Charlie Gard 18

[cjt110]

Ok guys, we have been very lucky to discuss this, please lets not give anyone anything to complain about, Mhq have been more than accomodating.

@JoshuaRozenberg
2m
Gard: Court now adjourned to await arrival of the family’s specialist doctor.

Hopefully this won't turn into a bunfight later. I've noticed that this thread hasn't shown up in Trending all afternoon.

I'm sure that everyone posting on here today, whatever their feelings about how it's been conducted, feel the utmost sympathy for Chris and Connie. They will never forget this, they will probably never fully come to terms with it. But I hope that in the future they can find some sort of acceptance.

I'm a bit confused about the 12 o'clock thing . If there is no going back to court why has the judge said this?

I just pray that they accept what will happen tomorrow and spend time with their son tonight. If they don't, they will regret it forever.

No they have a clear choice between hospital or hospice. Plan for hospice agreed and in place. To move to hospice and be excubated same day, no overnight. Choice is for parents is hospital or hospice by 12 o clock tomorrow. If no agreement then hospice will be default option. So basically judge wants family to decide where but no days in hospice.

While sad for the parents, the judge's decision sounds sensible on the face of it - even though I'm frankly surprised he decided anything at all. That said, the delay of yet another day worries me, given the blizzard of attempts to find yet another "exert" it will kick off (and I think someone said Connie's already online trying to do exactly that?)

Good luck with ordering the time and place to remain secret though ... I'd say the chances of that happening are practically nil

After this thread are we moving discussion to the quieter place? I'm another one who would not want to use FB, and with the reporting order about the hospice it might be best to take discussion out of the spotlight.

Bluesky Absolutely agree..
It must be unbearable..Connie ideally will spend tonight and tomorrow OFF social media, just being with her Boy.
Quit the scurrying, the running...you cannot outrun pain :(

It is almost like a default setting, the on her mettle fighting... incredibly sad case. Expect many tears shed this afternoon, by followers of case. :(

Buttery I'll go open one.

CY posted on CA for a doctor again. Someone has listed a load of names or doctors at the Portland hospital. They don't get it do they. If anyone will publish the name of the hospice it's gonna be them.

I wonder if, once they realise they are not going to have another week with him, if they will actually want to move him?

If nurses from GOSH have volunteered to look after him in a hospice, the parents must have a good relationship with them. But as the judge has said they wont have days, just hours, it may dawn on the Gards, that there is no point in moving him.

Maybe that is what the judge is hoping will happen, tonight.

I speculate that the judge framed it as he did (order given, but with option to override if all parties agree) because he needed not to completely take away the decision in one go from Charlie's parents. At every stage it's been a narrowing down of what was on the table, and he has really tried hard to make sure there is a choice left each time. Sadly, because they don't accept the medical advice that they've had, the final choice for them is one which they can't "win", in their terms, because it is one that has to be grounded in the medical advice that they reject.

According to the Daily Mail, writing about the original long stay hospice proposal:

"Two nurses would be needed for each shift lasting eight to 12 hours and GOSH staff have volunteered to work on their days off or between shifts at the hospital."

I suspect GOSH wouldn't have been too keen on their ICU nurses working between shifts - how much use would you be if you'd done a shift at GOSH, 12 hours at the hospice, and then had to go back for another GOSH shift?

maryz I hope so too, but looking at my lovely DS (as I am sure all of us have ) I can't say I wouldn't be frantically trying to stop it somehow. I don't think she can believe it is going to happen, because to face it is too terrible to contemplate. As I said, I'm not sure if I would be different, especially with nobody seemingly trying to help he face the awful reality.

Can do so if it would help. Other place, not fb

Please could you PM me whatever this "other place" is?

Just seen that post where someone lists the names of some paeds intensivists.

I've reported to FB but they won't do anything. It's all so shameful.

Someone- Chris, her Mum, anyone- has to hold her now and tell her she's done all she can and she's got to start saying goodbye.

I was thinking th same puzzled

Have done Puzzled

They are not getting the extra time they want, hence no more court hearings. They are getting wish not to die in gosh so can go to hospice. Home is out of question. So judge has given a bit, but put foot down about extended time...I.e. "It has been 3 and a half months since I ruled and thought he was in pain then......." Which says it all.
It is all a tragedy with a little cherub almost forgotten with the fight, but not quite. Judge very mindful of Charlie all along.

Definitely think the other place is a good idea.

Creme, I assume the 12 noon deadline is a partial concession to CY begging for more time to find an incentivist.

Why do we have to go any other place to post guys? I do not get that.

"No they have a clear choice between hospital or hospice."

Sos, I don't think that's how they are seeing it. Connie's FB plea is for a paediatric intensivist willing to care for Charlie in the hospice for "a few days". I don't know whether it's that nobody has explained to her that that can't happen, or whether she has rejected the explanation.