Tamoxigang thread 49 when Sumer is y cumen in and we get out the Pimms

[Lilymaid]

New thread!

Was thinking about you really, things sound very positive. Here at last in sunny Mallorca (I am being good in the shade). We were delayed for three hours but got here eventually!

Hi wee I thought about you on Monday with the flight delays, glad you didn't have too long a delay. How are you feeling?

Morning.

CBB, they will re-use as many tattoo dots as they can. I only had to have a new dot on my side where the mx had been done. The surgery had obviously shifted its position. The dot in the middle of my sternum and the one on the other side were re-used.

wee, I'm honestly not in the least bit jealous of you...

I'm just waiting for today's blood results. Neutrophils started recovering yesterday and nearly made it into the safe zone. The doctor is optimistic today's results will mean I can get out of prison and go home this afternoon.

Just a quick dash in before sports day.

Zombie hope you get home today.
Really glad things are on the up.

Have just come back from hospital where I have been told there is a problem with my heart so won't be having Herceptin next week. The cardiology team now want to see me! Completely floored by this and panicking that if I don't get it what will happen....

What a shock speedy, hopefully they mean you won be getting the herceptin till after you've seen the cardiologists rather than not at all. Hope your appointment is soon, as we all know, it's the waiting thats the worst.

Quick question for those that have gone back to work please, how long did it take you to get back up to speed? I'm due to finish my rads in mid July - I'm a TA due back to work at the start of term in September. I thought I was due to be in a whole class but have just found out I'm working 1 to 1 with a very challenging child. It will only be part time but I'm worried it will be too tiring (problem is I much prefer whole class working so am not sure if that's clouding my judgement).

Thanks

I wish I could go back to work. I feel absolutely fine at the moment. How do I go about applying for work knowing that I have cancer? Who in their right mind would take me on?

I feel like I am hanging around waiting at the moment. It is not easy living with the uncertainty of it all. Although I am obviously glad to be feeling better.

I hope you click with your new charge Wine - or at least that you don't get attacked.

I hope your heart looks fine from a different angly Speedy. It must be worrying being told that there is a problem. It is good that the specialists are giving it attention.

Really - good to hear things are looking up.

Zombie - I hope the blood cells are bouncing back.

Well had my first Herceptin sub/cut yesterday and no SE's Don't know why I felt so nervous now.

speedy I had an ECG last week to check my heart function and luckily it came back normal. Apparently function has to be over 50% and mine was 68% not sure what it was pre-chemo as it wasn't checked then. Although classed as normal I do think it's a bit lower than I would have liked. Need to do more research

Hope you have been released today zombie

It's great to hear how positive you are Really and that you have your holiday to look forward to

speedy that must be worrying for you. Hopefully it is a postponement rather than anything else. It is really crappy what the treatment does to parts of our body which were functioning perfectly well before.
I am officially back at work today, although I have the luxury of having a role that I can do remotely and a fantastic employer who had removed all stressful tasks and is happy for me to do as much it as little on a daily basis as I see fit. That way, I am self certifying for the first week of every chemo and counted as working from home for the other two. I do realise how lucky I am to be in that position and certainly it wouldn't work for a challenging job such as yours wine, also I've given them a good 20 years of above and beyond so nice to get some payback. I could have signed off until January - my decision to carry on. Managed about 5 hours today.
zombie hope things are looking up for you - that is my biggest fear at the moment.
trice is there anything you could do from home, self employed? Extra burden you could do without.

sppedy gah, more worry. I hope it turns out ok.

trice what about some sort of temp or short contract work, you need not disclose anything then. My friend in a similar sit works in local cancer research shop and enjoys it .... He was a high flyer in the city before so a real change but he just likes the human interaction and the laughs.

really if you decide on more aggressive action on your liver there are loads of options. Prob not something you want to think about at the moment but if you do in the future there is cyberknife, ablation, and surgery if required. But I had to request it wasn't offered as a matter of course. But enjoy the summer and your holiday which sounds fab

I had chemo number 9 today .... All went fine.

Mummy - mine was only 45%. Apparently no one has 100% and am sure he said most people are around 65% so you are fine. I stupidly googled and at 40% you are classed as having heart disease, or that's how I read it! Am hoping I get an appointment quick to find out what's going on. Just really didn't need this.

Foo glad chemo went well today.

Zombie fingers crossed for that blood count.

Wine totally get where you are coming from about job. Do they think it will be easier for you as the one to one?! Maybe you can talk to head and see what their thinking is?

I. Am. HOME!!

Neutrophil count today is...

Oh, you probably don't want to know.

Are you sure?

All right then.

Neutrophil count today is 24.0. Yes, I said twenty-four point zero.

There is a cat on my lap. I will sleep in my own bed. All is right with the world.

Fab news zombie! That is some count!

Wonderful news Zombie

Speedy I don't know where I got 68% from it was in fact 63% as my DH pointed out. However I did read just today on the Macmillan forum that one ladies percentage went up while having Herceptine. Fingers crossed you get an appointment soon so that things aren't delayed too much.

Thank you mummy, I hope so too.

Great news Zombie.

I'm just popping in to say......my lumpectomy on Monday has been cancelled .

I have Graves Disease (overactive thyroid) and this has decided to act up after being level for three years, my T4 count is over 40 and its too dangerous for me to have the op in case I have a 'thyroid storm'.

