Crack open the wine... it's CANCER SUPPORT THREAD 61!

[WhatWouldLeslieKnopeDo]

Some of us have been here a while and others have only just joined. If you're lurking, feel free to say hello. We are quite friendly really.

You are welcome to join us, whatever sort of cancer you have, or if you're waiting for tests to find out whether you have cancer or not (we hope not!)

Our previous thread is here. Do check it out if you're new as there's lots of useful information in the first few posts.

Best wishes to everyone who finds themselves here

Caught up a little now!

Nicky sorry to hear your news - thinking of you. I will stop moaning about not being able to swim for 3 months with picc line.

Penguins great they are covering all bases and hopefully it isn't anything sinister. The only real symptoms of my colon cancer were anaemia and a bit of bleeding. Gp put latter down to piles and former due to heavy periods and referred me to gynaecologist. In hindsight I wish I had pushed for tests but I had no idea. I think because I am young bowel cancer wasn't on their radar.

TQ moogoo is great. I like their hair stuff too - the protein conditioner is brilliant. I've ordered up some udderly smooth stuff for chemo but may treat myself to more moogoo too.

I'm finally being let out tomorrow. Tpn going off today . Hopefully in time to start chemo next week.

Tayto So sorry you've been in hospital for four weeks, that must have been ill. Max I've been in is a week with my daughter being premature and that left me wanting to smash my way out Glad you are getting out tomorrow. Thanks so much for the advise on bowel cancer - that's exactly what I've had and it seems crazy as bowel cancer is so common. I will kick myself a bit if it is but trouble is I had bladder, gynae and the rectal bleeding altogether so 3 different referrals needed and felt good to get two out of three referrals. Sorry to hear you are young, so much worse.

That's meant to say hell not ill.

Hello all

Sorry I’m a bit out of it at the moment. Pain and vomiting again so had to cancel my PET scan. I went to GP for pain meds and she took my temp. It was 38 so she called me an ambulance! I was admitted for antibiotics just in case but no sign of infection. Hopefully I’ll be allowed home. Just waiting for the oncology team to decide.

Tayto four weeks! you poor thing. You must be climbing the walls. I hope things settle down soon so you can get home

nicky I’m thinking of you. And waving to everyone but have worn myself out so I’m going to nod off again any minute!

So sorry to hear you are feeling so ill Leslie Just go to sleep if you can and look after yourself.

Sorry to hear you're so poorly Leslie ** hopefully you'll be home soon with your bunnies

Hi Leslie rubbish news . Hopefully you're on your way home now with pain relief that is working. Shame about the PET scan too - I'm guessing that might have shown up a potential cause of your pain? I hope you don't have to wait too long for another appointment.

Nicky how are things with you?
Tayto are you home now? I haven't had to worry about hair stuff for the last 10 months or so - what with not having any to speak of! But it is growing back now.

chemo #4 (in this round) today. Cannula went in at 2nd attempt so not too bad. I always sit on the sunny side of the train on the way back so I have an excuse for closing my eyes....

Hope the chemo went OK TQ and you aren't too bruised from the cannulas.

DH has gone away which makes my two hyper. As we're stuck in bought a blender for DD, she needed the same one as a boyband have one and so far today DD has blended 2 litres of ice cream, Nutella, waffles and about 3 packs of fruit. DS (11) got a toy lemur which he's named Amelia and is sleeping with.

TQ possibly, though I've had a stable CT scan since the pain started so if there's anything going on it must be tiny

Yay for chemo 4. And a nap on the train in the sunshine :)

penguins as long as Amelia doesn't make it into the blender... my sister had a thing about ring-tailed lemurs when she was younger. We saw a lovely family at a wildlife park. The babies are so cheeky!

Talk of Nutella and ice cream has reminded me of for Nutella ice cream. It's really easy to make if you can persuade DD to whip up a batch for you!

I am home. The oncology team were happy for me to leave. But I can't have chemo until I've seen my oncologist next week. I'm still quite drowsy and my back is aching so I've made myself a pillow nest

Glad you're home Leslie and hope you feel better soon. Thanks very much for the nutella recipe, that's exactly the sort of healthy eating we do here!

