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Cancer support thread 62 - here comes the sun (hopefully)

986 replies

WhatWouldLeslieKnopeDo · 03/05/2018 19:14

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

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Dulcedelecherocks · 19/06/2018 07:24

Good luck today purple. Let us know how you are when you can.

Noodles the waiting is the worst bit. Once you know what you're dealing with it does become easier - even if it's bad news.

Adle and tayto how are you feeling?

Leslie are you feeling any better? I hate dairy lee but love cheese in general. Hope you can eat something.

Morning and waves to everyone else. Nothing new here. Blood test today and results on Thursday hopefully.

freddiemercury · 19/06/2018 07:36

purple I will be thinking of you today...LOTS.
leslie hope chemo goes well..
Waves to everyone else... xx

noodles44 · 19/06/2018 08:11

Haha addled those are the ones!! I think I lived on those in the 70's although my Mum begs to differ and the fact she cooks so much now makes me believe her!
Thanks addled & dulce it is nice to know it is normal to be wobbling now. I am feeling like a bit of a fraud at the moment for being so upset without yet fully knowing the outcome. I am managing to be normal around the kids, so I think it was a build up from a whole weekend of keeping calm & carrying on as usual. I slept better last night too as was just totally exhausted.
Hello to everyone else & hope you all have a good day whatever you are up to x

purpleunicorns · 19/06/2018 10:48

The cancer has spread too far for them to operate, I go to see someone Thursday to speak about chemo but it will only be palliative. I'm fucked basically

TwitterQueen1 · 19/06/2018 10:57

oh Purple. I am so so sorry. The worst possible news. More in a minute

TwitterQueen1 · 19/06/2018 11:13

Sorry Purple, back now. This is no consolation to you at all but I am in the same position. It's the absence of hope that is so difficult to cope with. Is your DH with you? (I'm assuming you have a DH? can't remember, sorry). The chemo I've just finished has been very effective, with minimal side effects, and I'm sure there will be treatments available to you that will delay progression. Rant and scream and shout as much as you want.

Mrspotter12 · 19/06/2018 11:31

purple
ThanksThanksThanksThanksThanksThanksThanksThanksThanks

Dulcedelecherocks · 19/06/2018 12:17

Oh lovely purple there is nothing I can say so I'm just here to offer support and hugs. Don't give up hope just yet. Incurable doesn't mean untreatable so wait and see what they say. Chemo can do amazing things and prolong life a lot more than we hope.
Twitter I'm sorry I hadn't realised you were in a similar boat but you seem awfully positive which is amazing to see. When were you first diagnosed and where is your cancer? Oh and do tell me to F off if you don't feel like telling me :)

WhatWouldLeslieKnopeDo · 19/06/2018 12:28

Oh purple I'm so sorry Flowers there's not really anything to say so I'm just sending love

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addlebrained · 19/06/2018 12:34

Purple I’m here too Flowers available for hand holding or ranting as you wish. Thinking of you x

Almostdone2 · 19/06/2018 12:39

I’m a reader not usually a poster but I have to say how sorry I am. I’m thinking of you.

noodles44 · 19/06/2018 12:49

So sorry it was not better news purple Flowers

purpleunicorns · 19/06/2018 13:23

Thanks everyone. My husband is with me, I think I'm holding it together better than him at the moment bless him. My sons still got GCSEs to get through so I won't be telling anyone else yet apart from you amazing bunch so I'll probably be on here quite a bit to have a moan. Soz about that Grin

WhatWouldLeslieKnopeDo · 19/06/2018 13:45

Moan away :) anything we can do to help! I think it's sometimes a little "easier" (ha!) for those of us actually going through it than those on the sidelines. Let this be your place to let it all out so you can put your game face on. How are the GCSEs going?

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TwitterQueen1 · 19/06/2018 13:56

Dulce Always keen to discuss my ovarian cancer to raise awareness of it as I wasn't aware until it was too late... I have 2 threads of my own on MN, the 1st discovery and diagnosis here and the continuation here

Leslie how are you doing today? Have you progressed from Dairylea?