We are pretty pissed off with the doctors surgery over this - they knew on the 6th of June I had breast cancer and had a op date and they also got my thyroid results the same day.
They sent me a generic 'make the next pre-bookable appointment' letter and when I rung I was given 26 June - surely my screen should have been flagged up or someone should have rung me to say come in as soon as?
A different doctor rang me on the 19th and said 'we need to see you tomorrow' which they did.
But thats 13 days wasted when I could have been having treatment to lower my thyroid level.

Ayway, rant over - bcn is going to ring me on Tuesday hopefully with a new op date for shortly after the 10 July (my next thyroid appt)

Great news zombie, I hope you're feeling better again today.

gemma I'm sorry to hear that, how frustrating for you. Are you now having treatment for your thyroid? I'm sure you just want to get this op out of the way as soon as possible and move on. I'm getting twitchy waiting for my next stage.

wine how are you doing on the tamoxifen now? I'm noticing a pattern of sweats around 6 each morning which have woken me but in time to fling the duvet off and avert the worst. Nothing in the day so far so maybe I'll be lucky. Are you still feeling sickly? When do your rads start, we'll probably overlap?

speedy how worrying or you and I appreciate you being scared about the treatment possibly having to change. Good luck with the cardiologists.

trice are you looking forward to the chaos next weekend or will you be avoiding it? I'm very excited, we're only about ten minutes from the finishing line although I doubt we will see a single bike with all the crowds.

Ah insomnia my old friend .....

Zombie glad you got released!

gemma cancelled ops are the worst, you get psyched up for them. I do hope thyroid etc gets sorted.

Nothing much to report from me.
I have been getting hot flushes but they don't really bother me too much.
Last day on steroids today so hopefully sleep will improve.

Aw Gemma that's just awful to have your op cancelled so near the date . My mastectomy is planned for this Wednesday,I couldn't bare the thought of that being cancelled. There's been so much to organise in the time leading up to the date and I feel like I'm ready to explode.
It all came to a bit of a head last night when we had a night without the kids at home with a perfect chance to 'get romantic' and I just couldn't get in the mood. My DH got cross and said :"Nothing's ever going to be the same after Wednesday is it,you're just going to use it as an excuse all the time".... We normally have a good sexlife on the whole I'd say,it just made me incredibly sad.
Maybe he's right,maybe nothing is ever going to be same after Wednesday,but I hadn't thought of it like that yet. I was of the mindset that yes,it's serious surgery,but I'm lucky in that they've found it really early. I will recover,live with the scars and move on. Maybe I was being too casual about it all.....
Sorry about the winge,feeling tearful and really quite needy right now

Oh Gemma I'm sorry to hear that, hope it gets sorted soon

Nelson hugs, I think your husbands being unreasonable. In a relationship you have times when things get in the way of a good sex life, children, illness or whatever. You can be close in other ways and you will get in back in time. We had a whole year off until we went away recently ( probably over sharing here! ) things won't be the same again but you will find a new normal.

nelson yes, I think your husband is being unreasonable too, but he is probably scared and worried too.

We abstained for a while after my op as DP was too scared of hurting me. Took a two to three months and things have changed, but not worse just a bit different.

Nelson I'm sorry to hear that and that you have, understandably, been so upset. It was a thoughtless thing to say and I hope he's kicking himself, but I agree that he's probably scared that you're having surgery, worried about you and how he feels about it all and angry that it's happening to you both.

I don't think you're being too casual either, you are dealing with it in your own way. I hope you're feeling better than this morning and have maybe talked to your DH.

If we're sharing DH and I managed it carefully three weeks after my op. You might come through this feeling every bit as positive as you were before last night and your DH will be a wise man if he follows your lead. Good luck on Wednesday.

Zombie as someone with a current neutrophil count of 0.1 I am very jealous of yours

Just popping in to say I may be out of contact for some time. I go in to King's tomorrow to start chemo for stem cell transplant on 9th July. I am scared witless, particularly after signing the consents where I was advised I had a 20/30% chance of not surviving the next 100 days and only a 50/50 chance of surviving 5 years.

Spent the weekend at home with ds which in hindsight was a mistake as all it did is remind us what we have both missed over the last 11 weeks I've been in hospital. I'm praying that everything will go well and I'll be home in 4 weeks. I hope the hospital wifi is better than the current place and I will be able to mumsnet whilst I'm there. Also hoping I'll be well enough to do so. The hospital room I'll be in is tiny so I'll need the distraction of being able to chat to people.

Hope everyone is enjoying a sunny Sunday.

Nelson sometimes our DH's say things before thinking because they are worried for us.
I hope everything goes well on Wednesday.

pickle, just want to wish you the very very best of luck. Fingers crossed for you that all goes well.

Nelson, give your DH a smack, or at least a dig in the ribs. Not easy to be in the mood with your surgery so near. Anxiety plays havoc with libido. If you had good sex life before, you will again. Best of luck on your upcoming mx.

Gemma, that's tough luck. Not the same at all, but I was upset about a one week delay in chemo which resulted in chemo during Christmas week. In my case, it all worked out to my advantage once it actually happened. Hopefully you will also have a silver lining.

I have a sleepover looming. 7 preteen girls will stay tomorrow night until Tue evening, with another 2 coming to play on Tues. They have all stayed before, and are lovely girls. But won't sleep until crazy o'clock. I must be mad.

And then we are off on hols to Languedoc on Fri - can't wait!!

My prayers are with you pickle wishing you all the very best with your transplant and hope you manage to keep in touch! If not we will look forward to hearing from you in 4 weeks Sending a BIG HUG and both hands to hold x