entrance was in direct response to a plea for oxygen by Alfie’s parent and again one woman told them to back off and they did. Idiots are everywhere unfortunately but the majority of the people supporting Alfie are not dangerous rioters, myself included. On the point that I would argue black is white is this because I do not agree with the majority on here. I do not and never have encouraged anyone to intimidate or threaten hospital staff. As in my previous post I do however find GPs surgeries to be difficult lately and you are not able to complain for fear of being struck off their list. That I knows is not relevant here. I don’t think Alfie will be allowed home because of the family circumstances. I really don’t know why the thread should be pulled because of this

Should a case like this happen again, it may be beneficial to relax rules on patient confidentiality somewhat, in order to allow the hospital to speak. At the moment there's only one narrative.

We won’t DOOFUS, but in my experience relationships which break down this badly don’t come from nowhere.

Not everybody goes into the NHS because they have a vocation. A lot of people go into it because they can’t think of anything to do, they were attracted to having a bursary for the degree, they want the prestige and international mobility of a doctor or often, especially for older staff, they thought as a woman they should teach or nurse.

There does appear to me to be an overepresentation of working class families when these relationships break down too. An awful lot of people would probably claim this is because they’re thick. I suspect it has more to do with the fact staff are more solicitous towards middle class patients and allow them more input into care and keep them better informed because they’re more likely to challenge them.

IMO these terrible breakdowns in relationships between patients and hospitals usually come about partly because of patients who are difficult, but also because in the early stages of care not enough investment is made in the relationship with the patient to build the trust needed for them to accept the difficult decisions medics and hospitals have to make.

PRINCE WILLIAM IS AN AIR AMBULANCE PILOT HE COULD EVEN FLY ALFIE HIMSELF.

Ummm, what?

Thespringsthething: the independent review of the Ashya King case had access to all the relevant evidence. Do you think that possibly their opinion was better informed than yours?

I also don't understand the deletions or the clear campaign to get this thread deleted. This is the main headline nationwide, it is being discussed on every social media platform there is and in a far less respectful and well informed way than on this thread. These threads are one of the few discussions I've seen where people seem to have actually read the judgements and where parents who have sadly had to make the decision to withdraw life support are being supported.

To be fair if I was a MNHQ mod I sure as hell wouldnt want the droves of AA imploding on the site.

Should a case like this happen again, it may be beneficial to relax rules on patient confidentiality somewhat, in order to allow the hospital to speak. At the moment there's only one narrative.

It has been already because the case has gone to court and that has allowed the hospital to give it’s side and also reporting on AE’s medical condition. E.g. the hospital related the incident with his mother and the chocolate which they say caused pneumonia.

Apparently,

"Xenophobic? I've heard it all now"

...Is delete worthy with a helpful link to talk guidelines thrown in.

??? Oops, I did it again.

Mnhq has warned over and over again, not to speculate or talk about the family but people can't help themselves. It's only fair these comments are deleted. They aren't helpful or respectful.
A lot of what I've read on here just isn't true and yet it's taken as truth and repeated by other posters. It's so dangerous.

Please keep this. It's the only platform where there's a balanced conversation where you can say how you feel without being hated. I couldn't post my thoughts on FB because it's the opposite!

Mightymucks I agree with you. The same breakdown happened with Charlie Gard's parents I suspect.
I've always had brilliant NHS (and private medical) treatment. I suspect that's in a small way due to working for the NHS at one point, being articulate, knowing what to say and knowing when to complain.

We will never know the truth of what happened though.

@BlancheM please can you help me understand why you keep posting on these threads when you dislike them so much?

I'll try my best, hodge: because I've posted respectfully given my own experience of similar, and given my profession, without ever talking about this family. And because I can. I hope you understand now.

It does seem surprising that when someone goes on national TV and radio making extremely serious allegations about health professionals, his words should be adjudged by MN to be immune from even the most measured disagreement and comment on here.

That's fair enough B. It just strikes me as one rule of freedom of speech for some and not for others on here at the moment. Jaws' example being a good one...

Agreed Gnu.

What happened with the chocolate

Agree Gnu

Thirded Gnu

I don't understand why a front page newstory that is plastered all over other social media is barely allowed to be discussed on MN.

This has been a polite, well reasoned and measured thread and even posts that have been deleted have not broken talk guidelines old or imposed just for this topic.

I've always had brilliant NHS (and private medical) treatment. I suspect that's in a small way due to working for the NHS at one point, being articulate, knowing what to say and knowing when to complain.

Indeed. It smacks of qu'ils mangent de la brioche, and you're right to be sceptical about reading across to other people's experience.

MN is one of the best/worst places to find "as an articulate and affluent member of the professional classes with a good degree from one of our older universities and a six-figure income, I found navigating this service easy. With the help of my contacts within the organisation and a well-crafted letter to the service manager, I got past the problems and was able to obtain the outcome I wanted. Therefore I do not know what these unemployed youngsters year olds with no qualifications are complaining about, they should just deal with it like I did".

I've always found the NHS easy to navigate. I'm in the above category.

I know people who find it a nightmare, both procedurally and in terms of the way they are treated to their face. They aren't.

Odd, that.

user1457017537

Ice cream is cold, the sun is hot and that has as much to do with this as another case.