DH did say to tell the kids he had blended Amelia 😱 DS laughed but DD screamed I can't use the blender now as I'm vegetarian. DS is feeding red pandas on 11th.

Managed to get private doctor phone appointment for tomorrow at 11.20 hopefully to get tests privately. Its bad when you need your alarm to make sure you're awake by then. 😂 It wasn't 11.50am today. 😳

Hi all and thank you for your kind thoughts and wishes. Scan showed solid disease is stable so we’re taking that as a win and continued with cycle 4 chemo today. I have new anti sickness meds and the district nurse coming twice a week to drain ascites to keep that under control. It’s my birthday tomorrow so we’re having a family afternoon tea to celebrate in a low key fashion. Onwards! Hope your chemo went well today TQ and you discover a hidden Easter egg under a bed in the near future! Sorry to hear your PET scan was cancelled Leslie - I hope your pillow nest is comfy and that you’re back on track very soon. Big hugs. Blimey tayto you are a patient patient! I found once my bowels started remembering what they were for, everything slotted together quite quickly so I hope it’s the same for you and you’re home soon. mrsrhod no words of wisdom but fingers crossed it’s a temporary post op glitch. After my post-op scan they investigated putting in a ureteric stent as they were concerned some scar tissue was a bit close but it was nothing i’d noticed. Hope they can give you some answers. Good luck with private tests penguins; and watch out for the blender!
Birthday cake to you all xx

Happy Birthday Nicky 🎂🎈🎉

Have a lovely afternoon tea. Thanks for the cake, will keep it away from DD or it will be blended!

I hope you have a lovely birthday Nicky. Lots of tlc and R&R required for you today.

Happy birthday nicky enjoy your afternoon. And I hope you are feeling OK after yesterday's chemo. Stable sounds good :)

penguins I hope the phone appointment went well

Thanks Leslie told me to try not to worry but I need to be seen within 2 weeks and a specialist should call me back in next hour or so. He said if private can't do in two weeks try NHS but I've been trying NHS for ages though probably need to be more assertive.

How are you today?

Fingers crossed they can fit you in quickly

I'm alright thanks. The cramps and nausea are much better. Now I have this annoying griping pain over my whole abdomen

It's nice and sunny here. I sat out on my swing bench earlier. I hope you've got sunshine too :)

Sorry you're still in pain Leslie

Got a first consultation 9am Tuesday though 1 hour round M25 to get there in rush hour, DH will love that but I know he will want me seen quickly.

I'm glad you've got an appointment. What time will you have to leave to get there?! M25 is no fun, especially in rush hour.

I'm still quite uncomfortable, but I've just been to collect my glasses so I'm enjoying the novelty of being able to see the telly clearly

Not sure maybe 7am or 7.30am. I always pretend my eyesight is fine but I'm supposed to wear contacts. The only time it really bothers me is when I want to see animals in the wild.

At least if you're not driving you can sleep I suppose! :) how are you feeling today? You're brave wearing contacts. I couldn't do that.

Well. Not wearing them really. But you must've worn them at least once

Thanks for your birthday wishes everyone. I had a nice wheel along the seafront in the sun, a much-needed haircut and a lovely afternoon with my whole family. My sister made me a quiz book of my life with lots of questions supplied by people from school, work, uni and life in general which made for some good reminiscing and plucking facts from the chemo fog! Lovely. House looks like a florist. It was a good day. Leslie hope the abdominal pain has subsided a bit and you’re rocking your new specs. I love contact lenses but haven’t worn mine since Xmas as i’ve had no brows or lashes and I look less like a potato in my glasses! Hope your appt goes well penguins. How’s your bladder mrsrhod? Xx

Nicky So glad you had a lovely birthday and enjoy the flowers.

Leslie I'm OK thanks, slept until DH called at 12.30 to ask if he can come home later grrrumf!

How are you feeling today?

nicky that sounds like a lovely birthday. I'm glad the sun came out for you! :) the quiz is a fantastic idea.

penguins you obviously needed the sleep! Your poor body has been through so much lately. I hope he gets home before all the food in the house has been blended...

My temperature reached 38.5 during the night but no way was I going back to hospital. Thankfully it has gone back to normal. Bodies really are such a nuisance