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Original poster

Trace2's dd in hospital again - Anyone got any experience of her problems?

126 replies

Phoenix · 26/07/2007 10:16

For anyone who doesn't already know her story look here, here and here

Yesterday she was took in again and trace posted this this morning

By trace2 on Thu 26-Jul-07 09:14:39
dd was rushed in yesterday again some sort of fit or reflux i have no idea i just wish i knew

So can anyone give her any ideas she's so scared

Trace is at the hospital at the mo but i'll send her this thread later to look at

OP posts:
trace2 · 27/07/2007 09:20

thanks foe explaining, and no not tube fed at all. ill tell all later i have to go now back to hospital thank you all

saggarmakersbottomknocker · 27/07/2007 09:21

Take care trace.

ggglimpopo · 27/07/2007 09:22

Wishing Chloe a speedy recovery Trace2.

Original poster
Phoenix · 27/07/2007 09:33

Trace if you're struggling with Jack you know where we are (if he'll stay with us that is) that's what godparents are for

OP posts:
FoghornLeghorn · 27/07/2007 09:38

God it must be awful for you Trace,poor DD
Fingers crossed you get some answers soon

fearscape · 27/07/2007 13:02

Oh Trace this must be awful for you, so sorry. Sounds a lot like my ds had only because he was hooked up to monitors all the time we could tell when his oxygen levels were getting dangerously low and the nurses would leap into action! The reflux can affect breathing because the milk can come up the oesophagus from the stomach and go back down the windpipe into the lungs. Ds had several chest x-rays where they could see "damp" patches on his lungs. Are the breathing problems happening after feeds? This is when ds was worst and had to have his oxygen turned up. Glad she is on the drugs now, hope they make a difference, although I think they have to stop the ranitidine to do the pH test because it makes the stomach contents less acidic.

Before ds was diagnosed the hospital thought he might have an H-fistula (a little hole between the oesphagus and windpipe), apparently the symptoms are similar to silent reflux, has anyone mentioned this to you?

Do hope they manage to diagnose her soon and sort her out. Don't have any wise words about coping but lots of sympathy.

saggarmakersbottomknocker · 27/07/2007 19:30

Hoping things went ok today Trace.

chocolateshoes · 27/07/2007 19:37

Positive thoughts for you Trace, take care

Leati · 27/07/2007 19:50

Hey Trace2

Two of mine had reflux but no near as bad as that. When I first read your thread I thought it must be a mistake. But then I did research and it turns out that some babies have a harder time of it. My daughter had a hard time gaining weight so the doctor gave her tagament as soon as she was old enought. Now she is 18 months and has no problems, it appears that has out grown it. I attached some links on another thread that you started, there is some good info in there. With mine they did x-rays for one and not for the other. So I don't think it is always standard. Anyway, I hope that your babe feels better. Give your baby lots of xxx's and ooo's and cuddles and feel assured that she should outgrow this.

daisyandbabybootoo · 27/07/2007 20:03

trace, i hope things are alrihgt and that the tests are telling them what's going on.

i'm off on holiday tomorrow, but if you need help with anything I'm back next saturday. CAT me any time, I'm only in Leeds.

Take care and try to get some rest.
hugs, Daisyxx

Frizbe · 27/07/2007 20:36

Hi Trace was checking to see how your doing. My dr friend has looked at this thread, but says sometimes its so difficult to diagnose these things without ruling out others that she can't really say anything to help. (which I guess is what your hospital is trying to do) She has suggested that you push for specialist help though, even if it means you transfering to a hospital not in your area. Hth's. also hope you got some further clarification on things today?? {{{Hugs}}}

Original poster
Phoenix · 27/07/2007 21:10

Thanks for trying Friz

OP posts:
trace2 · 27/07/2007 21:41

first of all i want to thank you all for all the kind wishers and surport and research you all have done for us !

today dd had eeg painless but disressing for her, had to wait all day for results but now got them back and dd is home once again, they say she had some abmornalitys but only minor so not doing any thing about them unless she shoes more signs of fits. they still think its silent reflux cos its always within a hour after feeds.

had a bit of problems with peads as two of them wanted her on there books but we got the one in the end who speicelizse in gastric so feel a little happier. they gave us a two week to go back where ever we have a problem

Original poster
Phoenix · 27/07/2007 21:46

Glad she's home

I'll read the rest of your post now

OP posts:
trace2 · 27/07/2007 21:47

hi me too i will say she seems much happier

Original poster
Phoenix · 27/07/2007 21:48

Don't forget if you need me RING ME!!!!! I know you don't like to ask

I'll chat on msn when you get a chance

OP posts:
daisyandbabybootoo · 27/07/2007 21:53

trace, glad she's home and that you finally seem to be getting some answers. Fingers crossed she doesn't have any more episodes, it must be bloody scary!

Take Care xx

trace2 · 27/07/2007 22:08

thanks daisy have a good holiday

sputnik · 27/07/2007 22:10

Hi Trace, glad you're home and have had at least some answers and reassurance.

trace2 · 27/07/2007 22:14

hi sputnik i do feel a little better but scared on being on my own now

saggarmakersbottomknocker · 27/07/2007 22:25

Trace - glad that you're home. Hope things start to improve at long last.

Call the ward if you get worried. It's what they're there for.

TALLULAHBELLE · 28/07/2007 12:35

Thinking of you & little Chloe, Trace. Hope things will start to improve now.

Frizbe · 29/07/2007 10:07

{{{HUGS}}} glad you appear to be getting somewhere.

NattyThomasandEllen · 30/07/2007 01:12

oh trace so sorry to hear of all your problems... cant imagine how scary this is for you (((HUUGGSSS)))

trace2 · 18/08/2007 22:13

hi just to update you all dd is back in hospital, now been comfirmed she as epilepsy took 2 hours to bring her out of it, with strong meds, she still very sleepy but am hoping shes ok, still no idea why she as them but are doing more tests just hoping its not a bleed or a tumour! shes having an mir scan and eye specilist come when shes come round.

they say she still as reflux, but at least we know some thing now