Please can someone help me. Im in so much pain and I dont know what to do.

[spookycharlotte121]

I have had horrible pains all day..... they feel like periiod pains. As the day has progressed they have been getting worse and worse.

Nurofen isnt touching it. Im totally exhausted by it and just want to sleep. Im sat here crying because I dont know what to do. I took painkillers nearly an hour ago anf they just arent working and I just want to sleep.

thanks milli and aleene...

cazabelle, can't see anything yet although PP has been sluggish over a few of them

Donation sent Lewis. Could you confirm you got it, thanks for organising

Aitch, I think that is why a similar system to the molar pregnancy procedure would be a good idea (sorry, I know I keep making this point!). Because, if there is one point of specialist contact for patients and medical professionals, then surely there is less likelihood of situations like these where symptoms are missed. Also mps and eps, require very specific follow up treatments, the mp follow up procedure works extremely well - I wonder does it work as well in the case of eps?

Hope Charlotte is getting some rest, and pain relief.

Aitch, I've read the whole thread and have to say that your experiences sound harrowing and devastating.

It's a good job for Charlotte's sake that you know all you do but what a terrible way to gain that knowledge

"okay do not fuck about here. tell me how unlikely it is that you are pregnant?" should be standard NHS direct script.

people said that a lot, i can understand why tbh, it's a fair point from the perspective of thinking 'shit, she coulda died'. but it's not generally an accurate reflection of how the patient is feeling.

and no, but the nurse who brought me round from the anaesthetic having removed my tube and baby said 'did you have a nice christmas?' and i said 'well i did, yes, because i thought i was pregnant and had saved this horrible year at the last minute' (having already had one ep and months of metho follow-up).

AND SHE SAID...

'oh you don't want children, they're really annoying and wake you up all hours. you can have mine.'

and i said...

'sorry, what? you did hear what i just said, didn't you? and you know what just happened to me in there?'

and she ignored me and walked away...

i got her arse kicked so badly by her boss, after i recovered, but it was still devastating and has just brought tears to my eyes thinking about it. what a stupid bitch.

i should have complained about other, more serious stuff, too, but i didn't, or at least not formally, because i was too tired and sad.

much as i love it, when the shit hits the fan the nhs looks after itself.

duck - got it

Poor Charlotte sent me a message to say they've had to take her tube out

she is really upset, as you can imagine...

Just thought you should know the whole picture; I know she won't mind.

PLEASE REMEMBER though if you're on her Facebook to NOT mention any of the details at all.

x posted with the update from Charlotte. to hear she's having such a tough time.

sorry, my last post to brolly, obv.

absolutely re the details on her FB - she's been sending the messages to me and Lewis via text or private message on FB so as to avoid certain family members seeing what's going on.

So please be careful what you say on there

the 'at least you are alive' line is pathetic

i hear so many similar stories re women with birth trauma who are told by HCPs, 'as long as yo're baby is alright' , 'as long as you are alive' .. as if being mentally and physicall and emotionally scarred and traumatised can be brshed to one side, as long as you're not dead

it is a disgrace

10 years ago this February I nearly died of an ectopic pregnancy.

I had an incomplete miscarriage on 9th Dec several scans with no heartbeat & a ERPC (?) on 21st December

On 2nd Feb (I think) I collapsed at work the first aider called an ambulance despite me saying I had IBS & it was probably food poisoning.

The ambulance men carried me out talking to me about panic attacks & stress but when they heard I had recently had the ERPC the rushed me to the local women's hospital (arrived about 10:30)

I spent over 8 hours on a bed saying but I'm not pregnant - DH hasn't touched me since the op (I was too upset) they were forcing me to drink so they could scan (as I would be only newly pg according to them)

I kept throwing up the water they gave me & eventually gave me a (trans?)vaginal scan (I think) about 4:30

They found no baby but they had done a blood test and confirmed I was pregnant.

