Cancer support thread 62 - here comes the sun (hopefully)

[WhatWouldLeslieKnopeDo]

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

Pepper I hate compression stockings so my sympathies. Weirdly they don't seem to use them in this country (not UK) but are very keen on anti-colagulent injections.

Thanks Addled and pepper. No test results yesterday and it's the weekend now. Was last day of term here and I forgot was too busy having mass waterfight with other kids and parents to call. I am feeling a bit better although still dire rear. Roll on next Friday! (Last tablets!).

Hi everyone and welcome to the new people.

Tayto what test did you have? Forgive me my memory.

Last oxi iv tomorrow followed by last 14 days of pills then I'm done. For some reason I don't feel happy. I think I'm just scared of being caught again.
Hoping the heatwave will be good with the oxi and reduce the cold symptoms I always get.

Sorry I'm a bit miserable with no apparent reason. Have a good weekend x

Dulce nothing serious - just tests to see if dire rear from infection and bloods to look at anaemia.

Have you read this article on post-treatment? I can't remember where I saw it recommended - may have been here and if so apologies. I think a lot of people feel psychologically worse after treatment and it looks at issues. Are you still seeing your counsellor?
<a class="break-all" href="https://www.google.ca/url?sa=t&source=web&rct=j&url=www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf&ved=2ahUKEwjyzOXMy-rbAhUFoVMKHdWJA1cQFjAAegQIBBAB&usg=AOvVaw2Zkfakgg8v4EVaxg1z3eUM" rel="nofollow" target="_blank">www.google.ca/url?sa=t&source=web&rct=j&url=www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf&ved=2ahUKEwjyzOXMy-rbAhUFoVMKHdWJA1cQFjAAegQIBBAB&usg=AOvVaw2Zkfakgg8v4EVaxg1z3eUM

P.s Dulce good luck with last IV. I've been much better in warmer weather - at least I don't have to wrap up like Scott of the Antarctic to go out of the house!

Pepper - I took lactulose when DD was born (third degree tear). Was amazing stuff and really helped me poo easily. Hope it works as well for you.

Thanks tayto that's a very helpful article and it mirrors a lot of what I'm feeling.
Yes I did see the counsellor yesterday and she said people are at a higher risk of depression when they end treatment and it's normal for me to feel like this. She has offered to see my husband to help him understand how I'm feeling and I'll keep seeing her myself.
Hope everyone is having a good weekend.

Dulce did you find your counsellor through your cancer centre or independently? I can’t imagine how I will feel at the end of treatment - I’m so scared about the next one after the last debacle that I feel like I will just be relieved! But I will have a read of that article too...

Addle when I saw the oncologist for the first time after being given the diagnosis by the surgeon in the most awful way, I told him I wasn't coping and needed help. The Macmillan nurse that works with him referred me to her. She's also a Macmillan psychologist and told me anyone can ask to be referred at any time. Do you have a Macmillan nurse? If so I'll ask her as a first point of contact, and failing that ask the oncologist. I think the gp will not be able to help.
I totally get your anxiety. I've not suffered as badly as you and I get all worked up on the days leading up to it. Feel like a cattle waiting to be slaughtered. In a weird way I prefer the days after the iv as I feel I've done it and I'm counting down on the pills.

Yes that’s how I feel too dulce! It helps to know it’s not just me!! I don’t know about seeing a psychologist but I am thinking about it certainly. As you say I think the days after will be more likely to be worse - we are also moving house in the next few weeks so the dust will settle from that and also the treatment at the end of July/beginning August...

Good morning

pepper definitely don't envy you the stockings! I hope the GA effects wear off soon and you start to feel better and fingers crossed for your results next week

I felt euphoric after chemo finished but that does seem to be more unusual. I think like you addle because I'd felt so grim it was just a relief that it was all over and I didn't think too much about the other stuff.

Good luck today Bookridden :)

Thank you Leslie. Private scan showed no abnormalities, so the picture is looking much more positive. Further scan in 5 days to assess changing thickness of womb lining, but right now am feeling relieved abs grateful.

Hope everyone has been enable to enjoy the sunshine today. A bit too hot for me, but nice in the shade with a cool drink.

That's very good news Bookridden :) fingers crossed for the follow up scan.

I'm finding it a bit too hot too. I dehydrate so easily since my surgery so it's hard to get enough fluids in. Good excuse for ice lollies though

I've been lazing in the garden. I hope everyone has managed to relax a bit today.

