Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

just checking in to see how things are,

it sounds like things are more than a

little difficult for you right now. have

you had any help from your family?

Things will be better tomorrow

Still thinking of you, i saw your other thread about if to tell steve or not,i didn't know what to say, Heck i still don't know what to say. how cruel this all is. When does he start the chemo? how often will he have the treatment?
stay strong.

OJ sorry you g=have had such a tough weekend. I suppose this is the part where you have to come to terms with this and live with it getting over the shock of diagnosis.
My mum also had some memory problems although she did have good and bad days it didn't seem to get progressively worse, sorry i know not much consolation.
Looseleaf i hope you can come back with good news.
Is Steve still not accepting any help? Would he mind if you did just for you and the kids?
Your visits to the hospital will get more normal as you get use to it i'm sure.
Hope today was better for you.

i am not sure i have come to terms with it as such. Steve was very upset yesterdaywhen we were talking about the hospital as he had forgotten what we had been told, heres me thinking he is doing denial theres him having forgotten that they said treatment was to buy time and not a cure. yesterday was bad cos it really hit him for the first time but today he has forgotten again.
i have joined an online support group for brain tumours which is helpful but very hard reading and very sad too, most of the people on there have been dealing with the DX for much longer so they are at different stages of the illness/treatment.
we are off to the hospital in the morning for more scans it will be tricky as steve commented when we went on friday that there were an awful lot of people there with cancer

Oh, oj I have no words of wisdom, just wanted to let you know someone was listening and caring.
xxx

OJ I wish I could do/say something to help. xx

Onlyjoking, sorry to hear you are having a rough time. Thinking of you

well, i will be taking the kids to their school bus soon then getting ready for hospital vist, steve in pain this morning mostly in his tummy, not sure if it is hunger, i am having to watch him carefully as he is not allowed to eat until after his scan, but he has forgotten this.

• sounds like things are tough and might well get worse - off load as much as you can and as much as you need to to get through it.

Hopefully the treatment can at least help to control the pain. Have you seen the Macmillan nurses yet ? I think they are the specialists in pain control.

oJ hopefully you will get some support on the online group then. Poor Steve it must be quite frightening, hope you get through today ok and the kids are happy to be back at school.

Think of you today.

Thinking

not seen the nurses yet, dont think steve is ready to accept them yet but hoping that will soon change.
kids have gone off to school (see off to school photo) they all had a cry this morning. Abbey hid her school uniform in the kitchen cupboard! i saw her do it the little monkey.

Good luck with todays scans. i do hope you get some more positive news.

onlyjoking..we havent spoke, but i have been following your story.thinking of you x

Am sure Steve will get there r/e the help thing.
What a lovely photo hope Elliot has a lovely time, bless Abbey bet it raised a though!

Scans went ok, saw three children in the radiotherapy bit which was very
Steve has to wait for a phone call 7-10 day to go in and use the scan simulator then radio & chemo will start soon afterwards so probably in two weeks time.
i couldn't get steve to pop in to the cancerbacup place at the hospital, but one day he will.

You can only try OJ and at least things are moving on with the treatment.
Hope the kids had a good day

the kids were fine ay school Elliot came home and said that his new school was the best school ever so that cheered ud up.
a sad and tearful day and i have had far too much to drink tonight.

that's great about Elliot, for you though, hope today is a little easier.

kids have gone off to school without tears today
Steve had a rough night so not much sleep. he is sleeping now.

how are things OJ? you have been very quiet.
whens the next hozzie trip?

Hope everything ok OJ and the fact your not on much means no news is good news ?

i have been busy today sorting stuff out trying to get bank stuff sorted. Steve is still very confused and he is blissfully unaware of what is happening to him.