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Original poster

Trace2's dd in hospital again - Anyone got any experience of her problems?

126 replies

Phoenix · 26/07/2007 10:16

For anyone who doesn't already know her story look here, here and here

Yesterday she was took in again and trace posted this this morning

By trace2 on Thu 26-Jul-07 09:14:39
dd was rushed in yesterday again some sort of fit or reflux i have no idea i just wish i knew

So can anyone give her any ideas she's so scared

Trace is at the hospital at the mo but i'll send her this thread later to look at

OP posts:
daisyandbabybootoo · 18/08/2007 22:40

Aw Trace...sorry to hear it's epilepsy , but at least you now have some answers and can focus on understanding and learning to live with the condition. I hope she gets positive results from the other tests.

You are being so strong and brave through all of this.....big hugs for Chloe and you and your family.

Daisy xx

justbeme · 18/08/2007 22:51

Hi Trace - Sorry to hear about all Chloes problems - am glad that she is being well looked after and that at least you have an outcome - its easier to deal with when you know "what".
Look after yourself, you must be getting very tired with all the running about/stress. Take Care x

kamikayzed · 18/08/2007 22:52

This reply has been deleted

Message withdrawn at poster's request.

trace2 · 19/08/2007 08:08

morning all dd is 10 weeks on monday, she is having an mir scan on monday, if that one dont show any thing she having another mir scan at another hospital a bigger one i think they said can pick more up.

we still dont really know whats wrong with chloe ,all we now know is its caused epilepsy, but they want to find out why shes had so many other things wrong with her.

thank you for your wishers kamikayzed dont worry about worring me we need as much info as possible to find out whats up with dd. sorry to here about your ds how old is he now? and i know what you mean the what ifs or could bes! we was told yesterday its going to be a long road at finding out whats wrong with her.

Original poster
Phoenix · 19/08/2007 09:06

Trace hope she is well soon (((hugs)))

OP posts:
daisyandbabybootoo · 19/08/2007 11:42

Trace, just wanted to say good luck for the scan tomorrow. I hope Chloe is a bit more comfortable now. I assume they are giving her medicine to control the fitting?

Nbg · 19/08/2007 11:45

Oh Trace

I hope you gte some answers from your scan.

xxx

Original poster
Phoenix · 19/08/2007 16:26

Hi had a text from Trace earlier on saying that Chloe recognised her more today but she still isn't herself yet.

OP posts:
gess · 19/08/2007 16:59

sorry to hear this trace. Do pop over & join the SN board- there are a number of mum's there whose little one have had epilepsy from babyhood & who've been through the whole mri scan etc. Hope you get some answers soon.

Original poster
Phoenix · 19/08/2007 17:25

Thanks for that gess that might be a help to her

OP posts:
kamikayzed · 19/08/2007 20:36

This reply has been deleted

Message withdrawn at poster's request.

sputnik · 19/08/2007 22:04

Trace, this must be so scary for you. Just wanted to let you know I'm thinking of you and Chloe, all the best for monday x

saggarmakersbottomknocker · 20/08/2007 16:08

Hope today went OK trace and you can start getting to the bottom of all this.

Original poster
Phoenix · 20/08/2007 20:24

Trace let me know how she got on today when you get home xx

OP posts:
peachygirl · 20/08/2007 20:33

so sorry ti hear this trace, i hope everything has been OK at the hospital

trace2 · 20/08/2007 21:05

hi chloe scan was ok today was just to see if she had a bleed or tumour, thank god shes not seen eye person too, but was not clear so seeing someone else next wed! they now contacting other hospital to see when she can have mir the big one, but been told she as to be put to sleep for this and they dont like doing to early in age.

shes not home yet but been told we will be bringing her home with no new answers, they have stopped reflux meds since friday and shes been fine without them. we now will have an open visit to hospital, so we can bring her in when ever untill they find out why shes fitting.

thank you all i will keep you imformed

kamikayzed · 20/08/2007 21:12

This reply has been deleted

Message withdrawn at poster's request.

Original poster
Phoenix · 20/08/2007 21:17

Great news from todays scan xx

OP posts:
trace2 · 20/08/2007 21:21

yes it is! but she had a little one today too i just wish i knew whats up with her

Original poster
Phoenix · 20/08/2007 21:44

Is she getting her sparkle back?

It may take a while to get the right meds to control the epilepsy. Is she on any epilepsy meds?

OP posts:
peachygirl · 20/08/2007 21:56

Thats good news Trace.
It can take time for them to sort out the epilepsy and especially if they are going to give you meds and it cab take time for the body to get to grips with them. The fact they are sending you for so many scans is excellent.. Are you going to the childrens hosp?

daisyandbabybootoo · 20/08/2007 22:27

Trace...good news that there is no bleed or clot and that the gastric reflux seems to have righted itself . I hope you get some answers soon though as to the cause of all this.

We're all thinking about you on the PN thread. xx

Bethron · 21/08/2007 08:46

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Message withdrawn

saggarmakersbottomknocker · 21/08/2007 08:55

trace - glad you've had some good news at least. Don't wory too much about the GA for the bigger MRI. She'll be fine. Hope you don't have to wait too long.

trace2 · 21/08/2007 20:33

hi all thank you for your goood wishers!
chloe is hopefully coming home tomorrow again with no full answers, but atleast not wrong ones. we have had to learn cpr once more and also how to put diasapan in to her bum to try and bring her round from a fit and phone 999, its getting more scary now than ever. they have a plan drawn up with what happens next but now refering her to nearst childrens hospital.