Crack open the wine... it's CANCER SUPPORT THREAD 61!

[WhatWouldLeslieKnopeDo]

Some of us have been here a while and others have only just joined. If you're lurking, feel free to say hello. We are quite friendly really.

You are welcome to join us, whatever sort of cancer you have, or if you're waiting for tests to find out whether you have cancer or not (we hope not!)

Our previous thread is here. Do check it out if you're new as there's lots of useful information in the first few posts.

Best wishes to everyone who finds themselves here

Hi Mrs P, I don't think it would usually take 10 hours but it was my first session. It was booked for 6 hours but luckily folks on here warned me it would take longer. Reviewing my notes and failure to find a vein meant it was 2 hours before I started receiving the drugs.
The format for the drugs was around 1 hour iv pre meds, then 3 hour for the first drug and 1 hour for the second. As they also administer a flush between each one and then changed arms I can't see it ever being less than about 7-8 hours.

Obvious this will differ by person and the drugs you will receive but it's good to be prepared for a long day.

Mrspotter fab wig! the timing depends on the regime but the breast cancer ones seem to be shorter. As Swaying says, the first one is likely to be a bit longer.

Swaying I'm glad the chemo went OK. Good you've been able to sleep. Hopefully you will not get any other side effects :) I'm glad your yoga was helpful. I read the Cancer Whisperer and hated it but she has quite a keen following on Facebook.

wombat good luck at your appointment today

penguins I hope the private GP is helpful :)

I'm going out for coffee in a bit. It's about a ten minute walk to the cafe so I'm hoping not to embarrass myself with any coughing fits or other silliness

Hope you enjoyed your coffee Leslie! I started the day with Starbucks fruit toast !
Swaying, thanks for that - it's a long day! Silly question but do you wear your own clothes??? Is it a chair or a bed? Daft I know!!!

Thanks to everyone for the info - have also bought a hat to start getting people used to seeing me with head wear!
However while trying hats on (and tucking my hair up) my dd said - don't do that it looks like you have no hair
She still doesn't know, we'll tell them both when u have a definite treatment plan. Also got the tell them about cancelling the holiday 😿

Mrspotter you wear your own clothes, wear something that you're comfortable in. You'll be in a big room with other people getting chemo and there'll be plenty of chairs, if it's not too busy you might even get a reclining one. I LOVE that wig

Mrs P just wear comfy clothes and something with short sleeves as they need to get to your forearms. I took a large scarf to wrap around me.

When you go to the loo you have to take the drop with you, so easy to manage trousers are also good.

I understand totally about your daughter. We had to tell my boys we were cancelling a trip to Barbados, they had three days in Wales instead. They really didn't mind, they just want their mum to get better. Your daughter will be the same once the shock wears off.

Leslie I hope your walk and coffee was good. I have enjoyed some gardening this morning. It's interesting that you hated the Cancer Whisperer, I would have 6 months ago but something within me has changed, I've gone all zen, I'm even trying reiki next week

Hello all,

What amazing news Wombat, wishing you many more years of health and happiness!

I hope everyone with upcoming appointments and chemo find them as kind and easy as can be.

I still have no results, it's been over three weeks since my CA125 and everyone I've spoken to is telling me there are no results from the lab yet 🤷🏼‍♀️

Hopefully I will hear soon!

Duckland how frustrating! I hope you get your results soon

Mrspotter sorry about your holiday

Swaying I'm glad you've been able to do some gardening :)

I managed the walk to the coffee shop alright even chatting away. I was a bit out of breath but not as bad as I feared. It was lovely to get out. I'm resting now as I have my PET scan tomorrow. I'm not even allowed to knit booooooring!

Duckland that is odd. The only comment I would make is that my GP rang me the day after my test because the result was flagged. If no-one has contacted you I would tend to assume it's OK - unless it's been lost of course. Worth asking your GP if you need another one?

penguins I hope it all works out the way you want.

Mrsp I'm sorry to hear it's cancer, but glad you have a plan. Good luck with the chemo, and I LOVE the wig

Swaying thank you for the good wishes and good luck with the rest of your treatment

Leslie I'm glad you managed to get out and enjoyed it. You are truly amazing, especially the way you remember what stage we are all at, the support you offer and that you keep the threads going

Flippy and Duck Thank you also

I got the all clear today. The tumour is def benign and can be left alone. No further treatment necessary. I will be going back for routine appointments/scans re my lung cancer but not until Sept/Oct. I am currently cancer free.

Thank you everyone for your kind words and the support you have given over the past months. This thread is an amazing source of support and kindness when we have/are going through the worst, most scary times.
Even when I have not posted, I have read every post and felt the warmth.

I will continue to lurk and want you to know that I am sending positive thoughts to each and every one of you xxx

Wombats That's great news, the all clear, so happy for you.

Leslie Gald you could get out.

Swaying Hope you are feeling OK today, at least the first one is out of the way. Sorry about your holiday.

MrsP Sorry to hear about the cancer and holiday. Good luck with the chemo and wig.

Just had private GP, she's referred to hospital but said I should have gone via NHS.

New thread here

Apologies in advance for derailing the conversation (temporarily) - just need to vent to you all, since I know you will understand! What special brand of insensitivity leads people to tell you the worst story they've heard about someone's cancer recurrence when they know you've just completed a round of treatment??? This has happened to me twice in the past week! And even my trying to preempt this by saying - when I saw where the conversation was headed - "gosh, of course that is every cancer patient's worst nightmare" didn't stop them....

Hi genie people can be so spectacularly insensitive!

We have a new thread (link in the post above yours) so you'll get more replies if you post there as this one will not be on anyone's Threads I'm on anymore :)

Genie I am still shocked at the stupid things people are still saying to me so I do sympathise. I am SO fed up of hearing "You look so well!" I am not well at all.