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Original poster

Alfie Evans 6

999 replies

CamomileTeaShotofVodka · 26/04/2018 01:49

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight Star

Such an important and sensitive topic.

OP posts:
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Iliketeaagain · 26/04/2018 09:31

I really hope that there is a way that Alfie can get some compassionate end of life care at home and his parents can come to terms with what is happening.

However, I'm concerned that they will largely be left alone at home, without the medical / nursing support to ensure Alfie's symptoms are managed properly. As a registered professional, I'd be worried about my physical safety and professional registration looking after him at home after all the stuff from Alfie's army and TE, so I'd be worried they can't find the professionals to provide the home care he needs.

It's a sad situation all round.

And for those who have had to make the decision to turn off ventilation / life support / manage end of life care for their children - you are braver than most of us could ever comprehendThanksThanks

ShatnersWig · 26/04/2018 09:31

My heart goes out to everyone who has been affected by this story because it is clear on these threads and elsewhere that the words and actions of the family and braying mob have made fabulous parents who put their child's needs and rights above their own question that decision and their love for their child. How dare that happen. How dare they. I totally agree with other posters - someone who loves their child wants the best for them, they want them to be fit and healthy and have some quality of life. Bless everyone of you who has been in this position and did the RIGHT thing and anyone who says otherwise is an idiot and frankly, any "friend" that made any comment of anything other than total support would be gone in a second.

MrsOH2004 · 26/04/2018 09:32

flowers to each and every one of you who made the decision to switch off life support.

My cousin had a huge bleed on her brain, she was early 30's, they switched her life support off and she died instantly, why is it seen as ok to do it when your child is an adult, but not when they are a child, either way neither will have quality of life, poor Alfie will never know what it's like to be a normal child, how is it fair on him to carry on in his non existent life, my heart aches for him.

MrsOH2004 · 26/04/2018 09:32
Flowers
DrEustaciaBenson · 26/04/2018 09:33

Alfie has a Guardian, to represent his interests in court. Might there come a time when she might think it necessary to go back to court to ask for the parents' interventions to stop because they're not help ing, and possibly harming him?

I can understand why AH are allowing so much leeway, but there must come a point, if we haven't already reached it, when this is not in Alfie's best interests.

ShatnersWig · 26/04/2018 09:35

user14 You will argue that black is white. Riot police have even had to attend one of the court hearings. Police have had to be on the ward due to TE behaviour previously. People storming the entrance to the hospital is NOT a quiet respectful vigil. People blocking the road so that parents of sick children cannot get in or out until they "hoot their horn in support of Alfie" is NOT a quiet respectful vigil. People chanting and shouting that can be heard by sick children and their parents inside the hospital is NOT a quiet respectful vigil. People riding up and down the hospital at the protest on motorbikes and installing a bouncy fucking castle is NOT a quiet respectful vigil.

All of the above is FACT. Something you are in very short supply of and quite frankly you should be ashamed of yourself. I suspect you just want someone to really kick off with you to get the thread pulled.

MadameGrizzly · 26/04/2018 09:36

We refused an autopsy for our daughter as we felt she had been through enough. Sometimes really awful shit happens in life.

Justice Hayden 'explored' Alfie going home, but in his judgement he highly recommended Alfie being moved to a ward. Maybe the hospital could find a way to compromise with that?

Sometimes people just have to accept 'no'. It seems to have become harder in the modern world, I'm not sure why.

I think it's the democratisation of knowledge post-Internet. Everyone is an expert as they can google. If they don't find evidence to support their beliefs, they just google again!

It makes no difference to them that they may not have the medical/legal/pedagogical/statistical/whatever knowledge to understand the research they are reading...

numptynuts · 26/04/2018 09:37

A bouncy castle? You've got to be bloody kidding?!

Elliss2018 · 26/04/2018 09:37

How does everyone know that he has been resuscitated three times? Has TE said this?