Purple I suspect I've moaned more than you - this is the right place for it and everyone is here to provide support and/or just a listening ear.

penguinsnpandas · 19/06/2018 14:11

Purple So very sorry to hear your news and thinking of you.

freddiemercury · 19/06/2018 14:40

purple what unutterably horrible news for you. It's so hard to know what to say...other than I'm thinking of you so very much. With love M xxx

Cafedelmar · 19/06/2018 14:53

Long lime lurker wanting to join please.
About 2 hours ago I found out I have endometrial cancer. It just feels like a bad dream. I haven't told anyone else yet. I didn't want to tell my husband yet as I worry about his long drive home. I have a CT scan on Friday to see if it has spread beyond the uterus.
Trying to get myself together before the kids get home from school. My head is all over the place.

Dulcedelecherocks · 19/06/2018 15:08

Thank you Twitter. Have read a bit of your story and I love it how you care about warning other people when you're worried about your own health.

Cafe sorry you find yourself here. You're at the worst place right now with the shock, fear and all uncertainty. I promise it does get more bearable. I don't dare say easier but you just cope with it.

Purple please moan away. Are you home now? What's the next steps?

Taytotots · 19/06/2018 16:30

purple really sorry to hear your news Flowers. Moan away - you certainly have the right to.

Cafe ditto. Good luck with the scan on Friday.

YearOfYouRemember · 19/06/2018 17:02

Oh purple. I am so sorry. I've been busy today but have been thinking of you. Was so hoping it was going to be good news.

noodles - it's not self indulgent days you need but self care. Less guilt inducing.

Cafedelmar - I am so sorry to hear your diagnosis. Cancer is bloody shit. I hope your scan brings hopeful news on Friday. Can you do a chip shop tea or something easy tonight?

I have my scan tomorrow. Really confused by the leaflet instructions. Not sure what will happen. Think it's the same scan I had two years ago at a different place. Embarrassed to say I'm feeling apprehensive.

WhatWouldLeslieKnopeDo · 19/06/2018 17:23

Year what do the instructions say? Someone might've had the same scan and be able to clarify :) I hope it goes smoothly.

Cafe welcome but sorry to hear of your diagnosis. Good luck for Friday's scan Flowers

I am home from chemo now. I slept for most of the day and was so comfortable that I woke up dribbling slightly BlushBlush thankfully nobody seemed to have noticed!

An extra big hug for purple, and anyone else who fancies one Glitterball

TQ yes thanks I've had some "proper" food today!

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purpleunicorns · 19/06/2018 19:13

Apparently my son is finding them easy, but I very much doubt that's the case. He's clever but he's so bloody lazy Grin

Year what scan are you having done? I think between us lot we've had every scan going so one of us can help you out. And don't you be embarrassed! Waiting around is the worst, even though I've had the worst news today I still don't think it's as bad as waiting. At least now I know for certain

Leslie I darent fall asleep during chemo as not only do I dribble but I snore pretty loudly Blush

Cafe sorry that you find yourself here, the bit between waiting and finding out what treatment you're having is the worst part. It honestly gets better once you have an action plan in place Thanks

YearOfYouRemember · 19/06/2018 19:29

My appointment letter says For: US Pelvis.

How to prepare -

Pelvic - 1 hour before the appointment time please drink 2 pints of water in order to fill your bladder.

I get that bit. Appointment is 4pm so at 3 I will drink.

But I'm having stomach pains and I was kind of hoping they would scan that too and the later in the leaflet it says

Abdominal & Pelvic/Abdominal & Renal

  • Do not eat for six hours prior to the scan. 1 hour before drink two pints of water.

Which do I do? I am probably deluded if me saying I have stomach pains means they scan my stomach as well but I don't want to miss the chance if they do by eating

I'm also panicking as might have to have a transvaginal scan.

DD isn't very well (has underlying issues so I worry when she's ill) so I'm not functioning very well. Sorry.

Dulcedelecherocks · 19/06/2018 19:35

Year I think you have to stop eating 6 hours before the scan and also drink water an hour before so as your bladder is full. If your scan is at 4 then have a nice breakfast at around 930-10 and drink the water at 3. At least this is how I read it :)

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