That's good news Book

It's been way too hot for me today so I'm sat in the house with 2 fans on and the blinds closed. I have next week off work too so I'll hopefully manage to get a bit of sun on my shockingly white legs ☀️

TQ is it tomorrow you get your results? Keeping everything crossed for you🤞

Thank you Purple. Yes, 9.20am. I'm not expecting good news.

Good luck TQ I'll be thinking of you and hoping your expectations are wrong. Have you been having more symptoms? Hopefully there's a chance they'll be running on time that early in the morning...

purple any plans for your time off?

Dulce good luck for your final poxy oxy I remember having one in this type of weather and the head nurse still wouldn't let me leave the unit without my coat and scarf on I hope yours aren't quite so strict...

My back is all achey and unfortunately the only thing that's helping is a hot wheat bag!

Best wishes for tomorrow TQ I have read your threads relating to diagnosis & treatment and am in awe. You manage to be very eloquent and witty despite the treatment.

Well actually, so do a lot of the posters on this thread. I am worrying about what I may have and you guys are actually dealing with what you do have. Thank you all, it is humbling that people have tried to put my mind at ease whilst dealing with all sorts themselves.

Glad everyone sounds to have had a decent weekend. I decided keeping busy was the key and have seen friends, a beach day, shopping and a BBQ. I figure even if it is just the lumpectomy that I need, I may be out of action for a while and it has also stopped me thinking too much. I am symptom spotting for pretty much anything at the moment, there is probably an innocent explanation for everything,,,, anxiety mainly I expect!

Best wishes to everyone with appointments/scans/treatment coming up

Hope your back eases soon Leslie, despite the heat I'm still using my hot water bottle

TQ I know there's absolutely nothing anyone can say to stop you worrying but we're all hoping your results are good news. I went to see my DH 90 year old Irish nana today and I think she's got the whole of Ireland praying for me bless her. Although I'm not religious in the slightest

noodles you really have been keeping busy! Good plan :) lots of people start developing symptoms which then magically disappear one they've got their results. The mind is very good at creating things to worry about, as if that's what we need at these times

purple how's your pain at the moment? I hope the hot water bottle is helping and not making you too hot and sticky

My back is already easing up, thanks.

Goodnight lacies

Great news Book .
Good luck tomorrow TQ and Dulce
Hope everyone had as relaxing weekend as possible and isn't too hot - sound like it's boiling over there.
I have to do a course in work next week based on a small boat with no loo. That's going to be fun with the dire rear . Hoping we get lots of breaks ashore!

The pains on and off. It weirdly starts in one place then a couple of days later it's somewhere. Not super painful but rather annoying

Tayto everyone does the symptom spotting, I had a headache once and convinced myself I had brain cancer

Thinking of TQ and Dulce today

Pepper do you have an appointment date yet?

I tend to go the other way with symptoms and always assume it's something non-cancery however unlikely

Sorry about the pain purple mine moves around like that too. So frustrating! Do you have decent painkillers for when it's bad?

Eek Tayto I really hope your symptoms have improved by then do you absolutely have to go?!

Good morning everyone. Looks like it'll be pretty scorching again today. Apparently it'll be up to 29°C here this afternoon I'm very glad I bought a new fan! I hope you all manage to stay cool and hydrated

Good news for a change! I've been told to go away for 3 months (unless symptoms reoccur in the meantime). Apparently I've responded very well to the Caelyx and the tumour that was 1.9cm then 1.6 cm, is now not showing up on the CT scan.

The cancer is still there and will come back and I will be back on chemo again in the not too distant, but for now, I can rest and regain my strength and maybe even go away on holiday!

Thanks for all the good wishes and positive vibes. Purple glad to hear you're doing OK. Leslie how's your back today? Tayto a small boat with no loo would be my idea of hell! I can seasick on a canal. Noodles just reading about what you're doing is making me tired. I have very little stamina or energy and after my trip to the hospital this am I don't intend to do much now...

I'm so pleased for you TQ, I've been thinking about you all morning wondering how you've been getting on. Go and enjoy 3 months of no chemo and enjoy the sunshine ☀️

Oh that’s fantastic news TQ! Enjoy your summer!! and maybe even ?!

Hope today goes ok Dulce - it’s the last one!!! Hope you get some rest and back up and about ASAP

I am deep in house buying stress hell - suddenly we have to complete on Friday and I have my 3rd poxy Oxi on Thursday (which I’m already having internal meltdowns about) so I have forgotten what everyone is doing. But thanks to all who sent birthday wishes to my son - his party went well yesterday but I was EXHAUSTED!!!

So to everyone and I hope those who do enjoy the heat are loving the weather, and those who don’t have access to ice lollies (and no neuropathy )

is always on my menu!