Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

My lot love going to bed and are always tucked up by 8 except when we are out.

Have just read this thread and wanted to say how much I admire you. You are very brave. Thinking of you and your family and hoping that you remain strong.
The photo's are lovely.
Good luck and best wishes x

Thankyou, for your kind words, Steve is the brave one in all of this.

Will be thinking of you today x

thinking of you too x

How did it go at the hospital?

What a day.
the mould has been made the reality of what lies ahead is seeming more real now.
we saw so many people today who have cancer wished we could delete it for everyone dealing with this crap situation.

i wish i could delete it for you too
how did steve cope with having the mould made?
what do they make it out of?
i can imagine how hard it must be seeing other people with cancer en masse.
keep strong and know that lots of people are thinking of you and your family. we will walk alongside you all of the way.
xxx

He did really well. thou he didn't cope so well seeing lots of other people with cancer, i think sometimes he forgets that he has cancer.
there are some photos on my profile of the mould.
they put some lilac stuff on him which then set then they put plaster over the top.
now they will make a clear plastic mask type thing from the mould. he will have to wear the mask which will be bolted to the table everyday whilst he has the radiotherapy

Only just seen this. I'm gutted for you OJ. My thoughts are with you all xxxx

yes it was not very pleasant but had to be done. everyone thinks that cancer happens to other people. Steve has always been very fit never smoked and looked after himself.
kids are back on tuesday. it will be DS first day at his sisters school.

don't really know what to say OJ but am thinking of you all.

a bad day today, steve has been very angry and confused, its so hard to see the change in him

Sorry to hear you have had a bad day, is Steve always confused?
i can't imagine how you get throu the days really. When i think my life is too hard i think about how hard things are for you. i am humbled by your posts and by the way you deal with everything life has chucked at you.

So sorry to hear this OJ. It must be so hard
I do think of you often. You are both being so strong. Lots of love and hugs to you xxxxxx

He has been confused for a while now plus his memory is bad. these are the things i am struggling with at the moment as in so many ways he is like a different person. i don't know if this will ever improve either.
Steve said today that he doesn't know why people are making such a fuss as there is nothing wrong with him
i don't know if this is denial or that he has forgotten that he is so ill.
we have been together for 16 years and yet at the moment i don't feel like i know him

i don't know if its cos of the hospital vist or not. he has been very snappy today and i know he was in pain but he is so stubborn he refused to take his painkillers and was verbally abusive to me, he couldn't remember being abusive later on, it is like live with someone who has dementia.
i spent ages yeasterday sorting out new meds for him as he had only two painkillers left, i have no idea where he has put the others that he had. then i spwnt ages sorting out his bank stuff it seems that he has been paying out monthly since december for something that he didn't know about, so i had to cancel that, i explain things to him then ten minutes later i have to explain things again cos he has forgotten

OJ - thinking of you

Elliot is going to his sisters fab fab fab SN school, can you tell i love the school
steve has had a tearful day today

OJ I'm so sorry Steve's had a tearful day; it must be so so hard for you both.
My MIL who I mentioned before is off to the States tomorrow as has definitely been accepted on a trial for some new drug that hasn't been tried on her type of glioblastoma before (grade 4); if there is any promising news once the trial starts I will let you know but it will take a long time even getting there as she isn't allowed to fly . Even once she's arrived it will take a while for the brain scans to show whether it's effective I guess, so we don't know how long she'll be away for.
I wonder if there are ways for you to get in touch with others going through so much with similar brain tumours and I remember when she was first diagnosed I found some website that had a few happier outcomes which even if very rare sort of kept us going. Anyway am thinking of you lots.

do keep me posted looseleaf.