Fecking womb lining is too bloody thick! Help!

[fuckmyuteruslining]

Pre-menopause (46)
Been continually bleeding for a month. Went to gp, had ultrasound today and endometrium is 2.8cm which is defo in the oh shit category I think. So I guess hysteroscopy next, do you think they'll do a 2 week referral? I work in the nhs, I didn't think I had cancer now I'm wondering. V unpleasant sensation tbh 😀
Bloody uterus. I've left it alone for years and now it does this.

Gosh there's loads of us bothering the womb camera crew

I'm thinking I probably should try and shift a few kilos too. Never dieted in my life and not too keen to start but guess it would be helpful. Dh has been successful at slimming world but I'd rather have my womb probed than sit around talking about it. Could weigh and run I guess. Or maybe try 5:2. Hmmm.

Or is it 2:5 ? Kind of important to get that right I think

Ffs. How are you supposed to KNOW you have a thick lining?

They offered me Mirena at the same time. I didn't want one though, I reckon I'd just bleed the fecker straight back out again.

Any of you who have post menopausal bleeding please make sure you are referred on the 2week path and that you are followed up quickly. I had bleeding and it turned out that I had a cancerous 10cm x6cm ovarian tumour.

In my case it was sudden bleeding years after the menopause. Referred for vaginal ultrasound and was diagnosed then. I don't take HRT so there was obviously something going on.

@grouty really sorry to read that. I hope the treatment hasn't been too brutal and that it was caught in time.

I really didn't want a mirena put in because of the side effects but it seemed to be the least bad option. However, I'm not sure it will stay in the clots are ridiculous at the moment! Will just have to hope it settles down...

I'm sorry to hear that @Groutyonehereagain completely agree re post menopausal bleeding and would add if pre menopausal and something changes then off to the GP too. We are not supposed to bleed in an unscheduled fashion 😁 even in our forties.
@XXXMangoLassiXXX in my case I started spotting but no period then v heavy period (as I'd missed one I guess) then carried on spotting. Had a transvaginal ultrasound today and she pointed out I had the whole Harrods rug department in there. I'm a bit puzzled as to whether it's suddenly got all luxuriant or it's been creeping up for ages but who knows?
It would have been very easy for me to dismiss it as benign peri crapness though which it may well still be but if it needs dealing with I'm on the way now.

@stripeymonster I found a trial online (yes I'm that sort of patient) where they looked at coil plus weight loss (referred a cohort for bariatric surgery) and only one woman was unlucky enough to expel two coils so I think you're in with a shot

Hi OP. Thanks for starting this thread.

I started my own in women's health but it hasn't had as much traffic (note to self: swear in the OP !

I'm really confused and think this might be a case of two different GPs and both of them not listening.

I have had two TVUs. The first one was 7 months ago (before HRT) when I complained about painful sex (orgasms actually -how embarrassing to report. Genuinely excruciating though). The scan was clear.

Then I started HRT and all was fine. I am not post menopausal. Periods were regular and nothing spectacular. Bit of bloating.

Swapped to patches 4 months ago and suddenly last month a 12 day bleed. All systems go and another TVU.

I am now on 2 week pathway because of an 8mm endometrium. At 51, on HRT but definitely in peri.

Anyone got an opinion on this? Certainly doesn't seem in 'oh shit' category?

The painful sex hasn't even been mentioned since by any docs.

I had a scan at Easter, my lining is a bit thick, 10mm I think she said, so nowhere near as bad as most here, and a couple of cysts. Had a call at work yesterday, going to be seen within two weeks - even though the referral was way back in the beginning of April?!
I'm pretty sure it's all fine but I've been so uncomfortable with bloating and the blood loss is grim...

Good luck with it, OP. I had horrendous bleeding during the first summer of Covid and luckily work had an emergency gynae clinic - without it I don’t know what would have happened, probably would have turned into a zombie.

I wasn’t really prepared for what was going to happen, but within about 20 minutes I’d had a TVUS, hysteroscopy, endometrial biopsy, Mirena insertion and a prescription for progesterone. I expelled the Mirena a few weeks later, along with a load of endometrium. I needed further progesterone and had another Mirena inserted which has now stayed put. I’ve also had a few follow-up biopsies and all seems to be fine.

Weight loss is key to my future and this is a wake-up call. It’s the first weight-related problem I’ve had, and only a matter of time before the next common problem comes along, which will really piss me off as I’m trying so hard!

