Cancer support thread 62 - here comes the sun (hopefully)

[WhatWouldLeslieKnopeDo]

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

Yes that sounds correct to me too

Dulce have a good breakfast before 10:00 then don't eat anything until after your scan. Drink 2 pints of water exactly an hour before your scan, don't drink it any sooner or you'll be desperate for a wee

Sorry Year not Dulce. Brain is not in gear today

It doesn't say abdominal on my letter though. Mind you going without food from ten will be easy as I'll be stressing

Sorry . Manners. Thank you.

Purple for one brief moment I thought I had a scan which I had forgotten about!

Yep, in agreement with the reading of the scan letter. Nothing to eat 6 hours prior but 2 pints of water an hour b4.

purple I don't think any of us have the words to express how we much we feel for you today xx

Thankyou mczeba, I cant express just how much I appreciate everyone wishing me well. I don't think I'd have gotten through these last few months without you lot

year yes, self care does sound a more apt (& less guilt inducing) description. I will say this in future.

cafe best wishes for Friday

MrsP Thanks re bra tip up thread.

Morning to everyone, how are you feeling today purple after getting some sleep (hopefully)?

Good luck for today year, not sure about your results but when I had mine it took just over a week to get mine back. If you ask when you're there they should be able to give you a rough time scale of when you should hear back

Noodles I've had a rubbish nights sleep despite sleeping tablets. I've been ordering photo albums so I can make them up for my family. I still haven't found the nerve to tell anyone yet 😢

Oh purple
You're just so brave even if you haven't told anyone yet. Take your time. What happens now? Are you actually having any op at all or just chemo? How old are you my lovely? Been thinking about you a lot. Hope you have an ok day and manage some rest x

The cancers spread to much to operate so I'll be having palliative chemo to try and slow it down. I'm 34 but feel like a helpless child right now 😢 oh god what do I do? they wouldn't even give me a rough time frame of how long I have left

Have you actually asked that question? If you have you're definitely braver than me. I've never had the guts to ask.
I don't really know what to say and what you should do, I think you need to enjoy your time with people you love and not let it control every moment of your life. Of course you won't forget it but you can have moments of happiness. I think álbuns and memory boxes are also good ideas as long as you feel up to it.
It's totally ok to feel hopeless and I pray that you don't feel like that all the time. Can you see a counsellor or a psychologist?
I can't begin to imagine how and what to tell your son. I'm just so so so sorry and sad this has happened.
We're here for you every step of the way.

purple sorry but unsurprised about the sleepless night. Make sure you ask for tablets if you need them to get through this initial bit. It's a huge shock. You will come to a point of acceptance. I know that probably sounds impossible. We humans are pretty good at coping to all sorts of awful circumstances.

They may have no idea about timeframes. It can vary so much. They might be able to give you a better idea once you've started the chemo.

Palliative is such a loaded word. I wish they'd call it something else. Unicorn chemo

I am sending you snuggles from my post-chemo nest. Sorry for the slightly sticky fingers, I've snuck a mini chocolate brioche in here for later... :)

Year I hope the scan goes well. Better to fast unnecessarily than have them unable to do the scan I reckon so I definitely would've done both too.

Purple, I've even thinking of you. If you live near me I am in Kent I'm available for shopping, cleaning, food deliveries, anything, just shout.

Just had a second breakfast. Hoping nine minutes over wont make a difference. Morning hasn't gone to plan. DD late up, took her to school then she was sent straight home then out to walk the dog who made a new friend so I was late getting back. I won't eat again. I read I would be told there and then then when I reread the form it didn't say that but that the GP would get results in 7-10 days .

Hope everyone is doing okay. I know a ridiculous thing to say given everything and where we all are.

Dulce I did ask the question daft or brave I'm not quite sure. The answer I got was "it depends..." I should hopefully know more tomorrow. I'm going to try to think of the chemo as buying me time until some new treatment is discovered

Leslie I think I will ask for tablets this time, no point in suffering and pretending to be strong when I'm mentally falling to pieces. Unicorn chemo should definitely be a thing 🦄

Unfortunately you're miles away from me year (I'm north east) or I would have taken you up on the cleaning let us know how you get on today, fingers crossed you will get results today and you don't have to wait for them

I'm going out for lunch today with a charity for people who have cancer, I've never met any of them so I probably won't be blurting out my results today but it'll be nice to stop moping around the house

purple at the heartbreaking purchases.
That must have made you more emotional, just reading about them makes me feel so sad for you and your new situation.
Hopefully the chemo will work its ghastly magic and maintain you.
A friend of mine had untreatable bone cancer and she was maintained for many years as her bones replenished at the rate chemo killed off cancer cells, so there is always hope even when the diagnosis is dire.
Enjoy your lunch out & hope it helps you switch off for a while

Damn. I used to live in Yorkshire.

Enjoy your lunch purple

Good luck Year I'm sure it won't make a difference, especially as they might be running late anyway! Sometimes with ultrasound they can tell you straight away what they see, but sometimes they might need further investigation which would take longer.

Just an FYI, this is the guy who made my "Zombies ate my Sacrum" shirt for my daughter. Really quick and professional!
www.facebook.com/jw-signscouk-190142967720937/

Here is the graphic.

Purple so sorry

Hi everyone. I'm back.

Had to take dd to an emergency appointment. DH has drunk all my sparkling water. So, leave dd in the car, go to local shop for water, drop dd at home while drinking two pints of water as I drove to hospital. Go at there half an hour before appointment and went in 40 minutes late. Stressed about dcs and DDog.

Appointment went on a long time. Really really hurt. Bit worried as said to ring to see doctor rather than ring for results.

Then ages waiting for dd prescription but dh was home first and has made tea so I can eat soon.

Didn't need to starve.

Year did they say when your doctor will have your results? Just because they couldn't give you them straight away doesn't mean it's something to worry about, sometimes they just need to have a thorough check of all the scans to make sure of things

Thanks chase

Noodles I keep reading up on people with with terminal cancer who are still around years later, although I refuse to read any with bad news. This time tomorrow I should have a better idea of what's happening

Purple what is happening tomorrow? Is it just an onco app to discuss treatment? It's good to read good stories. If you must know I have a friend with secondary stage 4 breast cancer which was deemed incurable in 2007. She's still around. When I was first diagnosed she told me not to look at statistics as they only matter if you're on the good side of it. Her chances of surviving 10 years were around 1% and she's the one who's made it and for her it's all that matters. So remember that. Good luck tomorrow.
Year glad it's over and done with and sorry it was painful. When will you see the doctor? I've had to see mine to discuss every exam result up until know and the last one was good news so try and not panic.

I'm seeing doctor tomorrow ahead of chemo on Monday and also to get bronchoscopy results. I'm bricking it.

Waves to everyone else.