Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

bless you OJ you have been throu so much i am so hoping that you can get away tomorrow. you both really really deserve it and need the break.
good luck for Steves hospital vist on friday too.
xxx

Am really crossing my fingers for you that he feels well enough to go today x

Steve did have a good night and is ok today, the kids have gone off to grans house and we are going off to matlock for lunch then on to hotel

Pleased for you

have fun!

I hope you're having a super, romantic time OJ.

Thanks, we had a lovely time (see new photos on profile) Steve is shattered now and is in bed.
we are at hospital in the morning, fingers crossed that the swelling has gone down enough for them to make the head mould, he needs this doing before he can start the Radiotherapy & chemo.

So glad you had a lovely time.

it will do you both some good to plan a few

trips away when you can. Lovely photos.

I wish you luck for tomorrow and i will pop

in tomorrow to see how it went.

i am hoping to book a balloon flight but can't book anything yet.
i think it will be nice for him to have something to plan for and focus on whilst he is doing the treatment.
Steve is dreading the hospital trip tomorrow as he always seems to get bad news when he goes.

glad you were able to go OJ and that you both had a good time.

Hope tomorrow goes as best as possible, will be thinking of you both.

fingers crossed for tomorrow oj and steve xxxx

Thanks, hoping tomorrow will be ok, Steve feels much worse these days, he is ,much more forgetful and confused.
whilst we were having our meal last night at the hotel steve told me i couldn't drink as i needed to drive home later. i told him we were staying overnight at the hotel but a few minutes later he was saying the same thing.

I myself have had brain surgery about 10 years ago for a burst aneurysm and had bouts of forgetfulness and other 'funny' events that others would say was confusion, but to me were perfectly logical. It went on for a months afterwards. So maybe thats why Steve is abit like that? Afterall they have been rattling around in there.

i not had brain surgery but would imagine that it can take a while to recover from the effects x

he had the memory loss and confusion before his Op, he has got much worse over the last week thou

ah. am not sure what to say sorry cnai ask if that is part of his illness?

it's always been a bit complicated as we were told that it might be to do with his MS, but they are now saying it is permanant due to location of tumour

oh gawd.

i might not be much help but am a good listener

it helps just having someone around, i am usually on my own every evening and thats when it really hits home how hard this all is

(((((((((((((((oj)))))))))))))))

have you been abble to contact macmillan or is steve not willing to talk to them? i really think that you can do with some extra help and support in the evenings (unless that cuts into mn time )

MN is my lifeline in the evenings.
the kids are at grans again tonight, i so miss them, thou i do not miss elliot waking us up at 4am