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Fat belly? No. Ovarian Cancer belly (pt 2)

(472 Posts)
TwitterQueen1 Sun 24-Sep-17 19:37:08

The story of my ovarian cancer discovery is here

This is such an important health issue - there's a reason why OC is called the 'silent killer'. I really want more women to be aware of what few symptoms there are (I wasn't).

This is my story. I hope it's a long one.

ClaireWilliams3 Sun 24-Sep-17 19:49:50

Well done TQ, lurker here wishing you absolutely well. You are brave and marvellous xx

Chilver Sun 24-Sep-17 19:53:56

I couldn't agree more about raising awareness. I now do a lot of talks to medical professionals and public about raising awareness, (and to the docs) the impact my ovarian cancer diagnosis has on me personally, mentally and physically (not medically) and on those around me.

I don't have the energy tonight to go through my whole diagnosis debacle and subsequent treatment, but my message to people is, don't be complacent! Keep pushing if you feel something isn't quite right.

mids Sun 24-Sep-17 19:56:46

I have so much to say about this - regarding my mother. I will come back under another name though

TwitterQueen1 Sun 24-Sep-17 20:19:45

Hello! So glad to have some company here. I'm taking every opportunity I can to talk about this.

I probably should have said that I'm 6 months post-diagnosis. On cycle 5 of chemo (after a 3 month break for debulking op - huge story there about NHS incompetence). Stage 3c/4. On Icon8B trial (Carboplatin, Paclitaxel (Taxol), with added Bevacizumab (aka Avastin)). Weekly chemo.

Applesandpears56 Sun 24-Sep-17 20:21:49

Thanks for starting a new thread. Definitely more needs to be done to raise awareness of OC and it's symptons. And of gps taking women seriously when they come to appointments - women are often made to feel like they can't go to the gp over things like weight gain, bloating, tiredness for fear that they'll just be told it's age/hormones or in their heads.
Thinking of you and your family op.

TwitterQueen1 Sun 24-Sep-17 20:26:27

I fat-shamed myself. I blamed my breathlessness on Christmas, my dog dying and no longer walking every day and an entirely sedentary full-time job.

And the doctors all seem to say "lose weight and come back in 6 months..." not helpful.

Caketroubles Sun 24-Sep-17 20:34:03

I remember you dear. The last few months have been so hard for you. You really are a queen. flowers more so because you are trying to raise awareness about this silent disease. Please tell us more about your NHS experience if and when you have the energy for it. It might help others.

Brenna24 Sun 24-Sep-17 21:16:10

Good to see you are still fighting on. I hope we will be hearing from you for a long, long time to come. flowers

Chasingsquirrels Sun 24-Sep-17 21:18:21

Am hoping it's a long story too TwitterQueen x

ItsNachoCheese Sun 24-Sep-17 21:19:27

I read your old thread and was struck af what an amazing lady you are. Keep on keeping on and kick cancers arse 💛💛💛

Isadora2007 Sun 24-Sep-17 21:23:47

Great to hear your updates and how well you "sound". What a trooper you are- and your lovely daughters clearly take after their mum.
Thank you for raising awareness.

gonegrey56 Sun 24-Sep-17 21:27:51

Hello TQ, thanks for the new thread (and look at all the wonderful messages!)
Another new week tomorrow, and so glad that DD3 is enjoying herself!

lougle Sun 24-Sep-17 21:31:20

You're telling an amazing story, TQ. What a journey you've been on since that first post that bemoaned eating too many pies.

Giraffey1 Sun 24-Sep-17 21:42:54

May your story be very long and very boring (in the nicest possible way!) x

WhatWouldLeslieKnopeDo Sun 24-Sep-17 22:49:51

Just checking in flowers

Itscurtainsforyou Sun 24-Sep-17 23:16:01

Also just checking in. Glad there's a nice thread. TQ you are a star

Itscurtainsforyou Sun 24-Sep-17 23:16:24

*nice = new hmm

TheFarSide Mon 25-Sep-17 10:16:05

Checking in too :-) Seeing you coping - and to me that includes experiencing all the pain and fear and still moving forward - is really helping me.

QOD Mon 25-Sep-17 10:21:29

🤜🏻🤛🏻

TwitterQueen1 Mon 25-Sep-17 10:43:40

How lovely to see all these messages! The support I've had from you lovely ladies has been immense. As a single, lone parent it can be very lonely sometimes, despite all my fab friends, and I don't want to dump on the DDs.

mids Tue 26-Sep-17 08:22:46

Hi OP haven't got round to changing name
Or reading old thread. Can I ask is the debulking info on there?

It's so hard I've seen it first hand with my mother.

welliesandsequins Tue 26-Sep-17 08:25:10

Delurking from old thread to say I think you sound like an amazing lady and wish you all the best flowers

ElizaDontlittle Tue 26-Sep-17 08:31:45

TQ I remember you! Glad to hear you 'sound' so determined... positive may be a bit far eh?
I lost my mum at 60 to ovarian cancer but she had a good few years between diagnosis and death mostly on chemotherapy with some breaks - but her diagnosis was horribly messed up.
Glad you are in the Avastin era - it's pretty new and hopefully a game-changer - and also that you are into a trial so early on.
How are you feeling? Are your friends being the support you need? flowers

jostanford Tue 26-Sep-17 10:26:32

TwitterQueen1, thank you for sharing your story, I'm so glad you got seen and eventually got your diagnosis confirmed. As you say, it's so important to make people aware of this and know to push when something isn't right.
Have you ever done any work with charities? Ovarian Cancer Action are always looking for people to tell their stories on their website and in the media for exactly this reason. It makes such a difference when real people tell their stories. Feel free to email me jo (a) ovarian.org.uk if you think you'd like to get involved in any way (doesn't have to be time consuming)

If anyone has any Qs about OC- head to www.ovarian.org.uk as there's masses of info to help you out on there.

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