Apologies super long post…
To be honest it makes me pretty sad to hear most peoples reaction to this. It’s a really lonely and miserable life living with intense pain and or sickness and then dealing with everyone’s disbelief and lack of compassion on top. I really hope most of you don’t have to experience it.
Try and be kind.. Some illnesses are hidden, some people don’t ‘look’ sick, some are incredibly hard to diagnose and the NHS, sadly, just isn’t really set up for these kinds of problems. Injuries and illnesses that are common are easily and relatively quickly diagnosed. But those that are not… are a whole different story. For some people they can be stuck in a battle of pain that takes decades to put a name too and they face a long fight of continually calling for appointments and pushing for referrals. Added to that as the journey continues peoples sympathy dissipates. Ladies putting yourself in the shoes of others goes a long way. Imagine if this was you.. every time you go anywhere or you or your kids do anything.. you get sick and you physically feel like your dying, (if he feels like he needs A and E he must feel pretty bad) but the doctors keep telling you everything is fine every test comes back fine and everyone tells you just to get on with it… But still you face the same cycle with agonising pain that makes you thrash about and it just keeps happening again and again over and over with no answer. Sounds horrific..
Op whether there is a physical cause / illness or not your partner is clearly suffering. Nobody wants to be in pain, repeatedly, very few people would ‘choose’ to have their life constantly interrupted and inconvenienced, as I’m sure he’s not having fun himself during these times! by their body or brain not working the way it should. To be honest It sounds to me like your partner has fibromyalgia. As several other pp have suggested. Or some other pain processing disorder. Whatever it is it is very unlikely to be a choice or something he can just suck up or wouldn’t he being doing that already? Pain is a very personal thing who are we to invalidate anyones pain. Even if the root cause is mental health, mental health CAN cause physical symptoms. You also mention his sister suffers from it, no two people experience fibromyalgia the same. Although her pain is not severe and is constant they could very well be experiencing the same issue but with different manifesting symptoms. My best friend and I also suffer from fibro among other things. It affects us differently, she suffers with low constant pain and constant fatigue I suffer with extreme pain in bouts of days, weeks or months with manageable but constant pain otherwise. We both suffer with getting constant colds and illness which trigger more pain, We don’t thrash about or scream though! 😂 That would be silly as that would make the pain worse! I think there are around 200 + symptoms and linked conditions associated with fibro so you can imagine the myriad of symptoms you can experience. It’s a very odd, frustrating and inconvenient syndrome!!
Sorry OP let me get back to the point, firstly I think just in case right now is different than any other you should call 111 and see what they advise based on your partners symptoms right now. that way you can validate your partners feelings and get a medical opinion on what is best. Personally though even as a chronic pain sufferer i wouldn’t advise going to A&E unless you really really have too. The thing is A&E is accident and emergency. Meaning they can help accidents and emergencies, unfortunately Although your partner feels very unwell, this is an ongoing issue. Has he visited A&E for it before? They are unlikely to help very much. That is, if this is like those other times and there is no clear ‘new’ cause. The most they will be able to do after no doubt a very long wait will be to give pain relief and keep him in overnight for observation. Then they are likely to discharge back to the gp in the morning.
For future I suggest you and your partner start to build a ‘flare up’ box a box of items that can help reduce your partners pain during these times and thus hopefully your pain! This can be paracetamol, prescription pain meds (he needs to talk to his doctor about what medication could help the pain he is experiencing) hot drink sachets, heat pads, hot water bottle, hand held massagers to relieve muscle aches, sports tape can also help that too, topical pain reliving cream or rubs, Treats he likes etc. try and suggest items that are suitable for him, to improve the situation for you both and also he needs to go back to his gp and ask for referrals, I would suggest a rheumatologist, - fibro / colds could be impacting him due to an autoimmune condition and possibly a neurologist - could the pain be nerve related? And if the pain is truly affecting him considerably and it is having an impact on your families daily life then the pain clinic at your local hospital may be able to help as they will be able to give a multi pronged approach, advise medication and arrange both physical and mental health therapies.
wishing you both the best of luck x