@thaneofglamour I think they've gone with more than 5 mm requires the works.

@knittingaddict hope you get on ok

@HappyKatieA the inconsistency is not helpful is it? I think there are lots of variables and opportunities for women to be left longer than they should be.

@LadySpratt thanks for sharing your experience. That's one of the things that puzzles me, my lining is v thick but I haven't had awful bleeding. I had one heavy bleed two weeks ago but given that was the first bleed in 8 weeks was not unreasonable and I've had spotting, red blood when I wipe mostly not v much on pad although there was a bit more yesterday. So has it all just thickened up or what? Shame we don't have little gauges like in cars 'Attention! Your lining is now 6mm. Discuss with dealer GP' 'Attention! Your lining is now 2.8 cm. Stop driving and lift the bonnet'

@thaneofglamour always swear in title 😁

And in the temp user name

At the time I had post menopausal bleeding, I was fobbed off by two different GPs one of whom was supposed to specialise in gynae. I was referred only after the GP queried with a consultant at the hospital, about whether to prescribe Vagifem. He got back to the GP and said no, post menopausal bleeding should always be a two week referral. The GPs didn’t know about this. I complained but you know how it goes, fobbed off again. I wasn’t in a good place at this point, as I had a cancer diagnosis, so I didn’t follow it up. We changed practice though.

Oh that's shockingly bad! I'm a non clinical manager in a non gynaecology service and even I know that should have been 2 wks. Sorry they let you down.

@knittingaddict did you get home yet?

I'm catastrophising a bit as a coping mechanism. Trying to work out if I can have a hysterectomy (should that be indicated) under spinal not GA. Really don't want a GA. I'm not a good patient. I work in the hospital, I don't want to need it's services. And if I do need that and have a choice should I pack the ovaries off as well? Otoh who needs them hanging around to cause trouble? Otoh that would be full menopause overnight. Not great. Obvs what I SHOULD do is not meet trouble half way but that's not how my brain works. We meet it. Thoroughly examine it. And then we can let it go.

Just got back. Procedure was ok, but blood pressure dropped too low in recovery, so I spent longer than usual there.

Found a large polyp which was removed and scrapped lining of uterus. Surgeon said that it looked ok visually (ie not cancerous), but obviously need that confirmed. Felling relatively positive, but don't want to be too upbeat just in case.

I'll update if anyone is interested.

I was gearing myself up to having a hysterectomy, but I'm now wondering if that will be unnecessary. I always think the worst and am sometimes pleasantly surprised.

This thread really helped last night to put the whole thing in perspective.

Well done @knittingaddict that sounds like a good days work. Your uterus can have a brownie point for manning up a bit though won't make up for the several hundred brownie points lost by putting us through this in the first place. Really glad the thread was helpful to you too. I've been Mumsnetting a long time. You just need to be able to say stuff and get it out there so it stops buzzing in your head. I found an encouraging stat on the ask eve website too today - in post menopausal women 90% with abnormal bleeding do not have cancer but 44 in 100 will have a positive ultrasound for thickening and need a diagnostic test to rule it out. In pre menopausal women only 1 in 200 women referred will have cancer but 97 will have a positive ultrasound. So there was always a good chance any of us would need further investigations once we go for the ultrasound. That feels better tbh.

I was just looking on my NHS app, and saw this!
I knew there was a slight concern from my internal scan in April, and I know they wrote to my GP in April. So I'm not sure why the referral was only made yesterday? Also, my GP tried to call me, but when I called back (I had to wait an hour for a break at work) she had left for the day.
Very scary when I saw this...

I messaged the GP today and got helpful reply. Rather to my relief I don't meet 2 week criteria which I'm fine with. The thickness would defo be a red flag on post menopause, in pre menopause it's a bit more ambiguous but she is referring me to gynae as urgent. And my bloods showed anaemia. Which I was rather surprised by as I feel fine although my colleague did say I was pale, dh and dd say I've been quite tired and I have had a couple of palpitation episodes but not convinced that wasn't anxiety. So that's all good. We move forwards

Oh @HappyKatieA I cross posted. That is a shock but I found a really helpful stat on the Eve cancer charity site. Are you pre or post meno?
If post 9 out if 10 referrals due to abnormal bleeding will not be cancer but 44 in 100 women will have an abnormal scan. In pre meno it's 1 in 200 who will actually have cancer but 97 in 209 will have an abnormal scan.
I would defo want to know what your gp has been doing though and why the delay and lack of info.