Sugarhunnyicedtea · 26/04/2018 09:37

@ShatnersWig that is almost exactly what my reply was going to be. No need to repeat it now. The scenes outside the hospital are disgusting and absolutely not peaceful or respectful

MarvelleGazelle · 26/04/2018 09:38

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Mightymucks · 26/04/2018 09:38

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Sugarhunnyicedtea · 26/04/2018 09:39

@numptynuts sadly it's true 😣

Raven88 · 26/04/2018 09:39

@user1457017537 The reports on the news have shown a very different picture. I hope it's quieter now. I have a lot of sympathy for Alfie and his family. They are in denial and the attention from the Vatican and Poland appear to be making it worse.

Buggeritimgettingup · 26/04/2018 09:39

Yes Ellis te said that himself

Elliss2018 · 26/04/2018 09:40

It's unusual for cpr to work once let alone three times! Without a defib anyway Confused

Raven88 · 26/04/2018 09:40

The risk with AE going home is the parents might take him to Italy. I doubt they care about consequences at a time like this.

Excitedforxmas · 26/04/2018 09:41

They can't take him home because they don't have one!

fenneltea · 26/04/2018 09:41

MadameGrizzly that is an excellent point re the googling and finding only what you want - Alfie's mother was calling AH liars as they said Alfie would only live minutes, which was blatantly untrue - she'd omitted the words MAY and COULD from what she was reading, which of course gave a completely different interpretation; they are just seeing what they want to support their cause.

Standardpubquizname · 26/04/2018 09:41

I'm a Christian and have been following this case over the last couple of weeks. I'm not a Catholic, I suppose if I had to pin myself down to a label I'm a reformed or evangelical member of the CofE but essentially I see myself as a Christian without getting too concerned about labels.

The actions of the Christian Legal Centre who have advised Alfie Evans' family have really troubled me and I find it very difficult to understand how they can be justified by the faith I believe in. Please note this isn't a criticism of Tom Evans or any other member of his family, the things he has been encouraged to do by his advisers and the false hope they've given him is inexcusable. The Christian Legal centre has previously been involved in campaigning and have taken on cases where they have used individual cases to make a wider point about Christian beliefs. Perhaps this would be acceptable in the case of healthy, consenting adults but completely inappropriate for a gravely ill child and his grieving parents to be used in this way. My prayer for the legal team who have advised the Evans family so irresponsibly is that they will become wise to the damage their actions have caused and will never treat any other family in the same way in the future.

Yes Christianity places a huge value on life and yes we believe in the power of prayer and in miracles but the Bible tells us not to test God. It says don't take risks like jumping of a building and expecting Him to catch you. The hospital in Rome can't promise a miracle, it isn't for us to decide if and how miracles happen and embarking on the journey to Rome would be imo an unwise risk. I find it very difficult to understand how Christians can accuse doctors of playing God by switching off the life support machine when this is infact the removal of an artificial intervention not the implementation of it iyswim. My prayer for Alfie and his family is a peaceful future. If that involves a miraculous healing, wonderful, if that involves him passing away peacefully then I hope his parents are able to experience a deep sense of peace and are reassured by their faith.

Raven88 · 26/04/2018 09:43

@fenneltea I've seen people on EOL live for a couple of weeks before they go. Also I'm sure they refused to allow midazolam as they seen it as euthanasia.

MarvelleGazelle · 26/04/2018 09:43

This reply has been deleted

Message withdrawn at poster's request.

DrinkFeckArseGirls · 26/04/2018 09:43

jasey Flowers

ExmoorPeace · 26/04/2018 09:44

Sadly a lack of rational thought and knowledge has turned this into a circus. If you read comments on aa facebook, it is frightening that there are people out there who are so ignorant.

ShatnersWig · 26/04/2018 09:44

Raven My frail 89-year old nan took three weeks. Hardest three weeks of my life and I'm a 44-year old bloke.