About 7:30 I was sent into surgery for keyhole to see what was going on - I woke up with a scar 8 inches long, and a bruise (dumbell shaped) 6 inches deep at one end, 10 inches at the other with a middle bit about 4 inches across - it was black

I was given 3 units of blood

The staff kept telling me how lucky I was because this baby I had lost was the twin of the one that was removed back in December

Then everything changed & eventually (about 8 week later) I was told that although they biopsy'ed what they had removed & despite there being no foetal matter in the sample it had simply been signed off (at 5:28pm on 31.01.99) I should have been called back in to go & find the baby because I was still PG

My ectopic PG burst at 13 week which is almost unheard of & nearly killed me

I hadn't been to see the GP about my pain because I generally had a fair amount of pain & post the miscarriage/ERPC I expected a fair amount

The reason I threw up the water was because one by one my bodily systems were closing down - despite being in hospital - despite being examined by specialists I nearly died

I do think there should be more publicity about this

och the wee soul. poor lass. but losing a tube, however devastating at the time, is really okay in the scheme of things imo. i'm not really a pro-metho girl, having had the (pretty grim) treatment and then a second ep in the same tube i was glad to get rid of the bloody useless thing. we can speak of this later, charlotte, when you're feeling up to it.

Oh that's awful. Is this because they've pissed around so much? I hope not.

jeez, katy, how utterly devastating for you. i'm so sorry.

Yes, from the distance, losing one tube isn't the end of childbearing.. but of course, Spooky needs a hell of a lot of support before we get to that stage (as you know - am not criticising; just saying)

Aitch. You went through so much and thoughtless comments like that... well, there are no words.

As an aside, I found out about my first m/c when the junior gynae doctor said "of course you know today you've had a negative pregnancy test". Er no actually. He then went on to imply perhaps I had been mistaken in ever being pregnant . His arse was kicked very hard too. I simply cannot imagine the added pain of all that EP involves brings on top of m/c.

I am so sorry Charlotte lost her tube. I hope she manages some sleep and has good pain relief now.

okay, i'm not sure you needed to point that out to me, lewis, but okay...

not to you in particular... it just sprang in my mind ... I suffer rom typing diarhoea! sorry!

I am very pleased to hear that SpookyCharlotte is now being looked after and doing well. Brilliant support fom MN-ers.

But PLEASE do not start going to the press on the basis of this thread. Maybe Spooky will feel like writing to the hospital, through PALS with a view to getting an explanation and possibly a complaint. That's herdecision, though i am sure there is the right expertise here to help her do that.

But the hospital is named, MN could find themselves in the middle of another legal case (either Spooky's anonimity is blown OR it is unconfirmed hearsay on the 'net) you will blow Spooky's anonimity...and essentially, this thread is about supporting an individual.

katy , that is horrific

words fail me

Katymac that's appauling. Reading stuff like this must bring the horror back for all of you who have experienced something so dreadful. Take care of yourselves.

of course, lewis. but what i was saying was rather more complex than 'it's okay', really. if you've had one ep, it does rather mangle your fallopian tube, even if it doesn't block it entirely or burst it. that's part of the reason why your risk goes up tenfold. so imo and ime now and with the benefit of hindsight, i wish i'd not had metho because it kinda made my second ep more likely. (iyswim?) and i wouldn't put anyone through that twice, not for all the tea in china.

So, so shocked about Charlotte's story, and how amazing is MN at times like this. Wishing her a speedy recovery and some kind of redress for the appalling treatment she has received. I'm living proof that conception is possible with only 1 tube (mine not lost through ep though).

Have sent a donation Lewis, hope we can put a smile back on Charlottes face somehow.

Oh, poor love. But bloody well done MN.

I agree with hazey - molar p, while not as dramatic as ep, is also potentially life threatening, and the system they have to manage it is really very good indeed - something similar should surely be put in place for ep?

Oh dear. I posted earlier when the news came that she was out of surgery "at least she's alive"

It was in the context of delay in care, having to go into surgery and because people die if it's not treated.

Hope I didn't offend anyone